WTF?
Brooks
Comments
-
Need My Cancer Sword?
I've still got blood stains on it from this past year's battle, but it still cuts real clean.
We haven't kept up much, Brooks, so in case you did not know.....I'm back on watch and wait status on my 3rd recurrence in the past 7 years.
You can borrow my sword and if you need a shield, body armor or artillery for your big guns, I'm only a PM away:)
Spots on your lung are tiny - mine was 6cm (size of tangerine). And why they may need to come out, it might not have to be this very second. You can watch them another scan cycle to see if they grow or how significant the growth is. If they continue to grow, then benign or malignant, they will have to come out.
I had benign lung tumors the first time with da Vinci and the next lung tumors were cancerous, so it's always hard to say.
As far as biopsies, you might want to save yourself some time and money. If they don't grow, then you watch them - if they do continue to grow, then there is VATS, da Vinci, or an open thoracotomy.
Biposies are so hit and miss anyway - and how do you believe them? I mean if they say cancer do you believe that? And if they say no cancer, do you believe that?
The only tried and true test comes in the O/R when the fully excise the tumor and biopsy it right there. That takes the guesswork away and in a big way.
And liver? I did RFA and Cyberknife on my tumor (8cm small orange) with good success, so that might be possible. And RFA has an equal to or better survival percentage than a standard liver resection. So, don't be fooled there.
Remember, sometimes waiting a month or two is not a bad thing. We all think we have to jump through hoops the minute anything pops up. but the lungs are delicate and you can only go in there so many times, so you want to wait and make that surgery count and not do it just to do it.
Because there's always recurrence and that's what makes our battle so difficult.
Having said all of that, let's look at your new onc and see what they have to say and take it from there. It might not be as bad as you think and we'll soon see.
Take care my friend.
-Craig0 -
yes Brooks WtF! you are right !Sundanceh said:Need My Cancer Sword?
I've still got blood stains on it from this past year's battle, but it still cuts real clean.
We haven't kept up much, Brooks, so in case you did not know.....I'm back on watch and wait status on my 3rd recurrence in the past 7 years.
You can borrow my sword and if you need a shield, body armor or artillery for your big guns, I'm only a PM away:)
Spots on your lung are tiny - mine was 6cm (size of tangerine). And why they may need to come out, it might not have to be this very second. You can watch them another scan cycle to see if they grow or how significant the growth is. If they continue to grow, then benign or malignant, they will have to come out.
I had benign lung tumors the first time with da Vinci and the next lung tumors were cancerous, so it's always hard to say.
As far as biopsies, you might want to save yourself some time and money. If they don't grow, then you watch them - if they do continue to grow, then there is VATS, da Vinci, or an open thoracotomy.
Biposies are so hit and miss anyway - and how do you believe them? I mean if they say cancer do you believe that? And if they say no cancer, do you believe that?
The only tried and true test comes in the O/R when the fully excise the tumor and biopsy it right there. That takes the guesswork away and in a big way.
And liver? I did RFA and Cyberknife on my tumor (8cm small orange) with good success, so that might be possible. And RFA has an equal to or better survival percentage than a standard liver resection. So, don't be fooled there.
Remember, sometimes waiting a month or two is not a bad thing. We all think we have to jump through hoops the minute anything pops up. but the lungs are delicate and you can only go in there so many times, so you want to wait and make that surgery count and not do it just to do it.
Because there's always recurrence and that's what makes our battle so difficult.
Having said all of that, let's look at your new onc and see what they have to say and take it from there. It might not be as bad as you think and we'll soon see.
Take care my friend.
-Craig
Hope is just a false alarm!
Hugs and vibes my friend!0 -
WTF indeed!
That's crazy! I hope you have better luck with the new doc. Are they in the same practice? That could muddy things.
Anyway, I wish you all the best and hope this turns out to be nothing to worry about.
Take care,
Ray0 -
Oh, man
Hi Brooks,
Man- what a lousy deal that your onc told you everything was fine after your last scan. Did you ask her why she didn't tell you before??
I do hope and pray that they are benign, but what stress you're having to go through. I think it's good that you called back and got the CT scheduled sooner since it's already been more than 2 months since the other one.
Keep us informed as to what's going on.
Sorry, Brooks-
Hugs,
Lisa
P.S. Are you still coming down this way in August? I'll be back from my cruise on Aug. 7th pm- back checking the board and FB Aug 8th. Let me know if you end up down this way.0 -
Dang!lisa42 said:Oh, man
Hi Brooks,
Man- what a lousy deal that your onc told you everything was fine after your last scan. Did you ask her why she didn't tell you before??
I do hope and pray that they are benign, but what stress you're having to go through. I think it's good that you called back and got the CT scheduled sooner since it's already been more than 2 months since the other one.
Keep us informed as to what's going on.
Sorry, Brooks-
Hugs,
Lisa
P.S. Are you still coming down this way in August? I'll be back from my cruise on Aug. 7th pm- back checking the board and FB Aug 8th. Let me know if you end up down this way.
Well ain't that a bunch of crap!!!!. Sorry to hear this Brooks. Let us know how the scan goes. Take care
Jennie0 -
WTF Indeed
I am glad you called back switched Drs and demanded a new scan. I hope the next scan does show that things are not bad. Good luck.0 -
Terrible
Hey, Brooks.
That just makes me shake my head. Why in the world didn't she tell you the true results in May, so you could make an informed decision for yourself? I'm so glad you called and got fierce with them. This is your LIFE!
Praying for great results!
