Shout Out To Marsha Mulvey
Hugs, Diane
Comments
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functioning (miserably)jnl said:Thinking of you too
Thinking of you too Marsha!
Love, Leeza
I'm here and still kicking, but...maybe not as high! Thanks for asking and lifting me up with thoughts and prayer.
I had a scan this morning to see if this miserable 2 1/2 months of Tykerb and Xeloda has been working well on the cancer. I'll see Dr. S on Friday for results, discussion, decisions, etc. A lot has happened in the last couple of weeks since I posted. Two weeks ago today I called the doctor because I'd been very congested for 3 days. My onc was out of the office for the week and another doc ordered me an antibiotic - it didn't work and I even started feeling like I wasn't getting enough air, even when my breathing was OK. I was very "winded" and felt exhausted if I did the least thing, like walking to my car or cleaning up the dishes. I could breathe but it's hard to explain that you just feel like the oxygen isn't being used - or something. So, one week ago today I called back and tried to explain to the doc (mine was still out of the office), she immediately set me up to go to the hospital for a chest/lung scan, fearing a possible blood clot. The next day Dr. S was back and saw the results, which were good - pulmonary arteries and lungs all appear to be OK. He decided (and I agreed) to send me on Friday for another echocardiogram to see if perhaps the Tykerb has effected the heart function. Like Herceptin, it is known to sometimes cause a problem with the ejection fraction rate. Let's face it, I had 60 infusions of Herceptin and have been on Tykerb for 10 more weeks (along with other chemo too) and it's got to be hard on your body.
I made the decision last Wednesday not to take the Xeloda due to the way I felt and Dr. S agreed, though he told me to continue with the daily Tykerb. Since then, I have had a couple of days when the "oxygen thing" hasn't been quite as bad, but overall, IT IS a very real issue! I have continued to work, but haven't been doing my usual cleaning, etc. Today my sister came and helped me get a few things done that I haven't done for the past 2 weeks - not asked for, but the help was much appreciated!
The reason for my title is that when David, the Scan Man asked me this morning how I was doing, my answer without any thought or hesitation was, "I'm functioning miserably." I imagine my onc will wait for Friday to give me all the results of these diagnostics. (I keep telling myself it's just a few more days).
I will post to share with you when I get some answers. Meantime, please keep the positive thoughts and prayers coming! Thanks again.
Marsha0 -
I am so sorry Marsha, but,Marsha Mulvey said:functioning (miserably)
I'm here and still kicking, but...maybe not as high! Thanks for asking and lifting me up with thoughts and prayer.
I had a scan this morning to see if this miserable 2 1/2 months of Tykerb and Xeloda has been working well on the cancer. I'll see Dr. S on Friday for results, discussion, decisions, etc. A lot has happened in the last couple of weeks since I posted. Two weeks ago today I called the doctor because I'd been very congested for 3 days. My onc was out of the office for the week and another doc ordered me an antibiotic - it didn't work and I even started feeling like I wasn't getting enough air, even when my breathing was OK. I was very "winded" and felt exhausted if I did the least thing, like walking to my car or cleaning up the dishes. I could breathe but it's hard to explain that you just feel like the oxygen isn't being used - or something. So, one week ago today I called back and tried to explain to the doc (mine was still out of the office), she immediately set me up to go to the hospital for a chest/lung scan, fearing a possible blood clot. The next day Dr. S was back and saw the results, which were good - pulmonary arteries and lungs all appear to be OK. He decided (and I agreed) to send me on Friday for another echocardiogram to see if perhaps the Tykerb has effected the heart function. Like Herceptin, it is known to sometimes cause a problem with the ejection fraction rate. Let's face it, I had 60 infusions of Herceptin and have been on Tykerb for 10 more weeks (along with other chemo too) and it's got to be hard on your body.
I made the decision last Wednesday not to take the Xeloda due to the way I felt and Dr. S agreed, though he told me to continue with the daily Tykerb. Since then, I have had a couple of days when the "oxygen thing" hasn't been quite as bad, but overall, IT IS a very real issue! I have continued to work, but haven't been doing my usual cleaning, etc. Today my sister came and helped me get a few things done that I haven't done for the past 2 weeks - not asked for, but the help was much appreciated!
