Post Pet Scan Results

We got the results for my husbands post pet scan. Results: Inconclusive!!!
Ent said he wave 2 options wait 3 months for another pet scan or have a needle biopsy.
We asked the ent what he advises and without hesitation, he said biopsy. I agree, his suv from main tumor went from 10.7 to 5.8. That still seems a little high to me. We go on 9.14 for our biopsy. Wish us luck....What do you all think of the suv readings?
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Comments

  • Hondo
    Hondo Member Posts: 6,636 Member
    Biopsy
    Keeping you both in thoughts and prayers

    Hondo
  • KareGiver
    KareGiver Member Posts: 301 Member
    Hondo said:

    Biopsy
    Keeping you both in thoughts and prayers

    Hondo

    Keep your chin up
    And know we are thinking and praying for you! Thanks for letting us know...
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    I'm thinking
    You don't know until you know, you know?

    Try to relax and enjoy the long holiday weekend. Worrying is not going to make it better or worse.

    Hugs!
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    Biopsy
    I was hoping for a clean scan result for you guys. After my 1st PET showed continuing activity, we waited out the 3 months for another scan.

    A biopsy was not done due to the position of the cancer on the base of tongue, quite inaccessible for a simple needle biopsy. Another consideration was the cancer, after treatment, may no longer be a solid mass. It may be fragmented and a needle biopsy could possibly miss the cancer due to this. It was explained to us that a negative result for cancer from the biopsy could mean there is no cancer or that the needle penetrated an area that no longer is cancerous. The needle biopsy may not be 100% conclusive in this case.

    Hopefully the biopsy will be negative and the follow up PET scan in 3 months will be clean or at least the size & SUV of the tumor will both continue to decrease, which would be a good indication that is not residual cancer, but probably lingering inflammation. Cheers.

    Jimbo
  • Glenna M
    Glenna M Member Posts: 1,576
    Will be keeping you both in
    Will be keeping you both in my prayers for a clean biopsy on the 14th.

    Please try to relax and enjoy your holiday weekend!!
  • arndog64
    arndog64 Member Posts: 537
    Glenna M said:

    Will be keeping you both in
    Will be keeping you both in my prayers for a clean biopsy on the 14th.

    Please try to relax and enjoy your holiday weekend!!

    I thought about how the
    I thought about how the needle biopsy can miss cancer, but with my husbands case, he not only has a high suv but the doctor also found a spot that was kinda of solid, he is hoping it's scar tissue, I believe that the high suv and the solid spot is what led the doctor to do a needle biopsy. I am not stressed I am just enjoying my life and just rolling with the punches.
  • jim and i
    jim and i Member Posts: 1,788 Member
    praying
    So sorry to hear the results are inconclusive. I am not sure what SUV is other than a vehicle that sucks gas. LOL Praying for the numbers to go down and the biopsy to show scar tissue. Hugs and prayers.

    Debbie
  • arndog64
    arndog64 Member Posts: 537
    jim and i said:

    praying
    So sorry to hear the results are inconclusive. I am not sure what SUV is other than a vehicle that sucks gas. LOL Praying for the numbers to go down and the biopsy to show scar tissue. Hugs and prayers.

    Debbie

    Thanks everyone for the kind
    Thanks everyone for the kind words and prayers. I will keep y'all updated as things unfold.
  • buzz99
    buzz99 Member Posts: 404
    Pet results
    I know just how difficult these days must be for the two of you. Buzz has had two suspicious PET scans and our Oncologist recommended seeing a surgeon for biopsies. The two areas in question are not well enough defined for a biopsy and we were advised by the surgeon to wait for the next scan. The next one is on the 8th and we are pretty anxious about it. With cancer, you never know when or if it will show up again. However, there is a possibility that the findings on your husband's scan are false positives. Our Radiation Oncologist says it is not uncommon for these hot spots to appear after head and neck cancer and they don't necessarily mean cancer. I am hoping that is the case with your husband. Karen
  • arndog64
    arndog64 Member Posts: 537
    buzz99 said:

    Pet results
    I know just how difficult these days must be for the two of you. Buzz has had two suspicious PET scans and our Oncologist recommended seeing a surgeon for biopsies. The two areas in question are not well enough defined for a biopsy and we were advised by the surgeon to wait for the next scan. The next one is on the 8th and we are pretty anxious about it. With cancer, you never know when or if it will show up again. However, there is a possibility that the findings on your husband's scan are false positives. Our Radiation Oncologist says it is not uncommon for these hot spots to appear after head and neck cancer and they don't necessarily mean cancer. I am hoping that is the case with your husband. Karen

