LCIS need to get this off my chest.

mariam_11_09
mariam_11_09 Member Posts: 691 Member
in Breast Cancer #1
The breast surgeon found 3 small lumps in my right breast back in April. I had a mamo and ultrasound but nothing showed up so I returned 3 months later in July for a follow up appointment. The lumps are still there, apparently nothing has changed. The breast surgeon asked if I wanted another mammo and ultrasound. My response was that if nothing has changed then the results will be just the same. The breast surgeon said she would have me come in every 3 months to check on them.

When I saw the Onc. before my last Herceptin and he told me I was done. I told him for the left breast yes, but there is something a little suspicious in my right that may or may not amount to anything. He said that it was a lobular neoplasia.

THEN a week later I get a letter first from the insurance company and then from the clinic where I go saying that the insurance company had approved the request for a MRI on my right breast!

Hmmm.... neither the nurse nor the doctor had called to say that I needed an MRI.

Well, the day before I recieved the letters, I was talking very honeslty with a dear friend and said that I thought the lumps in my right breast were more serious than I or perhaps the doctors realise and my experience with cancer is not over however I will deal with whatever when it happens and for now, I am happy for clearing out my left breast from cancer.

So when I did receive the letters, it was confirmation for what I had been feeling about the 3 lumps in my right breast. However, now when I look back and replay the conversations with the doctors I think the doctors did have a good grip on what it might be, I just wasn't willing to pursue it in any more depth.

So it is seemingly that I have LCIS in the right breast. Even though I knew it was a little serious, the reality has sunk in a little and I feel rather sad. However upon doing some research on the internet LCIS is not something that is treated. In some cases there is lumpectomy or masectomy but it is mostly watched. In 20% of the cases it results in invasive Lobular carcinoma and LCIS is not considered cancer. Okay the medical terms and definitions can be very convoluted and we can take it to mean whatever we want based on our emotional response.

Anyway I have scheduled an appointment for 9/7 for the MRI and who knows what might evolve from all this.

aaah life, ya know, takes you all over the place .....

want to listen to a beautiful piece of music, got to youtube and type in Sona Jobarteh and look for Jarabi and/or Saya both are incredible pieces to listen to.

thanks for reading this.
«1

Comments

  • Megan M
    Megan M Member Posts: 3,000
    #2
    Mariam, I am so sorry to
    Mariam, I am so sorry to read this. I apologize as I don't know anything about LCIS. It is a good thing though that you are getting the MRI. I get a MRI yearly and a mammo and ultrasound every 6 months.

    I will be praying for you on September 7th. Please let us know your results when you find out.


    Hugs,

    Megan
  • carkris
    carkris Member Posts: 4,553 Member
    #3
    Megan M said:

    Mariam, I am so sorry to
    Mariam, I am so sorry to read this. I apologize as I don't know anything about LCIS. It is a good thing though that you are getting the MRI. I get a MRI yearly and a mammo and ultrasound every 6 months.

    I will be praying for you on September 7th. Please let us know your results when you find out.


    Hugs,

    Megan

    oh yes and the moral of the
    oh yes and the moral of the story is to do what Megan does MRI every year, mammo every year, something every 6 months.
  • carkris
    carkris Member Posts: 4,553 Member
    #4
    Megan M said:

    Mariam, I am so sorry to
    Mariam, I am so sorry to read this. I apologize as I don't know anything about LCIS. It is a good thing though that you are getting the MRI. I get a MRI yearly and a mammo and ultrasound every 6 months.

    I will be praying for you on September 7th. Please let us know your results when you find out.


    Hugs,

    Megan

    I had invasive lobular.An
    I had invasive lobular.An insitu diagnosis before the invasive diagnosis. However no one recomended an MRI. later when I 'felt" the area I had testing and found out lobular is often missed on mammo, and is found better on MRI. I was so mad, at my docs and myself for not researching this further. So the short answer is they dont know but want to check it out, and the good news is they are doing this.This is the proper followup, and hopefully it will remain in situ only glad they are doing this when I questioned my doc about this he said its not standard. hence the need for permission from the insurance agency I still get mad thinking about it. let us know!!!!!!!!!
  • missrenee
    missrenee Member Posts: 2,136 Member
    #5
    carkris said:

    oh yes and the moral of the
    oh yes and the moral of the story is to do what Megan does MRI every year, mammo every year, something every 6 months.

    Glad you are getting that MRI
    I did not have lobular, but my breast tissue is extremely dense so microcalcs were missed repeatedly on mammos--then finally I was diagnosied with Stage 3C invasive ductal ca with 10+ nodes. I will now demand an MRI every year as well--I just can be satisfied with mammo and ultrasound anymore.

