Blisters

meaganb
meaganb Member Posts: 244 Member
So I've been eating normally for about 2 weeks now with the exception of acidic and fried foods because I just can't tolerate them. I'm doing pretty well, taste is definitely not 100%, but it's a huge improvement over where I was just a few weeks ago. Sometimes when I'm eating or shortly afterwards I have little clear blisters come up in my mouth. They are very tiny and I can remember getting them before any of this cancer mess if I accidentally ate/drank something too hot like coffee or soup. They are uncomfortable but I wouldn't call them painful and so far they just go away, they never open into ulcers. I did get one on the tip of my tongue the other day and that one hurt pretty bad, but I usually do a glutamine rinse or two and they go away. Has anybody else had experience with this? Is it something that will eventually stop the further I get away from treatment? Thanks for any input!:)
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Comments

  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    I had forgotten this
    but I had these for a few months after my first treatment. Not with this one, but I keep getting chelitis, the darned cracking at the corners of my mouth, now over four months past rads. The oral environment is pretty radically altered by chemorads, anfpd takes along time to recover.


    Pat
  • Tonsil Dad
    Tonsil Dad Member Posts: 488
    Thank God.
    Somebody has the same thing......lol
    Hi Meaganb, I have exactly the same thing, I'm 13 weeks
    out of rads and pretty much doing really good compared
    to some. I'm eating pretty much anything ( slowley and small bites)
    no bread or crackers, or dry things as I have no saliva but I can
    taste most foods. Not like I could before because gums and teeth
    feel weird. But yes I have the same problem as you when I'm
    eating after a short while little clear ( and painful ) blisters pop up
    on the soft pallate at the back and sides, it makes it difficult to
    finish eating so I make a smoothie, then after a little while they
    are gone. Its fustrating and I don't know how long they are going
    to last, so if you find out first please post or I will if I do. Maybe
    we are just rushing things and aggrivating it.

    God bless
    Tonsil dad,

    Dan.
  • phrannie51
    phrannie51 Member Posts: 4,716

    I had forgotten this
    but I had these for a few months after my first treatment. Not with this one, but I keep getting chelitis, the darned cracking at the corners of my mouth, now over four months past rads. The oral environment is pretty radically altered by chemorads, anfpd takes along time to recover.


    Pat

    Pat thank you.....
    I didn't know those cracks had a name....what miserable little things they are. I spend more time having them than not...

    I havent' had trouble with blisters, but then I'm not eating normal food yet...still pouring Ensure down my tube....hoping to start drinking it again as soon as the mouth sores leave my lips....and then maybe on to bigger and better food....gawd I'm hungry...LOL.

    p
  • KTeacher
    KTeacher Member Posts: 1,103

    I had forgotten this
    but I had these for a few months after my first treatment. Not with this one, but I keep getting chelitis, the darned cracking at the corners of my mouth, now over four months past rads. The oral environment is pretty radically altered by chemorads, anfpd takes along time to recover.


    Pat

    I didn't know
    I didn't know that there was a name for this. I havea droopy side of my lip and a wonky side from the 'lip lift' Always treating the red, burny edges of my lips. Dermatologist gave me a prescription, mixture of creams, to help.
  • meaganb
    meaganb Member Posts: 244 Member

    Thank God.
    Somebody has the same thing......lol
    Hi Meaganb, I have exactly the same thing, I'm 13 weeks
    out of rads and pretty much doing really good compared
    to some. I'm eating pretty much anything ( slowley and small bites)
    no bread or crackers, or dry things as I have no saliva but I can
    taste most foods. Not like I could before because gums and teeth
    feel weird. But yes I have the same problem as you when I'm
    eating after a short while little clear ( and painful ) blisters pop up
    on the soft pallate at the back and sides, it makes it difficult to
    finish eating so I make a smoothie, then after a little while they
    are gone. Its fustrating and I don't know how long they are going
    to last, so if you find out first please post or I will if I do. Maybe
    we are just rushing things and aggrivating it.

    God bless
    Tonsil dad,

    Dan.

    The great thing about this
    The great thing about this site is that you are never alone. There is always someone who has experienced something before you. Hope these start to clear up for you soon Dan! Nice to know it's not an abnormal symptom.
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    doing good
    Hi meaganb,

    Are these sores different from the ones we got during radiation treatments? The ones I smeared the Lidocaine gel on?

