Survivorship. How long ago did you have your RCC?

nattyay
nattyay Member Posts: 12
in Kidney Cancer #1
Looking forward to living a long healthy life following RCC and need some positive info. How long have you been an RCC survivor?
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Comments

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #2
    Almost 9 years.
    My CT scan was just before Memorial Day 2002. My surgery was on 8.1.02. I will be 68 in 2 months. My surgeon insists I will die of something else which could occur at any time in the next 30 years or so. I do not intend to kick off until all of my grandchildren (ages 15, 14, 13, 12 and almost 10 are married).
  • Katielynn
    Katielynn Member Posts: 61
    #3
    icemantoo said:

    Almost 9 years.
    My CT scan was just before Memorial Day 2002. My surgery was on 8.1.02. I will be 68 in 2 months. My surgeon insists I will die of something else which could occur at any time in the next 30 years or so. I do not intend to kick off until all of my grandchildren (ages 15, 14, 13, 12 and almost 10 are married).

    Good for you!
    I soooo admire you're outlook....You are a very positive person and I hope someday I could have the same outlook you have...You are a true inspiration ......
  • MandyBear
    MandyBear Member Posts: 14
    #4
    long term survivor
    I had a huge renal cell carcinoma and am alive 30 years now! I never thought it was possible but I do believe miracles happen everyday. Good luck. Watch your protein intake, take Vitamin C and reduce your stress.
  • suzika
    suzika Member Posts: 12
    #5
    MandyBear said:

    long term survivor
    I had a huge renal cell carcinoma and am alive 30 years now! I never thought it was possible but I do believe miracles happen everyday. Good luck. Watch your protein intake, take Vitamin C and reduce your stress.

    Yay for our long term
    Yay for our long term survivors! I am at 2.5 years past diagnosis.
  • lbinmsp
    lbinmsp Member Posts: 266
    #6
    Still kicking -
    My initial diagnosis was in early 2001 - I had a recurrence in 2006. Have been tumor free now for 5 years. Recurrance is not necessarily 'the end'. The key is close followup so IF it returns, it's caught early and can be surgically removed.
  • Anne_Marie
    Anne_Marie Member Posts: 1
    #7
    Survivorship
    2 years and three months but who's counting? Exercise, eat right, think positive
  • ejneary
    ejneary Member Posts: 64
    #8
    Time
    First diagnosed in January of 2010. Clinical trial which lasted 54 weeks and ended in April 2011. Recurrence in April 2011. Have now completed one round of Interleukin 2 at Kaiser Riverside. CT scan on July 7 will tell if it is working or not. Saying lots of prayers that it has begun working. Have faith....
  • fatmomma
    fatmomma Member Posts: 95
    #9
    ejneary said:

    Time
    First diagnosed in January of 2010. Clinical trial which lasted 54 weeks and ended in April 2011. Recurrence in April 2011. Have now completed one round of Interleukin 2 at Kaiser Riverside. CT scan on July 7 will tell if it is working or not. Saying lots of prayers that it has begun working. Have faith....

    I'm still here
    It's been since 2007. So far doing OK. I do get nervous when I have my ct scans every six months.

    fm
  • donna_lee
    donna_lee Member Posts: 1,045 Member
    #10
    fatmomma said:

    I'm still here
    It's been since 2007. So far doing OK. I do get nervous when I have my ct scans every six months.

    fm

    I'm a survivor
    Dx in 2006 with Stage IV, recurrence in single nodes in 2007, and 2008; all removed with surgery. No meds other than to control BP and other assorted things that come with being 68 now.
    Positive attitude -it sags once in a while- family, Cancer Survivors Support Group of people who have "Been There, Done That", friends, job, social life, travel, house and yard, etc.

    Last weekend was local Relay for Life. In a small, rural community with a down economy, we had raised over $103.000 by the time people went home that morning. And there will be more to turn in before the close of the books the end of July. My team, all cancer survivors, were so excited and happy at our meeting Monday morning. Fund Raising, Fun, Friendships, laughter, left-over food from the event.
    And yesterday way my 47th Anniversarry and my husband and I went out to dinner.
    Who says you can't have a life after Cancer.
    Donna
  • nattyay
    nattyay Member Posts: 12
    #11
    icemantoo said:

    Almost 9 years.
    My CT scan was just before Memorial Day 2002. My surgery was on 8.1.02. I will be 68 in 2 months. My surgeon insists I will die of something else which could occur at any time in the next 30 years or so. I do not intend to kick off until all of my grandchildren (ages 15, 14, 13, 12 and almost 10 are married).

    Almost 9 years.
    Awesome icemantoo. My kids are 5 and 4, and I expect fully to be here long enough to see their children being born. Keep on truckin, good buddy.
  • nattyay
    nattyay Member Posts: 12
    #12
    MandyBear said:

    long term survivor
    I had a huge renal cell carcinoma and am alive 30 years now! I never thought it was possible but I do believe miracles happen everyday. Good luck. Watch your protein intake, take Vitamin C and reduce your stress.

