Radiation
Comments
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Ask the dr or nurse about
Ask the dr or nurse about any other prescription creams that might help I used just the aquaphor but radiation affects each of us individually ..... celebrate on your last day you deserve it! I had to fly every day on a small plane for my radiation in sometime blizzard conditions due to distance that was not too fun! Y
You can do it ... we are all here for support! Prayers heading your way! Sue D0 -
Ask for...sdukowitz said:Ask the dr or nurse about
Ask the dr or nurse about any other prescription creams that might help I used just the aquaphor but radiation affects each of us individually ..... celebrate on your last day you deserve it! I had to fly every day on a small plane for my radiation in sometime blizzard conditions due to distance that was not too fun! Y
You can do it ... we are all here for support! Prayers heading your way! Sue D
My radiation oncologist gave me a prescription cream, Biofine....I used it from day one..carried it in my purse and applied it before I put my top on...then 3 more times daily...but never more than 4 hours before treatment...I showered before each treatment...I never burned...I was told NOT to use AQUAPHOR until treatment was done because it is petroleum based, hard to remove and could interfere with the effectiveness of the rads...but many use it.... I had 33 treatments with the last 7 being boosters
Ask for a prescription cream....
You're almost done, congrats, you'll be a rad graduate before you know it!
Hugs, Nancy0 -
Insist on seeing the doctorMAJW said:Ask for...
My radiation oncologist gave me a prescription cream, Biofine....I used it from day one..carried it in my purse and applied it before I put my top on...then 3 more times daily...but never more than 4 hours before treatment...I showered before each treatment...I never burned...I was told NOT to use AQUAPHOR until treatment was done because it is petroleum based, hard to remove and could interfere with the effectiveness of the rads...but many use it.... I had 33 treatments with the last 7 being boosters
Ask for a prescription cream....
You're almost done, congrats, you'll be a rad graduate before you know it!
Hugs, Nancy
When I was going through radiation, I started to burn pretty badly at around the same time as you.
Insist on seeing the doctor, even if it's not your scheduled day to see him/her -- they have an arsenal of different creams they can prescribe to make you more comfortable, and it's better to get them going now instead of later. I had several different ones, and they really do help better than the over-the-counter lotions, if the burns start to get bad.
Traci0 -
I had Biofine for any burnMAJW said:Ask for...
My radiation oncologist gave me a prescription cream, Biofine....I used it from day one..carried it in my purse and applied it before I put my top on...then 3 more times daily...but never more than 4 hours before treatment...I showered before each treatment...I never burned...I was told NOT to use AQUAPHOR until treatment was done because it is petroleum based, hard to remove and could interfere with the effectiveness of the rads...but many use it.... I had 33 treatments with the last 7 being boosters
Ask for a prescription cream....
You're almost done, congrats, you'll be a rad graduate before you know it!
Hugs, Nancy
I had Biofine for any burn that I might get, but, I never burnt..just got really red and tender. Have your rads oncologist see you. There are other meds they can prescribe for you. I also used tons of Aquaphor, mainly to keep my skin moist.
If your skin gets too bad, they can stop your treatments for awhile to give you time to heal.
Mainly..get your rads oncologist to see you now.
Good luck,
Lex0 -
omg! thank you all so
omg! thank you all so much! i went in today and i asked to talk to my dr....even tho it wasn't my scheduled day to see him. i showed him what was happening and he stopped my treatments for a couple days. said i could use a break and gave me all kinds of stuff to try to get some healing in the next 3 days.....and then when i go back in he will look to see if i need more time. i didn't know i could do that but you all helped me to talk to him about it.......i sooooo appreciate you!0 -
When I had rads, they had toajdebbs said:omg! thank you all so
omg! thank you all so much! i went in today and i asked to talk to my dr....even tho it wasn't my scheduled day to see him. i showed him what was happening and he stopped my treatments for a couple days. said i could use a break and gave me all kinds of stuff to try to get some healing in the next 3 days.....and then when i go back in he will look to see if i need more time. i didn't know i could do that but you all helped me to talk to him about it.......i sooooo appreciate you!
When I had rads, they had to stop them for another pink sister as she was really burnt. I think they gave her 2 weeks off and she came back after that and finished. No doctor worth his salt will make you continue if you are burnt bad.
Glad we could help and good luck!
Lex0 -
I'm glad you got a break!ajdebbs said:omg! thank you all so
omg! thank you all so much! i went in today and i asked to talk to my dr....even tho it wasn't my scheduled day to see him. i showed him what was happening and he stopped my treatments for a couple days. said i could use a break and gave me all kinds of stuff to try to get some healing in the next 3 days.....and then when i go back in he will look to see if i need more time. i didn't know i could do that but you all helped me to talk to him about it.......i sooooo appreciate you!
It's great you asked for more help - there's no need to suffer. I got blisters on the area that shows when I wear a swim suit. The prescribed creams really helped. The reddness subsided in 2-3 weeks after I finished treatment. I had 33 sessions with the last 5 being boosters at the end.
I hope you feel better soon!
Hugs!
