anyone else tried GCMAF or got any good or bad stories about it UPDATED great nagalase result <0.9
Comments
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dear jeff,janderson1964 said:I believe 100% in surgery
I believe 100% in surgery but i have always been scepticle about chemo evan though i keep doing it. Next round will be my 12th this year. 34 over the past 6 years. I cant handle it any more. I just dont understand why they cant come up with or approve better treatment options. Chemo is torture. I am on my second oncologist and he is turning out to be the same as my first. They both just want to keep pumping me full of poison. At least gcmaf seems to be safe and nontoxic. I dont see the harm in it as long as i am still doing regular scans but i wil wait to see if anything new shows up on th scans first. In the meantim i will keep researching.
where you are at,
dear jeff,
where you are at, i don't want to be. you situation is like many and i hope our investigations give hope.
even if its imaginery false hope, i don't give a shiite because it makes my days bearable with the uncertainty of this disease.
I will mention gcmaf and nagalase in passing to my onc, and she will ignore it most of the alternative tests.
i get my ct results 9am tomorrow. moderately interested to see if cea or gcmaf is a better indicator. say a prayer or send me a positive thought.
just because we a desperately fighting for our lives in the presence of a few blood sucking scumbag conartist charletane doctors around does not mean they can out smart me and my many committed friends. we are simply smarter than them and i firmly believe working together, sharing our research our experiences we can improve our quality of life and survival odds. and with luck send some of the bastards to gaol or at least bankruptcy.
i got this email from a friend here, not sure why she did not post it i will respect her privacy. i already thanked her.
Here is a critique of GcMAC that you could look at, Pete:
http://www.nosurrenderbreastcancersurvi ... id=3261190
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=34412
http://www.nosurrenderbreastcancersurvivorforum.org/post?id=3261190
the above link is a reasonable criteque i think from an evidence based perspective.
the lack of other good, bad gcmaf experiences here and on colon club proves in my mind what we already know.
very few try these alternatives off their own bats.
very few get medical advice to try them at my point of potential recurrence.
often the few try it at the latest stages and then have such little time, they are nervous and chop and changes therapies hoping for miracle style cures. i don't think our bodies heal in that time frame.
see my email reply to my friend about what i am up to with gcmaf.
I wished i did not read it, alas i am glad i did.
i already have the same conclusion as the criteque in the back of my mind.
but i am trusting my integrative onc's advice with gcmaf and the nagalase.
its not expensive, maybe effective.
but the points raised in the breast cancer reply are not without merit.
i simply have not had time to refute them point for point.
i am running both tests side by side with CT scans.
i will see how my treats me based on her cea tests, and so far the alternative tests and treatments are only fixing areas of of bio chemical make up and insufficiences.
so no real conflict at present.
i really appreciate the link. thanks.
so i am hopefully optomistic about gcmaf and nagalase and watchfully waiting to see how the results come in. i am leaving the door open to conventional treatment, which at present is none.
i am still going ahead full speed on alternative anticancer treatments and muscle building.
i did my 2 monthly ct this afternoon 3pm. get the results 9am at vitamin c alpha lipoic acid iv treatment and then lunchtime see my vegan specialist.
i have popped this link into the post, because i want it to be balanced.
hugs,
pete
ps my intentions here are always honable, i present the good, the bad the ugly. i am positive that trying alternatives that seem reasonable is worthwhile. but i will always try to provide my experience good, bad and in between. if i find a worhtwhile negative to a treatment, therapy or supplement i will include it.
the colon club discussion is linked here so i guess we have the combined colon cancer perspective on gcmaf at this point in time and we have two guinea pigs myself and i think jeff. if anyone else wants to offer feedback for or against let me know re gcmaf. i wish these alternatives were easy. but then that would take all the fun out of survival. some people win lotto, the trick is we just have to live long enough.0 -
For Petepete43lost_at_sea said:dear jeff,
where you are at,
dear jeff,
where you are at, i don't want to be. you situation is like many and i hope our investigations give hope.
even if its imaginery false hope, i don't give a shiite because it makes my days bearable with the uncertainty of this disease.
I will mention gcmaf and nagalase in passing to my onc, and she will ignore it most of the alternative tests.
i get my ct results 9am tomorrow. moderately interested to see if cea or gcmaf is a better indicator. say a prayer or send me a positive thought.
just because we a desperately fighting for our lives in the presence of a few blood sucking scumbag conartist charletane doctors around does not mean they can out smart me and my many committed friends. we are simply smarter than them and i firmly believe working together, sharing our research our experiences we can improve our quality of life and survival odds. and with luck send some of the bastards to gaol or at least bankruptcy.
i got this email from a friend here, not sure why she did not post it i will respect her privacy. i already thanked her.
Here is a critique of GcMAC that you could look at, Pete:
http://www.nosurrenderbreastcancersurvi ... id=3261190
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=34412
http://www.nosurrenderbreastcancersurvivorforum.org/post?id=3261190
the above link is a reasonable criteque i think from an evidence based perspective.
the lack of other good, bad gcmaf experiences here and on colon club proves in my mind what we already know.
very few try these alternatives off their own bats.
very few get medical advice to try them at my point of potential recurrence.
often the few try it at the latest stages and then have such little time, they are nervous and chop and changes therapies hoping for miracle style cures. i don't think our bodies heal in that time frame.
see my email reply to my friend about what i am up to with gcmaf.
I wished i did not read it, alas i am glad i did.
i already have the same conclusion as the criteque in the back of my mind.
but i am trusting my integrative onc's advice with gcmaf and the nagalase.
its not expensive, maybe effective.
but the points raised in the breast cancer reply are not without merit.
i simply have not had time to refute them point for point.
i am running both tests side by side with CT scans.
i will see how my treats me based on her cea tests, and so far the alternative tests and treatments are only fixing areas of of bio chemical make up and insufficiences.
so no real conflict at present.
i really appreciate the link. thanks.
so i am hopefully optomistic about gcmaf and nagalase and watchfully waiting to see how the results come in. i am leaving the door open to conventional treatment, which at present is none.
i am still going ahead full speed on alternative anticancer treatments and muscle building.
i did my 2 monthly ct this afternoon 3pm. get the results 9am at vitamin c alpha lipoic acid iv treatment and then lunchtime see my vegan specialist.
i have popped this link into the post, because i want it to be balanced.
hugs,
pete
ps my intentions here are always honable, i present the good, the bad the ugly. i am positive that trying alternatives that seem reasonable is worthwhile. but i will always try to provide my experience good, bad and in between. if i find a worhtwhile negative to a treatment, therapy or supplement i will include it.
the colon club discussion is linked here so i guess we have the combined colon cancer perspective on gcmaf at this point in time and we have two guinea pigs myself and i think jeff. if anyone else wants to offer feedback for or against let me know re gcmaf. i wish these alternatives were easy. but then that would take all the fun out of survival. some people win lotto, the trick is we just have to live long enough.