The reason for my title is that when David, the Scan Man asked me this morning how I was doing, my answer without any thought or hesitation was, "I'm functioning miserably." I imagine my onc will wait for Friday to give me all the results of these diagnostics. (I keep telling myself it's just a few more days).
I will post to share with you when I get some answers. Meantime, please keep the positive thoughts and prayers coming! Thanks again.
Marsha
I am so sorry Marsha, but, glad to see your posting to us. I will be praying for you on Friday!
And do let us know your results when you can.
Hugs, Kylez0 -
Marsh I am very sorry and sending you a big husKylez said:I am so sorry Marsha, but,
I am so sorry Marsha, but, glad to see your posting to us. I will be praying for you on Friday!
And do let us know your results when you can.
Hugs, Kylez
Thank you for the update. I am very sorry and wishing you to be pleased with your doctor's visit and scan results.
Big hug and positive energy is coming to you.
New Flower0 -
Marsha,New Flower said:Marsh I am very sorry and sending you a big hus
Thank you for the update. I am very sorry and wishing you to be pleased with your doctor's visit and scan results.
Big hug and positive energy is coming to you.
New Flower
Sorry that this is
Marsha,
Sorry that this is an issue and praying and hoping they will find out the cause and eleviate the problem. Your body has been subjected to many treatments that can take a toll. Big hug in the meantime and let us know what the results of the tests show.
Stef0 -
Oh Marsha,fauxma said:Marsha,
Sorry that this is
Marsha,
Sorry that this is an issue and praying and hoping they will find out the cause and eleviate the problem. Your body has been subjected to many treatments that can take a toll. Big hug in the meantime and let us know what the results of the tests show.
Stef
I'm praying all checks out good with your heart. I know they had to keep checking mine with the Herceptin. Please let us know the results.
Keeping you in thought,
Sylvia0 -
Marshasea60 said:Oh Marsha,
I'm praying all checks out good with your heart. I know they had to keep checking mine with the Herceptin. Please let us know the results.
Keeping you in thought,
Sylvia
so glad to see you post even though you're going through a lot! Sending you strength, courage and hope.
{{hugs}} Char0 -
For MarshaMarsha Mulvey said:functioning (miserably)
I'm here and still kicking, but...maybe not as high! Thanks for asking and lifting me up with thoughts and prayer.
I had a scan this morning to see if this miserable 2 1/2 months of Tykerb and Xeloda has been working well on the cancer. I'll see Dr. S on Friday for results, discussion, decisions, etc. A lot has happened in the last couple of weeks since I posted. Two weeks ago today I called the doctor because I'd been very congested for 3 days. My onc was out of the office for the week and another doc ordered me an antibiotic - it didn't work and I even started feeling like I wasn't getting enough air, even when my breathing was OK. I was very "winded" and felt exhausted if I did the least thing, like walking to my car or cleaning up the dishes. I could breathe but it's hard to explain that you just feel like the oxygen isn't being used - or something. So, one week ago today I called back and tried to explain to the doc (mine was still out of the office), she immediately set me up to go to the hospital for a chest/lung scan, fearing a possible blood clot. The next day Dr. S was back and saw the results, which were good - pulmonary arteries and lungs all appear to be OK. He decided (and I agreed) to send me on Friday for another echocardiogram to see if perhaps the Tykerb has effected the heart function. Like Herceptin, it is known to sometimes cause a problem with the ejection fraction rate. Let's face it, I had 60 infusions of Herceptin and have been on Tykerb for 10 more weeks (along with other chemo too) and it's got to be hard on your body.
I made the decision last Wednesday not to take the Xeloda due to the way I felt and Dr. S agreed, though he told me to continue with the daily Tykerb. Since then, I have had a couple of days when the "oxygen thing" hasn't been quite as bad, but overall, IT IS a very real issue! I have continued to work, but haven't been doing my usual cleaning, etc. Today my sister came and helped me get a few things done that I haven't done for the past 2 weeks - not asked for, but the help was much appreciated!
The reason for my title is that when David, the Scan Man asked me this morning how I was doing, my answer without any thought or hesitation was, "I'm functioning miserably." I imagine my onc will wait for Friday to give me all the results of these diagnostics. (I keep telling myself it's just a few more days).
I will post to share with you when I get some answers. Meantime, please keep the positive thoughts and prayers coming! Thanks again.
Marsha
I don't post often, but read your postings all the time. I am sending positive thoughts to you as always.
Best,
Doris0
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