anyone else tried GCMAF or got any good or bad stories about it UPDATED great nagalase result <0.9
just google it, its all about stimulating your immune system
nothing on pubmed for colorectal but the method of action should be the same.
here is the pubmed link for breast cancer test, yes i know not in vivo.
http://www.ncbi.nlm.nih.gov/pubmed/22213287
it costs $170 dollars aud a week , planning for a 30 weeks program. we are stuffed financially temporarily but i have no will power when promising alternative advocates smile and says this is worth a shot. these are friends i trust. well here is hoping.
will check nagalase levels after 8 weeks to see if its worth the dollars.
anyone else done nagalase testing in conjunction with cea tests ?
I would be interested in your experiences as i have started down this path.
especially when still nothing on the table as far as treatments from conventional.
when i die one day, i want to be reincarnated as a guineapig, i figure thats fair.
i need to sell assets but so far wife not agreeing. so i have been cutting back non essential supplements and doctors visits and tests. this has in itself been kind of stressful. the positive to having more focused therapies / supplements is i guess i can tie the biological results to what i am trying.
its only money i keep telling myself. the compound interest on the credit cards is about as scary as the rate of cea rise.
its taking a while to get the emotions of fear, frustration and dissapointment under control with regard to the latest cea rise.
anyway thats life downunder. i am questioning many aspects of the alternative program i am on.
the only good news is that my gut dysbios is back big time, that my over zealous enemas may have upset my gut bacteria. certainly got some symptoms leakage, gas etc etc recently. that i should have realised was a problem with gut bacteria. so maybe these are somehow related to my rising cea.
so i am back onto progurt probiotic that fixed my gut ultra quick a few months ago.
anyway i am really interested if anyone else has tried gcmaf or has any stories.
its method of action is based on the immune system, i am also doing the nagalase blood test.
smile its a lovelly day to be searching for health.
hugs,
Pete
still sticking to the vegan diet, but its on a short leash.
my peace of mind has deserted me momentarily, like my mobile phone for 24 hours.
i think loosing my phone and my contacts, recordings and photos was as stressful the cea rise.
how a test result can tip my world upside down is intriuging for me. i need to realise is still am well, have no symptoms and great health. to let a test result dampen my mood is kind silly, i don't want to ignore the result, just deal with the result appropriately.
i am going to have to come up with a good framework for coping with "setup backs", thats what the alternative crowd call normal tumour progression.
just a few randon thoughts here, soon the peace of sleep, it can come a minute to soon.
Comments
-
GCMAF
I haven't ventured down this path myself but know of GCMAF as it was promoted at one point as a 'magic bullet' for cancer with some unrealistic claims being made. I know you are smarter than to believe in that and take supplements knowing they may help some rather than absolute cures.
Your latest cea has clearly stressed you and there is a risk that you respond by grabbing at more supplements in your hope of improving this. I am certainly not saying that is wrong as I respect your treatment decisions as valid and right for you. HOwever when you start to talk of selling assets and your wife diasagreeing you need to check that you have things in appropriate perspective.
In the gentlest way possible I wonder whether it is time to worry less about your macrophages and more about keeping what is going on within your head under control. Take time to digest your recent results, talk to your wife about your fears and reflect on the idea of rationalising your supplements.
Tell me to back off if I am over stepping things but just offering a different perspective on your situation.
steve0 -
Pete...
" i am questioning many aspects of the alternative program i am on."
As one grows, it's only natural to question...the fact that you are is a good sign. You're starting to see things differently enough now to begin questioning...only good things can come from that.
When I can find time to clear my head and write, I've got something that will give you and everyone who reads it, a chance to ponder the possibilities...
You've already stumbled on a great many truths in your post already, Pete....the delicate balance in the gut that coffee enemas can upset....the vegan diet, the fact that you are healthy with no confirmed case of recurrence...etc.
Once you read my upcoming story...I think you will be "Questioning" things at an even deeper level than where you are today.
"Cancer is a fear-driven industry..."
But the more complicated we try and make it - the less vision we have with which to see.
-Craig (8-years old)0 -
Dear Pete
I am so very sorry to hear that your CEA has risen yet again.
You mention that your scans have shown no evidence of disease. What scans have you had and how long ago?
I know you have been working with non-traditional options, but have your medical doctors had any recommendations or options to explore why the CEA continues to rise?
If it were me, I think I would put my dollars into finding out the cause, then determine the treatment options. Obviously there is something going on which needs to be explained.
Perhaps there are scans which have not yet been done...bone...brain...muscle...while these are not usually "first sites" for crc, they have been known to occur. Please discuss these with your medical doctor.
