ROLL CALL 2012 - Updated as of January 16, 2012 (CLOSED 10/12/2013)

245

Comments

  • HAWVET
    HAWVET Member Posts: 318
    #22
    braziliangirl82 said:

    Tongue
    I´m T1N0M0 right side tongue cancer. 2 surgerys (partial glossectomy) + partial neck dissection (levels I, II e III). No nodes involved, that´s why I had no chemo or radiation. Diagnosed on december 2011, now just need to follow-up.

    Next doc appt on february 10, 2012.

    Thank you
    Thank you all for reporting back or enrolling on our H+N cancer rolls. I have not updated the roster yet, but will do so later. The superthread was mentioned, but do not forget to place your names on the map managed by Skiffin16.

    To get to the "Where are you" map enrollment, here is the thread.

    http://csn.cancer.org/node/234245
  • Redbanker
    Redbanker Member Posts: 36
    #23
    Enrolling
    My boyfriend (58) got his diagnosis on March 9, 2011. Started treatment on May 9 and finished June 28. 33 IMRT sessions and 3 Cisplatin--at an initial dose that would fell a horse. No PEG and lost about 15 pounds. High frequency hearing is gone--can't hear a digital thermometer or a whistling kettle. Some tinnitus but not constant. Weak and unfocused into September, but improving in leaps and bounds since. Taste buds pretty much back, but apples and oranges are no longer palatable. Sense of humor back in spades.

    SCC BOT HPV+ T1N2a, Stage IVa
    PET October 2011: NED (Though he did complain that he now checks his neck 4 times a day.)

    Nancy
  • Dave B
    Dave B Member Posts: 7
    #24
    longtermsurvivor said:

    I salute you Dave B
    I just read your personal information. Holy smoke, you've been living with mets for 9 years without adjuvent treatment? Wow. You are one remarkably resilien human being. Welcome to the board.

    Best regards

    Pat

    Longevity
    Hi Pat, Thanks for the welcome. I can't take any credit for the static condition I am in. Just enjoying it for as long as it lasts. You have been through a lot, yet your positive attitude shines through your messages. I admire and respect that. Dave
  • Christmas
    Christmas Member Posts: 100
    #25
    Checking in
    Responding to Jan 2012 roll call.

    Christmas
  • victor53
    victor53 Member Posts: 97
    #26
    Victor Brown
    Started treatment stage 4 april 2008, 57 years old next month.... have a 5 year old son ... and a 11 month old daughter... all the chemo and radiation didn't sterilize me as i thought it would....so i haven't checked in in a while....
  • Netracer61
    Netracer61 Member Posts: 14
    #27
    Diagnosed 2001 still kicking
    I was diagnosed with esthesioneuroblastoma in 2001. It is now back for the third time. This time it has managed to attach itself to the optic nerve and the muscle in my left eye. it is growing at the rate of 1.5mm every three months. I am just hoping that I can keep my eye over the summer. FIGHT FIGHT FIGHT NEVER GIVE UP!
  • LeoS2323
    LeoS2323 Member Posts: 160
    #28
    We have it in England too you know...
    LeoS2323 - Liverpool, England; 34 years old, just been diagnosed with MEC stage 4 (unknown primary even in PET scan) met to nearby lymph node. Node has been removed, was originally thought branchial cyst was quiet on PET scan too. Set for surrounding node and one tonsil removal 23rd April 2012 then take it from there.

    All the best of luck to everyone here

    Leo
  • ooo
    ooo Member Posts: 105
    #29
    please enroll :)
    ooo; Boston, MA; diagnosed SCC oral tongue 02/2012; tumor removed 02/2012 (+ neck dissection); about to start chemo and radiation therapy. Age: 31. Name: Dre.
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #30
    checking in
    just checking in mostly because i don't know when the last time i did, nothing has changed except for survivorship duration.... now 16 years

    john
  • phrannie51
    phrannie51 Member Posts: 4,716
    #31
    I'm here, too!
    Diagnosed on March 26, 2012 with Nasopharengeal Carcinoma (NPC)...Stage III, T1N2M0. This after what seems to be the normal route of "wait and see"...and antibiotics over the course of 3 months. Haven't began treatment, yet.

