UPDATE ON LEEINLONDON (Lee In London)

chemosmoker
chemosmoker Member Posts: 501
in Esophageal Cancer #1
Hello family.

I just received a message from Lee from the hospital and I have a progress report he has asked me to summarize for everyone so we can all wish him well and pray for him, and of course know what;s going on with his case:

First, Lee had a blood transfusion to replace the lost blood. The brown liquid leaking from his tube was in fact blood and some bile mixed. His blood was too thin so they hope the transfused blood will be thicker and help him to clot better and stop loosing blood.

They did an x-ray of his new STINT placement; they think that it is placed perfectly so they don't want to try to remove or move it. Xray shows placement perfect so they are leaving it along. Also they would risk perforation of his esophagus and possible worse bleeding if they did.

Since Lee left the hospital and then returned, the Thoracic surgeon did not have time to do a proper evaluation of Lee in person and up close, so he missed that benefit as well.

They are at this point hoping the incision site will heal itself and clot properly as it is still bleeding, and that he will only improve from here. He is still in the hospital and is being monitored closely. Lets all continue to pray for Lee, and Chantal, and for a speedy recovery and return home to peace and quiet, SOON!
______________________________________________________________________________________
From Lee Himself:

"To summarize, they think that I have several cuts on/near the stent. X-ray shows placement perfect so they are leaving it along. Before i left hosp they put me on a blood thinner which of course caused more blood than would be expected to back up the esop which ejected from the port hole. Because i came home then back in, the thoras surgeon didnit have a chane too look at everything dicharge me properly. All levels are improving and they are watching closely. No indication that im in the danger zone and ofbcourse were hoping that the incisions will self- heal and the levels showing that. Currently there is blood still coming frommthe gut but getting better ever day. I would hope for discharge within a few days. Feel free to summarize on csn on my behalf!

Hugs,lee
_______________________________________________________________________________________


I chose NOT to edit or make any changes to this as it is in Lee's own words and shows his mindset and lets us know that he is not feeling his best. I hope I have clarified things correctly and done him proud posting for him, as I was honored to do so for a good friend.

-Eric
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Comments

  • Wife of patient 50378
    Wife of patient 50378 Member Posts: 124
    #2
    Thank you
    Eric, thank you for keeping us posted.

    Lee, hang in there. Sounds like you will be discharge soon, keep up the good fight!
    Chantal, take care of yourself, try to get some rest.
    My prayers are with you guys!
    Sal
  • Daisylin
    Daisylin Member Posts: 365
    #3
    Thanks Eric,
    Thanks for the summary Eric, everything Lee said was correct. He is definitely not feeling his best, but compared to yesterday, he's so very much improved!!! He was actually making sense and we were able to have normal conversations, instead of the hallucination conversations he was having yesterday. So, although his typing may be a bit muddled, he is on his way to recovery. yesterday he could not have even told you his name!

    So, they continue with the transfusions, hydration, and the suctioning. We were hoping that they would have removed the ng tube by now, it's so annoying for him, but he's being a trooper, and trying not to complain too much. My heart breaks to see him all tubed up and miserable, but if he gets some healing from it, it will be worth it. They are not letting him drink anything, just ice chips for the last 3 days now, and they have not been giving him his feeds either. (last feed was 1/4 bottle on Monday night) He's feeling hungry, so thirsty and irritated that he has to wait so long for the go ahead for feeds. However, I'm sure they want to make sure the bleeding completely stops before they introduce anything into his system. And I sat there at the hospital feeling like such a bully not letting him drink the melted ice in the bottom of his cup, while I ate my lunch and drank my water...... I'm still scared, but optimistic. The bleeding coming from the tube seems to be stopping, so onwards and upwards!

    Chantal
  • sangora
    sangora Member Posts: 213
    #4
    Wife of patient 50378 said:

    Thank you
    Eric, thank you for keeping us posted.