Stumbled upon this, thought you might be interested;
"and the growth inhibition by liposomal curcumin was greater than that for oxaliplatin (P < 0.05) in Colo205 cells. Tumors from animals treated with liposomal curcumin showed an antiangiogenic effect, including attenuation of CD31 (an endothelial marker), vascular endothelial growth factor, and interleukin-8 expression by immunohistochemistry. This study establishes the comparable or greater growth-inhibitory and apoptotic effects of liposomal curcumin with oxaliplatin both in vitro and in vivo in colorectal cancer. We are currently developing liposomal curcumin for introduction into the clinical setting."
You can buy liposomal curcumin on the net. (read the first line again)0 -
questionmanwithnoname said:For Pete
Stumbled upon this, thought you might be interested;
"and the growth inhibition by liposomal curcumin was greater than that for oxaliplatin (P < 0.05) in Colo205 cells. Tumors from animals treated with liposomal curcumin showed an antiangiogenic effect, including attenuation of CD31 (an endothelial marker), vascular endothelial growth factor, and interleukin-8 expression by immunohistochemistry. This study establishes the comparable or greater growth-inhibitory and apoptotic effects of liposomal curcumin with oxaliplatin both in vitro and in vivo in colorectal cancer. We are currently developing liposomal curcumin for introduction into the clinical setting."
You can buy liposomal curcumin on the net. (read the first line again)
"we are currently developing liposomal curcumin for introduction into the clinical setting"
Question - Who is "we".
Thanks. Interesting topic.0 -
We is...janie1 said:question
"we are currently developing liposomal curcumin for introduction into the clinical setting"
Question - Who is "we".
Thanks. Interesting topic.
MD Anderson cancer centre, sorry should have put a link, here ya go;
http://www.ncbi.nlm.nih.gov/pubmed/174311050 -
thankyou tony, now thats a nice studymanwithnoname said:We is...
MD Anderson cancer centre, sorry should have put a link, here ya go;
http://www.ncbi.nlm.nih.gov/pubmed/17431105
if it works like that on humans, well thats a miracle.
never any human trials on this.
i guess the guys selling tumeric in the village amrket cannot afford the double randomised clinical trials.
lets just set the bar a little higher so all these natural therapies never get tested. how many lives lost, how many billions, or is it trillions of cancer dollars wasted.
so i am smug kind of, i have been making my own liposomal c at home, its a bit expensive on the net. i have few few kilograms of vit c powder in the kitchen.
my friend a food technologist knows how to extract the curcumoids, using a relatively simple process. i am going to do this and make it happen.
when its possible to just consume natural ingredients in the most bio available way, well even the supplement makers miss out. no conflicts of interest , just possibly healthier cancer patients.
i added some tumeric to my purple soup tonight, it still stayed purple.
thanks........
hugs,
pete0 -
Clear ct scan, no changes from previous scan march and jan
conclusions after iv this morning, then this arvo 1 hour with vegan alternative gp.
thankyou god and everyone for your help and support and patience.
nagalase maybe a good marker for me.
cea is likely not specific for me.
however i cannot ignore the cea rise 46 now, so i am doing the following
sticking on the vegan diet, but i did taste the kids roo at dinner tonight, quality control.
still doing vit c 60grams, alphaloic acid, bicard sode all iv
bumping up curcumoids to 10gram daily with some Boswellia
changing egcg suppliers and reishi mushroom as a combo specifically targetting colorectal
tumours. says to doctor, the spors need to be open for the mushroom to have an effect.
she is my kind of doctor, i have an inch of research papers to read that she put together for me. she asked her peers who went to the big alt cancer conference about advice for me.
she was really worried about the scan results.
she has never heard of naga;lase or gcmaf.
she loves chorella and recommended chloressence.
she rapped me over the knuckles for skipping green smoothies.
i took my clothes off and said what do you think, am i to skinny ?.
she smiled and said no you are ok. this actually happened becuase my onc hates the vegan diet, and is worried about weight loss. which will get in the way of chemo.
so i am keeping to the muscle building program.
i might push the ct window to 3 months, i might ask for a bone scan, i might also ask for a special mri with the fancy liver contrast that gives the best result possible for liver mets. but i have to pay for that mri myself.
i want to go on gcmaf until the cause of the cea rise is found.
my crp went to 6 from 0.7. it followed the cea rise which is a prognostic indicator for colorectal recurrence.
so even though the scan was clear, a few of the blood markers are a real cause for concern. i want an explanation from conventional medicine , rather than just a shoulder shrug and lets order another ct.
my scan today was not a triple phase on the liver, just a low dose one pass. i have paul and ken from sydney xray giving the best service on the scanning side. i will get alternative integrative oncologist to discuss diagnostic imaging solutions. these guys are really trying to find the met, you should see the report, oh so detailed. 8.7 milli Sevits. another great low dose scan. is everyone still getting fried on high dose ? see my blog.
also looking at flying to melbourne to do another more advanced dna test and a combo training course combined, hopefully with doc. lucky i have qualified as a naturopath in my own mind, so i attend these medical professional only courses. i hate how our government here wants to keep us cancer patients in the dark and out of these seminars and training courses.
most of the above came out of the arvo consult. this doc sold all the supplements at cost, she loves my dedication and commitment and i will see her in a few months. she is a vegan guru inspiration herself. she walks the walk and talks the talks.
she also poopoo'd the big SFN antioxidant conflict, saying my phd researcher who loves SFN is wrong and its a big ask to see if SFN can do it all. so the conflicts between alt doctors is real and exciting. no month is the same. if you are interested in this debate pm and i will forward an ebook that explains SFN therapy and the antioxidant overuse issue.
we discussed my cramping in my nappy one, two and sometimes three times a night. she does not like colonics either, we are hoping that was the cause. she has put me on probex probiotic to fix the gut bacteria.
