Caretake problems
Comments
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Frustrating Experience
Like yourself, my wife was a wonderful care giver. She has been by my side throughout this entire ordeal. Her one complaint with me was that I wasn't trying hard enough to eat. I had lost my appetite, had swallowing problems and was skin and bones at 150 lbs. She was scared, I wasn't feeling that well, nor was I fighting that hard to eat more. My illness affected her in many ways. No more going out to eat, no more making a nice dinner for two, having to cook for herself only. Many times she'd get upset with me for not trying something different, even after she'd spent time trying to make it edible for me. I eventually got to the point where when she asked what I wanted my response was give me a small portion of whatever your making and I'll try it. Somethings worked and others still don't. It all takes time and a bunch of give and take, just like in any marriage. It will be 39 years on 10/14 for us and I certainly made out on that commitment.
Put a smile on your face, tell her how much you appreciate all that she's done for you and discuss other foods of similar consistency (mashed potatoes, etc.)that you'd like to try. Just keep on trying.......it does get better.
Time to go give my gal a big hug and kiss.
Best wishes,
Ed0 -
I'm sorry, David.
Well, maybe she is a little confused and frustrated. We aren't exactly the easiest people to cook for. In your post you say you want her to cook for you, and you are mad she didn't, but all you can have is milk, cereal and grits. So do you want her to just cook some grits for you every night?
Here's the thing, she may not be doing anything, because she doesn't know WHAT to do. If she is an excellent wife, and she's been by your side, then I am sure she wants to make you happy, but she needs to know how. Most of the time we think people are letting us down, but in reality, they don't know what we want, because we aren't clearly communicating our wants, needs, or expectations. As a manager, I realized that there are times where people know what to do, and there are times that they need clear direction. Most big mishaps ensued when I was not providing clear expectations and I was just assuming they knew what to do. I think marriage can be the same way. We think our spouse is a mind reader and we expect them to think like we do, but they don't.
Maybe sit down with her and talk about where you are at with eating. Would you like her to make something special for you every night? If so, I would give her a list of stuff you can eat, so she knows what to make a meal out of. Stuff you would like to try? Write that down too. Or maybe you can agree to try a little of what she is eating. Idk. What ever you think is best for you, but don't get mad. Don't take your frustrations of not being able to eat on her. (easier said than done. I wanted to kill my grandmother over a bagel that she toasted once. In fairness, I was a garlic bagel, and I hadn't eaten in 6 months. I don't know what I would have done if I lived in a house with cooking going on. It's like TORTURE to smell food when you cannot eat. Ugh). You need to talk about it. I'm sure she wants to help you and you guys can work together to come up with food ideas, and how you want to handle meals and meal time.
The rare times I eat with my family, I just cook for myself, because my dad just doesn't get it. He has four other people to cook for, and he isn't going to make me something special, and he doesn't seem to want to tailor what he is cooking for me, so if I do go up on a holiday to eat with them, I make sure I bring one or two things that work for me, and then take a tbs of things I think I might be able to eat. Which usually isn't much.0 -
Communicate!
David,
Sounds like a communication problem to me. I am the caretaker for my husband and I get my feelings hurt when he makes a comment about something I did not do. I will do anything he wants but he has to tell me, I am not a mind reader. Communicating your needs and appreciation along with encouraging her to express her needs and frustrations will help a lot. Lack of communication is the biggest enemy of relationships.
We caretakers realize what you are going through and want to help anyway we can but if we do not know what helps, we can't help. I pray that all smooths out. And don't forget to tell her you love and appreciate all she does. We never grow tired of hearing those words.
Debbie0 -
Agree
We patients do try our caregivers patience sometimes don't we?
Your wife may not have fixed you anything because you may not have asked her to. I know I am guilty sometimes of expecting my husband (my caregiver) to be able to read my mind. And that is silly isn't it? I mean, if I can't read his, why should he be able to read mine? Your wife could also be wanting you to try other foods and see if you can get more protein, vitamins and minerals in your system. Or she may just be tired and figured if that is all your having, well....perhaps you can cook that yourself.