    Lee, hang in there. Sounds like you will be discharge soon, keep up the good fight!
    Chantal, take care of yourself, try to get some rest.
    My prayers are with you guys!
    Sal

    So Glad
    So glad to hear this positive update. Will keep both Lee and Chantel in my thoughts and prayers. Get some rest Chantel. Sam
  • sandy1943
    sandy1943 Member Posts: 824
    #5
    Daisylin said:

    Thanks Eric,
    Thanks for the summary Eric, everything Lee said was correct. He is definitely not feeling his best, but compared to yesterday, he's so very much improved!!! He was actually making sense and we were able to have normal conversations, instead of the hallucination conversations he was having yesterday. So, although his typing may be a bit muddled, he is on his way to recovery. yesterday he could not have even told you his name!

    So, they continue with the transfusions, hydration, and the suctioning. We were hoping that they would have removed the ng tube by now, it's so annoying for him, but he's being a trooper, and trying not to complain too much. My heart breaks to see him all tubed up and miserable, but if he gets some healing from it, it will be worth it. They are not letting him drink anything, just ice chips for the last 3 days now, and they have not been giving him his feeds either. (last feed was 1/4 bottle on Monday night) He's feeling hungry, so thirsty and irritated that he has to wait so long for the go ahead for feeds. However, I'm sure they want to make sure the bleeding completely stops before they introduce anything into his system. And I sat there at the hospital feeling like such a bully not letting him drink the melted ice in the bottom of his cup, while I ate my lunch and drank my water...... I'm still scared, but optimistic. The bleeding coming from the tube seems to be stopping, so onwards and upwards!

    Chantal

    Chantal, You and Lee are in
    Chantal, You and Lee are in my thoughts and prayers. Thanks for the update. We are all very concerned and pray he'll be back home soon.
    Sandra
  • Ericalynn
    Ericalynn Member Posts: 200
    #6
    Eric-Thank you for posting
    Eric-Thank you for posting I’ve been worried all day.
    Chantal- I am praying for Lee and you. I am hoping that he will stop bleeding and start healing. I wish I could do or say something to help or at least to make you smile but I do not have the words. I (like Terry) wish I could be in Canada with you to sit with you or hold your hand or give you a hug but since that is not the case please know that you are on my mind & in my heart.
    Love to you both
    Erica
  • birdiequeen
    birdiequeen Member Posts: 319
    #7
    Daisylin said:

    Thanks Eric,
    Thanks for the summary Eric, everything Lee said was correct. He is definitely not feeling his best, but compared to yesterday, he's so very much improved!!! He was actually making sense and we were able to have normal conversations, instead of the hallucination conversations he was having yesterday. So, although his typing may be a bit muddled, he is on his way to recovery. yesterday he could not have even told you his name!

    So, they continue with the transfusions, hydration, and the suctioning. We were hoping that they would have removed the ng tube by now, it's so annoying for him, but he's being a trooper, and trying not to complain too much. My heart breaks to see him all tubed up and miserable, but if he gets some healing from it, it will be worth it. They are not letting him drink anything, just ice chips for the last 3 days now, and they have not been giving him his feeds either. (last feed was 1/4 bottle on Monday night) He's feeling hungry, so thirsty and irritated that he has to wait so long for the go ahead for feeds. However, I'm sure they want to make sure the bleeding completely stops before they introduce anything into his system. And I sat there at the hospital feeling like such a bully not letting him drink the melted ice in the bottom of his cup, while I ate my lunch and drank my water...... I'm still scared, but optimistic. The bleeding coming from the tube seems to be stopping, so onwards and upwards!

    Chantal

    Thank goodness he is having
    Thank goodness he is having normal conversations today. That is a very good sign. Hang in there Chantal!
  • jojoshort
    jojoshort Member Posts: 230 Member
    #8
    Daisylin said:

    Thanks Eric,
    Thanks for the summary Eric, everything Lee said was correct. He is definitely not feeling his best, but compared to yesterday, he's so very much improved!!! He was actually making sense and we were able to have normal conversations, instead of the hallucination conversations he was having yesterday. So, although his typing may be a bit muddled, he is on his way to recovery. yesterday he could not have even told you his name!

