Hello Everyone....been awhile...Fang Fish here.....

Lisa13Q
Lisa13Q Member Posts: 677
in Ovarian Cancer #1
Well, it's been a year and 5 months since Mom got her wings and I'm doing ok. Not the same but ok. There isn't a day that goes by when I don't think about her, but it isn't quite as painful. I come here about twice a month and read the posts. I'm sorry to see the new people but smile when I see all those who were here for me. Kikz, LeesaG, CindyBear, Kayandok, Poopergirl, and all you others that would take me 5 sentences to mention. I don't feel like I really belong here anymore since I am not living with OVCA on a daily basis. I tried to get the White House involved in raising money and awareness for OVCA and have been turned down 3 times. Oh well. For those of you who don't know, my full name is Lisa Jack and if you google me you will see I am the photographer who has all the prints of President Obama as a young man. I never shared that as I was going through my experience as I wanted to be anonymous. Anyway, his mother passed from this disease, and I tried to use the photos for OVCA awareness to no avail. On a positive note, I received a clean bill of health from my doc at Mayo this summer. They were watching me very carefully because of the family history and they took my ovaries 6 weeks after my Mom was diagnosed, because my CA-125 was elevated. Well, my CA-125 is within normal limits and no issues.....fingers crossed. My onc told me that they just discovered an Ovarian genetic cluster.....they haven't identified the exact gene yet, but are well on their way. Apparently those who have this are more pre-disposed to ovarian, prostate, breast, pancreas.....she said "you don't have a prostate, or ovaries, we can screen for breast, and we pray you don't get pancreatic"......so go enjoy your life. I have to say I try, but I'm different since Mom.....I'm also struggling with my marriage these days....idk.......anyway, I wanted to say hello to everyone......I love you all.......and miss you......I pray for you all.......

Comments

  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #2
    Miss you so much
    Lisa. I think of you often hoping you are doing well.
    I am glad you are being proactive as far as cancer goes. I pray you never get any kind of it. Sorry you are having marriage. Issues and maybe they can be resolved. I have chemo until next Feb...a whole year and I am getting close to another remission. This week I got approved for SSDI and will not work anymore. I am very sad as I loved nursing so much. Thank you for visiting us,I am sure you will get a lot of responses from other ladies,we have a lot of new members. Take care,,glad you got a clean bill of health..God Bless you and your family..your Mom is never far from you...Val
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #3
    poopergirl14052 said:

    Miss you so much
    Lisa. I think of you often hoping you are doing well.
    I am glad you are being proactive as far as cancer goes. I pray you never get any kind of it. Sorry you are having marriage. Issues and maybe they can be resolved. I have chemo until next Feb...a whole year and I am getting close to another remission. This week I got approved for SSDI and will not work anymore. I am very sad as I loved nursing so much. Thank you for visiting us,I am sure you will get a lot of responses from other ladies,we have a lot of new members. Take care,,glad you got a clean bill of health..God Bless you and your family..your Mom is never far from you...Val

    Oh
    And you DO. Belong Here..please feel free to post!
  • Mwee
    Mwee Member Posts: 1,338
    #4
    So nice to hear from you
    And I agree you do belong here! I'm also glad that you are being proactive. Your info from the Mayo is extremely interesting to me. My mother had breast cancer, I, of course, have OVCA and my brother just passed away from pancreatic. I had the BRAC tests done and they came out negative.

    I lost my Mom many years ago and I can tell you that it took years for me to come back to myself. Take good care of yourself and know that you always have family here.
    (((((HUGS)))))). Maria
  • Cindy Bear
    Cindy Bear Member Posts: 569
    #5
    Lisa
    So happy to see you post. Missing you (of course you belong here!) Glad you're taking care of yourself, and bless you for trying to call attention to this horrid disease. I know what you mean, it's been a little over 3 yrs since I lost my mom, and I'm doing okay.. I'm not the same person that I was, but I'm doing okay. Hang in there, hope you can get things sorted out with your husband.. Love you too!
    Cindy
  • kikz
    kikz Member Posts: 1,345 Member
    #6
    Cindy Bear said:

    Lisa
    So happy to see you post. Missing you (of course you belong here!) Glad you're taking care of yourself, and bless you for trying to call attention to this horrid disease. I know what you mean, it's been a little over 3 yrs since I lost my mom, and I'm doing okay.. I'm not the same person that I was, but I'm doing okay. Hang in there, hope you can get things sorted out with your husband.. Love you too!
    Cindy

    So glad to hear from you, Lisa
    and like the others I feel you belong here too. You are part the "the club." Of course it isn't the greatest club but the members are the best. I am glad to hear you are in good health.