i am overjoyed at the clear scan and the negative nagalase result and the positive cea result. to be alive is wonderful, we all have challenges and uncertainties, i am grateful for mine and the strength and support i have to deal with them. my wife has been wonderful lately.
hugs,
pete
ps crashed my car on the way home from the alt vegan doctors this arvo. my foot was in my mouth rather than being on the brake. not to serious, just money and metal. but the crash bought me back to reality, i was still in the doctors consult in my brain, going over and replaying all we discussed. when i see the crumbled bonnet, i will think of my clear scan and how lucky i am in so many ways.0 -
congrats Petepete43lost_at_sea said:Clear ct scan, no changes from previous scan march and jan
conclusions after iv this morning, then this arvo 1 hour with vegan alternative gp.
thankyou god and everyone for your help and support and patience.
nagalase maybe a good marker for me.
cea is likely not specific for me.
however i cannot ignore the cea rise 46 now, so i am doing the following
sticking on the vegan diet, but i did taste the kids roo at dinner tonight, quality control.
still doing vit c 60grams, alphaloic acid, bicard sode all iv
bumping up curcumoids to 10gram daily with some Boswellia
changing egcg suppliers and reishi mushroom as a combo specifically targetting colorectal
tumours. says to doctor, the spors need to be open for the mushroom to have an effect.
she is my kind of doctor, i have an inch of research papers to read that she put together for me. she asked her peers who went to the big alt cancer conference about advice for me.
she was really worried about the scan results.
she has never heard of naga;lase or gcmaf.
she loves chorella and recommended chloressence.
she rapped me over the knuckles for skipping green smoothies.
i took my clothes off and said what do you think, am i to skinny ?.
she smiled and said no you are ok. this actually happened becuase my onc hates the vegan diet, and is worried about weight loss. which will get in the way of chemo.
so i am keeping to the muscle building program.
i might push the ct window to 3 months, i might ask for a bone scan, i might also ask for a special mri with the fancy liver contrast that gives the best result possible for liver mets. but i have to pay for that mri myself.
i want to go on gcmaf until the cause of the cea rise is found.
my crp went to 6 from 0.7. it followed the cea rise which is a prognostic indicator for colorectal recurrence.
so even though the scan was clear, a few of the blood markers are a real cause for concern. i want an explanation from conventional medicine , rather than just a shoulder shrug and lets order another ct.
my scan today was not a triple phase on the liver, just a low dose one pass. i have paul and ken from sydney xray giving the best service on the scanning side. i will get alternative integrative oncologist to discuss diagnostic imaging solutions. these guys are really trying to find the met, you should see the report, oh so detailed. 8.7 milli Sevits. another great low dose scan. is everyone still getting fried on high dose ? see my blog.
also looking at flying to melbourne to do another more advanced dna test and a combo training course combined, hopefully with doc. lucky i have qualified as a naturopath in my own mind, so i attend these medical professional only courses. i hate how our government here wants to keep us cancer patients in the dark and out of these seminars and training courses.
most of the above came out of the arvo consult. this doc sold all the supplements at cost, she loves my dedication and commitment and i will see her in a few months. she is a vegan guru inspiration herself. she walks the walk and talks the talks.
she also poopoo'd the big SFN antioxidant conflict, saying my phd researcher who loves SFN is wrong and its a big ask to see if SFN can do it all. so the conflicts between alt doctors is real and exciting. no month is the same. if you are interested in this debate pm and i will forward an ebook that explains SFN therapy and the antioxidant overuse issue.
we discussed my cramping in my nappy one, two and sometimes three times a night. she does not like colonics either, we are hoping that was the cause. she has put me on probex probiotic to fix the gut bacteria.
i am overjoyed at the clear scan and the negative nagalase result and the positive cea result. to be alive is wonderful, we all have challenges and uncertainties, i am grateful for mine and the strength and support i have to deal with them. my wife has been wonderful lately.
hugs,
pete
ps crashed my car on the way home from the alt vegan doctors this arvo. my foot was in my mouth rather than being on the brake. not to serious, just money and metal. but the crash bought me back to reality, i was still in the doctors consult in my brain, going over and replaying all we discussed. when i see the crumbled bonnet, i will think of my clear scan and how lucky i am in so many ways.
That's good news on your scan, just realised all you peeps are doing CT scans, for our stuff its only MRI, they offered us CT coz the MRI was fully booked after the last op. and my misses nearly hit the roof, CT is 400-500 x-ray dose, they make us leave the room when they do 1 x-ray for kids, now I don't want to open a can of worms here but for kids, and especially the brain its frowned upon unless an emergency.
BTW read the breast cancer womens 'critique' on GcMAF, i could write a few thousand words why it was a poor argument but don't have the time or inclination to try and convert sceptics.
How do you do the curcumin thing? would love to hear your full protocol, is it on a thread? if not do you mind posting it?
Tony0 -
When they say
things like "Help NHF get the word out about GcMAF and other proven cures for cancer that are being ignored" and sell their product at $150.00 or more a whack, I'd steer as clear away from this as I can.
This smacks of charletons taking money from people desperate in their cancer battle. I swear Pete you find the oddest things to do to your poor body, I truly am starting to feel sorry for it.
http://scienceblog.cancerresearchuk.org/2008/12/03/cancer-cured-for-good-gc-maf-and-the-miracle-cure/
Again people, if it sounds too good to be true, it probably is quackery.
Winter Marie0 -
experimental, developmentalherdizziness said:When they say
things like "Help NHF get the word out about GcMAF and other proven cures for cancer that are being ignored" and sell their product at $150.00 or more a whack, I'd steer as clear away from this as I can.
This smacks of charletons taking money from people desperate in their cancer battle. I swear Pete you find the oddest things to do to your poor body, I truly am starting to feel sorry for it.
http://scienceblog.cancerresearchuk.org/2008/12/03/cancer-cured-for-good-gc-maf-and-the-miracle-cure/
Again people, if it sounds too good to be true, it probably is quackery.
Winter Marie
Thanks for that link, Marie. The lively comments are more informative than the blog. Any insinuation that GcMAF is "quackery" seems premature. GcMAF clearly has achieved a degree of scientific plausibility, like papers in Nature, and by Judah Folkman, as mentioned in the link's comments. GcMAF's conventional status appears to be experimental in an unfunded developmental stage, the commercial graveyard of many, or most, legitimate discoveries as well as the technical failures.