    So, they continue with the transfusions, hydration, and the suctioning. We were hoping that they would have removed the ng tube by now, it's so annoying for him, but he's being a trooper, and trying not to complain too much. My heart breaks to see him all tubed up and miserable, but if he gets some healing from it, it will be worth it. They are not letting him drink anything, just ice chips for the last 3 days now, and they have not been giving him his feeds either. (last feed was 1/4 bottle on Monday night) He's feeling hungry, so thirsty and irritated that he has to wait so long for the go ahead for feeds. However, I'm sure they want to make sure the bleeding completely stops before they introduce anything into his system. And I sat there at the hospital feeling like such a bully not letting him drink the melted ice in the bottom of his cup, while I ate my lunch and drank my water...... I'm still scared, but optimistic. The bleeding coming from the tube seems to be stopping, so onwards and upwards!

    Chantal

    Hi Chantal & Lee
    You guys know you're on everyone's minds and keeping you close to our hearts. I have been thinking of you both for days and hoping for a status report which showed some improvement. What a relief to find out what the problem is and get some treatment.

    You both must be exhausted from all this--I hope you sleep well tonight and that the healing continues.

    Warmest regards,
    Jo-Ann
  • fredswilma
    fredswilma Member Posts: 185
    #9
    Thanks Eric
    Lee & Chantal
    Thanks Eric
    Lee & Chantal thinking of you both, hoping things get patched up soon and you can return home & heal.
    Ann
  • ritawaite13
    ritawaite13 Member Posts: 236
    #10
    fredswilma said:

    Thanks Eric
    Lee & Chantal
    Thanks Eric
    Lee & Chantal thinking of you both, hoping things get patched up soon and you can return home & heal.
    Ann

    Thanks Eric
    Thanks for the update Eric. Hugs to you Chantal and prayers for Lee.
    Love Rita
  • TerryV
    TerryV Member Posts: 887
    #11
    Daisylin said:

    Thanks Eric,
    Thanks for the summary Eric, everything Lee said was correct. He is definitely not feeling his best, but compared to yesterday, he's so very much improved!!! He was actually making sense and we were able to have normal conversations, instead of the hallucination conversations he was having yesterday. So, although his typing may be a bit muddled, he is on his way to recovery. yesterday he could not have even told you his name!

    So, they continue with the transfusions, hydration, and the suctioning. We were hoping that they would have removed the ng tube by now, it's so annoying for him, but he's being a trooper, and trying not to complain too much. My heart breaks to see him all tubed up and miserable, but if he gets some healing from it, it will be worth it. They are not letting him drink anything, just ice chips for the last 3 days now, and they have not been giving him his feeds either. (last feed was 1/4 bottle on Monday night) He's feeling hungry, so thirsty and irritated that he has to wait so long for the go ahead for feeds. However, I'm sure they want to make sure the bleeding completely stops before they introduce anything into his system. And I sat there at the hospital feeling like such a bully not letting him drink the melted ice in the bottom of his cup, while I ate my lunch and drank my water...... I'm still scared, but optimistic. The bleeding coming from the tube seems to be stopping, so onwards and upwards!

    Chantal

    Good news in small bursts
    Chantal,

    You guys are such troopers. I can't believe the challenges you have been asked to face. Your strength amazes me. Rest a bit so you are ready to pick back up when you return home.

    Positive thoughts and prayers are always with you.

    Terry

    Eric, thanks for being the courier
  • Ginny_B
    Ginny_B Member Posts: 532
    #12
    An encouraging update!

    An encouraging update!
  • jim2011
    jim2011 Member Posts: 115
    #13
    Daisylin said:

    Thanks Eric,
    Thanks for the summary Eric, everything Lee said was correct. He is definitely not feeling his best, but compared to yesterday, he's so very much improved!!! He was actually making sense and we were able to have normal conversations, instead of the hallucination conversations he was having yesterday. So, although his typing may be a bit muddled, he is on his way to recovery. yesterday he could not have even told you his name!