Hugs and best wishes at finding the cause.
Marie who loves kitties0 -
STEVE meditation to keep my head under control
thanks for the kind support everyone, its what we all do so well!
it means so much to me.
steve,
the selling assets is a lomg standing need, its funny how the cea rise, a bit of a financial crunch just coincidenced. the nature of life. i have the choice to stay meditating and focus on my treatments and not work and not have the huge pressure that comes from running my old business as my wife now has it. business conditions have really crumbled here, so getting the dollars is hard work. never pull your head in, keep on shooting out your suggestions. i appreciate being challenged not just biologically but physically, emtionally and interlectually.
gcmaf has been in the pipe for a while, its more of a coincidence that a trusted medical source has some good quality uk sourced gcmaf, apparently some duds out there. i want to try it, its been advised and now is the time for me, at this early stage.
i suspect the enemas may have upset my immune system, but its only a suspecicion. i have stopped them until my gut settles.
most of the supplements have been recommended for specific purposes along the way, all have been researched, dropping some of them is like loosing my kids. i am emotionally attached to them. as i have backed off over the last few months attempting to source nutrients from natural sources i have failed here and their. to complex to go into.
the irony here is the alternatives i am into have the potential to upset your gut just as much as chemo, it takes weeks to heal a leaky gut, which has come back, again. this must be the four reoccurence of leaky gut in a year.
hugs,
pete0 -
smokey thankssmokeyjoe said:Interesting, seems to be a
Interesting, seems to be a lot of info. on the internet, I looked at it and it seems confusing to me anyway...are these shots you take?? Keep us posted.
keeping all my friends here posted, the good and the bad is the deal with me.
obviously i wished to report amazing successful results, as i believe sincerely in what i have tried and the motivations of those who advise me.
so i feel great, i have this cea result and so much to be grateful for.
i have only spent 30 minutes researching gcmaf, i did met another cancer guy on the gawler advqanced course, cannot remember his naem or cancer but he had poor results from gcmaf. its very individual. so i go ahead with his story at least in the back of my mind, but also the knowledge that soon to be the qualified integrative oncologist sees merit in gcmaf for me at this point.
its a shot in the tummy under the skin.
hugs,
pete0 -
craig, big brother lets just keep smiling and rolling the diceSundanceh said:Pete...
" i am questioning many aspects of the alternative program i am on."
As one grows, it's only natural to question...the fact that you are is a good sign. You're starting to see things differently enough now to begin questioning...only good things can come from that.
When I can find time to clear my head and write, I've got something that will give you and everyone who reads it, a chance to ponder the possibilities...
You've already stumbled on a great many truths in your post already, Pete....the delicate balance in the gut that coffee enemas can upset....the vegan diet, the fact that you are healthy with no confirmed case of recurrence...etc.
Once you read my upcoming story...I think you will be "Questioning" things at an even deeper level than where you are today.
"Cancer is a fear-driven industry..."
But the more complicated we try and make it - the less vision we have with which to see.
-Craig (8-years old)
craig,
i wish is was not growing so much, but i can truly say i am learning and enjoying each day in this new alternative lifestyle i have.
to ponder possiblities is wonderful. i visualise beating my current possible threat, doing a head stand, looking like an aged mr universe on the beach and lots of diving. wonderful visualisations of my kids grwoing up.
as i meditate and pray intensely everyday and read and exercise my mind so much, i see many truths about me and others. one is that i have to help my wife overcome her ocd and hoarding for my kids sake going forward. now thats harder than colorectal, becuase colorectal is my challenge and indirectly my family and friends. but my wifes ocd, well its hers. it took me 2 days get the garbage out of the front door and out of the camping trailer and to pack to go away. so to really love someone and standby them while you have crc is also a wonderful challenge of life.
fear driven industry well yes i agree, and yes i agree clear vision to see, to truly see is fundamental to our quality of life and treatment and our time and quality of life. hence my committment to daily meditation, prayer and reflection. it keeps me centered and focused. i am not researching nearly as much. just adding here a few well choosen lef articles.
hugs,
pete
ps i hope you are smiling big brother, its a great life.0 -
dear marie thanksLovekitties said:Dear Pete
I am so very sorry to hear that your CEA has risen yet again.
You mention that your scans have shown no evidence of disease. What scans have you had and how long ago?
I know you have been working with non-traditional options, but have your medical doctors had any recommendations or options to explore why the CEA continues to rise?
If it were me, I think I would put my dollars into finding out the cause, then determine the treatment options. Obviously there is something going on which needs to be explained.
Perhaps there are scans which have not yet been done...bone...brain...muscle...while these are not usually "first sites" for crc, they have been known to occur. Please discuss these with your medical doctor.
