freaking out

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Comments

  • LeeinLondon
    LeeinLondon Member Posts: 103
    #22
    cher76 said:

    Glad to hear things are going better tonight
    We have had a rough day too. In the hospital for the evening. Hope you all have continued success tomorrow.
    Cheryl

    Back to hospital
    Back to hopital i go. Black sludge continues to leak from around feeding port, vomiting. Clothes are drenched in it.
  • Wpturner05
    Wpturner05 Member Posts: 114
    #23
    LeeinLondon said:

    Back to hospital
    Back to hopital i go. Black sludge continues to leak from around feeding port, vomiting. Clothes are drenched in it.

    Take care
    Lee,

    I know that is the last place you want to be. I pray it finds you the relief you need. Your experiences there may be difficult, but it will bring you much needed relief.

    Words fail me, I will be thinking of you.

    Whitney
  • jojoshort
    jojoshort Member Posts: 230 Member
    #24
    LeeinLondon said:

    Back to hospital
    Back to hopital i go. Black sludge continues to leak from around feeding port, vomiting. Clothes are drenched in it.

    We are pulling for you
    You know this entire board is with you in heart as you seek to resolve this.
    We are pulling for you,
    Jo-Ann
  • sangora
    sangora Member Posts: 213
    #25
    jojoshort said:

    We are pulling for you
    You know this entire board is with you in heart as you seek to resolve this.
    We are pulling for you,
    Jo-Ann

    Holding you up today
    Know that all your friends and family here are holding you and Lee in our prayers this day. Hopefully they can find the cause and set upon a solution before the day is over. Sam
  • Ginny_B
    Ginny_B Member Posts: 532
    #26
    I pray you return soon and
    I pray you return soon and feeling better.
  • unclaw2002
    unclaw2002 Member Posts: 599
    #27
    LeeinLondon said:

    Back to hospital
    Back to hopital i go. Black sludge continues to leak from around feeding port, vomiting. Clothes are drenched in it.

    Lee,
    Good luck in getting
    Lee,

    Good luck in getting this problem corrected. You have such a great attitude, although I am sure about right now you want to throw something (LOL) or at least say "enough already" when is it my turn to get a break.

    Prayers and Hugs to you both,
    Cindy
  • fredswilma
    fredswilma Member Posts: 185
    #28
    LeeinLondon said:

    Back to hospital
    Back to hopital i go. Black sludge continues to leak from around feeding port, vomiting. Clothes are drenched in it.

    Lee & Chantal
    Hoping the
    Lee & Chantal
    Hoping the hospital has some answers for this horrible setback, know that you are both in my thoughts and prayers.
    Ann
  • chemosmoker
    chemosmoker Member Posts: 501
    #29
    LeeinLondon said:

    Back to hospital
    Back to hopital i go. Black sludge continues to leak from around feeding port, vomiting. Clothes are drenched in it.

    Grateful to hear that!!
    About damn time. Glad to hear this. KEEP US POSTED!

    I KNOW you hate it. I do too but I don't want you to get WORSE.
    I am praying for you madly.

    Chantal,
    Get some rest and ask for help. You are a great caregiver. You go!

    Love you both,
    Eric
  • mrsbotch
    mrsbotch Member Posts: 349
    #30
    Thinking of you guys
    Chantel and lee,

    You are daily in my thoughts. I know Vince threw up green bile for a long time and we attributed it to his TPN feeding. How is Lee today? Please give him hugs for me and hugs for you too Chantel.

    Love

    barbara
  • TerryV
    TerryV Member Posts: 887
    #31
    Daisylin said:

    update
    just a quick update, and a thank you for all your positive thoughts and prayers. Eric was right, we are a great family here.

    Lee's nurse came by again in the afternoon, and after another chat with the doctor, we decided to say home, and try for movement here..... and VOILA, success!!! She told him the option was there to go to the hospital, but she would be able to do the exact things at home that the hospital would do, (without the scans)

    The feeding tube site is still leaking brown/black goop, and he's vomited it a couple more times today, but overall, he seems to be much better tonight. We are going to closely monitor him tonight and tomorrow, and if there are any concerns at all, we are to either call the 24 hour on call nurse, or go directly to hospital. We were prescribed yet another anti-nauseant tonight, so we'll add it to the arsenal.

    I still feel freaked out, the black goop is pretty disturbing (no one has really said what it was, but I think Whitney may have been right) I googled the heck out of it, and could find no mention of feeding tubes leaking that badly. Fingers, toes and eyes crossed that tomorrow finds us all clear.

    Chantal

    From one family member to another
    Big hugs. You *know* we are concerned about you both!

    Here's hoping that resolution to this "yuck" is found today.

    All our love & prayers,

    Terry
  • jake0303
    jake0303 Member Posts: 5 Member
    #32
    https://csn.cancer.org/discussion/229063/freaking-out

    I know this post is old and I pray you guys can help,

    im also very bad a grammar but I’ll do my best

    my mom is going through this same issue and we don’t know what to do, since she is in hospice care they told us she can go to the hospital. When her G-tube was placed about two months ago due to her having a bowel obstruction, the tube wasn’t going to be used for feeding rather to help drain pressure from her stomach. Well they perforated her small intestine dying the procedure. They essentially told us they couldn’t correct it as it was too dangerous and sent her home with us and they advised her to sign up for hospice. Well okay we did that, things weren’t great but she eventually started being able to use the restroom again and her tube wasn’t leaking. Well, now fast forward about 7 weeks I think she has another obstruction and now around her tube is this brown liquid that won’t stop leaking. The nurse told us to use gauze but there is just so much, she is unable to use the restroom or to get much to drain from the tube. It is all leaking around the tube soaking through everything. Please please if anyone has advise We need it.

  • jake0303
    jake0303 Member Posts: 5 Member
    #33
    https://csn.cancer.org/discussion/comment/1697298#Comment_1697298

    Edit Can’t go to the hospital*

  • jake0303
    jake0303 Member Posts: 5 Member
    #34
    https://csn.cancer.org/discussion/comment/1144512#Comment_1144512

    I know this post is old and I pray you guys can help, 

    My mom is going through this same issue and we don’t know what to do, since she is in hospice care they told us she can’t go to the hospital.

    When her G-tube was placed about two months ago due to her having a bowel obstruction, they perforated her small intestine during the procedure. The tube wasn’t going to be used for feeding rather to help drain pressure from her stomach.

    They essentially told us they couldn’t correct it as it was too dangerous and sent her home with us and they advised her to sign up for hospice.

    Well okay… we did that, things weren’t great but she eventually started being able to use the restroom again and her tube wasn’t leaking. Well, now fast forward about 7 weeks I think she has another obstruction and now around her tube is this brown liquid that won’t stop leaking. The nurse told us to use gauze but there is just so much, she is unable to use the restroom or to get much to drain from the tube. It is all leaking around the tube soaking through everything. Please please if anyone has advise We need it.

  • paul61
    paul61 Member Posts: 1,392 Member
    #35

    I would contact Hospice. They should have an on-call nurse or hospital that you can contact. If they suggest using gauze again I would tell them that you have tried that and it does not seem to be stopping. If they do not help I would go to emergency at the hospital. Just because she is in hospice does not mean they should not address issues like this.

  • paul61
    paul61 Member Posts: 1,392 Member
    #36

    This site does not get much activity recently. I would suggest you post your question in the esophageal section of https://www.smartpatients.com/. That site is much more interactive and you would get more input than in this forum.

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