    So, they continue with the transfusions, hydration, and the suctioning. We were hoping that they would have removed the ng tube by now, it's so annoying for him, but he's being a trooper, and trying not to complain too much. My heart breaks to see him all tubed up and miserable, but if he gets some healing from it, it will be worth it. They are not letting him drink anything, just ice chips for the last 3 days now, and they have not been giving him his feeds either. (last feed was 1/4 bottle on Monday night) He's feeling hungry, so thirsty and irritated that he has to wait so long for the go ahead for feeds. However, I'm sure they want to make sure the bleeding completely stops before they introduce anything into his system. And I sat there at the hospital feeling like such a bully not letting him drink the melted ice in the bottom of his cup, while I ate my lunch and drank my water...... I'm still scared, but optimistic. The bleeding coming from the tube seems to be stopping, so onwards and upwards!

    Chantal

    ng tube
    Oh that brings back memories! I hated that thing coming out of my nose. Then less and less whatever was getting sucked out. Then the day they were taking it out the nurse told me that mine was the first that she had ever done. It was my first also!
    Lee will heal...just give it some time and be sure he is ready when its time to leave the hospital. I wish you guys the best!
    Jim
  • Daisylin
    Daisylin Member Posts: 365
    #14
    Ginny_B said:

    An encouraging update!

    An encouraging update!

    confusing day
    I woke up this morning to a call from Lee, saying that the doctors had come to see him. Long story short, we got some kind of scary and conflicting news.

    The blood is not clotting fully, but has slowed down considerably. They are still progressing with the plasma transfusions, and we continue to hope it helps. That being said, the confusing part is this.... They removed the NG tube (thank God) and the drainage container had just a bit of yellowish fluid that looked like bile, not blood. So, I don't know why they would remove the tube if he is still bleeding. They had removed the tube about 10 minutes after I left the hospital, so I did not have the chance to question it. To me, that suggests that the bleeding is not an issue any more, but I don't know. The doctors seem a bit guarded in their opinion, the one suggesting that we set goals for days and weeks, instead of months. Lee had told him previously that he was hoping to make it until Christmas. I'm trying to see this statement as a neutral thing, as in 'enjoy every day, live life to it's fullest, and pretend each day is Christmas' as opposed to 'you only have days or weeks left'.

    On the positive side, they cleared a bed for him in the palliative unit. We were very unhappy with some of the nursing staff on the oncology floor, and let the doctor know that. He put a rush on the transfer, and Lee moved into his new room this evening. We are confident that the nursing staff there will be more pleasant and attentive to Lee, instead of making him feel like he's a nuisance. So, we wait and see.

    The doctor said an option if the bleeding does not stop would be to do a few rounds of radiation, to see if it would zap the cuts closed, so all's not lost yet. I still hold out hope that we can have some relief, and be able to get him home to me and Daisy.

    Sorry this post may seem a bit jumbled, my brain's on overload, exhaustion has set in, and I've been a grumpy bear all day.
    Chantal
  • TerryV
    TerryV Member Posts: 887
    #15
    Daisylin said:

    confusing day
    I woke up this morning to a call from Lee, saying that the doctors had come to see him. Long story short, we got some kind of scary and conflicting news.

    The blood is not clotting fully, but has slowed down considerably. They are still progressing with the plasma transfusions, and we continue to hope it helps. That being said, the confusing part is this.... They removed the NG tube (thank God) and the drainage container had just a bit of yellowish fluid that looked like bile, not blood. So, I don't know why they would remove the tube if he is still bleeding. They had removed the tube about 10 minutes after I left the hospital, so I did not have the chance to question it. To me, that suggests that the bleeding is not an issue any more, but I don't know. The doctors seem a bit guarded in their opinion, the one suggesting that we set goals for days and weeks, instead of months. Lee had told him previously that he was hoping to make it until Christmas. I'm trying to see this statement as a neutral thing, as in 'enjoy every day, live life to it's fullest, and pretend each day is Christmas' as opposed to 'you only have days or weeks left'.