    My best to you--hoping this turns out to be a small bump in the road. Please keep us posted.

    Hugs, Renee
  • cahjah75
    cahjah75 Member Posts: 2,631
    #6
    Mariam
    I had a breast MRI and then a stereostatic biopsy done of my left breast. Right breast had already been biopsied and we knew it had ILC. My mammo less than a year earlier showed nothing. Tests confirmed I had LCIS in left breast. I was told that although it was precancerous, that it most likely would eventually become cancer. Need I say more.... I had bilateral mastectomy. I'm hoping that tests give you the answers you need. I'm sorry to hear you have to go through this after you've already dealt with your other breast. That certainly is a bummer! Keeping you in my thoughts and prayers.
    {{hugs}} Char
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #7
    missrenee said:

    Glad you are getting that MRI
    I did not have lobular, but my breast tissue is extremely dense so microcalcs were missed repeatedly on mammos--then finally I was diagnosied with Stage 3C invasive ductal ca with 10+ nodes. I will now demand an MRI every year as well--I just can be satisfied with mammo and ultrasound anymore.

    My best to you--hoping this turns out to be a small bump in the road. Please keep us posted.

    Hugs, Renee

    Just to let you know that I
    Just to let you know that I will be praying for you.

    Hugs, Jan
  • fauxma
    fauxma Member Posts: 3,577 Member
    #8
    cahjah75 said:

    Mariam
    I had a breast MRI and then a stereostatic biopsy done of my left breast. Right breast had already been biopsied and we knew it had ILC. My mammo less than a year earlier showed nothing. Tests confirmed I had LCIS in left breast. I was told that although it was precancerous, that it most likely would eventually become cancer. Need I say more.... I had bilateral mastectomy. I'm hoping that tests give you the answers you need. I'm sorry to hear you have to go through this after you've already dealt with your other breast. That certainly is a bummer! Keeping you in my thoughts and prayers.
    {{hugs}} Char

    Mariam,
    Will keep you in my
    Mariam,
    Will keep you in my prayers. It does sound like your doctors are doing the right thing with the MRI.
    Stef
  • mariam_11_09
    mariam_11_09 Member Posts: 691 Member
    #9
    Thanks very much for all of


    Thanks very much for all of your input. This helps and confirms that my doctor's are really on the right path. The surgical oncologist did say she will follow up with me every 3 months. Of course, I could have a mastectomy but not sure I want to go through all of that right now. I have mixed feelings about it. Shall keep you all posted.
  • New Flower
    New Flower Member Posts: 4,294
    #10
    mariam_11_09 said:

    Thanks very much for all of


    Thanks very much for all of your input. This helps and confirms that my doctor's are really on the right path. The surgical oncologist did say she will follow up with me every 3 months. Of course, I could have a mastectomy but not sure I want to go through all of that right now. I have mixed feelings about it. Shall keep you all posted.

    Mariam
    Good luck with MRI. You are in the good hands your surgeons is taking care of you. I have had Lobular.
    Hugs
    New Flower
  • mollieb
    mollieb Member Posts: 148
    #11
    carkris said:

    oh yes and the moral of the
    oh yes and the moral of the story is to do what Megan does MRI every year, mammo every year, something every 6 months.

    Mammo/MRI?
    Your suggestion sounds like a good plan for me: mammo and MRI every year, staggered so there is one or the other every six months. Found my first lump seven years ago through a mammo, but the second group of lumps was the same density as the surrounding tissue and didn't show up on the mammo. It was close enough to the surface that I eventually felt it, but it would have been nice to catch the problem before it spread to my lymph nodes. So now I am scheduled for both a mammo and an MRI on the remaining breast, but will probably have to change the appointments because the start of radiation is delayed and they are now looking like they are too soon after radiation.

    Big question: what effect will the MRI have on my titanium shoulder implant? Titanium is not, strictly speaking, magnetic, but it "reacts weakly to a magnetic field." With a magnetic field as strong as the one created by the MRI, will my implant be displaced? So far I can't find anyone in the oncology department who knows the answer, and I HATE my orthopedic surgeon. Maybe I can get one of his residents to tell me. No one said anything at the time of my surgery or during any of my followup appointments, but this guy is such a jerk I can't assume that means I shouldn't worry.
  • Different Ballgame
    Different Ballgame Member Posts: 868
    #12
    New Flower said:

    Mariam
    Good luck with MRI. You are in the good hands your surgeons is taking care of you. I have had Lobular.
    Hugs
    New Flower

    You Got Lucky
    Dear Mariam,

    You got lucky. You have good doctors. LCIS is to be taken seriously. If not treated, it will become invasive. Good luck with the MRI.