    What intrigues me is the rapid return to eating. Who is your cook, where are you getting this edible food?

    Minus the clear blisters you sound like you are doing pretty darn well and if my mouth is any indicator for yours, I can absolutely say they will eventually go away.

    Best,

    Matt
  • meaganb
    meaganb Member Posts: 244 Member
    CivilMatt said:

    doing good
    Hi meaganb,

    Are these sores different from the ones we got during radiation treatments? The ones I smeared the Lidocaine gel on?

    What intrigues me is the rapid return to eating. Who is your cook, where are you getting this edible food?

    Minus the clear blisters you sound like you are doing pretty darn well and if my mouth is any indicator for yours, I can absolutely say they will eventually go away.

    Best,

    Matt

    Matt, they are different
    Matt, they are different than the sores I had during Rads. They are not ulcers, just clear blisters. I have been very lucky! Like I said, I stay away from things fried and anything acidic but other than that, eating is not a problem. I only had Rads and no chemo, so that may be the difference. I'm also much younger than a lot of y'all. Don't mean that in a bad way, hope no one is offended, but I am only 27 and a lot of people have told me that my age is a huge help in healing. I never had a Peg tube so I never stopped taking in nutrition by mouth although I was using the heck out of Lidocaine and MM the last few weeks of treatment. I have been very blessed and hopefully these blisters will be a thing of the past soon enough:)
  • phrannie51
    phrannie51 Member Posts: 4,716
    CivilMatt said:

    doing good
    Hi meaganb,

    Are these sores different from the ones we got during radiation treatments? The ones I smeared the Lidocaine gel on?

    What intrigues me is the rapid return to eating. Who is your cook, where are you getting this edible food?

    Minus the clear blisters you sound like you are doing pretty darn well and if my mouth is any indicator for yours, I can absolutely say they will eventually go away.

    Best,

    Matt

    Matt....you are so funny!!
    About 3/4 of the time, when you post I get the giggles...

    I went the whole time of rads and chemo without using my feeding tube...but one month out, I haven't used anything but my feeding tube....My husband is getting real tired of me sniffing all his food...icecream to shepherds pie....I have to sniff it, I'm so darn hungry.

    p
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member

    Matt....you are so funny!!
    About 3/4 of the time, when you post I get the giggles...

    I went the whole time of rads and chemo without using my feeding tube...but one month out, I haven't used anything but my feeding tube....My husband is getting real tired of me sniffing all his food...icecream to shepherds pie....I have to sniff it, I'm so darn hungry.

    p

    I am old, kind of
    Phrannie,

    Did you read that, meaganb said I was old, ouch. I don’t feel old, well other than my eye sight or bad knees. I do sleep well, like a young person, but I do require more sleep. I can’t win this one, but I will try to get over it.

    Best,

    Matt

    Your dog picture pulls at my heart (in a good way)
  • meaganb
    meaganb Member Posts: 244 Member
    CivilMatt said:

    I am old, kind of
    Phrannie,

    Did you read that, meaganb said I was old, ouch. I don’t feel old, well other than my eye sight or bad knees. I do sleep well, like a young person, but I do require more sleep. I can’t win this one, but I will try to get over it.

    Best,

    Matt

    Your dog picture pulls at my heart (in a good way)

    I knew someone was going to
    I knew someone was going to get offended!;) If it helps, I aspire to be old someday!:)
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    meaganb said:

    I knew someone was going to
    I knew someone was going to get offended!;) If it helps, I aspire to be old someday!:)

    keep smiling
    Meagan,

    Me too.

    Matt
  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    CivilMatt said:

    keep smiling
    Meagan,

    Me too.

    Matt

    OLD ...LOL...
    Now when I have a B-day I will never "complain" ....I'm out to collect all the B-days I can get!!! :)

    In fact I told my wife (who is 12 years my younger) I intend on living just one day short of her (can't imagine being without her) ..so she better live a long time ...I'm going for 101 years old!!