The FDA version of drug development and approval is simply prohibitive for most promising treatment technologies, regardless of merit. $150 for a small retail volume, injectable biotech product is amazingly cheap in comparison to what we see for approved treatments. Much of alternative medicine that is biologically and biochemically based functions in a gray market whose larger competitors do attempt to make it black.
I hope that interested people are able shine more factual light on the GcMAF story and communicate their actual observations, warts and all. There are several layers of players in this story that we need to keep mind when conclusory statements are made.0 -
DBP-MAF, also known as GcMAFherdizziness said:When they say
things like "Help NHF get the word out about GcMAF and other proven cures for cancer that are being ignored" and sell their product at $150.00 or more a whack, I'd steer as clear away from this as I can.
This smacks of charletons taking money from people desperate in their cancer battle. I swear Pete you find the oddest things to do to your poor body, I truly am starting to feel sorry for it.
http://scienceblog.cancerresearchuk.org/2008/12/03/cancer-cured-for-good-gc-maf-and-the-miracle-cure/
Again people, if it sounds too good to be true, it probably is quackery.
Winter Marie
Well, you posted a link from a blog circa 2008 from a cancer charity that seemed to go out of it's way to show what nonsense Yamamotos theory, work, and results were.
HOWEVER, the story does not start or end with that blog, I have already posted a link showing J.Folkman and a very impressive international team found the same results.
So a noble prize winner isn't enough for the cancer charity who never bothered to look any further than Yamamoto, who I must agree seemed very suspect,... still how about these;
Department of Internal Medicine, Erasmus Medical Center, Genetic Laboratory, Rotterdam,
Department of Anatomy, Histology and Forensic Medicine, Florence, Italy.
Department of Ophthalmology and Visual Sciences, University of Kentucky, Lexington, Kentucky
Clinical Research Center, National Hospital Organization Nagasaki Medical Center
Department of Hepatology, Nagasaki University Graduate School of Biomedical Sciences, Omura, Japan
Division of Surgical Research, Children's Hospital, Boston,
And there are more HIGHLY reputable institutions and researchers finding the same kind of results and publishing in the highest quality journals.
Also Yamamoto NEVER in any of his papers said he had 'cured' cancer as the blog proclaims, also Yamamoto ran all of his papers by Dr. Sidney Weinhouse (Google him) before publishing.
Now as for their 'critique' about 'pre-treated' patients and 'small numbers' they have obviously never looked at a brain tumour clinical trial where this is standard! ( I have read hundreds)
ALL brain tumour clinical trials have HEAVILY PRE-TREATED patients with VERY small numbers, yet they still give them new Chemo to test, and if it does work ( to a degree) the FDA grants a licence from those small trial results.
Now as for the price of $150 for about a months supply, Avastin costs $20,000 per month and prolongs life for a median of 4.7 months just to give you some perspective.
I agree with you there are many, many charlatans out there who prey on cancer patients, but at the same time there are very powerful Pharmacutical companies who do the same. Gc-MAF cannot be patented so there is NO interest to do all of the double blind $300 million dollar trials with large cohorts.
I am not saying Gc-maf is a 'magic bullet' everyone is unique and so is every cancer, STILL, if I look at a treatments potential benefit versus cost/negative side affects then Gc-MAF is VERY worthy of a trial.
That's my 2 cents and Im done with it. Believe what you want.0 -
That is a very strongmanwithnoname said:DBP-MAF, also known as GcMAF
Well, you posted a link from a blog circa 2008 from a cancer charity that seemed to go out of it's way to show what nonsense Yamamotos theory, work, and results were.
HOWEVER, the story does not start or end with that blog, I have already posted a link showing J.Folkman and a very impressive international team found the same results.
So a noble prize winner isn't enough for the cancer charity who never bothered to look any further than Yamamoto, who I must agree seemed very suspect,... still how about these;
Department of Internal Medicine, Erasmus Medical Center, Genetic Laboratory, Rotterdam,
Department of Anatomy, Histology and Forensic Medicine, Florence, Italy.
Department of Ophthalmology and Visual Sciences, University of Kentucky, Lexington, Kentucky
Clinical Research Center, National Hospital Organization Nagasaki Medical Center
Department of Hepatology, Nagasaki University Graduate School of Biomedical Sciences, Omura, Japan
Division of Surgical Research, Children's Hospital, Boston,
And there are more HIGHLY reputable institutions and researchers finding the same kind of results and publishing in the highest quality journals.
Also Yamamoto NEVER in any of his papers said he had 'cured' cancer as the blog proclaims, also Yamamoto ran all of his papers by Dr. Sidney Weinhouse (Google him) before publishing.
Now as for their 'critique' about 'pre-treated' patients and 'small numbers' they have obviously never looked at a brain tumour clinical trial where this is standard! ( I have read hundreds)
ALL brain tumour clinical trials have HEAVILY PRE-TREATED patients with VERY small numbers, yet they still give them new Chemo to test, and if it does work ( to a degree) the FDA grants a licence from those small trial results.
Now as for the price of $150 for about a months supply, Avastin costs $20,000 per month and prolongs life for a median of 4.7 months just to give you some perspective.
I agree with you there are many, many charlatans out there who prey on cancer patients, but at the same time there are very powerful Pharmacutical companies who do the same. Gc-MAF cannot be patented so there is NO interest to do all of the double blind $300 million dollar trials with large cohorts.
I am not saying Gc-maf is a 'magic bullet' everyone is unique and so is every cancer, STILL, if I look at a treatments potential benefit versus cost/negative side affects then Gc-MAF is VERY worthy of a trial.
That's my 2 cents and Im done with it. Believe what you want.
That is a very strong argument for gcmaf. I am keeping it on the back burner but should i reccur again i will most likely try it and monitor its progress or lack there of through ct scans. Please keep us poated.0 -
thanks winterherdizziness said:When they say
things like "Help NHF get the word out about GcMAF and other proven cures for cancer that are being ignored" and sell their product at $150.00 or more a whack, I'd steer as clear away from this as I can.
This smacks of charletons taking money from people desperate in their cancer battle. I swear Pete you find the oddest things to do to your poor body, I truly am starting to feel sorry for it.
http://scienceblog.cancerresearchuk.org/2008/12/03/cancer-cured-for-good-gc-maf-and-the-miracle-cure/
Again people, if it sounds too good to be true, it probably is quackery.