    Lots of Hugs,
    Janelle
  • SIROD
    SIROD Member Posts: 2,194 Member
    #13
    Lobular Carcinoma

    My original pathology was both tubular and lobular invasive carcinoma. I have always been interested in both kinds as they spread it's different. I've read that lobular is often missed as it comes in sheets instead of a lump. It is harder to diagnose and is a very sneaky cancer.

    I wish that I remember where I read that piece of information. I think that lobular is a kind to take very seriously.

    Anyway, it my 2 cents or in these inflated times nickel worth.

    Best to you,

    Doris
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #14
    fauxma said:

    Mariam,
    Will keep you in my
    Mariam,
    Will keep you in my prayers. It does sound like your doctors are doing the right thing with the MRI.
    Stef

    Praying for you too Mariam!

    Praying for you too Mariam!
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #15
    mariam_11_09 said:

    Thanks very much for all of


    Thanks very much for all of your input. This helps and confirms that my doctor's are really on the right path. The surgical oncologist did say she will follow up with me every 3 months. Of course, I could have a mastectomy but not sure I want to go through all of that right now. I have mixed feelings about it. Shall keep you all posted.

    Wishing you good luck with
    Wishing you good luck with the MRI!


    Sue :)
  • Noel
    Noel Member Posts: 3,095 Member
    #16
    SIROD said:

    Lobular Carcinoma

    My original pathology was both tubular and lobular invasive carcinoma. I have always been interested in both kinds as they spread it's different. I've read that lobular is often missed as it comes in sheets instead of a lump. It is harder to diagnose and is a very sneaky cancer.

    I wish that I remember where I read that piece of information. I think that lobular is a kind to take very seriously.

    Anyway, it my 2 cents or in these inflated times nickel worth.

    Best to you,

    Doris

    Mariam, I will keep you in
    Mariam, I will keep you in my prayers and good luck with the MRI.
  • susie09
    susie09 Member Posts: 2,930
    #17
    carkris said:

    oh yes and the moral of the
    oh yes and the moral of the story is to do what Megan does MRI every year, mammo every year, something every 6 months.

    September 7th, we will all
    September 7th, we will all be with you!


    Prayers and hugs,


    ♠♣ Love, Susie ♠♣
  • mariam_11_09
    mariam_11_09 Member Posts: 691 Member
    #18
    I had my MRI this morning.
    I had my MRI this morning. They had to stick me 5 times because my veins kept rolling away and now my arm and hand is really bruised. However I took Ativan and tryptophan last night so I was pretty relazed in that machine.

    I have been crying a great deal lately. I guess it is more about the realisation that what I 'know' is more serious than I would like to admit. I just need to let the tears out right now.

    Will let you know the outcome for the results.

    thanks to you all.
  • sea60
    sea60 Member Posts: 2,613
    #19
    mariam_11_09 said:

    I had my MRI this morning.
    I had my MRI this morning. They had to stick me 5 times because my veins kept rolling away and now my arm and hand is really bruised. However I took Ativan and tryptophan last night so I was pretty relazed in that machine.

    I have been crying a great deal lately. I guess it is more about the realisation that what I 'know' is more serious than I would like to admit. I just need to let the tears out right now.

    Will let you know the outcome for the results.

    thanks to you all.

    Mariam,
    I'm so sorry you had to go through all this. I am praying that this is not serious but I understand how scary all this can be. You are in my thoughts. Please let us know the results.

    Sending you hugs,

    Sylvia
  • Kylez
    Kylez Member Posts: 3,761 Member
    #20
    mariam_11_09 said:

    I had my MRI this morning.
    I had my MRI this morning. They had to stick me 5 times because my veins kept rolling away and now my arm and hand is really bruised. However I took Ativan and tryptophan last night so I was pretty relazed in that machine.

    I have been crying a great deal lately. I guess it is more about the realisation that what I 'know' is more serious than I would like to admit. I just need to let the tears out right now.

    Will let you know the outcome for the results.

    thanks to you all.

    I will be praying for you
    I will be praying for you Mariam.


    Hugs, Kylez
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #21
    mariam_11_09 said:

    I had my MRI this morning.
    I had my MRI this morning. They had to stick me 5 times because my veins kept rolling away and now my arm and hand is really bruised. However I took Ativan and tryptophan last night so I was pretty relazed in that machine.

    I have been crying a great deal lately. I guess it is more about the realisation that what I 'know' is more serious than I would like to admit. I just need to let the tears out right now.

    Will let you know the outcome for the results.

    thanks to you all.

    So sorry for the bruising
    So sorry for the bruising Mariam. I know that has to hurt :( You cry all you want and come here to let us help you. That's why we are here Mariam, to help each other.

    I am sending you lots of hugs and prayers today!


    Sue :)

Discussion Boards