    I sometimes wish we had some kind of role call so we could keep track of everyone. We are a family here and it's scary when one of the family drops away. If it is because they are healthy and busy having fun I would still like to know.

    Karen
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #7
    kikz said:

    So glad to hear from you, Lisa
    and like the others I feel you belong here too. You are part the "the club." Of course it isn't the greatest club but the members are the best. I am glad to hear you are in good health.

    I sometimes wish we had some kind of role call so we could keep track of everyone. We are a family here and it's scary when one of the family drops away. If it is because they are healthy and busy having fun I would still like to know.

    Karen

    Hi Lisa
    Thanks so much for checking in with us, and as the other ladies have said, please feel free to post anytime. You'll forever be part of this group. I always loved your fang fish picture too, by the way.

    Sending prayers your way that you remain in good health always.

    Take care,

    Kelly
  • Mum2bellaandwilliam
    Mum2bellaandwilliam Member Posts: 412
    #8
    lovesanimals said:

    Hi Lisa
    Thanks so much for checking in with us, and as the other ladies have said, please feel free to post anytime. You'll forever be part of this group. I always loved your fang fish picture too, by the way.

    Sending prayers your way that you remain in good health always.

    Take care,

    Kelly

    Hi Lisa
    I feel I could almost of written your post! Mum died just before Xmas and like you, I still like to pop in and see how everyone is getting on, it was a huge part of my life, everyday I used to religiously log in and chirp on most of the posts! it's just such A shame to see all the new members and a lot less of the old ones :(
    Not a day goes by when I don't think about her some days are worse than others and it hurts to the core, the first few months I didn't seem to grieve to much, I think I did so much crying when she was diagnosed , but of late it has been difficult :(
    Take care , nice to. See you on here.
  • mopar
    mopar Member Posts: 1,972 Member
    #9
    GOOD TO HEAR FROM YOU!
    Glad that you are moving forward, even though you will ALWAYS miss your Mom. But sorry to hear that you are having marital troubles. Sometimes health issues put quite a strain on relationships. I'll pray that your marriage will experience healing and completeness!

    Yes, we always have the possibility 'hanging over our heads' that we could get A, B or C. But living one day at a time is all you can do. Be vigilant, pro-active, and hopeful.

    So sorry to hear that you weren't able to persuade anyone in Washington to get on the bandwagon for this terrible disease. Breast cancer has so much going on all year round - and NO disrespect to anyone. We lost a dear sister-in-law to breast cancer, and a few friends. But OVCA tends to get 'overlooked', despite the efforts of many of us here each September and throughout the year.

    Congratulations on your clean bill of health, Lisa! Stay strong, visit us again, and until then, sending lots of love, hugs & prayers to you!

    Monika
  • jepsj5
    jepsj5 Member Posts: 18
    #10
    :)
    Lisa, I think about you and the others often! It's been 6 months now since my mom got her wings. I miss her dearly. Today has been a very difficult day for me. I still have many sleepless nights. My prayers are with you and everyone else! Much love, Jessica :)
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #11
    jepsj5 said:

    :)
    Lisa, I think about you and the others often! It's been 6 months now since my mom got her wings. I miss her dearly. Today has been a very difficult day for me. I still have many sleepless nights. My prayers are with you and everyone else! Much love, Jessica :)

    HI Jessica
    It is indeed hard isn't it. Life is never the same I guess. Wow, the 6 months flew by...That first year was very tough, but I have many of her things around me and that brings me comfort. I noticed life got a little better after about 13 months....that seemed to be a turning point, from daily pain to thinking I can't keep being mopey....in fact, a friend wrote me a note that said, life will never be the same, but our Mom's wouldn't want us to be unhappy either, that's the legacy of Mom's.....I had to take sleeping pills for awhile afterward as well....I used to dream she was cured and would wake up confused.....thanks for checking in......nice to hear from you......i wish there were no new members....

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