NED since 2009 - Now have stomach pains nightly & unable to sleep

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Comments

  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #22
    lizzydavis said:

    Amy & Maggie,
    Thanks for you
    Amy & Maggie,

    Thanks for you kind words. I appreciate your posting. I will let you know what comes up next.

    Hugs,
    Lizzy

    Well Lizzy , it does not sound too bad ! don think in pancreatic
    cancer I'm sure you would have others symptoms beside your pain ! so be optimistic probably is nothing important , hope you find the solution very soon . I pray for nothing important!.
    Hugs Lyzzy!
  • lizzydavis
    lizzydavis Member Posts: 893
    #23
    pepebcn said:

    Well Lizzy , it does not sound too bad ! don think in pancreatic
    cancer I'm sure you would have others symptoms beside your pain ! so be optimistic probably is nothing important , hope you find the solution very soon . I pray for nothing important!.
    Hugs Lyzzy!

    Thanks Pepe!
    Thanks Pepe! I am staying optimistic - what else can I do. Right?

    I feel better today.

    Hugs to you,

    Lizzy
  • ron50
    ron50 Member Posts: 1,723 Member
    #24
    lizzydavis said:

    Thanks Pepe!
    Thanks Pepe! I am staying optimistic - what else can I do. Right?

    I feel better today.

    Hugs to you,

    Lizzy

    Hi Lizzy
    Everything after ca seems to be suspected of being ca. I went thru the pain of acute pancreatitis a few years after crc . It turned out to be a small gallstone blocking my pancreatic duct. They treated me with oxygen and non stop saline infusion till it flushed out. Then removed my gallbladder. They initially suspected pancreatic ca. I had the same deal with kidney stones. After the third attack my doc took a urine sample. Naturally it contained blood. He immediately suspected bladder ca and I underwent a series of unpleasant tests for nothing. The formation of stones seems to be fairly common after crc ca and chemo. I am hoping that this is the case for you.None of it is pleasant ,I hope they resolve it quickly for you and it is nothing nasty. Hugs Ron.
  • John23
    John23 Member Posts: 2,122 Member
    #25
    lizzydavis said:

    Thanks Pepe!
    Thanks Pepe! I am staying optimistic - what else can I do. Right?

    I feel better today.

    Hugs to you,

    Lizzy

    Lizzy -

    Awwww, Jeeeezuze...

    Listen, Adhesions from surgery do not rear their ugly heads until
    around three or four years post-op. The pain is commonly felt while
    laying down, not while standing or sitting (mileage will vary).

    They will not find an adhesion with a CT or PET, they use a
    common sonogram (ultra sound) to locate and "see" adhesions
    that may be causing pain.

    Ask your colorectal surgeon about the possibility of adhesions
    before you get into the "PET" garbage. An adhesion that is
    forming and advancing may "light up" as if it is cancer, since
    it's using more glucose that surrounding cells, to grow.

    This is all part of the very basic medical diagnostics involving
    long-term periodic pain after surgery..... and again,.. it often
    takes years for adhesions to grow large enough to cause the
    type of pain you are describing.

    (I swore I wasn't going to post anymore here.... but good grief....
    Tell them to look at the simple things first!)

    Be well!

    John
  • janie1
    janie1 Member Posts: 753 Member
    #26
    John23 said:

    Lizzy -

    Awwww, Jeeeezuze...

    Listen, Adhesions from surgery do not rear their ugly heads until
    around three or four years post-op. The pain is commonly felt while
    laying down, not while standing or sitting (mileage will vary).

    They will not find an adhesion with a CT or PET, they use a
    common sonogram (ultra sound) to locate and "see" adhesions
    that may be causing pain.

    Ask your colorectal surgeon about the possibility of adhesions
    before you get into the "PET" garbage. An adhesion that is
    forming and advancing may "light up" as if it is cancer, since
    it's using more glucose that surrounding cells, to grow.

    This is all part of the very basic medical diagnostics involving
    long-term periodic pain after surgery..... and again,.. it often
    takes years for adhesions to grow large enough to cause the
    type of pain you are describing.

    (I swore I wasn't going to post anymore here.... but good grief....
    Tell them to look at the simple things first!)

    Be well!

    John

    John23
    Good advice. But un-confuse me. You say a pet won't pick up an adhesion, but then it may "light up". Sooo...it may or may not? But, yea...look for the simple things first.
  • lizzydavis
    lizzydavis Member Posts: 893
    #27
    janie1 said:

    John23
    Good advice. But un-confuse me. You say a pet won't pick up an adhesion, but then it may "light up". Sooo...it may or may not? But, yea...look for the simple things first.

    JOHN & RON
    JOHN & RON

    THANK YOU! THANK YOU! THANK YOU!

    I GREATLY appreciate your postings!!!

    JOHN - PLEASE do not stop posting. You are so wise and we all need your sound advice!

    You two guys have taken me from the lowest low to a very higher place.

    I APPRECIATE BOTH OF YOU. Yes, my doctors will be informed with this information from those who have been there.

    Hugs and love to you - Ron & John,

    Lizzy
  • John23
    John23 Member Posts: 2,122 Member
    #28
    janie1 said:

    John23
    Good advice. But un-confuse me. You say a pet won't pick up an adhesion, but then it may "light up". Sooo...it may or may not? But, yea...look for the simple things first.

    Janie1
    Re:
    "a pet won't pick up an adhesion, but then it may "light up".

    Since a "PET" scan uses radioactive glucose, the uptake of that glucose
    by normal, healing tissue can appear to be cancer. The issue is discussed
    in many medical journals at great length; it is a problem and concern
    regarding misdiagnosis when/if relying on a PET scan alone for the
    diagnosis.

    PET Scans:

    Interpretive pitfalls commonly encountered on FDG PET images of the body obtained 1 hour after
    tracer administration can be mistaken for cancer.

    averting misdiagnoses in PET/CT

    Nuclear Medicine/Molecular Imaging

    Ultrasound:

    Detection of peritoneal adhesions using ultrasound examination

    Ultrasound and the locating of adhesions

    the accuracy of transabdominal ultrasound (TAU) in identifying intra-abdominal adhesions


    For the location of my adhesions, they used ultrasound to visualize the adhesions
    within the intestinal tract. A "CT" can provide a good picture also!
    But.... why would any physician prescribe a PET initially? The healing tissue will
    uptake the radioactive glucose...A misdiagnosis would encourage chemo treatments
    where it may not be necessary.

    just sayin'...


    OH, by the way.... Ron made a great point regarding Gall and Bladder stones!
    There are many things that can create abdominal pain; looking for the
    "worst case scenario" (cancer) is very, very counterproductive!

    Best of health!

    (I will now re-hermatize)

    John

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