Nick - One Year, One Month after Diagnosis - Gone....

13

Comments

  • llamp0922
    llamp0922 Member Posts: 40
    #42
    JimboC said:

    I'm saddened to read this news
    I'm so sad to read this Terry. I know the sting of this diagnosis. We found questionable activity after my first post-op scan and was IV by the second. Third scan had me at IVB. Then I received a clean scan so go figure. I'm still waiting for my next one. Scared to death. I always thought it would be easier if I had a break between surgery and IVB but I think no matter when it comes, it hurts as bad. The doctor is hoping that I am in remission but as we know, with EC, it rarely goes into remission and when it does, rarely lasts long.

    Have you been given any treatment options. I know so many say don't treat a stage IVB and my Oncologist was gently treating mine. He sent me to Duke U for a second opinion and the Oncologist at Duke said that even thought I was an IVB, I did not resemble any other IVB he had seen and there was no reason not to aggressively treat this disease. He offered some suggestions of Chemo and we ended up going with FOLFOX. Again, this isn't the standard of care for an IVB but it's working for me.

    After starting the FOLFOX, I talked to a co-worker from a different office. He told me about one of his wife's co-workers. 13 years ago she was an IVB with EC and it went into remission and has remained there. Again I know it's the exception rather than the rule but still, it gives you some hope.

    Take care and tell Nick to feel free to contact me direct if he would like someone to talk to.

    All my best

    Sad
    Terry,
    I am so sad to hear your news. I pray for strength for you-being a caregiver can be even harder than being sick. Take care of yourself while taking care of everyone else.

    Jimbo-I am glad to see that you are doing well. I hope that the FOLFOX continues to work. Hope is what you have, along with faith and love. Without hope, there is nothing else.

    Take care,
    Lisa
  • TerryV
    TerryV Member Posts: 887
    #43
    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days
  • minikit
    minikit Member Posts: 23
    #44
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    Oh Terry - I am so sad to
    Oh Terry - I am so sad to read your post.Sending you and yours lots of hugs.
    kit
  • Amjosmom
    Amjosmom Member Posts: 212
    #45
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    I'm so sorry.
    Praying that you find comfort during this difficult time. So sorry for your loss.
  • Daisylin
    Daisylin Member Posts: 365
    #46
    Amjosmom said:

    I'm so sorry.
    Praying that you find comfort during this difficult time. So sorry for your loss.

    Terry,
    There are no words to say how very sorry I am to hear your news. This is such a difficult time for you and your lovely family, I wish you strength to get through the next minutes, hours,days and weeks. My heart breaks for you Terry, and my brain just can't comprehend that this beast has taken another fantastic man, way too soon. Let your family and friends support and hold you up during the hard days to come. Let your body rest and please always remember that my thoughts and prayers are with you.

    so sorry,
    big hugs
    Chantal
    wife of Lee
    deceased Nov 8, 2011
  • paul61
    paul61 Member Posts: 1,392 Member
    #47
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    I am so sorry
    Terry,

    I am so sorry to hear that Nick has left us. I am glad that Nick was surrounded by the love of his family at the end. May you find support and peace with your friends and family during this difficult time. My deepest condolences.

    Sadly,

    Paul Adams
    Grand Blanc, Michigan
  • Unknown
    Unknown
    #48
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    This comment has been removed by the Moderator
  • BobHaze
    BobHaze Member Posts: 163 Member
    #49
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    Not so soon!
    Oh Terry – like everyone else I’m so sorry this has happened to Nick and your family. To say it’s not fair doesn’t even begin to touch the depth of what has happened. I know you know the love and support of all of us who have come to know this beast are with you as you continue your journey without Nick. I hope you are able to find some solace from that. I also know you will, but please reach out to us if you need to shout or cry or whatever – we are always here for you. I can only echo your, “Dammit, Dammit Dammit!

    FEC,
    Bob
    T1aN0M0
    Dx 8/3/11
    MIE 9/23/11
  • mrsbotch
    mrsbotch Member Posts: 349
    #50
    Terry
    My heart breaks for
    Terry

    My heart breaks for you and your family. You have been thru so many ups and downs. This cancer shows no mercy as we all know.

    You are in my thoughts.


    Barbara
  • casp42
    casp42 Member Posts: 79
    #51
    mrsbotch said:

    Terry
    My heart breaks for
    Terry

    My heart breaks for you and your family. You have been thru so many ups and downs. This cancer shows no mercy as we all know.

    You are in my thoughts.


    Barbara

    I'm so sorry.....
    Terry,

    I had to double-take this morning, I have followed yours and Nick journey. Your well written notes and expression. I'm devastated for you and your kids. Wishing you warm prayers, strength during this time.

    hugs to you and your children,

    Carolyn
  • stephikindred
    stephikindred Member Posts: 140
    #52
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    Terry,
    I am shocked how quickly this cancer took Nick from you and so very, very sorry for your loss. I want to express my deepest sympathy for your family.
    Big hugs, and lots of love,
    Stephanie
  • ritawaite13
    ritawaite13 Member Posts: 236
    #53
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    So sorry
    Hi Terry,
    I'm so saddened to read your post. I rarely check this discussion board anymore but I just wanted to check in on you and some of the others who were so helpful to me when my husband was battling this beast.
    I know the days ahead will be a whirlwind of emotions and activity. Know that you are thought of so fondly by so many on this board.
    There are some of the gals from this EC board who now have a group on Facebook. We are very caring and supportive of each other. We all "get it". I know you will remember many of them. Some of them have young children, some are childless and some are empty nesters like me but we've all lost our mates in the past year to EC. At some point if you're interested in joining us just let me know. I know Chantal would also help you.
    In the meantime, my prayers are with you and your kids.