    On the positive side, they cleared a bed for him in the palliative unit. We were very unhappy with some of the nursing staff on the oncology floor, and let the doctor know that. He put a rush on the transfer, and Lee moved into his new room this evening. We are confident that the nursing staff there will be more pleasant and attentive to Lee, instead of making him feel like he's a nuisance. So, we wait and see.

    The doctor said an option if the bleeding does not stop would be to do a few rounds of radiation, to see if it would zap the cuts closed, so all's not lost yet. I still hold out hope that we can have some relief, and be able to get him home to me and Daisy.

    Sorry this post may seem a bit jumbled, my brain's on overload, exhaustion has set in, and I've been a grumpy bear all day.
    Chantal

    You have every right to be grumpy....
    Chantal,

    I can't imagine handling the news (no info type of info) you and Lee receive from some of hospital care staff.

    Palliative care will hopefully be more attentive to Lee. That may give you a chance to have some "down time" to take a short rest. You need to ensure that you don't run down while caring / worrying about Lee.

    Praying that the transfusions work and that Lee is able to be pain free. Praying that you have more than days and weeks. Knowing that you, being you, will find ways to make every day the best it can be for you both.

    Thank you for taking the time to update us. We love you both! Hugs, and more hugs. Love and prayers, of course.

    Terry
  • Ericalynn
    Ericalynn Member Posts: 200
    #16
    Daisylin said:

    confusing day
    I woke up this morning to a call from Lee, saying that the doctors had come to see him. Long story short, we got some kind of scary and conflicting news.

    The blood is not clotting fully, but has slowed down considerably. They are still progressing with the plasma transfusions, and we continue to hope it helps. That being said, the confusing part is this.... They removed the NG tube (thank God) and the drainage container had just a bit of yellowish fluid that looked like bile, not blood. So, I don't know why they would remove the tube if he is still bleeding. They had removed the tube about 10 minutes after I left the hospital, so I did not have the chance to question it. To me, that suggests that the bleeding is not an issue any more, but I don't know. The doctors seem a bit guarded in their opinion, the one suggesting that we set goals for days and weeks, instead of months. Lee had told him previously that he was hoping to make it until Christmas. I'm trying to see this statement as a neutral thing, as in 'enjoy every day, live life to it's fullest, and pretend each day is Christmas' as opposed to 'you only have days or weeks left'.

    On the positive side, they cleared a bed for him in the palliative unit. We were very unhappy with some of the nursing staff on the oncology floor, and let the doctor know that. He put a rush on the transfer, and Lee moved into his new room this evening. We are confident that the nursing staff there will be more pleasant and attentive to Lee, instead of making him feel like he's a nuisance. So, we wait and see.

    The doctor said an option if the bleeding does not stop would be to do a few rounds of radiation, to see if it would zap the cuts closed, so all's not lost yet. I still hold out hope that we can have some relief, and be able to get him home to me and Daisy.

    Sorry this post may seem a bit jumbled, my brain's on overload, exhaustion has set in, and I've been a grumpy bear all day.
    Chantal

    Thank you for posting
    Chantal,
    Your post is not jumbled; it makes perfect sense to me. Of course you are tired and jumbled look what you have gone through. I wish I could say or do something but. All I can do is pray and send positive thoughts.
    I am glad that Lee is in a unit where the nursing staff will respect him as a person and take care of his needs he deserves to be treated with respect and dignity.
    Love to you both
    Erica
  • sangora
    sangora Member Posts: 213
    #17
    Ericalynn said:

    Thank you for posting
    Chantal,
    Your post is not jumbled; it makes perfect sense to me. Of course you are tired and jumbled look what you have gone through. I wish I could say or do something but. All I can do is pray and send positive thoughts.
    I am glad that Lee is in a unit where the nursing staff will respect him as a person and take care of his needs he deserves to be treated with respect and dignity.
    Love to you both
    Erica

    Grump All Yoou Want
    My hat is off to the both of you each and every day. These past few weeks have been beyond difficult for both you and Lee. Know that your board family is pulling for you and greatly appreciates your updates no matter how they come across as we follow Lee's progress during these difficult times. Sam
  • unclaw2002
    unclaw2002 Member Posts: 599
    #18
    Daisylin said:

    confusing day
    I woke up this morning to a call from Lee, saying that the doctors had come to see him. Long story short, we got some kind of scary and conflicting news.

