pulling myself back

Mwee
Mwee Member Posts: 1,338
in Ovarian Cancer #1
I'm just starting to come out of the fog of my last cisplatin/gemzar and then gemzar two week stretch. I always feel like I have missed so much so much here on the board and I will try to catch up with everyone. It feels so awesome to be standing up this AM... now is the real tricky part... try to go slow and not overdo... a life lesson that I constantly have to work on.
((((HUGS)))) Maria

Comments

  • clamryn
    clamryn Member Posts: 508
    #2
    Good to see you
    Maria, I am always so happy to see your smiling face on here. Take it easy. I think we all know what SLOW is. Praying you get back in the swing and that the fog lifts quickly.

    ((((Hugs))))
    Linda
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #3
    Take it easy !
    Glad you are starting to feel better, but slow is always good. No need to rush relax and catch up on your reading.
    Colleen
  • vj1
    vj1 Member Posts: 150
    #4
    Cafewoman53 said:

    Take it easy !
    Glad you are starting to feel better, but slow is always good. No need to rush relax and catch up on your reading.
    Colleen

    Maria
    I'm following you. Having a rough time with carboplatin, avanstin and gemzar. Entering my 2nd phase. Bp went up to 162/100 last week so avanstin was stopped. Didn't have a good week, but coming out of my fog. Only to go again tomorrow. Nothing like the first round of chemo 2 yrs ago; so looking for improvement. I will remind you to take it slow if you promise to tell me too!

    Verna
  • carolenk
    carolenk Member Posts: 907 Member
    #5
    vj1 said:

    Maria
    I'm following you. Having a rough time with carboplatin, avanstin and gemzar. Entering my 2nd phase. Bp went up to 162/100 last week so avanstin was stopped. Didn't have a good week, but coming out of my fog. Only to go again tomorrow. Nothing like the first round of chemo 2 yrs ago; so looking for improvement. I will remind you to take it slow if you promise to tell me too!

    Verna

    high blood pressure
    There was some research that indicated that the patients who responded best to Avastin also had elevated blood pressure. I am not sure why you were not treated with blood pressure medications and kept on the medication. Maybe they considered it too risky for you in general.

    Carolen
  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #6
    carolenk said:

    high blood pressure
    There was some research that indicated that the patients who responded best to Avastin also had elevated blood pressure. I am not sure why you were not treated with blood pressure medications and kept on the medication. Maybe they considered it too risky for you in general.

    Carolen

    Blood pressure meds
    When I was on Avastin, fortunately my blood pressure stayed fairly normal. But all the nurses assumed I was on blood pressure meds because they said all of their Avastin patients were on them.
  • carolenk
    carolenk Member Posts: 907 Member
    #7
    Tethys41 said:

    Blood pressure meds
    When I was on Avastin, fortunately my blood pressure stayed fairly normal. But all the nurses assumed I was on blood pressure meds because they said all of their Avastin patients were on them.

    Ahhhh, Tethys, you are an
    Ahhhh, Tethys, you are an anomaly. Your diet was equivalent to anti-hypertensive medicine.

    : )
  • vj1
    vj1 Member Posts: 150
    #8
    carolenk said:

    Ahhhh, Tethys, you are an
    Ahhhh, Tethys, you are an anomaly. Your diet was equivalent to anti-hypertensive medicine.

    : )

    I was on bp meds
    I was on bp meds (lisinopril) now changed to metropolo. Still running higher than my norm. Will find out next week if avanstin will be used again. Nausea and headaches are primary; this round of chemo is rougher than original. Any suggestions?
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #9
    vj1 said:

    I was on bp meds
    I was on bp meds (lisinopril) now changed to metropolo. Still running higher than my norm. Will find out next week if avanstin will be used again. Nausea and headaches are primary; this round of chemo is rougher than original. Any suggestions?

    glad you are up
    and feeling stronger. Enjoy your day, go outside and enjoy the sunshine. At night I can feel fall air,how about you..val
  • Mwee
    Mwee Member Posts: 1,338
    #10
    Farmer's market
    Yippeeeeee..... feeling well enough to drive around and I even bought out the farmer's market yesterday. I'm enjoying every single moment that I can till my next chemo go round. As always, thanks for the support, my friends.
    (((HUGS)))
  • Radioactive34
    Radioactive34 Member Posts: 391 Member
    #11
    Mwee said:

    Farmer's market
    Yippeeeeee..... feeling well enough to drive around and I even bought out the farmer's market yesterday. I'm enjoying every single moment that I can till my next chemo go round. As always, thanks for the support, my friends.
    (((HUGS)))

    Lol, I went to the farmers
    Lol, I went to the farmers market, too. It is something I like to do. The best part was that I drove myself there. :) Hugs...until the next round...I am taking as much advantage of the freedom.
  • Lisa13Q
    Lisa13Q Member Posts: 677
    #12
    Cisplatin...
    Hi Maria,

    Cisplatin is a tough one....glad you're up and running and sooo sorry you have to go through this.....no one should have to...especially someone as nice as you.!!!
  • dreamer007
    dreamer007 Member Posts: 61
    #13
    do any of you, who are on
    do any of you, who are on gemzar require blood transfusions,
    about 2 weeks after the treatment?
    everytime i had gemzar, it was a day and a half of platelets,
    and rbcs dripping into my body
  • Mwee
    Mwee Member Posts: 1,338
    #14
    dreamer007 said:

    do any of you, who are on
    do any of you, who are on gemzar require blood transfusions,
    about 2 weeks after the treatment?
    everytime i had gemzar, it was a day and a half of platelets,
    and rbcs dripping into my body

    no blood transfusions
    with my cisplatin or gemzar, but I do have to take the nuelasta shot after gemzar.
    (((HUGS))) Maria
  • dreamer007
    dreamer007 Member Posts: 61
    #15
    Mwee said:

    no blood transfusions
    with my cisplatin or gemzar, but I do have to take the nuelasta shot after gemzar.
    (((HUGS))) Maria

    neulasta
    not sure why my onc doc only prescribed neupogen or neulasta one time...
    i would have to ask him

    i was glad to have the blood transfusions, instead of that awful bone pain
    from taxol, and my hair grew back, shortly after the taxol was stopped

    they really stuck it to me as far as chemo

    "damn near kilt me" as we say in Texas, but i am in remission for about 8 months
    and happy about that

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