Hugs and best wishes at finding the cause.
Marie who loves kitties
still ned, its been 2 months since the last ct, doing another this week.
i have had two pets and ultrasound as well.
the scans of brain was done on the last ct,
the nagalase test, from my alt doctor is supposed to pickup a protien marker for mets. i get those results in a week. still nothing offered from conventional.
given how upset my gut is, the crp inflamation marker, possibly the cea is not cancer, maybe it is.
like craig said in another post, time will tell. i just wih my crystal ball is a bit clearer.
hugs,
pete0 -
a summarysteved said:GCMAF
I haven't ventured down this path myself but know of GCMAF as it was promoted at one point as a 'magic bullet' for cancer with some unrealistic claims being made. I know you are smarter than to believe in that and take supplements knowing they may help some rather than absolute cures.
Your latest cea has clearly stressed you and there is a risk that you respond by grabbing at more supplements in your hope of improving this. I am certainly not saying that is wrong as I respect your treatment decisions as valid and right for you. HOwever when you start to talk of selling assets and your wife diasagreeing you need to check that you have things in appropriate perspective.
In the gentlest way possible I wonder whether it is time to worry less about your macrophages and more about keeping what is going on within your head under control. Take time to digest your recent results, talk to your wife about your fears and reflect on the idea of rationalising your supplements.
Tell me to back off if I am over stepping things but just offering a different perspective on your situation.
steve
Pete said his calculus is to maintain cash on hand by asset sale(s) to gain time for kids and research, extra care/treatments to try to buy QoL and time from recurrance or early detection; and if cancer gets him, life insurance refloats the balance sheets.
His challenges are:
Cash on hand and meeting crucial long range plans for several scenarios;
Component cost controls and avoidance of lurching;
Family - unit cohesion under stresses;
Prevent metastasis until the CEA resolves visually or not, to try to maintain a potential surgical option on any single CEA source site.
The GcMAF papers are very interesting, "silver bullet" stuff.0 -
I fully respect your choices and the insight you show into use of complementary therapies as well as thier potential side effects- I am often amazed that people feel alternative medicines are 'cleaner' from side effects when in fact they can cause a range of unwanted effects similar to conventional medicines.pete43lost_at_sea said:STEVE meditation to keep my head under control
thanks for the kind support everyone, its what we all do so well!
it means so much to me.
steve,
the selling assets is a lomg standing need, its funny how the cea rise, a bit of a financial crunch just coincidenced. the nature of life. i have the choice to stay meditating and focus on my treatments and not work and not have the huge pressure that comes from running my old business as my wife now has it. business conditions have really crumbled here, so getting the dollars is hard work. never pull your head in, keep on shooting out your suggestions. i appreciate being challenged not just biologically but physically, emtionally and interlectually.
gcmaf has been in the pipe for a while, its more of a coincidence that a trusted medical source has some good quality uk sourced gcmaf, apparently some duds out there. i want to try it, its been advised and now is the time for me, at this early stage.
i suspect the enemas may have upset my immune system, but its only a suspecicion. i have stopped them until my gut settles.
most of the supplements have been recommended for specific purposes along the way, all have been researched, dropping some of them is like loosing my kids. i am emotionally attached to them. as i have backed off over the last few months attempting to source nutrients from natural sources i have failed here and their. to complex to go into.
the irony here is the alternatives i am into have the potential to upset your gut just as much as chemo, it takes weeks to heal a leaky gut, which has come back, again. this must be the four reoccurence of leaky gut in a year.
hugs,
pete
Pleased to also hear you are looking at up to date scans and keeping an eye on any signs of recurrence. I would challenge you (As you welcome it) to ensure you look after psyche as well as you look after your macrophages, as I guess that is my own area of interest and we all come to this site from a diverse range of backgrounds.
Does sound like you have come to terms with your role here on the board and pleased to see your continued postings,
steve0 -
thanks tans.....tanstaafl said:a summary
Pete said his calculus is to maintain cash on hand by asset sale(s) to gain time for kids and research, extra care/treatments to try to buy QoL and time from recurrance or early detection; and if cancer gets him, life insurance refloats the balance sheets.
His challenges are:
Cash on hand and meeting crucial long range plans for several scenarios;
Component cost controls and avoidance of lurching;
Family - unit cohesion under stresses;
Prevent metastasis until the CEA resolves visually or not, to try to maintain a potential surgical option on any single CEA source site.
The GcMAF papers are very interesting, "silver bullet" stuff.
Nice summary, better than I could do, so thanks.
Silver is better than magic and it's antimicrobial to boot.