Winter Marie
Dear winter,
thanks for chimming in here, i read your link, and i empathise with your understanding but don't agree with its conclusions.
for me i trust and have faith in my integrative onc, he advised and sourced and injected gcmaf into my tummy. he are great friends now. i may work for him one day. until that day when my bloods are clear of this curse i will keep on pursuing a cure and sharing my research.
i am tired, stressed and i am so pleased to see tony reply, he did a better job of the references than i could. his approach of research based. and of course seeing a positive comment from tanstaffl.
your contribution adds value to this thread. my approach is simply trust my onc. of course if tanstafll had been negative on gcmaf on technical grounds i would have been worried. we have pros and cons of gcmaf. anyone interested at least has some reading in one post.
your concern, based on reading the site you reference shows the challenge of our searchings for a cure. its very hard work, and thats why the supportive team approach without big ego's is the way to go here, i am so pleased to see interest from tans, jeff and tony. I am happy to be the first on csn to try this, I say that with pride, and have no fear re my poor body. I am blessed not to be on chemo and have health and energy and an opportunity to heal naturally.
my role here is the guinea pig, i will leave the science to my friends. if it gcmaf works, well lets party, if it fails their is always something else to try while i have dollars and breathe, i will try. if i run out of dollars i will steal some tumeric or grow my own, or i'll grow it. i simply will not sit back week by week and have a shot of chemo and do nothing else. that is not my style, it maybe others choices, i respect them, but its not for me.
your care for me and your ideas are appreciated. even if i don't agree with the links comments you provided. some others might, so its worthwhile. we all got to roll our dice and make decisions. Its nice to share the roll of the dice with friends here, be it an alt roll, conventional roll or a combo. As long as we have fun and win. whatever winning means when you got crc.
hugs,
pete0 -
so what does my clear scan mean re nagalase testing and cea ?
Dear friends,
So is CEA an outdated test ?, will nagalase be the new bio marker for colorectal in the future ? what does my one blood test level mean. Its exciting to think i could be the first poineer here to find something of immense value to the colorectal community or i have just been duped of $170 aud for the nagalase test.
but just imagine for a minute, a more accurate colorectal biomarker, it could change all clinical practice and guidelines overnight. the possibility is exciting. now if not nagalase, and at this point i hope it is the real deal. it will be another better test one day.
i dream of blood tests with better specificity, more accuracy to help make better clincial decisions, in tighter timeframes. to save more lives.
so i plan to do nagalase tests , side by side my cea. I will include all the results here.
should i even tell me onc, i know she will say the test is alt garbage, not proven and she cannot make clinical decisions using it. i know the evidence based answers to well already.
Now something deliberately controversial.
i so agree about hating the charletons who take our money. almost everyday in my personal survival quest i get advice that i have to rigorously question and assess against my knowledge base.
i often run the risk of being scammed or defrauded regarding my cancer treatments.
i am confident in my understanding and judgement for my situation alone. i make the best decisions i can, we all do. of course they are different decisions, we all have different paths in our healing journey.
we come together and share our longing for survival often our frustrations.
my vent earlier , that got me into more trouble again, was aimed at the charletons. you see for almost everyone here going down the tried and tested conventional path you are protected from the charletons to a large extent. except when the cancer centers had the fake chemo, that i alerted you guys to months ago. that was greed at its worst, even conventional medicine is not safe from charletons and scammers and how long did the fda take to give the warning.
Those who follow the alternative path, myself included, are exposed constatnly to the conartists, to buying over the net, to trusting references that maybe suspect. i have heard of some of my friends here being exploited and it makes my blood boil, i want revenge but i will not permit myself to explore the depth of rage i feel to those that exploit the weak.
one day if you are really up for the discussion, and i don't have time for it right now. are our current onc's negligent about not recommending exercise to vulnerable cancer patients. as a professiona they have waited years to make such a daring advice to patients. still they have not yet. so that is callous, negligent breach of trust in my books. I empathise with those loyal trusting cancer patients.
now consider the charletons that sell fake gcmaf or any other cancer scam, or come up with bogus studies.
whats worse the negligent onc who fails his duty of care or the charleton ?
my answer is the onc's are worse because exercise saves lives, its that simple. its as easy as a walk. how come the ACS is in a better position of advocacy than one of our most trusted professions.
the onc failure here effects thousands more patients than the charletons. my reasoning is probably because most cancers patients don't have funds left to scammed out of.
I raise the question of the failings of conventional oncology with respect to my case as an example.
Why did not my conventional onc ask about gcmaf and recommended the nagalase test ?
Why did my intergrative oncologist have to perform this function ?
this is all just my opinion but conventional oncology has to adapt faster, too many lives are being lost. maybe nagalase will be the tip of the iceberg, maybe not. But exercise and simple walking is, and thats enough to convict the entire profession on.
If nagalase is the real deal, I won't ask myself why its taken so long to be tested ? I may not like the answers and i won't think about where my health would be if I had started testing earlier and I will cry for many reasons.
i have a sense of my duty of care to me and my friends here, i think its far more advanced than that i see in most oncologists with regard cancer therapies regarding healthy diet, exercise and supplements.
those that seek out better ways than conventional, that seek to give themselves the best chance of life i appreciate and am grateful for, they are pushing the potential of cure. indirectly they are boosting my chances by sharing their experience.
this thread is about gcmaf, but it brings together the issues around alternative and conventional as well as the responsibility we have for our own health given the limitations of the health system i am being treated in. Is it not sensible to see the limitations of my system and workaround them ?
so i have a clear scan, but the words in the ct report "no changes found at this stage" bring home the fragile nature of my health and why i will be insisting on my gcmaf shot tomorrow.
i wonder why my cea is rising ? I will ask my onc next week for the bone scan and the liver mri with contrast called primovist. its the worlds most accurate way of defining liver mets according to my little scanning team at sydney xray.
i will also ask my colorectal surgeons to go and patch up my hernia and in the process have a poke around the liver and abdo to see if they can find something to cut out. I at least have to ask this question again, its been six months since i asked it. and this rising cea is a real bummer.
the best thing about having a rising cea over eight months and NO tumours found on the scans is i have had an amazing window to try almost every alternative cancer treatment in the top 10. For the record none of them have killed me, or sent me broke. i have great health and now enjoy raw broccoli.
hugs,
pete0 -
thats a valuable 2 centsmanwithnoname said:DBP-MAF, also known as GcMAF
Well, you posted a link from a blog circa 2008 from a cancer charity that seemed to go out of it's way to show what nonsense Yamamotos theory, work, and results were.
