Pet scan results not so good, it may be time to fight again
In truth I'm very anxious,sad,afraid,mad,determined,tired. I was really hoping to be finished and continue to heal up and figure out my new normal .
I wondering can this be beat of am i screwed? I have read that when it spreads the lungs the prognosses is not very good. I know you guys can't answer wether or not I will do well.
I went to the lung cancer forum and did some reading, scary stuff.
i just had to let you guys know, you all feel like family to me.
Comments
-
best wishes
for a veteran warrior such as yourself, mad and determined are good. the tired, sad...will pass, and you'll turn that mad/determined back into fight.
you can beat it!
p.s. might be a good idea to stay away from scary stuff on the lung cancer forums.0 -
I havven't had mine yet but
I havven't had mine yet but they warned me about hot spots, they said if there was any infection or inflammation it could show up. So until we hear otherwise, I am thinking positive that it is nothing. Try to stay positive and I will be praying for you.0 -
Oh Nick....I am so sorry.....dammit....
We just got thru this battle...of course you're anxious, sad, afraid, mad, determined and tired....WTH, we're just babies in the recovery aspect. Here's what I'd be telling myself...that this is the first PET after treatment (the PET that can easily have false positives)...that many things light up, I know that there can spots in the lung that are NOT cancer...I'd be clinging to "it's not cancer till somebody says it is!!"...I'm tucking you into my pocket now, get some of those prayers and positive Mojo going early...
If I have it my way, nobody from our bus is getting back on any buses....
p0 -
Nick,, so sorry to hear
Nick,, so sorry to hear that....we are all here for you, and will be praying it was a nothing hotspot.
Jim0 -
My Favorite Saying
I picked it up from this site -- It ain't cancer til they say it's cancer.
I have been wondering how you were doing. You and my husband have same diagnosis and I think same treatment, you're about 20 years younger though. I remember reading your posts and being impressed how well you were doing.
Prayers for no cancer and prayers for strength and healing. You've still got a lot of fight in you. Just reach down deep and grab it.
Deb0 -
to address the question you directly asked Nick
your primary was HPV 16 positive. If you have an isolated lung metastasis, you still have a chance of cure. All you can do is put one foot in front of the other and keep a positive attitude. Best of fortune to you, my friend.
Pat0 -
Hoping for False Positives
Hope you're in the majority here - seems like (thank goodness) the majority of folks here who have suspicious spots in/on lungs turn out to NOT have cancer there. Wish I could tell you what to do for the next week (more than a week - do you know when you'll get results?) to keep you from losing your mind.0 -
Pam, my once said it takesPam M said:Hoping for False Positives
Hope you're in the majority here - seems like (thank goodness) the majority of folks here who have suspicious spots in/on lungs turn out to NOT have cancer there. Wish I could tell you what to do for the next week (more than a week - do you know when you'll get results?) to keep you from losing your mind.
Pam, my onco said it takes 48 hours for results since it's on a Thursday, i imagine I find out the following monday.
And I know it's not C until they say s but dang if the thoughts are running throughout my mind, i trying super hard to be positive and enjoy every minute i can with my family and "grab happy" (one of the members here said that....Great saying).0 -
Hi Nick...nick770 said:Pam, my once said it takes
Pam, my onco said it takes 48 hours for results since it's on a Thursday, i imagine I find out the following monday.
And I know it's not C until they say s but dang if the thoughts are running throughout my mind, i trying super hard to be positive and enjoy every minute i can with my family and "grab happy" (one of the members here said that....Great saying).
I wish there was something magical here I could say to make you not worry...the fear and stress from what your PET/CT revealed is so normal. When I scan thru the posts on this board and recalling what all I have seen and read, so many were falst positives. And with HPV+ 16 you do have an opportunity for cure (note the word cure) IF it even is cancer.
I consider you and all the others family on this site...I know it does not help you not be worried / afraid / angery or sad. I just hate you have to go several days with your mind racing ..stay busy my friend, do some things with your family...but I know easier said than done to get this out of your mind.
