There is no such thing as whining......

phrannie51 said:

But it's not whining............
it's explaining a painful experience. And let me tell ya, the third time I tired to use my PEG (and I have only had to use it sparingly), the stuff wouldn't go down. I was in a panic...scared to death, that this PEG that I might have to depend on, suddenly didn't work...You all know what I'd done....forgot to unclip it....LOL....but you should have heard me crying...so scared.

Matt, I believe it was horribly painful, and doesn't fall into any type of whining catagory!

p

phrannie51 said:

Sending you prayers....and massive
positive thoughts on the PET, Matt........will be tucking you into my pocket!!

p

Pam M said:

Hmmmmmm
OK - so three of us have "is this whining?" stories about - - PEG tubes!! Let me start by saying I don't know of anyone else this has happened to. . .

Me, I had issues, thought it must in in wrong because it was still painful after I got home from the hospital. the Gastro doc's evil Nazi-nurse/phone screener assured me that I could not just make a "squeeze in" appointment, because I wasn't a patient. I let her know that I WAS a patient - the guy had just put in a feeding tube a few days earlier, and I was supposed to schedule a follow up appointment with him - I just needed to come in today, because something was wrong, and I was in pain, not discomfort. She told me that I could not come in until after I'd had a "regular" appointment, and to go to the emergency room if I was concerned. I told her I HAD been to the emergency room two days earlier on the weekend, they xrayed me, and told me to see my gastro for follow up. THEN nurse Ratchett says "and why didn't you make an appointment then? Before you left the hospital?" I said "Ma'am, I was on a chemo fanny pack, and felt ill, and wanted to go home to rest - I truly thought it'd be OK to call in a day or so". Have I mentioned she told me it would be three weeks before my follow up visit that would enable me to use the title "regular" patient?

Woke up the next day, New Year's Eve, at about six thirty, in a puddle of blood - my daughter out-law said my bed looked like a murder scene. My other docs were at a loss when it comes to feeding tubes, so they couldn't help (even though they had kind, loving office staff members). I called for a ride to ER, then called my RO's office and let them know that the bleeding had stopped, I was feeling more mentally alert, and not so weak as I was when I woke, and I just couldn't go back to the hospital that day.

Normally not a complainer, I did make sure I let my MO and RO offices both know about my treatment. I wondered if I was a whiner when I told MO's nurse that I was worried about having lost some of my precious chemo with the blood loss.

Wow - didn't intend a novella when I started this - just realized the memory still makes me feel bad.

By the way - - the last two times I went to that doc's office, I looked at all the name tags I could find on staff members - didn't see her name or hear her voice.

So, STILL whining - all this time later (two and a half years later) - no apologies.

Tim6003 said:

Well...I think...
It's okay to share some of our stories....though we all try and keep positive, if nobody ever said it hurt or they neve cried....newbies would really get discouraged.

I won't go into detaisl about my neck...you can just look at my picture. Suffice to say in hte end when my wife would clean and bandage my neck ...I was close to if not what Matt did.

Best,

Tim

Pam M said:

Hmmmmmm
OK - so three of us have "is this whining?" stories about - - PEG tubes!! Let me start by saying I don't know of anyone else this has happened to. . .

Me, I had issues, thought it must in in wrong because it was still painful after I got home from the hospital. the Gastro doc's evil Nazi-nurse/phone screener assured me that I could not just make a "squeeze in" appointment, because I wasn't a patient. I let her know that I WAS a patient - the guy had just put in a feeding tube a few days earlier, and I was supposed to schedule a follow up appointment with him - I just needed to come in today, because something was wrong, and I was in pain, not discomfort. She told me that I could not come in until after I'd had a "regular" appointment, and to go to the emergency room if I was concerned. I told her I HAD been to the emergency room two days earlier on the weekend, they xrayed me, and told me to see my gastro for follow up. THEN nurse Ratchett says "and why didn't you make an appointment then? Before you left the hospital?" I said "Ma'am, I was on a chemo fanny pack, and felt ill, and wanted to go home to rest - I truly thought it'd be OK to call in a day or so". Have I mentioned she told me it would be three weeks before my follow up visit that would enable me to use the title "regular" patient?

Woke up the next day, New Year's Eve, at about six thirty, in a puddle of blood - my daughter out-law said my bed looked like a murder scene. My other docs were at a loss when it comes to feeding tubes, so they couldn't help (even though they had kind, loving office staff members). I called for a ride to ER, then called my RO's office and let them know that the bleeding had stopped, I was feeling more mentally alert, and not so weak as I was when I woke, and I just couldn't go back to the hospital that day.

Normally not a complainer, I did make sure I let my MO and RO offices both know about my treatment. I wondered if I was a whiner when I told MO's nurse that I was worried about having lost some of my precious chemo with the blood loss.

Wow - didn't intend a novella when I started this - just realized the memory still makes me feel bad.

By the way - - the last two times I went to that doc's office, I looked at all the name tags I could find on staff members - didn't see her name or hear her voice.

So, STILL whining - all this time later (two and a half years later) - no apologies.