    I hope so.. But, the hot
    I hope so.. But, the hot spot is the primary tumor site.
  • Pam M
    Pam M Member Posts: 2,196
    Argh!
    How frustrating - "inconclusive". Sorry it wasn't the "we got it" that we all hope for. I'm with the others - hope the biopsy and next set of scans show the cancer beaten.
  • robinleigh
    robinleigh Member Posts: 297
    Pam M said:

    Argh!
    How frustrating - "inconclusive". Sorry it wasn't the "we got it" that we all hope for. I'm with the others - hope the biopsy and next set of scans show the cancer beaten.

    suv
    sorry but what does suv stand for? Whatever it is, I hope your biopsy comes out negative. Waiting is almost worse than knowing.
    Prayers for you.
    Robinleigh
  • arndog64
    arndog64 Member Posts: 537

    suv
    sorry but what does suv stand for? Whatever it is, I hope your biopsy comes out negative. Waiting is almost worse than knowing.
    Prayers for you.
    Robinleigh

    SUV is the FDG Uptake and is
    SUV is the FDG Uptake and is rated from 1-14 (I think). You want to be a the low end of that scale. I think anything over a 1 shouild be checked out. Yeah, I am kinda anxiously waiting. I am hoping for a negative biopsy. I would like to think it's nothing and the doctor is just being cautious..Did I spell that right? LOL
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    suv
    sorry but what does suv stand for? Whatever it is, I hope your biopsy comes out negative. Waiting is almost worse than knowing.
    Prayers for you.
    Robinleigh

    SUV = Sport Utility Vehicle.....duhhhh
    LOL, just teasing....

    In our world, SUV stands for Standardized Uptake Value...

    SUV

    JG
  • buzz99
    buzz99 Member Posts: 404
    arndog64 said:

    I hope so.. But, the hot
    I hope so.. But, the hot spot is the primary tumor site.

    Hot spot
    One of Buzz's hot spots is also in the primary tumor site. Sorry you have to wait until the 14th for the biopsy. Seems like we all do a lot of waiting and worrying. Karen
  • arndog64
    arndog64 Member Posts: 537
    buzz99 said:

    Hot spot
    One of Buzz's hot spots is also in the primary tumor site. Sorry you have to wait until the 14th for the biopsy. Seems like we all do a lot of waiting and worrying. Karen

    I know, I want to know now.
    I know, I want to know now. They are going to put him to sleep and the doctor said he is going to go in there and poke around and get several samples. Just a few more days.
  • jim and i
    jim and i Member Posts: 1,788 Member
    Skiffin16 said:

    SUV = Sport Utility Vehicle.....duhhhh
    LOL, just teasing....

    In our world, SUV stands for Standardized Uptake Value...

    SUV

    JG

    Glad you cleared that up
    Couldn't get past the Sport Utility Vehicle myself.

    Debbie
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    jim and i said:

    Glad you cleared that up
    Couldn't get past the Sport Utility Vehicle myself.

    Debbie

    LOL
    Oh, sorry, you beat me to that...LOL. Not sure how I missed that in your earlier posting.

    JG
  • ratface
    ratface Member Posts: 1,337 Member
    Skiffin16 said:

    LOL
    Oh, sorry, you beat me to that...LOL. Not sure how I missed that in your earlier posting.

    JG

    My values
    For comparison's sake my original PET SUV for the the cervical lymph node was 9.8 and my primary site at the BOT was 4.8. Biopsy is really the only definitive way of knowing. FNA biopsies leave much to be desired but it is your first step. It may be inconclusive as well so prepare yourself for an actual surgical biopsy next. Wishing you the best outcome!
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    buzz99 said:

    Hot spot
    One of Buzz's hot spots is also in the primary tumor site. Sorry you have to wait until the 14th for the biopsy. Seems like we all do a lot of waiting and worrying. Karen

    primary as hot spot
    well, idk anything about pet scans, really, but wouldn't is make sense or even be "better" if the hot spot were the primary tumor site, because that would have been the greatest radiated spot, and then the hot spot would more likely be because of damage, no? as opposed to it being some new random spot to worry about. course what makes sense in my head, doesn't always fly. i have only had the one pet scan before my surgery and way before rads started.