Thanks for checking some papers. At this point the pressure is on the alt team. They read the last result and hey presto a new strategy while my conventional team sits by waiting to help.
I am glad I have 2 teams.
It might be time to hammer the Chelation hardcore, a make a determined effort to get PB, hg, AR and pt out of my body. It's just high zn was a starting point, going onto liquid zn now.
As soon as my gut is fixed, yet again, I will start Chelation seriously.
Given the cea rise, I want accelerate my current slow and steady Chelation, maybe all the saunas and colonic enemas have contributed to the rise, certainly my crashed zn level got everyone's focus.
It's a wonderful day, cold and rainy, studying hard today.
Read an amazing book on fibre yesterday, oh checkout the lef post and if you can the proxidant effect my researchers is concerned about. I through the crc probiotic article just for fun
Some say no science behind alt cancer, actually more going on on our side of the fence than all the greedy drug companies trying to find the one magic Golden bullet to boost their share price and save a life.
So basically my fate rests with what I eat , drink and do and a few billion micros getting to work properly in my but.
Hugs,
Pete
Ps got to meditate as peace of mind my goal and then cure.0 -
thanks stevesteved said:I fully respect your choices and the insight you show into use of complementary therapies as well as thier potential side effects- I am often amazed that people feel alternative medicines are 'cleaner' from side effects when in fact they can cause a range of unwanted effects similar to conventional medicines.
Pleased to also hear you are looking at up to date scans and keeping an eye on any signs of recurrence. I would challenge you (As you welcome it) to ensure you look after psyche as well as you look after your macrophages, as I guess that is my own area of interest and we all come to this site from a diverse range of backgrounds.
Does sound like you have come to terms with your role here on the board and pleased to see your continued postings,
steve
Hopefully I will share great news about my cure one day, that's a clearly defined goal and post written in my heart and head and a speech I plan to give in October to this amazing alt cancer conference.
The only problem is biology does not want to play the game
So together day by day we try to find a way to live another day as well as we can be.
The psyche or my head or is it my brain or mind, is racing, going to give it a workout and read the metametrix int guide to functional med and then meditate.
Did you see the lef stuff on antioxidants and my caveats.
Their is method in my madness, though it may not be apparent.
Hugs,
Pete0 -
so I maybe the first to try gcmaf and nagalase testing in crc
I should post in a few of the other big forums,
Any thoughts nagalase testing, it seems to go with gcmaf?
Thanks for listening and your comments.
I will put the gcmaf and nagalase results, costs and experiences here and on my blog
Hugs,
Pete0 -
Dear Petepete43lost_at_sea said:thanks tans.....
Nice summary, better than I could do, so thanks.
Silver is better than magic and it's antimicrobial to boot.
Thanks for checking some papers. At this point the pressure is on the alt team. They read the last result and hey presto a new strategy while my conventional team sits by waiting to help.
I am glad I have 2 teams.
It might be time to hammer the Chelation hardcore, a make a determined effort to get PB, hg, AR and pt out of my body. It's just high zn was a starting point, going onto liquid zn now.
As soon as my gut is fixed, yet again, I will start Chelation seriously.
Given the cea rise, I want accelerate my current slow and steady Chelation, maybe all the saunas and colonic enemas have contributed to the rise, certainly my crashed zn level got everyone's focus.
It's a wonderful day, cold and rainy, studying hard today.
Read an amazing book on fibre yesterday, oh checkout the lef post and if you can the proxidant effect my researchers is concerned about. I through the crc probiotic article just for fun
Some say no science behind alt cancer, actually more going on on our side of the fence than all the greedy drug companies trying to find the one magic Golden bullet to boost their share price and save a life.
So basically my fate rests with what I eat , drink and do and a few billion micros getting to work properly in my but.
Hugs,
Pete
Ps got to meditate as peace of mind my goal and then cure.
Please read the info on the following site before beginning Chelation therapy, particularly the potential side effects:
http://www.cancer.org/Treatment/TreatmentsandSideEffects/ComplementaryandAlternativeMedicine/PharmacologicalandBiologicalTreatment/chelation-therapy0 -
GcMAF stuffpete43lost_at_sea said:so I maybe the first to try gcmaf and nagalase testing in crc
I should post in a few of the other big forums,
Any thoughts nagalase testing, it seems to go with gcmaf?
Thanks for listening and your comments.
I will put the gcmaf and nagalase results, costs and experiences here and on my blog
Hugs,
Pete
New member hijacking this thread ;-) Google brought me here when i was looking for info on GcMAF, my 9yr old son has anaplastic ependymoma brain tumour and a friend put us onto this, will be watching your progress Pete.
