found 3 spots in this mornings pet scan
pete43lost_at_sea
Member Posts: 3,900 Member
its been 6 months since the last pet.
3 very small spots one liver, one lung and one spleen.
no feedback from onc's yet, i had the results faxed to my alt gp.
feeling great, i am alive and have a few challenges. possibly more than i bargained for, but it could have been worse.
for the record i have no regrets about my treatments so far, and i look forward to seeing what marvels the conventional system has to offer.
I wish the gcmaf and the seacucumber would have done it, they may help, time will tell.
i have put my alternative accomodation for cancer patients on hold as well as my teaching others qigong. looking at what is the best strategy. when i get my options presented, i will share my plan. until then its off to sleep.
I wish I had better news to share.
i wish the alternatives i have tried so passionately could have delivered a better result, for me , for others, but the race is not over, and the healthy life has been fun and exciting and the next stage of the adventure continues. I will see my three teams of onc next week to see who offers the cheapest price chemo, still favouring the light chemo approach, but i will take all recommendations into consideration before deciding.
i bought a bunch of flowers home to wife, finished work 10.30pm, a big day pet 8am and non stop except for 90 minutes qigong. it really settled my nerves. I gave my son the flowers to give to mum, i like teaching him how to be a gentleman. thats my job. my wife was all smiles. she made me my veg juice when i got home and my organic chicken and veg was waiting for me. i am off vegan and onto ketogenic diet.
my friends many of you have been down this path before, and now so do i. your thoughts and support are always appreciated.
hugs,
Pete
ps not the easiest post to write.
pps http://petertrayhurn.blogspot.com.au/2012/09/8am-pet-today-little-did-i-know-hat-it.html
ppps smile, i am, if my gcmaf and sea cucumber smoothie did not kill me then what chance do a few spots have.
3 very small spots one liver, one lung and one spleen.
no feedback from onc's yet, i had the results faxed to my alt gp.
feeling great, i am alive and have a few challenges. possibly more than i bargained for, but it could have been worse.
for the record i have no regrets about my treatments so far, and i look forward to seeing what marvels the conventional system has to offer.
I wish the gcmaf and the seacucumber would have done it, they may help, time will tell.
i have put my alternative accomodation for cancer patients on hold as well as my teaching others qigong. looking at what is the best strategy. when i get my options presented, i will share my plan. until then its off to sleep.
I wish I had better news to share.
i wish the alternatives i have tried so passionately could have delivered a better result, for me , for others, but the race is not over, and the healthy life has been fun and exciting and the next stage of the adventure continues. I will see my three teams of onc next week to see who offers the cheapest price chemo, still favouring the light chemo approach, but i will take all recommendations into consideration before deciding.
i bought a bunch of flowers home to wife, finished work 10.30pm, a big day pet 8am and non stop except for 90 minutes qigong. it really settled my nerves. I gave my son the flowers to give to mum, i like teaching him how to be a gentleman. thats my job. my wife was all smiles. she made me my veg juice when i got home and my organic chicken and veg was waiting for me. i am off vegan and onto ketogenic diet.
my friends many of you have been down this path before, and now so do i. your thoughts and support are always appreciated.
hugs,
Pete
ps not the easiest post to write.
pps http://petertrayhurn.blogspot.com.au/2012/09/8am-pet-today-little-did-i-know-hat-it.html
ppps smile, i am, if my gcmaf and sea cucumber smoothie did not kill me then what chance do a few spots have.
0
Comments
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Hey Pete
I'm sorry for your recurrence, Pete...that's always where the really tough battles are fought and waged.
I know you have banked alot of energies in your alt treatments...I'm sorry you did not find what you were seeking...
Perhaps, the convergence of the worlds with integrative treatment combined with the traditional western approach will put you back into another clear state.
I hope so.
-Craig0 -
But... Is it cancer or don't know yet?Sundanceh said:Hey Pete
I'm sorry for your recurrence, Pete...that's always where the really tough battles are fought and waged.