HOWEVER, the story does not start or end with that blog, I have already posted a link showing J.Folkman and a very impressive international team found the same results.
So a noble prize winner isn't enough for the cancer charity who never bothered to look any further than Yamamoto, who I must agree seemed very suspect,... still how about these;
Department of Internal Medicine, Erasmus Medical Center, Genetic Laboratory, Rotterdam,
Department of Anatomy, Histology and Forensic Medicine, Florence, Italy.
Department of Ophthalmology and Visual Sciences, University of Kentucky, Lexington, Kentucky
Clinical Research Center, National Hospital Organization Nagasaki Medical Center
Department of Hepatology, Nagasaki University Graduate School of Biomedical Sciences, Omura, Japan
Division of Surgical Research, Children's Hospital, Boston,
And there are more HIGHLY reputable institutions and researchers finding the same kind of results and publishing in the highest quality journals.
Also Yamamoto NEVER in any of his papers said he had 'cured' cancer as the blog proclaims, also Yamamoto ran all of his papers by Dr. Sidney Weinhouse (Google him) before publishing.
Now as for their 'critique' about 'pre-treated' patients and 'small numbers' they have obviously never looked at a brain tumour clinical trial where this is standard! ( I have read hundreds)
ALL brain tumour clinical trials have HEAVILY PRE-TREATED patients with VERY small numbers, yet they still give them new Chemo to test, and if it does work ( to a degree) the FDA grants a licence from those small trial results.
Now as for the price of $150 for about a months supply, Avastin costs $20,000 per month and prolongs life for a median of 4.7 months just to give you some perspective.
I agree with you there are many, many charlatans out there who prey on cancer patients, but at the same time there are very powerful Pharmacutical companies who do the same. Gc-MAF cannot be patented so there is NO interest to do all of the double blind $300 million dollar trials with large cohorts.
I am not saying Gc-maf is a 'magic bullet' everyone is unique and so is every cancer, STILL, if I look at a treatments potential benefit versus cost/negative side affects then Gc-MAF is VERY worthy of a trial.
That's my 2 cents and Im done with it. Believe what you want.
your detailed answer meant i could unload more thoughts surrounding my gcmaf treatment and why it appears i am the first here.
hugs,
pete0 -
Pete, no one enjoys raw broccoli ;-)pete43lost_at_sea said:so what does my clear scan mean re nagalase testing and cea ?
Dear friends,
So is CEA an outdated test ?, will nagalase be the new bio marker for colorectal in the future ? what does my one blood test level mean. Its exciting to think i could be the first poineer here to find something of immense value to the colorectal community or i have just been duped of $170 aud for the nagalase test.
but just imagine for a minute, a more accurate colorectal biomarker, it could change all clinical practice and guidelines overnight. the possibility is exciting. now if not nagalase, and at this point i hope it is the real deal. it will be another better test one day.
i dream of blood tests with better specificity, more accuracy to help make better clincial decisions, in tighter timeframes. to save more lives.
so i plan to do nagalase tests , side by side my cea. I will include all the results here.
should i even tell me onc, i know she will say the test is alt garbage, not proven and she cannot make clinical decisions using it. i know the evidence based answers to well already.
Now something deliberately controversial.
i so agree about hating the charletons who take our money. almost everyday in my personal survival quest i get advice that i have to rigorously question and assess against my knowledge base.
i often run the risk of being scammed or defrauded regarding my cancer treatments.
i am confident in my understanding and judgement for my situation alone. i make the best decisions i can, we all do. of course they are different decisions, we all have different paths in our healing journey.
we come together and share our longing for survival often our frustrations.
my vent earlier , that got me into more trouble again, was aimed at the charletons. you see for almost everyone here going down the tried and tested conventional path you are protected from the charletons to a large extent. except when the cancer centers had the fake chemo, that i alerted you guys to months ago. that was greed at its worst, even conventional medicine is not safe from charletons and scammers and how long did the fda take to give the warning.
Those who follow the alternative path, myself included, are exposed constatnly to the conartists, to buying over the net, to trusting references that maybe suspect. i have heard of some of my friends here being exploited and it makes my blood boil, i want revenge but i will not permit myself to explore the depth of rage i feel to those that exploit the weak.
one day if you are really up for the discussion, and i don't have time for it right now. are our current onc's negligent about not recommending exercise to vulnerable cancer patients. as a professiona they have waited years to make such a daring advice to patients. still they have not yet. so that is callous, negligent breach of trust in my books. I empathise with those loyal trusting cancer patients.
now consider the charletons that sell fake gcmaf or any other cancer scam, or come up with bogus studies.
whats worse the negligent onc who fails his duty of care or the charleton ?
my answer is the onc's are worse because exercise saves lives, its that simple. its as easy as a walk. how come the ACS is in a better position of advocacy than one of our most trusted professions.
the onc failure here effects thousands more patients than the charletons. my reasoning is probably because most cancers patients don't have funds left to scammed out of.
I raise the question of the failings of conventional oncology with respect to my case as an example.
Why did not my conventional onc ask about gcmaf and recommended the nagalase test ?
Why did my intergrative oncologist have to perform this function ?
this is all just my opinion but conventional oncology has to adapt faster, too many lives are being lost. maybe nagalase will be the tip of the iceberg, maybe not. But exercise and simple walking is, and thats enough to convict the entire profession on.