FYI Judah Folkman wrote about this but called it something else, (free article on Pubmed), for those that don't know he won the Noble for discovering angiogenesis.
Without angiogenesis tumours cannot grow more than 2mm.
There is very little research on this which is strange considering the results, where did you get yours Pete? any problems with customs?0 -
welcome nonamemanwithnoname said:GcMAF stuff
New member hijacking this thread ;-) Google brought me here when i was looking for info on GcMAF, my 9yr old son has anaplastic ependymoma brain tumour and a friend put us onto this, will be watching your progress Pete.
FYI Judah Folkman wrote about this but called it something else, (free article on Pubmed), for those that don't know he won the Noble for discovering angiogenesis.
Without angiogenesis tumours cannot grow more than 2mm.
There is very little research on this which is strange considering the results, where did you get yours Pete? any problems with customs?
Sorry about your kid, my daughter's 10, I cannot imagine your feelings.
, welcome to the thread, one of my medical pros supplied gcmaf.
Getting my shot tomorrow. Given how threatened alt doctors are here.
Just pm me if you want details, feel free to give me some real names if you want to be included in my prayers. My God knows who you guys are anyway. That's one of God's many advantages.
No customs issues, my drug dealer got it sorted.
Hugs,
Pete
Ps my kids meditate, it's so easy, just a suggestion.0 -
"Given how threatened alt doctors are here"...pete43lost_at_sea said:welcome noname
Sorry about your kid, my daughter's 10, I cannot imagine your feelings.
, welcome to the thread, one of my medical pros supplied gcmaf.
Getting my shot tomorrow. Given how threatened alt doctors are here.
Just pm me if you want details, feel free to give me some real names if you want to be included in my prayers. My God knows who you guys are anyway. That's one of God's many advantages.
No customs issues, my drug dealer got it sorted.
Hugs,
Pete
Ps my kids meditate, it's so easy, just a suggestion.
gee...I thought you wanted both sides.
Does this mean if we have differing info about your alts we should not post?0 -
Thanks Petepete43lost_at_sea said:welcome noname
Sorry about your kid, my daughter's 10, I cannot imagine your feelings.
, welcome to the thread, one of my medical pros supplied gcmaf.
Getting my shot tomorrow. Given how threatened alt doctors are here.
Just pm me if you want details, feel free to give me some real names if you want to be included in my prayers. My God knows who you guys are anyway. That's one of God's many advantages.
No customs issues, my drug dealer got it sorted.
Hugs,
Pete
Ps my kids meditate, it's so easy, just a suggestion.
Can't seem to find a PM button, maybe coz Im new? my son is Kai Webb-Deutscher, he has had 3 brain surgeries from 6-9yrs, now his tumour is inoperable.
Hospital has gave up but we haven't.
I am trying to find a reliable source of GcMAF, any info would be great. We live in Israel, customs are a ****....
Trying to get him to do guided meditation. He's a stubborn little bugger, hard to get him to do anything.
Take care, Tony0 -
oops just me poor expressionLovekitties said:"Given how threatened alt doctors are here"...
gee...I thought you wanted both sides.
Does this mean if we have differing info about your alts we should not post?
here is here, not there. sorry for any confusion.
here refered to in australia, conventional gp's looking at alt type solutions can hammered by there peers and the government. my doctors have to dot the i and cross the T, or else they had hassled.
all heated and warm hearted debate welcome.
so post away.
the alt's here are a dieing species, they are really brave and go against the trend. in my honest opinion. now i am not including frauds and quacks in that description and i know this is a slippery slope so i will stop now.
hugs,
pete0 -
have you heard of charlie teomanwithnoname said:Thanks Pete
Can't seem to find a PM button, maybe coz Im new? my son is Kai Webb-Deutscher, he has had 3 brain surgeries from 6-9yrs, now his tumour is inoperable.
Hospital has gave up but we haven't.
I am trying to find a reliable source of GcMAF, any info would be great. We live in Israel, customs are a ****....
Trying to get him to do guided meditation. He's a stubborn little bugger, hard to get him to do anything.
Take care, Tony
hi tony,
this is a bit off the thread, but charlie is a saint, he has saved countless lives and is just a courageous man.
i know a few living miracles. its along way to come, but i thought i would at least share his name. inoperable brain tumours are his specialty.
if you read about all his successes it might boost your hope levels.
on a separate note, have you read "the brain that changes itself" it might be helpful in understanding our brains marvelous healing potentials. it might put a bit of a smile on your face if you read it.
i will ask for our source tomorrow and pm you if i get it, my doctor was coy about it at the last consult.
hugs,
pete0
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