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AMomNETN
AMomNETN Member Posts: 242
in Breast Cancer #1
Ladies,
I have news that will knock your socks off. My oncologist has been implicated in buying mis-labeled chemo drugs. These are drugs are not approved by the FDA an illegal. It didn't say the drugs were ineffective but misbranded. All my check ups have been fine for 2 yrs. now. Needless to say I'm looking for a new oncologist. This is really hard because if this group would do it who is to say others aren't or won't. My dr. was highly regarded in the cancer field. I've been sick over this.


Janie

Comments

  • jnl
    jnl Member Posts: 3,869 Member
    #2
    Your news did knock my socks
    Your news did knock my socks off! How scary! Just so happy that for 2 years you've been fine. I hope you find a fantastic new oncologist soon!

    I wonder why he was buying them though. Could he have been trying to help a cancer patient, but, not waiting for FDA approval? Guess I am trying to give him the benefit of the doubt.


    Hugs, Leeza
  • AMomNETN
    AMomNETN Member Posts: 242
    #3
    jnl said:

    Your news did knock my socks
    Your news did knock my socks off! How scary! Just so happy that for 2 years you've been fine. I hope you find a fantastic new oncologist soon!

    I wonder why he was buying them though. Could he have been trying to help a cancer patient, but, not waiting for FDA approval? Guess I am trying to give him the benefit of the doubt.


    Hugs, Leeza

    Approved
    Leeza,
    These drugs were already approved by FDA but it is illegal to buy them from anywhere but US operated companies. These drugs were bought from a Canadian company. The problem seems to be that if not bought in US then you don't know if you are getting the correct stuff. I'm heart broken over it all and I can't in good conscience continue to go there to any of the drs.

    Janie
  • tufi000
    tufi000 Member Posts: 745 Member
    #4
    AMomNETN said:

    Approved
    Leeza,
    These drugs were already approved by FDA but it is illegal to buy them from anywhere but US operated companies. These drugs were bought from a Canadian company. The problem seems to be that if not bought in US then you don't know if you are getting the correct stuff. I'm heart broken over it all and I can't in good conscience continue to go there to any of the drs.

    Janie

    Could be...
    There has been a huge problem obtaining these drugs this year especially. Many young leukemia patients here were being turned away at some of the hospitals when coming for chemo. This may have been his only source for these drugs. obviously the problem lies with big business trying to use patients to blackmail the system being used to manufacture and market the meds. So your doc may be a hero.
  • New Flower
    New Flower Member Posts: 4,294
    #5
    tufi000 said:

    Could be...
    There has been a huge problem obtaining these drugs this year especially. Many young leukemia patients here were being turned away at some of the hospitals when coming for chemo. This may have been his only source for these drugs. obviously the problem lies with big business trying to use patients to blackmail the system being used to manufacture and market the meds. So your doc may be a hero.

    Sorry, however I have heard similar story
    It is not the first time here on this board. At least twice as far as I recall.
    Sorry that you shocked and have to look for a new oncologist
    Congratulations on two years with NED
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #6
    AMomNETN said:

    Approved
    Leeza,
    These drugs were already approved by FDA but it is illegal to buy them from anywhere but US operated companies. These drugs were bought from a Canadian company. The problem seems to be that if not bought in US then you don't know if you are getting the correct stuff. I'm heart broken over it all and I can't in good conscience continue to go there to any of the drs.

    Janie

    I'm heart broken over it
    I'm heart broken over it because of how you feel now. I can understand how you want to find a new onco, I would too. I am so very sorry this happened.

    Hugs, Debby
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #7
    DebbyM said:

    I'm heart broken over it
    I'm heart broken over it because of how you feel now. I can understand how you want to find a new onco, I would too. I am so very sorry this happened.

    Hugs, Debby

    Horrible .. Sad .. and Unbelievable
    Like Olga has stated .. this is not the first time this subject has been brought
    forward on our board -- I am appalled and shocked, each and every time by the
    news. I overwhelmed for all the patients questioning the chemo given to them during
    their cancer fight, and did they get the best possible medication/treatment as
    promised.


    Hap Hap Happy dance for you .. and 2 years of dancing with NED.

    Strength, Courage and HOPE for a Cure.

    Vicki Sam
  • Kristin N
    Kristin N Member Posts: 1,968 Member
    #8
    AMomNETN said:

    Approved
    Leeza,
    These drugs were already approved by FDA but it is illegal to buy them from anywhere but US operated companies. These drugs were bought from a Canadian company. The problem seems to be that if not bought in US then you don't know if you are getting the correct stuff. I'm heart broken over it all and I can't in good conscience continue to go there to any of the drs.

    Janie

    This post is right up to
    This post is right up to date with what is going on now with the steroids that people got for back pain and they were bought in the US.
  • CHERYL 4
    CHERYL 4 Member Posts: 75 Member
    #9
    tufi000 said:

    Could be...
    There has been a huge problem obtaining these drugs this year especially. Many young leukemia patients here were being turned away at some of the hospitals when coming for chemo. This may have been his only source for these drugs. obviously the problem lies with big business trying to use patients to blackmail the system being used to manufacture and market the meds. So your doc may be a hero.

    i miss u tufi good to see u

    i miss u tufi good to see u
  • CHERYL 4
    CHERYL 4 Member Posts: 75 Member
    #10
    tufi000 said:

    Could be...
    There has been a huge problem obtaining these drugs this year especially. Many young leukemia patients here were being turned away at some of the hospitals when coming for chemo. This may have been his only source for these drugs. obviously the problem lies with big business trying to use patients to blackmail the system being used to manufacture and market the meds. So your doc may be a hero.

    i miss u tufi good to see u

    i miss u tufi good to see u
  • CHERYL 4
    CHERYL 4 Member Posts: 75 Member
    #11
    tufi000 said:

    Could be...
    There has been a huge problem obtaining these drugs this year especially. Many young leukemia patients here were being turned away at some of the hospitals when coming for chemo. This may have been his only source for these drugs. obviously the problem lies with big business trying to use patients to blackmail the system being used to manufacture and market the meds. So your doc may be a hero.

    i miss u tufi good to see u

    i miss u tufi good to see u
  • CHERYL 4
    CHERYL 4 Member Posts: 75 Member
    #12
    tufi000 said:

    Could be...
    There has been a huge problem obtaining these drugs this year especially. Many young leukemia patients here were being turned away at some of the hospitals when coming for chemo. This may have been his only source for these drugs. obviously the problem lies with big business trying to use patients to blackmail the system being used to manufacture and market the meds. So your doc may be a hero.

    tufi
    i miss u tufi good to see u
  • tufi000
    tufi000 Member Posts: 745 Member
    #13
    CHERYL 4 said:

    i miss u tufi good to see u

    i miss u tufi good to see u

    Oh HO!
    yeh same here but I just can't go there. Hope you are good. Re-friend me on FB we can message even if I don't post there anymore.
    I DO love ya Ho

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