    The blood is not clotting fully, but has slowed down considerably. They are still progressing with the plasma transfusions, and we continue to hope it helps. That being said, the confusing part is this.... They removed the NG tube (thank God) and the drainage container had just a bit of yellowish fluid that looked like bile, not blood. So, I don't know why they would remove the tube if he is still bleeding. They had removed the tube about 10 minutes after I left the hospital, so I did not have the chance to question it. To me, that suggests that the bleeding is not an issue any more, but I don't know. The doctors seem a bit guarded in their opinion, the one suggesting that we set goals for days and weeks, instead of months. Lee had told him previously that he was hoping to make it until Christmas. I'm trying to see this statement as a neutral thing, as in 'enjoy every day, live life to it's fullest, and pretend each day is Christmas' as opposed to 'you only have days or weeks left'.

    On the positive side, they cleared a bed for him in the palliative unit. We were very unhappy with some of the nursing staff on the oncology floor, and let the doctor know that. He put a rush on the transfer, and Lee moved into his new room this evening. We are confident that the nursing staff there will be more pleasant and attentive to Lee, instead of making him feel like he's a nuisance. So, we wait and see.

    The doctor said an option if the bleeding does not stop would be to do a few rounds of radiation, to see if it would zap the cuts closed, so all's not lost yet. I still hold out hope that we can have some relief, and be able to get him home to me and Daisy.

    Sorry this post may seem a bit jumbled, my brain's on overload, exhaustion has set in, and I've been a grumpy bear all day.
    Chantal

    Chantal and Lee,
    Hopefully
    Chantal and Lee,

    Hopefully today was a better day for you both. So glad you two had that overnight at home before the surgery with Daisy. I have been thinking of you and praying that you will be able to get home and relax for a while without emergency room visits. They really are horrible no matter what country you are in.

    Lots of love,
    Cindy
  • birdiequeen
    birdiequeen Member Posts: 319
    #19
    Daisylin said:

    confusing day
    I woke up this morning to a call from Lee, saying that the doctors had come to see him. Long story short, we got some kind of scary and conflicting news.

    The blood is not clotting fully, but has slowed down considerably. They are still progressing with the plasma transfusions, and we continue to hope it helps. That being said, the confusing part is this.... They removed the NG tube (thank God) and the drainage container had just a bit of yellowish fluid that looked like bile, not blood. So, I don't know why they would remove the tube if he is still bleeding. They had removed the tube about 10 minutes after I left the hospital, so I did not have the chance to question it. To me, that suggests that the bleeding is not an issue any more, but I don't know. The doctors seem a bit guarded in their opinion, the one suggesting that we set goals for days and weeks, instead of months. Lee had told him previously that he was hoping to make it until Christmas. I'm trying to see this statement as a neutral thing, as in 'enjoy every day, live life to it's fullest, and pretend each day is Christmas' as opposed to 'you only have days or weeks left'.

    On the positive side, they cleared a bed for him in the palliative unit. We were very unhappy with some of the nursing staff on the oncology floor, and let the doctor know that. He put a rush on the transfer, and Lee moved into his new room this evening. We are confident that the nursing staff there will be more pleasant and attentive to Lee, instead of making him feel like he's a nuisance. So, we wait and see.

    The doctor said an option if the bleeding does not stop would be to do a few rounds of radiation, to see if it would zap the cuts closed, so all's not lost yet. I still hold out hope that we can have some relief, and be able to get him home to me and Daisy.

    Sorry this post may seem a bit jumbled, my brain's on overload, exhaustion has set in, and I've been a grumpy bear all day.
    Chantal

    Oh Chantal, I think of you
    Oh Chantal, I think of you both often. I hope things take a turn for the better very soon! Is Lee in the area where Daisy can visit him?
  • fredswilma
    fredswilma Member Posts: 185
    #20
    Daisylin said:

    confusing day
    I woke up this morning to a call from Lee, saying that the doctors had come to see him. Long story short, we got some kind of scary and conflicting news.