    Hugs
    Rita

    Wife of Greg
    DX July, 2011
    Entered eternal life Oct 2011
  • cher76
    cher76 Member Posts: 292
    #54
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    Oh Terry, I am so very
    Oh Terry, I am so very sorry. I thought of you last night and thought I should get on the EC board to check on you but it was late and I fell asleep. I was going to text you this morning to check on you and then I got busy and forgot. Rita posted the news on our EC facebook group a little while ago, so I came to check. I just don't have words to express the sadness I feel. Know that I understand how difficult this is and if you feel the need to talk just call me any time day or night. I am serious about that. Don't feel like you would be bothering me. I know that feeling too well.
    One more star is in the sky, one more guardian angel watching down over us.
    My thoughts and prayers are with you,
    Cheryl
    wife of Rickie dx stage IV Oct. 2010
    Mets to bones and brain
    Deceased 1/4/12
  • Donna70
    Donna70 Member Posts: 852 Member
    #55
    casp42 said:

    I'm so sorry.....
    Terry,

    I had to double-take this morning, I have followed yours and Nick journey. Your well written notes and expression. I'm devastated for you and your kids. Wishing you warm prayers, strength during this time.

    hugs to you and your children,

    Carolyn

    so sorry Terry
    Dear Terry,
    I am so sorry to see this post, was very saddened when you wrote in May of the recurrence and now Nick has gone. Such a terrible disease and such a short time of remission. My prayers and thoughts are with you and your family, glad that even though he passed in the hospital he was comfortable and at peace. many, many hugs to you and yours,
    Donna70
  • Donna70
    Donna70 Member Posts: 852 Member
    #56
    casp42 said:

    I'm so sorry.....
    Terry,

    I had to double-take this morning, I have followed yours and Nick journey. Your well written notes and expression. I'm devastated for you and your kids. Wishing you warm prayers, strength during this time.

    hugs to you and your children,

    Carolyn

    so sorry Terry
    sorry for the double post
    Donna70
  • bingbing2009
    bingbing2009 Member Posts: 177
    #57
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    So, so sorry...
    Terry,

    You and your family have my deepest condolences. This ugly beast of a cancer claims yet another long before their time. It just breaks my heart to read this.

    You are in my thoughts and prayers.

    Sending lots of love and hugs,
    Melinda

    DX October 2009: T3N1M0
    November and December 2009: chemo (Cisplatin and 5 FU) and radiation
    February 2010: Ivor Lewis surgery
  • lilrusty
    lilrusty Member Posts: 49
    #58
    Donna70 said:

    so sorry Terry
    Dear Terry,
    I am so sorry to see this post, was very saddened when you wrote in May of the recurrence and now Nick has gone. Such a terrible disease and such a short time of remission. My prayers and thoughts are with you and your family, glad that even though he passed in the hospital he was comfortable and at peace. many, many hugs to you and yours,
    Donna70

    Another Sad Ending
    Dear Terry, I was so sadden to read your post. As there pain ends, ours begins. May you and your family find comfort in the love you shared with Nick. Keeping you in my thoughts and prayers.

    Love,
    Chrissy
  • birdiequeen
    birdiequeen Member Posts: 319
    #59
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    I can't comprehend this news
    Terry,

    You and your family are in my thoughts. Nick's passing is just incomprehensible. I'm without words.

    Take Care,
    Lee Ann
  • ABC321
    ABC321 Member Posts: 52
    #60
    TerryV said:

    Nick is gone....
    I lost Nick at 7:46 AM on June 19th - one year and one month to day after the initial endoscopy that brought us to you. We are saddened that it happened in the hospital, but he was comfortable (most important) and surrounded by family.

    Thank you everyone for your care, your concern and your love!

    Terry
    PROUD wife to Nick, age 49 1 month and 6 days

    Oh no
    Dear Terry, we have never met but i feel like i know you and Nick. I have certainly felt comforted by you both during this journey....i am so sad to hear that Nick has passed. You know Nick's spirit lives on in all of us. He was so generous and caring. I will never forget him.....
    Take care of yourself and the family.
    Lots of love from our side of the world!
    xx
    Steve
  • AngieD
    AngieD Member Posts: 493
    #61
    Donna70 said:

    so sorry Terry
    sorry for the double post
    Donna70

    Just no words, Terry. You
    Just no words, Terry. You and your family have been in my thoughts and prayers every day since I learned of the recurrence. I'm glad Nick was at peace and I'm praying for strength for you for the next minute, hour, and days.
    Hugs,
    Angie

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