Karen0 -
Good girl!ajdebbs said:omg! thank you all so
omg! thank you all so much! i went in today and i asked to talk to my dr....even tho it wasn't my scheduled day to see him. i showed him what was happening and he stopped my treatments for a couple days. said i could use a break and gave me all kinds of stuff to try to get some healing in the next 3 days.....and then when i go back in he will look to see if i need more time. i didn't know i could do that but you all helped me to talk to him about it.......i sooooo appreciate you!
Going through treatment, it's so important to know when to tell your doctors, this is too much, I need help.
Good for you, for advocating for yourself, and I'm so glad we were here to give you an encouraging push.
Traci0 -
Always have your radsksf56 said:I'm glad you got a break!
It's great you asked for more help - there's no need to suffer. I got blisters on the area that shows when I wear a swim suit. The prescribed creams really helped. The reddness subsided in 2-3 weeks after I finished treatment. I had 33 sessions with the last 5 being boosters at the end.
I hope you feel better soon!
Hugs!
Karen
Always have your rads oncologist himself see you at the least, once a week and it should be more. They are responsible for seeing that you aren't getting too badly burnt.
I am glad that you got helped and can stop rads for a few days. I know it will help.
Good luck,
Kylez0 -
you all rock. thank you
you all rock. thank you again. today was my 23rd treatment out of 33 and 3 boosters. so we'll see how it goes. he said he would check me out on tuesday and see if i need more time off. i'm sooooo thankful that i went to him directly. he was really great about it.....once he saw. and in his defense....it was pretty mild when i saw him on my weekly visit but within a couple days it really opened up.
again, i'm so grateful to you for your help!
thank you and God bless!0 -
We are all so differentajdebbs said:you all rock. thank you
you all rock. thank you again. today was my 23rd treatment out of 33 and 3 boosters. so we'll see how it goes. he said he would check me out on tuesday and see if i need more time off. i'm sooooo thankful that i went to him directly. he was really great about it.....once he saw. and in his defense....it was pretty mild when i saw him on my weekly visit but within a couple days it really opened up.
again, i'm so grateful to you for your help!
thank you and God bless!
I had no burning at all (just tanned) til after my 23rd rad. It was very mild when I got there for 24th and Techs called Dr in to see it. He said go ahead as I was only doing a total of 25 anyway. The next morning it was a bit worse but not bad - YET. The next morning I woke up with the entire radiated area 'open' and 'weeping'. From there on it got worse for weeks as even once rads are completed they keep "cooking" (word the Dr used) for quite a while. All I could do was wear white T-shirts to act as bandages and change them every 2 hrs (or less) when they would be soaked. Dr would like to have used Silvadene/Sulfadene but I'm allergic to Sulfa so couldn't. What finally worked on healing the burns was Domebro soaks. Was 'lucky', in some ways, that the deepest of the burns were under arm where there is nerve damage so I didn't feel the worst of the pain from it. Vicodin was my 'friend' for the rest of it though.
Remember - like with chemo - the effects of radiation are cumulative and can/will continue after last TX.
Winyan - The Power Within
Susan0 -
A few days off will help youRague said:We are all so different
I had no burning at all (just tanned) til after my 23rd rad. It was very mild when I got there for 24th and Techs called Dr in to see it. He said go ahead as I was only doing a total of 25 anyway. The next morning it was a bit worse but not bad - YET. The next morning I woke up with the entire radiated area 'open' and 'weeping'. From there on it got worse for weeks as even once rads are completed they keep "cooking" (word the Dr used) for quite a while. All I could do was wear white T-shirts to act as bandages and change them every 2 hrs (or less) when they would be soaked. Dr would like to have used Silvadene/Sulfadene but I'm allergic to Sulfa so couldn't. What finally worked on healing the burns was Domebro soaks. Was 'lucky', in some ways, that the deepest of the burns were under arm where there is nerve damage so I didn't feel the worst of the pain from it. Vicodin was my 'friend' for the rest of it though.
Remember - like with chemo - the effects of radiation are cumulative and can/will continue after last TX.
Winyan - The Power Within
Susan
A few days off will help you so much. I am so glad your rads oncologist saw you and realized you needed a break.
Best of luck to you,
Jan0 -
omg susan......i heard theRague said:We are all so different
I had no burning at all (just tanned) til after my 23rd rad. It was very mild when I got there for 24th and Techs called Dr in to see it. He said go ahead as I was only doing a total of 25 anyway. The next morning it was a bit worse but not bad - YET. The next morning I woke up with the entire radiated area 'open' and 'weeping'. From there on it got worse for weeks as even once rads are completed they keep "cooking" (word the Dr used) for quite a while. All I could do was wear white T-shirts to act as bandages and change them every 2 hrs (or less) when they would be soaked. Dr would like to have used Silvadene/Sulfadene but I'm allergic to Sulfa so couldn't. What finally worked on healing the burns was Domebro soaks. Was 'lucky', in some ways, that the deepest of the burns were under arm where there is nerve damage so I didn't feel the worst of the pain from it. Vicodin was my 'friend' for the rest of it though.
Remember - like with chemo - the effects of radiation are cumulative and can/will continue after last TX.