If nagalase is the real deal, I won't ask myself why its taken so long to be tested ? I may not like the answers and i won't think about where my health would be if I had started testing earlier and I will cry for many reasons.
i have a sense of my duty of care to me and my friends here, i think its far more advanced than that i see in most oncologists with regard cancer therapies regarding healthy diet, exercise and supplements.
those that seek out better ways than conventional, that seek to give themselves the best chance of life i appreciate and am grateful for, they are pushing the potential of cure. indirectly they are boosting my chances by sharing their experience.
this thread is about gcmaf, but it brings together the issues around alternative and conventional as well as the responsibility we have for our own health given the limitations of the health system i am being treated in. Is it not sensible to see the limitations of my system and workaround them ?
so i have a clear scan, but the words in the ct report "no changes found at this stage" bring home the fragile nature of my health and why i will be insisting on my gcmaf shot tomorrow.
i wonder why my cea is rising ? I will ask my onc next week for the bone scan and the liver mri with contrast called primovist. its the worlds most accurate way of defining liver mets according to my little scanning team at sydney xray.
i will also ask my colorectal surgeons to go and patch up my hernia and in the process have a poke around the liver and abdo to see if they can find something to cut out. I at least have to ask this question again, its been six months since i asked it. and this rising cea is a real bummer.
the best thing about having a rising cea over eight months and NO tumours found on the scans is i have had an amazing window to try almost every alternative cancer treatment in the top 10. For the record none of them have killed me, or sent me broke. i have great health and now enjoy raw broccoli.
hugs,
pete
Some of you might have seen this vid, most won't, this is close to my heart and shows the battle of alternative ideas and conventional wisdom and the spirit of a man who won't give up.
Hope it gives some of you food for thought (and hope).
http://www.youtube.com/watch?v=K6JsCXjS8lg 0 -
Statsmanwithnoname said:DBP-MAF, also known as GcMAF
Well, you posted a link from a blog circa 2008 from a cancer charity that seemed to go out of it's way to show what nonsense Yamamotos theory, work, and results were.
HOWEVER, the story does not start or end with that blog, I have already posted a link showing J.Folkman and a very impressive international team found the same results.
So a noble prize winner isn't enough for the cancer charity who never bothered to look any further than Yamamoto, who I must agree seemed very suspect,... still how about these;
Department of Internal Medicine, Erasmus Medical Center, Genetic Laboratory, Rotterdam,
Department of Anatomy, Histology and Forensic Medicine, Florence, Italy.
Department of Ophthalmology and Visual Sciences, University of Kentucky, Lexington, Kentucky
Clinical Research Center, National Hospital Organization Nagasaki Medical Center
Department of Hepatology, Nagasaki University Graduate School of Biomedical Sciences, Omura, Japan
Division of Surgical Research, Children's Hospital, Boston,
And there are more HIGHLY reputable institutions and researchers finding the same kind of results and publishing in the highest quality journals.
Also Yamamoto NEVER in any of his papers said he had 'cured' cancer as the blog proclaims, also Yamamoto ran all of his papers by Dr. Sidney Weinhouse (Google him) before publishing.
Now as for their 'critique' about 'pre-treated' patients and 'small numbers' they have obviously never looked at a brain tumour clinical trial where this is standard! ( I have read hundreds)
ALL brain tumour clinical trials have HEAVILY PRE-TREATED patients with VERY small numbers, yet they still give them new Chemo to test, and if it does work ( to a degree) the FDA grants a licence from those small trial results.
Now as for the price of $150 for about a months supply, Avastin costs $20,000 per month and prolongs life for a median of 4.7 months just to give you some perspective.
I agree with you there are many, many charlatans out there who prey on cancer patients, but at the same time there are very powerful Pharmacutical companies who do the same. Gc-MAF cannot be patented so there is NO interest to do all of the double blind $300 million dollar trials with large cohorts.
I am not saying Gc-maf is a 'magic bullet' everyone is unique and so is every cancer, STILL, if I look at a treatments potential benefit versus cost/negative side affects then Gc-MAF is VERY worthy of a trial.
That's my 2 cents and Im done with it. Believe what you want.
"Avastin costs $20,000 per month and prolongs life for a median of 4.7 months just to give you some perspective."
I was on it for 10 doses 8 years ago. Just to give you another perspective...0 -
tony, the protocol, here goes this weeksmanwithnoname said:congrats Pete
That's good news on your scan, just realised all you peeps are doing CT scans, for our stuff its only MRI, they offered us CT coz the MRI was fully booked after the last op. and my misses nearly hit the roof, CT is 400-500 x-ray dose, they make us leave the room when they do 1 x-ray for kids, now I don't want to open a can of worms here but for kids, and especially the brain its frowned upon unless an emergency.
BTW read the breast cancer womens 'critique' on GcMAF, i could write a few thousand words why it was a poor argument but don't have the time or inclination to try and convert sceptics.
How do you do the curcumin thing? would love to hear your full protocol, is it on a thread? if not do you mind posting it?
Tony
sfn, mcp, avemar, minerals, vitamins, egcg, tumeric, q10, probiotics 4 types, slippery elm, glisodin, astralgus, spirulina, chorella, wheat grass, kelp, iodine, artemisinin, b12, fish oil, flax oil, udo oil, greenlip mussel oil, coconut oil, digestive enzymes 5 types, protein powders, alkaline water ph=9.5, tcm daily, shark cartlige , b17, resveratrol, grape seed, psp, psk, reishi, cordyceps, mushroom drops 3 types, vit d, vit c, vit k2, vit k3 and c, melatonin, milk thistle, gsh, nac, glycine, calcium d glucarate.
currently doing iv c, sodium bicard, alpha lipoic acid 3 days a week.
yoga, qigong, meditation, weightlifting, walking.
diet raw vegan, with a few cheats. doing 4 veg juices/ green smoothies daily.
my hobbies is reading research studies. in another life i am the worlds most enthusiastic underwater photographer.
the i have made my liposomal vit c, but not yet curcumin. my friend has to extract the raw curcumoids using a patentable protocol he thinks. so if you want to try liposomal curcumin then source on the net. i have not looked into this yet. i am happy with inflavanoid from metagenics. google its , got lots of good cofactors boswellia to name one.
i also don't waste a second on converting skeptics, our lives are to short.
I have an amazing book, 80 pages on sfn and glisodin from the worlds best source, a personal friend almost and an amazing phd researcher, if you want to read why broccoli powder is first on my list, that book is the way to go. pm with an email if you or anyone else wants it. if you want the clearest understadning of free radical cascades and the antioxidant pyramid then its the book.
hugs,
pete0 -
My Onc...pete43lost_at_sea said:so what does my clear scan mean re nagalase testing and cea ?
Dear friends,
So is CEA an outdated test ?, will nagalase be the new bio marker for colorectal in the future ? what does my one blood test level mean. Its exciting to think i could be the first poineer here to find something of immense value to the colorectal community or i have just been duped of $170 aud for the nagalase test.
but just imagine for a minute, a more accurate colorectal biomarker, it could change all clinical practice and guidelines overnight. the possibility is exciting. now if not nagalase, and at this point i hope it is the real deal. it will be another better test one day.
i dream of blood tests with better specificity, more accuracy to help make better clincial decisions, in tighter timeframes. to save more lives.
so i plan to do nagalase tests , side by side my cea. I will include all the results here.
should i even tell me onc, i know she will say the test is alt garbage, not proven and she cannot make clinical decisions using it. i know the evidence based answers to well already.
