update on fsdman-its back !

fsdman
fsdman Member Posts: 51
in Head and Neck Cancer #1
Hi all, I havent posted in quite a while for two reasons-1 is that you guys do such agreat job with newcomers and 2 is that I was really feeling great until Sept when I had a bloody nose. Went to the ENT and scope showed nothing. About a month later I got another scope and sure enough a growth was found. Biopsy showed NPC again this time on the opposite side.Drs arent sure if it is a new primary or old cancer. Doesnt matter as treatment is thesame. Undergoing chemo to shrink it (working well so far).Then 5 weeks rads 2x per day.Biggest issue now is fact that my teeth are getting very bad from previous rads.Cant start new rads until teeth issues get resolved.So,basically, Im back with all my friends.

Bob

Comments

  • Hondo
    Hondo Member Posts: 6,636 Member
    #2
    Hi Bob
    I am sorry my friend that your having to go through this again. I been through it twice too and it is no fun the second time but life is still very good 6 years later after the second treatment. The biggest problem will be the Jaw, so start now stretching it everyday

    Hondo
  • longtermsurvivor
    longtermsurvivor Member Posts: 1,842 Member
    #3
    Sounds familiar
    I'm pretty much on the same road as you are. FWIW, my pre-radiation scan, done after induction chemo for three cycles, showed complete resolution a few days ago, so I'm starting re-irradiation soon. As this would not have been possible 15 years ago, we're both pretty lucky people.

    Pat
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #4
    Thoughts and Prayers
    Sent your way...

    John
  • fsdman
    fsdman Member Posts: 51
    #5
    longtermsurvivor said:

    Sounds familiar
    I'm pretty much on the same road as you are. FWIW, my pre-radiation scan, done after induction chemo for three cycles, showed complete resolution a few days ago, so I'm starting re-irradiation soon. As this would not have been possible 15 years ago, we're both pretty lucky people.

    Pat

    Pat
    I am well aware of how
    Pat

    I am well aware of how lucky we are. I lost my older brother to NPC about 18 years ago . He was treated at Sloan Kettering in NY so he got good care-for 18 years ago. Its funny to feel " lucky". My family and friends wonder why I dont complain more. A nd when I say I feel lucky they look oddly at me. But hey, I know what it could be like,I saw it in person How can I not feel lucky-even getting it twice . Im gonna live-probably,much,much better chance than my brother.

    My best wishes to you.
  • fsdman
    fsdman Member Posts: 51
    #6
    Hondo said:

    Hi Bob
    I am sorry my friend that your having to go through this again. I been through it twice too and it is no fun the second time but life is still very good 6 years later after the second treatment. The biggest problem will be the Jaw, so start now stretching it everyday

    Hondo

    Hondo
    I have followed your
    Hondo

    I have followed your story ,I know what you have been through. You have ,in the past, provided valuable information and advice . Even though I havent posted in a while ,I have read on a regular basis. You are right about the jaw,I already have to squash aburger down to get it in my mouth but I prefer to think about the fact that I am even eating a burger,a feat I remember doubting would ever happen again.Thanks my friend.
  • fsdman
    fsdman Member Posts: 51
    #7
    Skiffin16 said:

    Thoughts and Prayers
    Sent your way...

    John

    Thanks and back at you.

    Thanks and back at you.
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    #8
    Positive thoughts
    Sending good thoughts your way and hoping for the very best results possible from your second treatment.

    Life is good.

    Deb
  • Hal61
    Hal61 Member Posts: 655
    #9
    Back together again
    Hi Bob, very best of luck on this run. Keep us in the loop, and I know it's hard to do that when the mix is in your blood. These docs are getting better all the time at putting all us Hunptys back together again. Teeth first. Then buzz through, heavy on the buzz.

    best, Hal
  • fsdman
    fsdman Member Posts: 51
    #10
    Hal61 said:

    Back together again
    Hi Bob, very best of luck on this run. Keep us in the loop, and I know it's hard to do that when the mix is in your blood. These docs are getting better all the time at putting all us Hunptys back together again. Teeth first. Then buzz through, heavy on the buzz.

    best, Hal

    Heavy on the buzz. You
    Heavy on the buzz. You looking in my window ? lol Really wish I knew to protect my teeth better in round 1-but Ill buzz through that too.
  • Hondo
    Hondo Member Posts: 6,636 Member
    #11
    fsdman said:

    Hondo
    I have followed your
    Hondo

    I have followed your story ,I know what you have been through. You have ,in the past, provided valuable information and advice . Even though I havent posted in a while ,I have read on a regular basis. You are right about the jaw,I already have to squash aburger down to get it in my mouth but I prefer to think about the fact that I am even eating a burger,a feat I remember doubting would ever happen again.Thanks my friend.

    Hi Bob
    I am going to send you my contact info if you need give me a call

    Hondo
  • fsdman
    fsdman Member Posts: 51
    #12
    D Lewis said:

    Positive thoughts
    Sending good thoughts your way and hoping for the very best results possible from your second treatment.

    Life is good.

    Deb

    Life is great !
    Thanks Deb

    Life is great !
    Thanks Deb
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #13
    Bob, sorry to see you're in need of our little group again.
    I am hoping that you will beat this again.

    Best wishes,

    Dawn
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #14
    POSITIVE THOUGHTS AND PRAYER HEADED YOUR WAY
    Were here for you buddy!!

    Positve thoughts, faith and science will allow for you to once again come out a winner.

    Best!!

    Mike
  • Bigfuzzydoug
    Bigfuzzydoug Member Posts: 154
    #15
    Damn C-Coaster!
    I've come to believe that cancer is like a frickin' roller coaster. You go up, you go down, you go up, you go down... AND EVENTUALLY END ON AN UP!!!

    Sorry the coaster has taken a downward dip for you. Round number two. Ding! Time to get back into the ring and beat the crap outta this thing again. Good luck!

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