Winyan - The Power Within
Susan
omg susan......i heard the same thing.....the "cooking" will go on and on afterwards but yes....everyone is different and some healed right away and some did not. mine is under my armpit as well.....so like you it doesn't hurt so awful.....but the skin is just pealing like crazy and leaving it pretty raw. i'm using aquafor and lanacaine mixed as well as aloe directly from my cactus. they seem to work ok.....and last night i actually slept decent when i took my oxycodine....lol.
i'm hoping the doc says to wait a few more days on tuesday because i don't see it getting any better soon.
anyhoo.....thanks for fabulous advice.
you all are truly amazing!0 -
My poor Aloe plantajdebbs said:omg susan......i heard the
omg susan......i heard the same thing.....the "cooking" will go on and on afterwards but yes....everyone is different and some healed right away and some did not. mine is under my armpit as well.....so like you it doesn't hurt so awful.....but the skin is just pealing like crazy and leaving it pretty raw. i'm using aquafor and lanacaine mixed as well as aloe directly from my cactus. they seem to work ok.....and last night i actually slept decent when i took my oxycodine....lol.
i'm hoping the doc says to wait a few more days on tuesday because i don't see it getting any better soon.
anyhoo.....thanks for fabulous advice.
you all are truly amazing!
I had a HUGE container of Aloe when I started Rads - by the time all was healed it was just about none existant. Aug will be 3 yrs since DX and Aloe is finally back to about 1/2 of the size it was - but so glad I had it to attack/take.
My Dr had expected me to burn early on as I'm very 'fair' but have always tanned easy without burning, so he was surprised when I burned so bad at the end. I'm definately different/weird (LOL)!
With time this to will become something in the past. And even knowing what I now know happened - I do it again in a heartbeat. Would just have started the Domeboro soaks sooner.
Thoughts and prayers!
Winyan - The Power Within
Susan0 -
The cumulative effects ofRague said:My poor Aloe plant
I had a HUGE container of Aloe when I started Rads - by the time all was healed it was just about none existant. Aug will be 3 yrs since DX and Aloe is finally back to about 1/2 of the size it was - but so glad I had it to attack/take.
My Dr had expected me to burn early on as I'm very 'fair' but have always tanned easy without burning, so he was surprised when I burned so bad at the end. I'm definately different/weird (LOL)!
With time this to will become something in the past. And even knowing what I now know happened - I do it again in a heartbeat. Would just have started the Domeboro soaks sooner.
Thoughts and prayers!
Winyan - The Power Within
Susan
The cumulative effects of rads effects everyone. So, you need to continue with your creams and being good to your skin even after you are finished with rads. My rads oncologist told me to keep doing what I was doing for a few weeks afterwords at least. I actually kept using the creams, especially aquaphor for a month after I was done. My skin looks like a newborn babies, so, just remember that!0 -
aloeRague said:My poor Aloe plant
I had a HUGE container of Aloe when I started Rads - by the time all was healed it was just about none existant. Aug will be 3 yrs since DX and Aloe is finally back to about 1/2 of the size it was - but so glad I had it to attack/take.
My Dr had expected me to burn early on as I'm very 'fair' but have always tanned easy without burning, so he was surprised when I burned so bad at the end. I'm definately different/weird (LOL)!
With time this to will become something in the past. And even knowing what I now know happened - I do it again in a heartbeat. Would just have started the Domeboro soaks sooner.
Thoughts and prayers!
Winyan - The Power Within
Susan
hahahahha......i have a very large plant and so far you can't even tell i've been picking at it.......poor thing.
i didn't think i would burn because i have medium brown skin.....but apparently it was very tender....and burned pretty good. i'm not worried about it anymore....especially since he said i could take a little break. i got this now.
)
Thanks so much for your encouragement!
Ally0 -
Happy that you've got thisajdebbs said:aloe
hahahahha......i have a very large plant and so far you can't even tell i've been picking at it.......poor thing.
i didn't think i would burn because i have medium brown skin.....but apparently it was very tender....and burned pretty good. i'm not worried about it anymore....especially since he said i could take a little break. i got this now.)
Thanks so much for your encouragement!
Ally
Happy that you've got this break Ally! I never burned, so, I know I was lucky. Wishing you good luck when you resume your rads.
Hugs, Diane0 -
You will heal from rads andajdebbs said:omg susan......i heard the
omg susan......i heard the same thing.....the "cooking" will go on and on afterwards but yes....everyone is different and some healed right away and some did not. mine is under my armpit as well.....so like you it doesn't hurt so awful.....but the skin is just pealing like crazy and leaving it pretty raw. i'm using aquafor and lanacaine mixed as well as aloe directly from my cactus. they seem to work ok.....and last night i actually slept decent when i took my oxycodine....lol.
i'm hoping the doc says to wait a few more days on tuesday because i don't see it getting any better soon.
anyhoo.....thanks for fabulous advice.
you all are truly amazing!
You will heal from rads and I think you will be pleasantly surprised at how fast it happens. Just be very gentle with your skin, get lots of sleep and keep your creams on. How are you doing now Ally?
Hugs, Leeza0
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