I know you have banked alot of energies in your alt treatments...I'm sorry you did not find what you were seeking...
Perhaps, the convergence of the worlds with integrative treatment combined with the traditional western approach will put you back into another clear state.
I hope so.
-Craig
Hope the best my friend, keep us informed please about your onc feedback!
Hugs my friend will pray for u!0 -
Pete
Not the news my husband and I were hoping for.
You have tried everything possible to keep this
monster from coming back.
I agree with Craig to try integrative treatment combined with
traditional western approach.
Keep on fighting.
Wishing you the best always
Many Hugs Linda0 -
Not what we wanted to hear
Pete,
You have put lots of thought, time and energy into your treatment plan and I know you will continue to do so as you move forward and address those three mets. I am praying that all are operable. I had 5 mets all over my liver and had them all surgically addressed. We have lots of people on this board who have successfully treated lung mets and I know I have read of another that had a spleen met removed.
We are all pulling for you Pete. I am glad that you are able to concentrate on your family and enjoy time with them while you are kicking cancer's butt at the same time.
Love to you,
Amy0 -
Pete
Pete, I have to just bet that this has been a hard day for you with unwanted news about your scan. You have been very proactive in your battle with this beast. So Sorry to hear about the spots especially in the diverse locations!! However, as you said if the sea cucumber did not do you in then what chance do a few spots have?? Please accept prayers of strength and healing...Art0 -
I've been following your posts
Pete - a 'Jersey' girl here - I've been following many posts on this site, yours in particular. Saw your post eastern time early this a.m. and was anxious for you...just came back to 'check on you' and am sorry for the news...but you're on your way to a new plan - one of which I look forward to reading about!
One of my best friends was dx in November 2011 with stage 2....resection done in December and now mets to liver discovered in June...2 lesions....she does her last of 4 treatments monday then off to surgery in a month. I have been trying to locate 2behealed by sending message to her, but no response....is there anyway I can get in touch with her??
Pete - will be sending positive thoughts and prayers to you and everyone on this site.
Peace
P0 -
Hi Pete
Like Pepe asked, are the spots confirmed as cancer? Will they be biopsied? It's possible they might be something else...I too have spots in my lungs but the Dr seem to think it's some sort of scarring and though they can be seen on a CT, they didn't light up on the PET.
Before you get too upset/discouraged, let's find out what they are first.
And if it's cancer, we are all HERE for you, and will help in our diverse ways.
Hugs~
Tommycat0 -
I am so sorry about your perMaxiecat said:(((hugs))) Pete...I hope you
(((hugs))) Pete...I hope you get the answers you need about your spots and a treatment plan that works for you.
Alex
I am so sorry about your per scan results. You have a great attitude and are an insiration to us all!0 -
dearest walking pepepepebcn said:But... Is it cancer or don't know yet?
Hope the best my friend, keep us informed please about your onc feedback!
Hugs my friend will pray for u!
alas, if it looks like poo, if it smells like poo and if it tastes like poo, well i think we know what it is.
we are poo experts here, thats our claim to fame.
so with rising cea, so if it lights up the pet, if those spots suck up sugar, the report seemed conclusive , but i will wait and get the offical take on it. never read a pet report before with anything but the word clear before.
i will reply to everyones kind comments in the morning, goto slurp down another seaslug smoothie. I am praying more today as well, prayed a bit during the pet. have alook at skinny pete on the pet machine.
at last the game of hide and seek is over. and the next game can continue.
hugs,
Pete0 -
Scan
Sorry that your news isn't better on your scan but maybe you should wait for the doctor's comments on it. Wishing you the best outcome and keep your spirit up. You always have a great attitude.
Kim0 -
Dear Pete
I am sorry about the PET results.
As you consult with your teams, please also ask about surgical options. While lung and liver surgeries are sometimes iffy depending on location, I would imagine you could do just fine without your spleen.
By the way, just to show how unique you are, I went looking up crc mets to spleen on the net. In a paper from 2006 there were only 14 documented cases. While the paper was 6 years old, it did highlight how rare that is.