    The blood is not clotting fully, but has slowed down considerably. They are still progressing with the plasma transfusions, and we continue to hope it helps. That being said, the confusing part is this.... They removed the NG tube (thank God) and the drainage container had just a bit of yellowish fluid that looked like bile, not blood. So, I don't know why they would remove the tube if he is still bleeding. They had removed the tube about 10 minutes after I left the hospital, so I did not have the chance to question it. To me, that suggests that the bleeding is not an issue any more, but I don't know. The doctors seem a bit guarded in their opinion, the one suggesting that we set goals for days and weeks, instead of months. Lee had told him previously that he was hoping to make it until Christmas. I'm trying to see this statement as a neutral thing, as in 'enjoy every day, live life to it's fullest, and pretend each day is Christmas' as opposed to 'you only have days or weeks left'.

    On the positive side, they cleared a bed for him in the palliative unit. We were very unhappy with some of the nursing staff on the oncology floor, and let the doctor know that. He put a rush on the transfer, and Lee moved into his new room this evening. We are confident that the nursing staff there will be more pleasant and attentive to Lee, instead of making him feel like he's a nuisance. So, we wait and see.

    The doctor said an option if the bleeding does not stop would be to do a few rounds of radiation, to see if it would zap the cuts closed, so all's not lost yet. I still hold out hope that we can have some relief, and be able to get him home to me and Daisy.

    Sorry this post may seem a bit jumbled, my brain's on overload, exhaustion has set in, and I've been a grumpy bear all day.
    Chantal

    Chantal
    My heart breaks for
    Chantal
    My heart breaks for you, Lee and you have had way more than anyone should have to live through, I am full of hope, for you both, that Lee will be able to get home and spend some time with you and Daisy, prayers and hugs for you both.
    Ann
  • Wife of patient 50378
    Wife of patient 50378 Member Posts: 124
    #21
    Daisylin said:

    confusing day
    I woke up this morning to a call from Lee, saying that the doctors had come to see him. Long story short, we got some kind of scary and conflicting news.

    The blood is not clotting fully, but has slowed down considerably. They are still progressing with the plasma transfusions, and we continue to hope it helps. That being said, the confusing part is this.... They removed the NG tube (thank God) and the drainage container had just a bit of yellowish fluid that looked like bile, not blood. So, I don't know why they would remove the tube if he is still bleeding. They had removed the tube about 10 minutes after I left the hospital, so I did not have the chance to question it. To me, that suggests that the bleeding is not an issue any more, but I don't know. The doctors seem a bit guarded in their opinion, the one suggesting that we set goals for days and weeks, instead of months. Lee had told him previously that he was hoping to make it until Christmas. I'm trying to see this statement as a neutral thing, as in 'enjoy every day, live life to it's fullest, and pretend each day is Christmas' as opposed to 'you only have days or weeks left'.

    On the positive side, they cleared a bed for him in the palliative unit. We were very unhappy with some of the nursing staff on the oncology floor, and let the doctor know that. He put a rush on the transfer, and Lee moved into his new room this evening. We are confident that the nursing staff there will be more pleasant and attentive to Lee, instead of making him feel like he's a nuisance. So, we wait and see.

    The doctor said an option if the bleeding does not stop would be to do a few rounds of radiation, to see if it would zap the cuts closed, so all's not lost yet. I still hold out hope that we can have some relief, and be able to get him home to me and Daisy.

    Sorry this post may seem a bit jumbled, my brain's on overload, exhaustion has set in, and I've been a grumpy bear all day.
    Chantal

    Chantal
    I am hoping Lee's situation stablizes soon. Hope you have him at home in a few days. You are a remarkable soul Chantal. Stay strong, get some rest. By all means, be a grumpy bear. You have earned the right! Give my best to Lee! You both are in my thoughts.

    With Hope and Prayers,
    Sal

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