    I'm 61 years old and live in Kalispell, Mt.

    p
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #32
    Noellesjim, Alabama
    Dx April 2010 advanced hypopharyngeal and base of tongue cancer; 37 rads and 3 chemos; still NED April 2012
  • HAWVET
    HAWVET Member Posts: 318
    #33
    Noellesmom said:

    Noellesjim, Alabama
    Dx April 2010 advanced hypopharyngeal and base of tongue cancer; 37 rads and 3 chemos; still NED April 2012

    Thank you
    Thank you for posting. I will update the list in July 2012. If you have not yet enrolled, please do so. Request an update be provided at least once per calendar year. If you had not checked in for year 2012, please update your status. Mahalo and Aloha!
  • NeoTheron91
    NeoTheron91 Member Posts: 75
    #34
    NPC
    Hi

    Diagnosed with Stage 4 NPC(T3N2M0) on August 26th, 2011. Had finished treatment(Chemo+Radiation) on 15th Dec 2011.
    I had a PET scan last week and turned out NED. Next scan schedule for 3 moths time.

    Cheers,
    Neo
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #35
    HAWVET said:

    Thank you
    Thank you for posting. I will update the list in July 2012. If you have not yet enrolled, please do so. Request an update be provided at least once per calendar year. If you had not checked in for year 2012, please update your status. Mahalo and Aloha!

    Jim ~ Delnative
    Delnative, Delaware, Diagnosed Stage III SCC Right tonsil in 2008. Enrolled February 2, 2010.

    Unfortunately, Jim ~ Delnative passed away recently, the beast got his body, but not his mind or sense of humor.

    Best,
    John
  • dclear14
    dclear14 Member Posts: 36
    #36
    Please enroll 4/5/2012
    dclear14, Robert diagnosed 1/13/12 with BOT cancer with lymph node involvement, Stage IV2BM0. Just finished 6 rounds of chemo and 35 rads (last one was this past Monday). Enrolled 4/5/12.
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #37
    Bump in the Night...
    Since the 2011 Roll Call has suddenly become active. I thought I'd bump the most current back to the top...

    Best,
    John
  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    #38
    It is me
    Howdy,

    CIVILMATT , Oregon, dx December 23, 2011, Stage IVa, SCC, BOT, HPV+, & 1 Lymph node left side of neck, Enrolled 6:55pm (PST) October 22, 2012. Better late than never.

    Matt
  • katenorwood
    katenorwood Member Posts: 1,912
    #39
    CivilMatt said:

    It is me
    Howdy,

    CIVILMATT , Oregon, dx December 23, 2011, Stage IVa, SCC, BOT, HPV+, & 1 Lymph node left side of neck, Enrolled 6:55pm (PST) October 22, 2012. Better late than never.

    Matt

    enrolling
    katenorwood, Minnesota dx'd Nov ' 11 with ACC adenoid cystic carcinoma of the right submandiblar gland. Rare dx... Had radical resect done 12-23-11 (7 nodes taken, also right sub. saliva gland) rads 1-12. In what is deemed by drs. stable disease, as this is a slow growing one. Katie
  • jtl
    jtl Member Posts: 456
    #40
    Enrolled 10/23/2012
    SW Florida, DX Aug/2011, cancer of the oropharynx and one lymph node, Erbitux and Tomo Therapy(IGRT), I am one year post treatment, CT/PET scans have been NED and I have all of my saliva function and the majority of my taste, no difficulties swallowing or dental issues.
  • hwt
    hwt Member Posts: 2,328 Member
    #41
    jtl said:

    Enrolled 10/23/2012
    SW Florida, DX Aug/2011, cancer of the oropharynx and one lymph node, Erbitux and Tomo Therapy(IGRT), I am one year post treatment, CT/PET scans have been NED and I have all of my saliva function and the majority of my taste, no difficulties swallowing or dental issues.

    Enrolling 10/23/2012
    St Louis, MO DX Jan 2012 Cancer in mandible (lower jawbone) 19 hour surgery 01/31/12 4 days planned coma 2 weeks hospital. Jaw reconstructed from fibula in leg and titanium. Finished rads and Cisplatin Mid-May2012. CT w/contrast and most recently PET scan both NED. Waiting to do HBOT in Nov. and start implants to replace majority of lower teeth removed during surgery. Doing most everything I was doing before DX and TX. Energy level is good.

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