*hugs*
Gail0 -
brookstootsie1 said:Terrible
Hey, Brooks.
That just makes me shake my head. Why in the world didn't she tell you the true results in May, so you could make an informed decision for yourself? I'm so glad you called and got fierce with them. This is your LIFE!
Praying for great results!
*hugs*
Gail
so sorry for this news.i just had a scare myself with my onc and i really dont feel like talking about it right now but believe me when i say i know how you feel...Godbless...johnnybegood0 -
So sorry to hear that.johnnybegood said:brooks
so sorry for this news.i just had a scare myself with my onc and i really dont feel like talking about it right now but believe me when i say i know how you feel...Godbless...johnnybegood
So sorry to hear that. Pisses us all off when s..t like that happens! Johnnybegood, get it off your chest, don't hold it in!0 -
JBGjohnnybegood said:brooks
so sorry for this news.i just had a scare myself with my onc and i really dont feel like talking about it right now but believe me when i say i know how you feel...Godbless...johnnybegood
Hey Gal - I'd be glad to talk with you about it anytime that you feel like it:)
-Craig0 -
Hey Brooks
Hey Brooks,
Yes, that is crap. You did the right thing withe your two demands. How about a PET scan?
Let us know. We care about you.
Aloha,
Kathleen0 -
Hi Brooks,if I were you,I
Hi Brooks,if I were you,I would fire her too.You did the right thing and you did good.Sometimes we are in shock and we don't know what to do right this moment,but after we sink in and think about it,we can take actions.You are in my prayers,and I hope everything will be ok.Best wishes to you.Take care.0 -
Brooks:
WTF is right. Talk about kick in the pants. George and I know all too well the way you are feeling about now. As an aside, your doc dropped the ball on this one, but since they are very small there is a good chance at knocking them down. I got no words of wisdom except hang in there and just do what you need to do.
Hugs - Tina0 -
Grrr
So sorry to hear this news -- the spots but also the behavior of your Onc. You have done all the right things now. For what it's worth, when I had a very small spot on my lung (similar size to your spots), the decision was "watchful waiting" and I had a repeat scan in 3 mos. I say this in hopes of relieving some anxiety about the time-frame.
Fingers and toes crossed for good results (disappeared, no change, benign....)
All good things,
Tara0 -
this hits hometaraHK said:Grrr
So sorry to hear this news -- the spots but also the behavior of your Onc. You have done all the right things now. For what it's worth, when I had a very small spot on my lung (similar size to your spots), the decision was "watchful waiting" and I had a repeat scan in 3 mos. I say this in hopes of relieving some anxiety about the time-frame.
Fingers and toes crossed for good results (disappeared, no change, benign....)
All good things,
Tara
Brooks,
I'm sorry you are going through this. I just a couple of weeks ago found out my Onc was not being totally honest with me while I was doing chemo. Turns out he thinks he knows more about me than I do. He stated that he didn't tell me I only had a 50% chance of surviving, because he didn't think I could take the news. How dare he or any Dr. make my choices for me. I would not have liked the news, but not giving us all the information is like sending into a gunfight with an unloaded gun.
I really like my Dr. and will try to work things out, basically he will be told 100% honesty is required or he can't be my Dr. any longer. Also I will tell him point blank, if you ever lie to me again, you are fired and then I will drag you in front of the medical board to get your liscence revoked.0 -
50% Survivalcoolvdub said:this hits home
Brooks,
I'm sorry you are going through this. I just a couple of weeks ago found out my Onc was not being totally honest with me while I was doing chemo. Turns out he thinks he knows more about me than I do. He stated that he didn't tell me I only had a 50% chance of surviving, because he didn't think I could take the news. How dare he or any Dr. make my choices for me. I would not have liked the news, but not giving us all the information is like sending into a gunfight with an unloaded gun.
I really like my Dr. and will try to work things out, basically he will be told 100% honesty is required or he can't be my Dr. any longer. Also I will tell him point blank, if you ever lie to me again, you are fired and then I will drag you in front of the medical board to get your liscence revoked.
What does your Onc.base his 50% prediction on???
NB0 -
Wishy Washycoolvdub said:this hits home
Brooks,
I'm sorry you are going through this. I just a couple of weeks ago found out my Onc was not being totally honest with me while I was doing chemo. Turns out he thinks he knows more about me than I do. He stated that he didn't tell me I only had a 50% chance of surviving, because he didn't think I could take the news. How dare he or any Dr. make my choices for me. I would not have liked the news, but not giving us all the information is like sending into a gunfight with an unloaded gun.
I really like my Dr. and will try to work things out, basically he will be told 100% honesty is required or he can't be my Dr. any longer. Also I will tell him point blank, if you ever lie to me again, you are fired and then I will drag you in front of the medical board to get your liscence revoked.
I'll post my update as soon as I talk to my new onc on the 4th. Good idea for everybody to ask for copies of scans and Dr visits.0 -
Just for the record.....just4Brooks said:Wishy Washy
I'll post my update as soon as I talk to my new onc on the 4th. Good idea for everybody to ask for copies of scans and Dr visits.
My CT scan showed all clear...My PET scan lite up in the hilum area and also a small dull image on my right liver. So just because a CT shows clear doesn't mean somethings not up....My rise in CEA is what got the attention of my Onc...I will give her credit, so far so good..but we all have to be diligent in knowledge and keeping full speed ahead on keeping it under control....I wish only the best in all of this for ya Brooks..sorry that you or any of us even have to deal with this period.......buzz0
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