My husband has the patience of a saint. I see him grit his teeth and smile when I'm having a bad day and taking it out on him. The one thing he reminds me of is that "it is the cancer talking, not you". God Bless him, he knows me that well. He knows my true spirit like your wife knows yours. Our caregivers all are to be commended for staying with us and standing between us and the world sometimes when all they want to do is say, "what about me"? But my husband also reminds me that "I was drafted, he enlisted" and he keeps re-enlisting every time I have more tests, operations or procedures. And for me, it doesn't get any better than that!
Teresa0 -
As a caregiver it is hard topalmyrafan said:Agree
We patients do try our caregivers patience sometimes don't we?
Your wife may not have fixed you anything because you may not have asked her to. I know I am guilty sometimes of expecting my husband (my caregiver) to be able to read my mind. And that is silly isn't it? I mean, if I can't read his, why should he be able to read mine? Your wife could also be wanting you to try other foods and see if you can get more protein, vitamins and minerals in your system. Or she may just be tired and figured if that is all your having, well....perhaps you can cook that yourself.
My husband has the patience of a saint. I see him grit his teeth and smile when I'm having a bad day and taking it out on him. The one thing he reminds me of is that "it is the cancer talking, not you". God Bless him, he knows me that well. He knows my true spirit like your wife knows yours. Our caregivers all are to be commended for staying with us and standing between us and the world sometimes when all they want to do is say, "what about me"? But my husband also reminds me that "I was drafted, he enlisted" and he keeps re-enlisting every time I have more tests, operations or procedures. And for me, it doesn't get any better than that!
Teresa
As a caregiver it is hard to cook for you folks.I am lucky, my husband is so easy going and I always tried to make dinner to cater to his eating abilities and some days he just says dont worry about me make dinner for you and the kids and eat what you guys want, I will nuke a pot pie or something. I plan on making him a homemade pot pie this weekend, he loves pot pies and I believe it's the easiest thing for him to eat. Besides his morning donut once in awhile. I just love my man to pieces. LOL0 -
Hi Davidarndog64 said:As a caregiver it is hard to
As a caregiver it is hard to cook for you folks.I am lucky, my husband is so easy going and I always tried to make dinner to cater to his eating abilities and some days he just says dont worry about me make dinner for you and the kids and eat what you guys want, I will nuke a pot pie or something. I plan on making him a homemade pot pie this weekend, he loves pot pies and I believe it's the easiest thing for him to eat. Besides his morning donut once in awhile. I just love my man to pieces. LOL
I know the problem, my wife is always getting up-set with me because I can’t tell her what I feel like eating, and the truth is I don’t feel like eating.
What I started doing is to give her a list of food that I can eat and like and told her to cook them on different days of the week. So far so good, if I feel like eating I eat and if not I don’t; until she makes me eat. Her caregiver job is to try and get weight back on me. lol
Wishing you the best my friend
Hondo0 -
I was Lucky
Hi Dav:
From the caretaker's point of view I understand your wife's not knowing what to cook for you. I will have to tell you though, Charlie pretty much would fix his own. Now, believe me I wanted to cook for him and up until this time last year (it will be a year Sun. the 21st since he passed away)I would fix whatever he said he felt like eating if he didn't fix it himself. I also was the hovering caretaker; so I know I drove him crazy a lot of the time. But I was just happy he was eating something. Hope you're eating more variety of things soon. God Bless!
Jan (Basketcase)0 -
I CAN RELATE
My wife too had trouble trying to make meals for me. She was very good in trying new things, of which most I did not or could not eat. The hardest thing for her was to try to just "fend for herself" during meals.
It is a normal occurance as being a caregiver. My hat is off to all who make the big sacrifice to try to do the best they can to take care of us.
Mike0
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