Taste changes after Chemo

msbrook2
msbrook2 Member Posts: 28
in Lymphoma (Hodgkin and Non-Hodgkin) #1
I am about 2.5 months removed from my last Chemo treatment (R-EPOCH) and am still experience funny tastes with certain foods (eggs, some meats depending on how they're cooked, popcorn, etc.). I know that three of the drugs in that regimen have taste changes as a side effect (Cyclophosphamide, Doxorubicin, Vincristine). I was wondering if anyone else is having (or has had) the same issue and how long it typically lasts...or is it permanent?

Comments

  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #2
    taste changes
    I have been out of chemo for 9 months and noticed most of the taste buds have returned to normal. It may not get any better for me,I don't know. I know in the beginning a lot of things tasted metallic. I could not even taste mustard. Mac and cheese tasted awful too and I love it the most.There are a few things that taste funny but for the most part it has returned to normal for me. John(FNHL-1-4A-5/10)
  • msbrook2
    msbrook2 Member Posts: 28
    #3
    COBRA666 said:

    taste changes
    I have been out of chemo for 9 months and noticed most of the taste buds have returned to normal. It may not get any better for me,I don't know. I know in the beginning a lot of things tasted metallic. I could not even taste mustard. Mac and cheese tasted awful too and I love it the most.There are a few things that taste funny but for the most part it has returned to normal for me. John(FNHL-1-4A-5/10)

    Thanks for replying, John!
    Thanks for replying, John! Did it take a while for most of them to come back?
  • msbrook2
    msbrook2 Member Posts: 28
    #4
    COBRA666 said:

    taste changes
    I have been out of chemo for 9 months and noticed most of the taste buds have returned to normal. It may not get any better for me,I don't know. I know in the beginning a lot of things tasted metallic. I could not even taste mustard. Mac and cheese tasted awful too and I love it the most.There are a few things that taste funny but for the most part it has returned to normal for me. John(FNHL-1-4A-5/10)

    Thanks for replying, John!
    Thanks for replying, John! Did it take a while for most of them to come back?
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #5
    msbrook2 said:

    Thanks for replying, John!
    Thanks for replying, John! Did it take a while for most of them to come back?

    Taste return
    I noticed most had returned in about 5 months out. I still have things that don't quite taste like it used too. Eggs is the one I notice the most that doesn't taste the same as it did before. John
  • Kosta
    Kosta Member Posts: 1
    #6
    taste changes after chemo
    My last chemo treatment with ABVD was 2 months ago, and I have been enjoying the taste of raw fresh sugar snap peas of all things. It comes and goes depending on what I am eating, but it has been slowly fading in intensity as time goes on. I did experience a metallic taste with some foods during chemo, but that has long passed which leads me to believe it will only be a matter of time before your taste buds bounce back to normal.


    Kosta
  • msbrook2
    msbrook2 Member Posts: 28
    #7
    Kosta said:

    taste changes after chemo
    My last chemo treatment with ABVD was 2 months ago, and I have been enjoying the taste of raw fresh sugar snap peas of all things. It comes and goes depending on what I am eating, but it has been slowly fading in intensity as time goes on. I did experience a metallic taste with some foods during chemo, but that has long passed which leads me to believe it will only be a matter of time before your taste buds bounce back to normal.


    Kosta

    Thank you. I'm already
    Thank you. I'm already noticing the funny tastes are diminishing some what...3 months after my last Chemo treatment...hopefully in another 2 or so all will be normal.
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #8
    msbrook2 said:

    Thank you. I'm already
    Thank you. I'm already noticing the funny tastes are diminishing some what...3 months after my last Chemo treatment...hopefully in another 2 or so all will be normal.

    Taste return
    I did notice like you that things started tasting as they should about three months out and then all of a sudden the taste started to go again. In a week or so it was back to almost normal. Then some things would start tasting bad again. It was back and forth for a while. Then it got less and less of the bad taste. Like it could not make up its mind which way it wanted to go. Been 11 months now and for the most part all is tasting like it used too. John
  • COBRA666
    COBRA666 Member Posts: 2,401 Member
    #9
    msbrook2 said:

    Thank you. I'm already
    Thank you. I'm already noticing the funny tastes are diminishing some what...3 months after my last Chemo treatment...hopefully in another 2 or so all will be normal.

    Taste return
    I did notice like you that things started tasting as they should about three months out and then all of a sudden the taste started to go again. In a week or so it was back to almost normal. Then some things would start tasting bad again. It was back and forth for a while. Then it got less and less of the bad taste. Like it could not make up its mind which way it wanted to go. Been 11 months now and for the most part all is tasting like it used too. John

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