Anyone have remission after distant node involvement
I was just wondering are there any stage 4's on the board that have reached remission with retroperitoneal or inguinal node involvement.
Thanks Lori
Comments
-
thanks for your reply. givespepebcn said:Dear Lori couple of years ago Had retroperitoneal
Nodes involved after 12 rounds everything disappeared , unfortunately after 8 month had recurrence in collarbone nodes currently back in treatment.
Good luck!
Pepe,Barcelona.
thanks for your reply. gives me hope. So sorry about your new recurrance. Hope chemo works again for you.0 -
Just for your hope, Kathryn in MN had also lymph node mets inlepperl said:thanks for your reply. gives
thanks for your reply. gives me hope. So sorry about your new recurrance. Hope chemo works again for you.
The paraaorthic area ( I think), she's been radiated and she's NED since quite a few months ago!
Hope it helps to you.0 -
not nowpepebcn said:Just for your hope, Kathryn in MN had also lymph node mets in
The paraaorthic area ( I think), she's been radiated and she's NED since quite a few months ago!
Hope it helps to you.
chemo took out para aortic. radiation took out one by the esophagus and several in the upper abdomen. I had almost 8 months of a treatment break, but my labs have gotten progressively worse - things are changing again. These last 8 months were wonderful!0 -
deletepepebcn said:Just for your hope, Kathryn in MN had also lymph node mets in
The paraaorthic area ( I think), she's been radiated and she's NED since quite a few months ago!
Hope it helps to you.
delete0 -
a different drumbeat, including the IV vit C
Surgeons took out my wife's para aortic cluster of metastatic nodes. Various lesions shrank or disappeared while on the initial immunological neoadjuvant treatments and then the immunochemo + largely LEF style supplements, but not all of the mets. CEA, initially over 20, has been maintained under 4 since the last surgery 15 months ago and is currently well in the normal range, despite what appears to be 1-2 residual mets rearing to go (CEA doubling time as fast as ~40 days) if immunochemo falters for long on any major pills (K, PSK+WGP, oral 5FU/UFT, LV).
We were turned down four times on surgery for the para-aortic lymph nodes until we turned around a head of surgery who had trained at MD Anderson. However, since he and we could not see eye-to-eye on important "extras" during surgery, based on Japanese research papers, we found a hot shot Japanese trained surgeon who could accept the chemo pill additions (and benefit) of the Japanese research.
Previously, a CUPS paper that I used in choosing my wife's long term UFT+ + + immunochemo program, showed long term success in dealing with inguinal nodes. CUPS is often considered worse than "mere" mCRC. Xeloda (capecitabine) is essentially dimerized 5DFUR. 5DFUR was used after UFT, as being "stronger". We are still aiming for follow-on curative surgery(s), like the CUPS paper, to get the rest of the mets, when it is clearly identified which thingies are the troublesome mets. 29 months since stage IV became grossly symptomatic.0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121.7K Cancer specific
- 2.8K Anal Cancer
- 446 Bladder Cancer
- 309 Bone Cancers
- 1.6K Brain Cancer
- 28.5K Breast Cancer
- 395 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.3K Kidney Cancer
- 670 Leukemia
- 792 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 236 Multiple Myeloma
- 7.1K Ovarian Cancer
- 58 Pancreatic Cancer
- 486 Peritoneal Cancer
- 5.4K Prostate Cancer
- 1.2K Rare and Other Cancers
- 537 Sarcoma
- 727 Skin Cancer
- 652 Stomach Cancer
- 191 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards