Would like to talk with other AML patients

2»

Comments

  • mary1977
    mary1977 Member Posts: 6
    #22
    Kibugg said:

    Emotion
    I am a Survivor and am now doing a study on AML and would like to know if anyone would like to share their story....Names will be excluded

    emotion as well
    yes, i would like very much to discuss this with you. ever concidering emailing so that our stories about survival and trama that a person goes thru would be strictly confidential? would love that opportunity.
    thanks
  • mary1977
    mary1977 Member Posts: 6
    #23
    byornham said:

    HELLO
    My husband has has been dealing with AML since Aug. 2005 and had a allo. transplant 3 yrs ago. I would like to here stories from other adult survivors. He is 51 now and have not met many long term survivors. I would like to hear from some so we don't feel so alone in this.

    hello
    i would love to discuss these issues with you. i am an AML survivor just recently. Dx in aug 09; and finally in remission as of April 2010. please write back; we'll talk
    mary
  • mtbikernate
    mtbikernate Member Posts: 31
    #24
    mary1977 said:

    hello
    i would love to discuss these issues with you. i am an AML survivor just recently. Dx in aug 09; and finally in remission as of April 2010. please write back; we'll talk
    mary

    I was dx in March 09, and in
    I was dx in March 09, and in remission in April 09 from AML. I'd be willing to talk...you can track me down from my user profile through my blog.
  • RickGeorge
    RickGeorge Member Posts: 5
    #25
    mtbikernate said:

    I was dx in March 09, and in
    I was dx in March 09, and in remission in April 09 from AML. I'd be willing to talk...you can track me down from my user profile through my blog.

    AML Survivor
    Willing to share my experiences with other. Diagnosed in Jan.2009 and have been in remission for a few months. Severe peripheral neuropathy brought on by one of the medications utilized during a clinical trial at MD Anderson. Through the grace of God, some great medical staff and a loving family...I survived. Just another day in paradise.
  • Cancerfather
    Cancerfather Member Posts: 4
    #26
    livinatmoms said:

    Hi, I am also 38 and just got diagnosed on July 7th, 2009 with AML - I am at UCDavis just finished my infusion, I am waiting for my blood counts to drop and start getting better to go home, I am a mother of 4 children and have a great support group from my family and friends but they don't know how it effects me because they don't have it. I was perfectly healthy not having even as much as a cold for the last 5 years and now this WOW! To tell you the truth I am still in shock, it's like all surreal - I just found out that the FISH test wasnt great and am awaiting the fourth test to determine the exact problem with it. My email is livinatmoms@yahoo.com is anyone wants to chat about AML or suggest any confident advise as to how to remain calm during and after this treatment.

    Davis AML
    My daughter age 48 just completed first induction. No Remission. She lives in Davis and could use support. Any chance you could contact her?
    Thanks

Discussion Boards