Now something deliberately controversial.
i so agree about hating the charletons who take our money. almost everyday in my personal survival quest i get advice that i have to rigorously question and assess against my knowledge base.
i often run the risk of being scammed or defrauded regarding my cancer treatments.
i am confident in my understanding and judgement for my situation alone. i make the best decisions i can, we all do. of course they are different decisions, we all have different paths in our healing journey.
we come together and share our longing for survival often our frustrations.
my vent earlier , that got me into more trouble again, was aimed at the charletons. you see for almost everyone here going down the tried and tested conventional path you are protected from the charletons to a large extent. except when the cancer centers had the fake chemo, that i alerted you guys to months ago. that was greed at its worst, even conventional medicine is not safe from charletons and scammers and how long did the fda take to give the warning.
Those who follow the alternative path, myself included, are exposed constatnly to the conartists, to buying over the net, to trusting references that maybe suspect. i have heard of some of my friends here being exploited and it makes my blood boil, i want revenge but i will not permit myself to explore the depth of rage i feel to those that exploit the weak.
one day if you are really up for the discussion, and i don't have time for it right now. are our current onc's negligent about not recommending exercise to vulnerable cancer patients. as a professiona they have waited years to make such a daring advice to patients. still they have not yet. so that is callous, negligent breach of trust in my books. I empathise with those loyal trusting cancer patients.
now consider the charletons that sell fake gcmaf or any other cancer scam, or come up with bogus studies.
whats worse the negligent onc who fails his duty of care or the charleton ?
my answer is the onc's are worse because exercise saves lives, its that simple. its as easy as a walk. how come the ACS is in a better position of advocacy than one of our most trusted professions.
the onc failure here effects thousands more patients than the charletons. my reasoning is probably because most cancers patients don't have funds left to scammed out of.
I raise the question of the failings of conventional oncology with respect to my case as an example.
Why did not my conventional onc ask about gcmaf and recommended the nagalase test ?
Why did my intergrative oncologist have to perform this function ?
this is all just my opinion but conventional oncology has to adapt faster, too many lives are being lost. maybe nagalase will be the tip of the iceberg, maybe not. But exercise and simple walking is, and thats enough to convict the entire profession on.
If nagalase is the real deal, I won't ask myself why its taken so long to be tested ? I may not like the answers and i won't think about where my health would be if I had started testing earlier and I will cry for many reasons.
i have a sense of my duty of care to me and my friends here, i think its far more advanced than that i see in most oncologists with regard cancer therapies regarding healthy diet, exercise and supplements.
those that seek out better ways than conventional, that seek to give themselves the best chance of life i appreciate and am grateful for, they are pushing the potential of cure. indirectly they are boosting my chances by sharing their experience.
this thread is about gcmaf, but it brings together the issues around alternative and conventional as well as the responsibility we have for our own health given the limitations of the health system i am being treated in. Is it not sensible to see the limitations of my system and workaround them ?
so i have a clear scan, but the words in the ct report "no changes found at this stage" bring home the fragile nature of my health and why i will be insisting on my gcmaf shot tomorrow.
i wonder why my cea is rising ? I will ask my onc next week for the bone scan and the liver mri with contrast called primovist. its the worlds most accurate way of defining liver mets according to my little scanning team at sydney xray.
i will also ask my colorectal surgeons to go and patch up my hernia and in the process have a poke around the liver and abdo to see if they can find something to cut out. I at least have to ask this question again, its been six months since i asked it. and this rising cea is a real bummer.
the best thing about having a rising cea over eight months and NO tumours found on the scans is i have had an amazing window to try almost every alternative cancer treatment in the top 10. For the record none of them have killed me, or sent me broke. i have great health and now enjoy raw broccoli.
hugs,
pete
has always talked about walking to help cancer...and he's said it more than once.
He mentioned it to me during chemo as well....to just walk 5-minutes even when sick on chemo.
Some doctors may or may not counsel on this...but as reasonably intelligent folks, we already know that exercise is beneficial to us with or without cancer.
Mine has always been real good to stay on me to walk and lose weight. He told me last time to get a few more pounds off...so he is taking care of business.0 -
AvastinPhillieG said:Stats
"Avastin costs $20,000 per month and prolongs life for a median of 4.7 months just to give you some perspective."
I was on it for 10 doses 8 years ago. Just to give you another perspective...
Glad it helped, not saying Avastin doesn't work, it helped cure someone we know of GBM, the most malignant brain tumour (off label) many countries stopped using it down to costs and their view of it's limited benefit.
However if it cures even one person its worth it IMHO.0 -
After 20 yearsherdizziness said:When they say
things like "Help NHF get the word out about GcMAF and other proven cures for cancer that are being ignored" and sell their product at $150.00 or more a whack, I'd steer as clear away from this as I can.
This smacks of charletons taking money from people desperate in their cancer battle. I swear Pete you find the oddest things to do to your poor body, I truly am starting to feel sorry for it.
http://scienceblog.cancerresearchuk.org/2008/12/03/cancer-cured-for-good-gc-maf-and-the-miracle-cure/
Again people, if it sounds too good to be true, it probably is quackery.
Winter Marie
of selling it, if it was curing AIDS and cancer, I'm pretty sure it would have been BIG BIG NEWS. Every where I looked it was CURING AIDS. Give me a break. My brother died from AIDS and I'm sick of these scam artists trying to get you to buy what their selling with the promise of a cure. Yes, I'm going to believe something CURES not only AIDS,but CANCER AND MS too, whoop whoop. Sorry, you can go spend all you want on it,throwing your money away, but nothing you can say or show will convince me. Everything I found on the internet talking how great it is, was from people PROMOTING the sales of it. And of course they warn you on their site, it's just because big pharma can't make money off of it is why one knows about it, except you the researcher that has finally found them and can cure yourself of cancer and aids and a few other diseases if you spend your hard earned money on it.
Pete, you are a scam artists dream.
From their own web site:
http://www.gcmaf.eu/info/index.php?option=com_content&view=category&layout=blog&id=20&Itemid=25
Winter Marie0
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