NED since 2009 - Now have stomach pains nightly & unable to sleep

lizzydavis
lizzydavis Member Posts: 893
in Colorectal Cancer #1
Just wondering if this sounds familiar to anyone who is NED? I have had stomach pains for over a week mostly at night. I get up and take something to help me sleep. I know I am going to have to see a doctor but should I go to the colorectal surgeon, Internist, or GI?
My first colonoscopy since 2008 is scheduled on Oct 18. I can't wait that long. Sure would appreciate any advice.

Thanks,
Lizzy
«1

Comments

  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #2
    Good Question?
    Hey Lizzy

    I'm thinking not the colorectal surgeon, because what's he want to do but "cut." GI would be good, but only if you can move your scope date up.

    Internist would be a good recourse to consider first and get their take. Maybe it's stress from your upcoming scope that gots you a little "queasy" at the moment. That could effect sleep too, because maybe your subconsciousness is already "acting out" with your underlying concern about what the test would reveal.

    I'm speculating of course...could be something else...but the process of elimination sounds in order here. If internist yields no results, see about the scope earlier than the 18th.

    I'm hoping for a quick resolution. I've never been 'clear' enough to comment from that angle, but I've got all kinds of pains - all the time - and even on Sundays:)

    -Craig
  • lizzydavis
    lizzydavis Member Posts: 893
    #3
    Sundanceh said:

    Good Question?
    Hey Lizzy

    I'm thinking not the colorectal surgeon, because what's he want to do but "cut." GI would be good, but only if you can move your scope date up.

    Internist would be a good recourse to consider first and get their take. Maybe it's stress from your upcoming scope that gots you a little "queasy" at the moment. That could effect sleep too, because maybe your subconsciousness is already "acting out" with your underlying concern about what the test would reveal.

    I'm speculating of course...could be something else...but the process of elimination sounds in order here. If internist yields no results, see about the scope earlier than the 18th.

    I'm hoping for a quick resolution. I've never been 'clear' enough to comment from that angle, but I've got all kinds of pains - all the time - and even on Sundays:)

    -Craig

    Thanks, Craig!
    Thanks, Craig! I appreciate your response.

    It is really strange that during the day - I have no pain. At night, the pain is so uncomfortable that I cannot sleep. I have tried changing my diet - no nuts, no popcorn, no broccoli - still have this nagging bad pain at night. I have not called the doctor yet.

    Thanks again, Craig. I will update you.


    Hugs and love to you,

    Lizzy
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    #4
    Absolutely....
    ....wish I could have been of more help, but I'm just not sure what it could be. But I want to know when you know:)

    -Craig and Big Billy:)
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #5
    Pain
    Seems strange that you have discomfort only at night. Does it happen anytime that you lie down?

    If I was going to the doctor I would go right to my GI doctor or the one that had the most experience with my case. My own internist or PCP is not very useful for much other than getting a prescription for antibiotics for earaches.

    Amy
  • lizzydavis
    lizzydavis Member Posts: 893
    #6
    mom_2_3 said:

    Pain
    Seems strange that you have discomfort only at night. Does it happen anytime that you lie down?

    If I was going to the doctor I would go right to my GI doctor or the one that had the most experience with my case. My own internist or PCP is not very useful for much other than getting a prescription for antibiotics for earaches.

    Amy

    Hi Amy,
    Hi Amy,

    Thanks for your response. It does happen when I lie down only. When I get up in the middle of the night - it does not hurt. When I lie back down - it is awful.

    My mind is thinking all sorts of things. I just hesitate to go to the Doc but I may have to do it anyway.

    Thanks,
    Lizzy
  • Buckwirth
    Buckwirth Member Posts: 1,258 Member
    #7
    lizzydavis said:

    Hi Amy,
    Hi Amy,

    Thanks for your response. It does happen when I lie down only. When I get up in the middle of the night - it does not hurt. When I lie back down - it is awful.

    My mind is thinking all sorts of things. I just hesitate to go to the Doc but I may have to do it anyway.

    Thanks,
    Lizzy

    Lizzy,
    May I suggest you go to your GP and request a CT scan (virtual colonoscopy).

    1. You won't have to wait till the 18th

    2. If there is something there it will see it

    3. If it has nothing to do with the colon, it should still pick it up (something a colonoscopy would not do)


    Better for your peace of mind to get this resolved as quickly as possible, and I would lay a bet that it is not CRC related.