I only have prayer to offer other than I care, so hang in there and just keep pushing forward ....
I did not just whisper a prayer before I hit the post comment button, I stopped, bowed my head and asked the good Lord to give you a clean biopsy.
Best,
Tim
Now I hit post comment0 -
Thanks Tim, I'll take yourTim6003 said:Hi Nick...
I wish there was something magical here I could say to make you not worry...the fear and stress from what your PET/CT revealed is so normal. When I scan thru the posts on this board and recalling what all I have seen and read, so many were falst positives. And with HPV+ 16 you do have an opportunity for cure (note the word cure) IF it even is cancer.
I consider you and all the others family on this site...I know it does not help you not be worried / afraid / angery or sad. I just hate you have to go several days with your mind racing ..stay busy my friend, do some things with your family...but I know easier said than done to get this out of your mind.
I only have prayer to offer other than I care, so hang in there and just keep pushing forward ....
I did not just whisper a prayer before I hit the post comment button, I stopped, bowed my head and asked the good Lord to give you a clean biopsy.
Best,
Tim
Now I hit post comment
Thanks Tim, I'll take your advice and try to stay busy....i spent most of the last two days in bed like a lump on the log. Tomorrow I'll make it a point to get up and get out. Thanks for your prayers.0 -
Dear NickTim6003 said:Hi Nick...
I wish there was something magical here I could say to make you not worry...the fear and stress from what your PET/CT revealed is so normal. When I scan thru the posts on this board and recalling what all I have seen and read, so many were falst positives. And with HPV+ 16 you do have an opportunity for cure (note the word cure) IF it even is cancer.
I consider you and all the others family on this site...I know it does not help you not be worried / afraid / angery or sad. I just hate you have to go several days with your mind racing ..stay busy my friend, do some things with your family...but I know easier said than done to get this out of your mind.
I only have prayer to offer other than I care, so hang in there and just keep pushing forward ....
I did not just whisper a prayer before I hit the post comment button, I stopped, bowed my head and asked the good Lord to give you a clean biopsy.
Best,
Tim
Now I hit post comment
Sending positive thoughts and prayers...0 -
NICK
Remember you don't have lung cancer you probably still have the original that is mets. It is not horrible news but a set back. Many people were successful beating with more chemo and it was not as bad as having the rads with chemo. So pull yourself up and you can beat this. Good luck! My husbands spread to the liver which was his demise, but that is not you!!0 -
Faith.carolinagirl67 said:NICK
Remember you don't have lung cancer you probably still have the original that is mets. It is not horrible news but a set back. Many people were successful beating with more chemo and it was not as bad as having the rads with chemo. So pull yourself up and you can beat this. Good luck! My husbands spread to the liver which was his demise, but that is not you!!
Stay true to your faith Nick and believe that its not what
you think. The mind is a very powerful thing. It must be
hard but stay positive, as the posts say it ain't C until they
say it is.
God bless
Tonsil dad,
Dan.0 -
Nickcarolinagirl67 said:NICK
Remember you don't have lung cancer you probably still have the original that is mets. It is not horrible news but a set back. Many people were successful beating with more chemo and it was not as bad as having the rads with chemo. So pull yourself up and you can beat this. Good luck! My husbands spread to the liver which was his demise, but that is not you!!
Don't ever assume something about tests. Wait until you get the actual results and then move like heck to get it cured. You can do this! Stay focused on your fight and we are all behind you.
All the best
Steve0
Keep hanging in there...
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.8K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 397 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 671 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 237 Multiple Myeloma
- 7.1K Ovarian Cancer
- 61 Pancreatic Cancer
- 487 Peritoneal Cancer
- 5.5K Prostate Cancer
- 1.2K Rare and Other Cancers
- 539 Sarcoma
- 730 Skin Cancer
- 653 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards