My cancer is back - Cyber Knife is the new treatment

2

Comments

  • sonyk728
    sonyk728 Member Posts: 124
    CivilMatt said:

    lots of prayers for you
    Hi Sonja,

    I am sorry to hear your news, this crap nobody deserves. I have read good things about the Cyber Knife and hope you have the best of luck. They can really pinpoint the area they are after, so you should have excellent results. Give your wonderful family a hug and we will all pray for a good outcome.

    There is plenty of NED’s to go around

    Best,

    Matt

    Thanks!
    Thanks so much for your kind words and hugs for my family! Today is our 15th wedding anniversary :-) I really appreciate your prayers!
  • sonyk728
    sonyk728 Member Posts: 124

    Erbitux
    Sorry to hear it's back. No experience with cyber knife, but I was treated with Erbitux. Erbitux is no big deal: A little nausea,controlled with meds. Was able to eat throughout the treatment. Rick.

    Thanks Rick!
    Love your Goldie by the way! Let's hope this Cyber Knife thing works out. But good to know about Erbitux - seems sort of light. Appreciate it!
  • sonyk728
    sonyk728 Member Posts: 124

    Cyberknife
    Sonja,
    Hey girl, hang in there ! I haven't had experience yet with this procedure....but have heard wonderful things from other survivors that have under gone this. I am so sorry this has been such a long journey for you. Please keep us informed and as always Sonja, you will be in my thoughts and prayers. You are one tough cookie, and will come through this just fine ! Katie (what hospital as I'm in Mn. also !)

    Thanks Katie!
    I appreciate the private message you sent. I hope it all works out with your family, there's too many dealing with this!
  • sonyk728
    sonyk728 Member Posts: 124

    Sad News
    Oh Sonia,

    I'm sorry you got some bad news recently but I must commend you for having such a caring and positive attitude. Congratulating others for their NED status is remarkable.

    With such a cool name like a Cyber Knife, it has to work good and it will on you. May this be the last of it for you forever. You've been through enough already.

    BTW, love that hair!

    Tom

    Thanks Tom!
    I appreciate your caring words. As for the hair, it's growing out now, my wig barely fits.
  • sonyk728
    sonyk728 Member Posts: 124

    bless you and your family.
    bless you and your family. we're pulling for you. stay strong!

    Thanks!
    I appreciate the kind words! I need them!
  • sonyk728
    sonyk728 Member Posts: 124

    Well, dammit.....
    I am so sorry, your scan came back with this result. Your attitude is superb, tho...Everything I've heard about the cyberknife is excellent...so "space age", considering the actual treatments aren't dragged out for months...and no chemo. Maybe this futuristic cyber knife is what you've been waiting for..they'll get this tumor and NED's for you, from now on!....

    Hugs to you Sonja....you are an amazing girl....and someone I look up to.

    p

    Thanks Phrannie!
    Everyone says I have such a great attitude and that amazes me. I can't wait to be NED again. Hope you are doing well too!
  • sonyk728
    sonyk728 Member Posts: 124
    Grandmax4 said:

    Will be
    waiting to read your NED when this is over for you~~~just another little bump in the road, take care and hug & kiss those sweet faces every day!

    Thanks Grandmax4!
    I see you have at least 3 sweet faces to kiss from your picture and I love my mine too! Yet another bump in the road - kinda like all the potholes in MN after our horrendous winters. GRRRRRRR. Take care!
  • sonyk728
    sonyk728 Member Posts: 124
    Skiffin16 said:

    Dang Girl...
    Dang Sonja, you guys need and deserve a break....

    I've heard good things concerning CyberKnife as well.

    Feeling terrible about hearing that news from you.

    Stay strong, believe and know that miracles are all around us.

    Thoughts, prayers, miracles, hopes and dreams.
    John

    Thanks John!
    You are a rock star!
  • sonyk728
    sonyk728 Member Posts: 124
    osmotar said:

    Thoughts and Blessing
    Sorry to read about the recurrence...@#!%!^!$^ to that damn cancer.

    Linda

    Thanks Linda!
    Totally agree @#!%!^!$^ to that damn cancer.
  • sonyk728
    sonyk728 Member Posts: 124
    meaganb said:

    Sonja, I don't know anything
    Sonja, I don't know anything about cyber knife but just wanted to tell you that I will be praying for you. I got my diagnosis in March and went through radiation. I'm only 27 and have a 1 year old daughter. My greatest fear is not being able to watch her grow up. You have such an amazing attitude. Will be praying for peace and that the cyber knife gets that stupid cancer for good!!