    Blake
  • lizzydavis
    lizzydavis Member Posts: 893
    #8
    Buckwirth said:

    Lizzy,
    May I suggest you go to your GP and request a CT scan (virtual colonoscopy).

    1. You won't have to wait till the 18th

    2. If there is something there it will see it

    3. If it has nothing to do with the colon, it should still pick it up (something a colonoscopy would not do)


    Better for your peace of mind to get this resolved as quickly as possible, and I would lay a bet that it is not CRC related.


    Blake

    Thanks, Blake!
    Thanks, Blake!

    I do appreciate your Good advice!

    Lizzy
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #9
    No idea
    Why, so can't help there, but have you tried a heating pad to lessen the pain until you get a dx from a doc?
    Winter Marie
  • lizzydavis
    lizzydavis Member Posts: 893
    #10
    herdizziness said:

    No idea
    Why, so can't help there, but have you tried a heating pad to lessen the pain until you get a dx from a doc?
    Winter Marie

    Heating pad - yes!
    Heating pad - yes!
    I can't live without it! Thanks for your response, Winter Marie!

    Lizzy
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #11
    lizzydavis said:

    Heating pad - yes!
    Heating pad - yes!
    I can't live without it! Thanks for your response, Winter Marie!

    Lizzy

    Lizzy
    I hope it's helping you!!
    Winter Marie
  • marqimark
    marqimark Member Posts: 242 Member
    #12
    GI
    Some days my in sides feel like they are over active.
    It's like waves of acid and or bile through out the GI.

    Mark
  • lizzydavis
    lizzydavis Member Posts: 893
    #13
    marqimark said:

    GI
    Some days my in sides feel like they are over active.
    It's like waves of acid and or bile through out the GI.

    Mark

    I went to the internist yesterday.
    I went to the internist yesterday. He ordered a CT (STAT) which I also had yesterday. The results were back yesterday afternoon. I asked for a copy which has my husband and I a little upset. From the looks of the report, it doesn't sound good but we are going to hold on until we meet with the Doc. We have an appt with the Internist this morning at 10:45 am.

    My suggestion --- If you have pain, do not wait - go to the Doctor.

    Lizzy
    NED since Dec 2009
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #14
    lizzydavis said:

    I went to the internist yesterday.
    I went to the internist yesterday. He ordered a CT (STAT) which I also had yesterday. The results were back yesterday afternoon. I asked for a copy which has my husband and I a little upset. From the looks of the report, it doesn't sound good but we are going to hold on until we meet with the Doc. We have an appt with the Internist this morning at 10:45 am.

    My suggestion --- If you have pain, do not wait - go to the Doctor.

    Lizzy
    NED since Dec 2009

    Lizzy
    I have found it best to let those who interpret the scan reports do their job. I've read them in the past and most often come to an incorrect conclusion. Best of luck today, think positive.
    Phil
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #15
    PhillieG said:

    Lizzy
    I have found it best to let those who interpret the scan reports do their job. I've read them in the past and most often come to an incorrect conclusion. Best of luck today, think positive.
    Phil

    Lizzy hope there is nothing wrong in your scan!
    Let doctors interpret the reports and keep us informed please!.
    Will pray for you and for a good result!
    Hugs!
  • maglets
    maglets Member Posts: 2,576 Member
    #16
    pepebcn said:

    Lizzy hope there is nothing wrong in your scan!
    Let doctors interpret the reports and keep us informed please!.
    Will pray for you and for a good result!
    Hugs!

    lizzy
    you are brave to ask for the scan.....I would never be able to do that....but i think maybe it is best to let the docs interpret.....good luck lizzy....praying for good stuff

    maggie
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #17
    lizzydavis said:

    I went to the internist yesterday.
    I went to the internist yesterday. He ordered a CT (STAT) which I also had yesterday. The results were back yesterday afternoon. I asked for a copy which has my husband and I a little upset. From the looks of the report, it doesn't sound good but we are going to hold on until we meet with the Doc. We have an appt with the Internist this morning at 10:45 am.

    My suggestion --- If you have pain, do not wait - go to the Doctor.