    Long term survivor reply
    Thank you, MandyBear. That makes me happy and I think it will give lots of hope to those 1, 2 and 3 year RCC survivors.
  • nattyay
    nattyay Member Posts: 12
    #13
    donna_lee said:

    I'm a survivor
    Dx in 2006 with Stage IV, recurrence in single nodes in 2007, and 2008; all removed with surgery. No meds other than to control BP and other assorted things that come with being 68 now.
    Positive attitude -it sags once in a while- family, Cancer Survivors Support Group of people who have "Been There, Done That", friends, job, social life, travel, house and yard, etc.

    Last weekend was local Relay for Life. In a small, rural community with a down economy, we had raised over $103.000 by the time people went home that morning. And there will be more to turn in before the close of the books the end of July. My team, all cancer survivors, were so excited and happy at our meeting Monday morning. Fund Raising, Fun, Friendships, laughter, left-over food from the event.
    And yesterday way my 47th Anniversarry and my husband and I went out to dinner.
    Who says you can't have a life after Cancer.
    Donna

    I'm a survivor reply
    Wow, Donna. You rock. Thank you for sharing your story. Cancer Survivor Group has helped me a lot. Though they're few and far between. Wow, 47 years? That's so awesome!
  • nattyay
    nattyay Member Posts: 12
    #14
    ejneary said:

    Time
    First diagnosed in January of 2010. Clinical trial which lasted 54 weeks and ended in April 2011. Recurrence in April 2011. Have now completed one round of Interleukin 2 at Kaiser Riverside. CT scan on July 7 will tell if it is working or not. Saying lots of prayers that it has begun working. Have faith....

    Time Time Time
    Prayers move mountains. Do you know how much time it takes to move mountains, when you can just say a prayer? I'm praying for you ejneary. I pray for healing and lots and lots and lots of time for you. Thanks for sharing your story.
  • nattyay
    nattyay Member Posts: 12
    #15
    Anne_Marie said:

    Survivorship
    2 years and three months but who's counting? Exercise, eat right, think positive

    Survivorship reply
    Thank you, Anne Marie. I really need to heed those words of advice. My husband says that the universe has sent me a lesson--don't ignore it.
  • nattyay
    nattyay Member Posts: 12
    #16
    fatmomma said:

    I'm still here
    It's been since 2007. So far doing OK. I do get nervous when I have my ct scans every six months.

    fm

    I'm still here
    Hi Fatmomma. Wow, every 6 months. I only get them every year. They got you covered for sure! Stay strong and beautiful!
  • nattyay
    nattyay Member Posts: 12
    #17
    suzika said:

    Yay for our long term
    Yay for our long term survivors! I am at 2.5 years past diagnosis.

    Yay for our long term reply
    You can say that again, suzika. I'm at 2.2 years past. Good to hear there are some ol timer survivors, hah?
  • Peggyz
    Peggyz Member Posts: 10
    #18
    nattyay said:

    Time Time Time
    Prayers move mountains. Do you know how much time it takes to move mountains, when you can just say a prayer? I'm praying for you ejneary. I pray for healing and lots and lots and lots of time for you. Thanks for sharing your story.

    survival
    Just to let you know that I am a seven year survivor, after being diagnosed with Stage IV cancer, with lungs filled with tiny mets. Thanks to surgery and HD IL2, I am alive and well, and happy to help how I can, esp as to info re HD IL2.
  • gina1007
    gina1007 Member Posts: 2
    #19
    ejneary said:

    Time
    First diagnosed in January of 2010. Clinical trial which lasted 54 weeks and ended in April 2011. Recurrence in April 2011. Have now completed one round of Interleukin 2 at Kaiser Riverside. CT scan on July 7 will tell if it is working or not. Saying lots of prayers that it has begun working. Have faith....

    PM
    John,
    How are you doing? Please PM me at gina1007@yahoo.com.
    Gina
  • Minnesota Girl
    Minnesota Girl Member Posts: 119
    #20
    Thanks for sharing the stories
    Thank you all for sharing your stories!! It is really encouraging to us 'newbies.' The other thing I have come to realize is that there are a LOT of folks who are diagnosed early, cured by surgery, and wouldn't think to get involved in this kind of support.

    We are NOT going to hear from my retired firefighter uncle, who had a small tumor removed by nephrectomy 10 years ago and hasn't looked back. :) That's good news, too!!
  • selissa
    selissa Member Posts: 4
    #21
    Peggyz said:

    survival
    Just to let you know that I am a seven year survivor, after being diagnosed with Stage IV cancer, with lungs filled with tiny mets. Thanks to surgery and HD IL2, I am alive and well, and happy to help how I can, esp as to info re HD IL2.

    IL2
    Hi there,

    My dad was diagnosed with Stage IV clear cell renal cell carcinoma. He has mets in his lungs, lymph nodes and brain. Right now he is doing full-brain radiation for 10 days. Hopefully this will work, and the docs want to remove the kidney and tumor and then possibly try IL2.

    What was you experience with IL2? I hear it is dangerous. Were you in the hospital for awhile? Were you in pain?

    Thanks so much

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