Marsha Mulvey -- How are you doing, dear one?

thanks for asking!
I'm doing alright. On this roller coaster ride I'm currently at a high point, feeling good and optimistic. After 2 very tough weeks when starting Tykerb and Xeloda together, the third week was good with just Tykerb. I just finished the 1st week (2nd round) with Xeloda and it was a good week (only 5 more days in this round - then another week off Xeloda-yeah!). Even when I had my Zometa infusion a week ago, there was very little muscle and bone soreness. Not scheduled to see my onc until July 22 and I believe we'll schedule another scan soon after that. Just hoping and praying that this combo is working! I'm still working and doing shopping, cleaning, etc. Life goes on!

These two drugs come in pill form and must come through a "specialty pharmacy". The first round had it's problems - getting everything ordered and shipped - but we finally got the kinks out. Round 2 was even worse. US BIOSERVICES contacted me saying AETNA would no longer approve for me to get the drugs through them because Aetna now has there own "specialty pharmacy". So...I had to go through all the frustrations again! Hopefully it's all ironed out now. I'll find out next week! (when it's time to reorder Xeloda)

Best wishes to all, I'll be in touch. Marsha

P.S. Did this even make sense?

Marsha Mulvey said:

thanks for asking!
I'm doing alright. On this roller coaster ride I'm currently at a high point, feeling good and optimistic. After 2 very tough weeks when starting Tykerb and Xeloda together, the third week was good with just Tykerb. I just finished the 1st week (2nd round) with Xeloda and it was a good week (only 5 more days in this round - then another week off Xeloda-yeah!). Even when I had my Zometa infusion a week ago, there was very little muscle and bone soreness. Not scheduled to see my onc until July 22 and I believe we'll schedule another scan soon after that. Just hoping and praying that this combo is working! I'm still working and doing shopping, cleaning, etc. Life goes on!

These two drugs come in pill form and must come through a "specialty pharmacy". The first round had it's problems - getting everything ordered and shipped - but we finally got the kinks out. Round 2 was even worse. US BIOSERVICES contacted me saying AETNA would no longer approve for me to get the drugs through them because Aetna now has there own "specialty pharmacy". So...I had to go through all the frustrations again! Hopefully it's all ironed out now. I'll find out next week! (when it's time to reorder Xeloda)

Best wishes to all, I'll be in touch. Marsha

P.S. Did this even make sense?

Yes it did make sense!
And I'm sooo happy you're feeling better. I'm praying this drug will work! What a pain the Insurance Company can be. Glad it's ironed out.

Please continue to let us know your progress.

BIG hugs,

Sylvia

sea60 said:

Yes it did make sense!
And I'm sooo happy you're feeling better. I'm praying this drug will work! What a pain the Insurance Company can be. Glad it's ironed out.

Please continue to let us know your progress.

BIG hugs,

Sylvia

Very glad to know that you
Very glad to know that you are feeling a lot better Marsha! I am praying that the chemo will keep working and that you will continue to not feel as bad as you did on them.

Thanks for updating us as we all worry about you.


Lots of hugs and prayers for you,


Sue

Marsha Mulvey said:

thanks for asking!
I'm doing alright. On this roller coaster ride I'm currently at a high point, feeling good and optimistic. After 2 very tough weeks when starting Tykerb and Xeloda together, the third week was good with just Tykerb. I just finished the 1st week (2nd round) with Xeloda and it was a good week (only 5 more days in this round - then another week off Xeloda-yeah!). Even when I had my Zometa infusion a week ago, there was very little muscle and bone soreness. Not scheduled to see my onc until July 22 and I believe we'll schedule another scan soon after that. Just hoping and praying that this combo is working! I'm still working and doing shopping, cleaning, etc. Life goes on!

These two drugs come in pill form and must come through a "specialty pharmacy". The first round had it's problems - getting everything ordered and shipped - but we finally got the kinks out. Round 2 was even worse. US BIOSERVICES contacted me saying AETNA would no longer approve for me to get the drugs through them because Aetna now has there own "specialty pharmacy". So...I had to go through all the frustrations again! Hopefully it's all ironed out now. I'll find out next week! (when it's time to reorder Xeloda)

Best wishes to all, I'll be in touch. Marsha

P.S. Did this even make sense?

My Best Wishes
I continue to read your postings, Marsha. You are one brave lady and I admire your spirit.

My cancer in the lungs returned. I am taking a break from Femara and hope to reboot in a few months.


Best wishes with lots of positive thoughts being send your way that the new combination work.

Aren't insurance companies something.

Best,

Doris

Leaving for some R&R more rest than anything else for a few months. I won't be online for a while. Hoping when I return I hear good news.

Megan M said:

Praying for you Marsha and
Praying for you Marsha and you too SIROD!


Hugs,

Megan

Wow, Marsha
so good to hear you're able to continue working and shopping (cleaning I'm not so sure about). Hope this new chemo combo does its job.

Suzanne

Double Whammy said:

Wow, Marsha
so good to hear you're able to continue working and shopping (cleaning I'm not so sure about). Hope this new chemo combo does its job.

Suzanne

I am praying for you Marsha.
I am praying for you Marsha. And, those darn insurance companies! Hoping it all gets straightened out for you. Please keep us updated.


Hugs,


Kylez

Marsha Mulvey said:

thanks for asking!
I'm doing alright. On this roller coaster ride I'm currently at a high point, feeling good and optimistic. After 2 very tough weeks when starting Tykerb and Xeloda together, the third week was good with just Tykerb. I just finished the 1st week (2nd round) with Xeloda and it was a good week (only 5 more days in this round - then another week off Xeloda-yeah!). Even when I had my Zometa infusion a week ago, there was very little muscle and bone soreness. Not scheduled to see my onc until July 22 and I believe we'll schedule another scan soon after that. Just hoping and praying that this combo is working! I'm still working and doing shopping, cleaning, etc. Life goes on!

These two drugs come in pill form and must come through a "specialty pharmacy". The first round had it's problems - getting everything ordered and shipped - but we finally got the kinks out. Round 2 was even worse. US BIOSERVICES contacted me saying AETNA would no longer approve for me to get the drugs through them because Aetna now has there own "specialty pharmacy". So...I had to go through all the frustrations again! Hopefully it's all ironed out now. I'll find out next week! (when it's time to reorder Xeloda)

Best wishes to all, I'll be in touch. Marsha

P.S. Did this even make sense?

Yes it did. I agree with
Yes it did. I agree with the frustrations with the insurance and prescriptions, they just don't make it easy to manuver.

Hope it continues to go well for you.
~Carol

susie09 said:

You know Marsha that I pray
You know Marsha that I pray for you daily! You are one of the sweetest and strongest pink sisters I have had the pleasure of knowing!


Thanks for the update and keep them coming!

♠♣ Love, Susie ♠♣

So glad you're feeling better, Marsha
And, yes, unfortunately many of us do know what you're talking about with the red tape of insurance companies, etc. Glad you got that worked out. You should just have to concentrate on feeling better.

Positive energy coming your way today.

Hugs, Renee