    Tim
  • Spazactaz
    Spazactaz Member Posts: 15
    I'm also younger, 24, and I
    I'm also younger, 24, and I get these all the time. SO annoying!!! Even if I just drink a smoothie. They seem to move all around my mouth too.... always on the palate, but they started only like inner lips, then moved to the left side of my mouth, and now have been on the right side of my mouth for a long time... but keep going further back. Making them harder to pop!! If I don't pop them they get super painful.
  • meaganb
    meaganb Member Posts: 244 Member
    Spazactaz said:

    I'm also younger, 24, and I
    I'm also younger, 24, and I get these all the time. SO annoying!!! Even if I just drink a smoothie. They seem to move all around my mouth too.... always on the palate, but they started only like inner lips, then moved to the left side of my mouth, and now have been on the right side of my mouth for a long time... but keep going further back. Making them harder to pop!! If I don't pop them they get super painful.

    Spazactaz, I don't pop the
    Spazactaz, I don't pop the ones I get. Maybe I'm too much of a wuss but I'm afraid if I open them up they'll become ulcers. I did think about doing something about the one I got on my tongue the other day but ended up leaving it alone and it too went down. I have noticed I'm now getting them in the very back corners of my mouth now. I'm still able to eat though so I'm not complaining....too much:) I'm wondering if our mouths are just compromised now because of the Rads so there will always be weird things going on? Oh well, I guess it's a small price to pay for getting rid of cancer.
  • cynx206
    cynx206 Member Posts: 3
    edited September 2018 #16
    blisters, superficial oral mucocele?

    I know this thread is old, but I'm experiencing the same thing! A cluster of clear fluid-filled blisters in my mouth (mostly located above the uvula and the hard palate) whenever I had foods. Has anyone found out what they are? How to treat them? They are really annoying. 

    BTW, I had 39 fractions of radiotherapy and 3 cycles of cisplatin chemo. My last radiation was on 7/23/2018. I'm in the recovery phase. I suspect these little guys had something to do with my damaged salivary glands. I'm just really frustrated now, and I would like some answers. 

  • Mavish
    Mavish Member Posts: 77 Member
    cynx206 said:

    blisters, superficial oral mucocele?

    I know this thread is old, but I'm experiencing the same thing! A cluster of clear fluid-filled blisters in my mouth (mostly located above the uvula and the hard palate) whenever I had foods. Has anyone found out what they are? How to treat them? They are really annoying. 

    BTW, I had 39 fractions of radiotherapy and 3 cycles of cisplatin chemo. My last radiation was on 7/23/2018. I'm in the recovery phase. I suspect these little guys had something to do with my damaged salivary glands. I'm just really frustrated now, and I would like some answers. 

    I had them

    Hi cynx206. 

    I had them and I was so scared. My oncologist said that they were awakining mucosal glands. Since the tubes that carry the fluid to mucosa were damaged by the RT, secretions accumulated under the mucosa and turn into blisters. It is a good thing that glandsglands are coming back, but painful and I was not offered any treatment. Take care.

  • cynx206
    cynx206 Member Posts: 3
    edited September 2018 #18
    Thank you

    Thank you for your comment. It really helps me to understand what's going on. I had asked both my medical oncologist and dentist, and they didn't know what the blisters are. Do you remember how long you had them? 

  • momall25ofu
    momall25ofu Member Posts: 81 Member
    cynx206 said:

    Thank you

    Thank you for your comment. It really helps me to understand what's going on. I had asked both my medical oncologist and dentist, and they didn't know what the blisters are. Do you remember how long you had them? 

    Prayers, Cynx206 that it will

    Prayers, Cynx206 that it will get better quickly!   

  • momall25ofu
    momall25ofu Member Posts: 81 Member
    Mavish said:

    I had them

    Hi cynx206. 

    I had them and I was so scared. My oncologist said that they were awakining mucosal glands. Since the tubes that carry the fluid to mucosa were damaged by the RT, secretions accumulated under the mucosa and turn into blisters. It is a good thing that glandsglands are coming back, but painful and I was not offered any treatment. Take care.

    Mavish, thank you so much for

    Mavish, thank you so much for posting this ... 

  • Mavish
    Mavish Member Posts: 77 Member
    cynx206 said:

    Thank you

    Thank you for your comment. It really helps me to understand what's going on. I had asked both my medical oncologist and dentist, and they didn't know what the blisters are. Do you remember how long you had them? 

    I do not exactly remeber.

    I do not exactly remeber. Probably 6 to 8 weeks