    Young mom
    Thanks Meagan. It breaks my heart that you are even younger with me, with even a younger child. I hope you survived radiation ok. I have that fear too about my little girl but I will pray for you too! Message me if you want. Best to you!
  • sonyk728
    sonyk728 Member Posts: 124
    patricke said:

    Hoping for future NEDS
    Hey sonyk728, I am very sorry to hear about your news, but from what you say, the knife sounds promising. I have no experience with the knife, but I want you to know that my most positive thoughts and wishes are with you for a most successful outcome, and many NED reports for the future.

    PATRICK

    Thanks Patrick!
    So many people have said they don't have experience with Cyber Knife but they have reached out with good thoughts anyway. I really appreciate it!
  • sonyk728
    sonyk728 Member Posts: 124
    Crazymom said:

    cyber knife
    prayers your way. You have to keep fighting for those kids. Just curious, where was your original tumor and what was the stage?

    Ann

    Thanks Ann!
    Primary was floor of mouth, Stage 4 (it was actually on the inside of my right jaw but that's how they classified it). For all the disgusting details check out my profile or message me.
  • sonyk728
    sonyk728 Member Posts: 124
    Ingrid K said:

    you can do it !
    Hi sweetie,

    I don't know anything about Cyberknife, but I do know from reading all your posts that you are one strong gal and can beat the crap out of this effin cancer this time for sure.

    Keep up the great attitude -- it will serve you well on your journey.
    Sending prayers and cyber hugs your way.

    Thanks Ingrid!
    Love your doggy in your profile picture! I appreciate your encouragement!
  • sonyk728
    sonyk728 Member Posts: 124
    D Lewis said:

    So very sorry to hear your news.
    Fight on, Sonja. You are one tough cookie, and now you're going to be armed with a cyber knife. You WILL beat this thing.

    Deb

    Thanks Deb!
    I really appreciate your encouragement!
  • sonyk728
    sonyk728 Member Posts: 124

    OK
    I am sure you'll be alright .....

    your mind is strong.

    cheers,
    Neo

    Thanks Neo!
    I appreciate the short but sweet message!
  • sonyk728
    sonyk728 Member Posts: 124
    ditto1 said:

    I agree with
    all the trashing of this crap called cancer, thanks for letting me Shout that one out, we fight and fight, our bodies are beat to heck all with the goal to be NED and get on with life and know sometimes we will loose a battle or two but win the WAR. I to know nothing about the Cyber Knife, but I know if its backed by all the prayers that are coming your way from the dittos and the H & N family it will kick the 8mm tumor to Cyber Space.... Forgive me for coming accross angry but I just hate this cancer stuff. It has taken its toll personally, with my families, and people we have learned to care for on this site. But again the prayers with the procedure will win this WAR and you will watch your family grow.

    Thanks Ditto!
    Ummm... you are not coming across as angry at all! You are too sweet and put it into nice words what a bunch of BS this is. I tried posting last week to the board about my frustration with my biopsy doc not calling me back with my results after 5 business days and I deleted it because it was such a NASTY rant. I too have lost too many to cancer. No one deserves this sh*t. Still not understanding how they put a man on moon (now Mars?!) and can't figure out the crap down here. All my best to you!
  • arndog64
    arndog64 Member Posts: 537
    sonyk728 said:

    Thanks Ditto!
    Ummm... you are not coming across as angry at all! You are too sweet and put it into nice words what a bunch of BS this is. I tried posting last week to the board about my frustration with my biopsy doc not calling me back with my results after 5 business days and I deleted it because it was such a NASTY rant. I too have lost too many to cancer. No one deserves this sh*t. Still not understanding how they put a man on moon (now Mars?!) and can't figure out the crap down here. All my best to you!

    I am so sorry to hear this..
    I am so sorry to hear this.. I sure hope the cyber knife does the trick. Now go kick some serious cancer azzzzzz....
  • Billie67
    Billie67 Member Posts: 898
    Sorry
    I'm so sorry you are having to deal with this again! I don't know much about the cyber knife but it sounds like your dr is very informed and ready to take on this beast once and for all! You are so young and seem so sweet and otherwise healthy, I know you've got this thing. Know I'm praying for you and your pretty pink hair :-)
    Billie
  • KareGiver
    KareGiver Member Posts: 301 Member
    Billie67 said:

    Sorry
    I'm so sorry you are having to deal with this again! I don't know much about the cyber knife but it sounds like your dr is very informed and ready to take on this beast once and for all! You are so young and seem so sweet and otherwise healthy, I know you've got this thing. Know I'm praying for you and your pretty pink hair :-)
    Billie

    Sonja
    Hang tough girl...never give up hope!
  • Sam999
    Sam999 Member Posts: 319 Member
    KareGiver said:

    Sonja
    Hang tough girl...never give up hope!

    Hi sonja,
    So sorry to hear

    Hi sonja,

    So sorry to hear about this. My thoughts and prayers with your. You will beat this!

    Sam