My prayers and best wishes for you in getting a treatment plan which stops this in its tracks.
Hugs,
Marie who loves kitties0 -
PeteAnnabelle41415 said:Scan
Sorry that your news isn't better on your scan but maybe you should wait for the doctor's comments on it. Wishing you the best outcome and keep your spirit up. You always have a great attitude.
Kim
Probably a good time to get the PET done. If it is cancer, then 3 spots are "very" small. Seems like all 3 could be surgically removed......well not even that drastic. Lung and liver could maybe be ablated......spleen....maybe cut that one out. While it's never the news we want to hear, it could be a lot worse, because I still believe that all that you have done has been most beneficial.
Please don't feel disheartened or thinking that all you have done has been for nothing. That is just NOT true. ALL of your research can only HELP in going forward. NO QUESTION ABOUT IT. I am so proud of you for pushing the boundaries. If we just rely on one way of doing things, what does that accomplish? I know there are answers to this crap, and I wish more funding could go to the real thinkers, the sort of mad-thinking that gets to the root cause. In everything there is trial and error. I greatly appreciate anyone who continues working on real treatments and a cure. It's too bad that they need bodyguards and have to fight their endeavors in a court of law.
Ha - anyway, i have been getting increasingly p@issed off at the red tape......can you tell?
Pulling for ya, Pete, and everyone here.
p.s. been reading bits and pieces of Suzanne Somers latest book .... I think it's called Knockout. Very interesting....her interviews with several doctors. (The title of the book doesn't sound too scientific....but it's very informative.)
There ARE doctors making a difference. We need more of that thinking and persistence. Just need to cut the obstacles that they have to go thru.0 -
PeteLovekitties said:Dear Pete
I am sorry about the PET results.
As you consult with your teams, please also ask about surgical options. While lung and liver surgeries are sometimes iffy depending on location, I would imagine you could do just fine without your spleen.
By the way, just to show how unique you are, I went looking up crc mets to spleen on the net. In a paper from 2006 there were only 14 documented cases. While the paper was 6 years old, it did highlight how rare that is.
My prayers and best wishes for you in getting a treatment plan which stops this in its tracks.
Hugs,
Marie who loves kitties
Do not get discouraged. You are our "true pioneer" here, remember. Who's to say that your many alternatives didn't slow this thing down. It's just a truly nasty beast.
Just hoping the docs will have a great plan in mind for you. You can do it.
Will be waiting for your update.
Luv,
Wolfen0 -
Pete,wolfen said:Pete
Do not get discouraged. You are our "true pioneer" here, remember. Who's to say that your many alternatives didn't slow this thing down. It's just a truly nasty beast.
Just hoping the docs will have a great plan in mind for you. You can do it.
Will be waiting for your update.
Luv,
Wolfen
News like this always
Pete,
News like this always takes our breath away for a bit. The best advice I have received on this cancer journey came from a tech helping with one of my scans. She said "Take a day to be upset and then get proactive.". You live this and will do it again. My prayers for NED to be arrived at again soon. Although I am not one of the "alternative people", you have helped widen the lens through which I view treatment. I admire Your commitment to the journey.
God Bless
Cathleen Mary0 -
I am going to go with Wolfen's thought...wolfen said:Pete
Do not get discouraged. You are our "true pioneer" here, remember. Who's to say that your many alternatives didn't slow this thing down. It's just a truly nasty beast.
Just hoping the docs will have a great plan in mind for you. You can do it.
Will be waiting for your update.
Luv,
Wolfen
maybe it would have been a lot worse without your alternatives. And I hope that your docs can come up with a great plan, hopefully with a focus on surgery. Many hugs coming your way from Seattle~Ann Alexandria0 -
Pete
Well, game time again. Here's to your onc coming up with a successful plan (hoping mine does too)so you can continue raising your beautiful children. Cancer does indeed suck. On to the next round.
Winter Marie0
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