    Lizzy
    NED since Dec 2009

    Lizzy
    With you there in spirit, hoping for nothing bad.
    Hugs.
    Winter Marie
  • lizzydavis
    lizzydavis Member Posts: 893
    #18
    herdizziness said:

    Lizzy
    With you there in spirit, hoping for nothing bad.
    Hugs.
    Winter Marie

    Phil, Pepe, Maggie, Winter
    Phil, Pepe, Maggie, Winter Marie, and others

    -- I met with the Internist today who glossed over the report and referred me to my colorectal surgeon. My colorectal surgeon saw me today at 4:00 pm. The fast moving I am glad about but makes me nervous too. The Colorectal Surgeon is referring me to my Oncologist for a PET scan and to compare the prior CTs with the present.

    My colorectal surgeon is wonderful and took a long time with us. He said he couldn’t say what it is until the PET results are completed. He said the worse case scenario is Pancreatic Cancer which he said is very unusual for colorectal colon to lead to that. He said normally it would go to the liver or lungs. He said it could be a variety of things including pancreatitis. It is the wait and see time.

    I agree with you about letting the docs read the report to me. I will not ask for it again! Learned my lesson after shaking up my hubby. :(

    I will have a colonoscopy on Tuesday, Oct 18 and see the Oncologist soon to schedule the PET.

    Thanks for all your comments. I makes me feel so good to hear from you.

    Hugs,
    Lizzy
  • maglets
    maglets Member Posts: 2,576 Member
    #19
    lizzydavis said:

    Phil, Pepe, Maggie, Winter
    Phil, Pepe, Maggie, Winter Marie, and others

    -- I met with the Internist today who glossed over the report and referred me to my colorectal surgeon. My colorectal surgeon saw me today at 4:00 pm. The fast moving I am glad about but makes me nervous too. The Colorectal Surgeon is referring me to my Oncologist for a PET scan and to compare the prior CTs with the present.

    My colorectal surgeon is wonderful and took a long time with us. He said he couldn’t say what it is until the PET results are completed. He said the worse case scenario is Pancreatic Cancer which he said is very unusual for colorectal colon to lead to that. He said normally it would go to the liver or lungs. He said it could be a variety of things including pancreatitis. It is the wait and see time.

    I agree with you about letting the docs read the report to me. I will not ask for it again! Learned my lesson after shaking up my hubby. :(

    I will have a colonoscopy on Tuesday, Oct 18 and see the Oncologist soon to schedule the PET.

    Thanks for all your comments. I makes me feel so good to hear from you.

    Hugs,
    Lizzy

    oh lizzy
    oh lizzy....so really nothing bad.....don't go with the worst case scenario...I understand pancreatitis hurts like crazy....

    hang on darling girl.....glad you are on a discovery path

    so good to hear from you tonight

    maggie
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #20
    Lizzy
    I have been checking this thread all day looking for an update so I am really glad that you posted this evening.

    My mom had pancreatitis last year and it was very painful. In fact, she had problems sleeping in her bed and slept in a LazBoy for a couple of nights until it became too unbearable for her. A week of antibiotics and the removal of her gall bladder got her back to normal with no subsequent pain or issues. I googled pain lying down with pancreatitis and found that it is a symptom of pancreatitis.

    I hope that you have a simple case of pancreatitis. In all my reading of CC I haven't ever read of any case where it went from the colon to the pancreas. Please keep us apprised of your upcoming PET results.

    Thoughts are with you,
    Amy
  • lizzydavis
    lizzydavis Member Posts: 893
    #21
    mom_2_3 said:

    Lizzy
    I have been checking this thread all day looking for an update so I am really glad that you posted this evening.

    My mom had pancreatitis last year and it was very painful. In fact, she had problems sleeping in her bed and slept in a LazBoy for a couple of nights until it became too unbearable for her. A week of antibiotics and the removal of her gall bladder got her back to normal with no subsequent pain or issues. I googled pain lying down with pancreatitis and found that it is a symptom of pancreatitis.

    I hope that you have a simple case of pancreatitis. In all my reading of CC I haven't ever read of any case where it went from the colon to the pancreas. Please keep us apprised of your upcoming PET results.

    Thoughts are with you,
    Amy

    Amy & Maggie,
    Thanks for you
    Amy & Maggie,

    Thanks for you kind words. I appreciate your posting. I will let you know what comes up next.

    Hugs,
    Lizzy

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