PET scan

nickydog
nickydog Member Posts: 76
in Lymphoma (Hodgkin and Non-Hodgkin) #1
My daughter just had her PET scan on Wednesday and her doctor called today saying that there is a very very small spot on her neck. He said she would not feel it because it is too small. He ordered a CT which she had done today (no results). He said he didn't know what it was. Has anything like this ever happened to anyone? I thought that the PET scan would tell if there was any active cancer cells. If I am right thinking this, why would he be saying that he isn't sure what it is, and order a CT scan. She has finished 8 rounds of ABVD (March 17). I am very worried.

Comments

  • KC13167
    KC13167 Member Posts: 215
    #2
    Not sure if this helps...
    Right after my last PET scan the technologist asked where my rumors had been located. I told her. She replied back, asking if I was having any issues with teeth on my lower right jaw. I do have a tooth in that location that is tender, I think a root canal has failed. The tech indicated that she wasn't sure what she was looking at but with my complaint of tooth pain, the problem is solved. The tooth needs to go, love post chemo teeth! Apparently, an infection in the mouth will uptake the radioactive marker. I believe that the radioactive uptake, is just that. It offers medical professionals the opportunity to see all of the hot spots caused by the increase in uptake. So, it's not always cancer. Kellie
  • Michele23
    Michele23 Member Posts: 168
    #3
    Pet/CT
    I would be glad it picked it up if it's that small.I've already had a pet/ct miss small nodes.Just happened to rub my neck and noticed it.So went to an ENT and he ordered an MRI with contrast and it showed not 1 but many small nodes.Would agree it most likely is a node or infection.Take care,Michele Dx95 FNHL3
  • nickydog
    nickydog Member Posts: 76
    #4
    KC13167 said:

    Not sure if this helps...
    Right after my last PET scan the technologist asked where my rumors had been located. I told her. She replied back, asking if I was having any issues with teeth on my lower right jaw. I do have a tooth in that location that is tender, I think a root canal has failed. The tech indicated that she wasn't sure what she was looking at but with my complaint of tooth pain, the problem is solved. The tooth needs to go, love post chemo teeth! Apparently, an infection in the mouth will uptake the radioactive marker. I believe that the radioactive uptake, is just that. It offers medical professionals the opportunity to see all of the hot spots caused by the increase in uptake. So, it's not always cancer. Kellie

    Thanks, hopefully it is
    Thanks, hopefully it is something like that.
  • nickydog
    nickydog Member Posts: 76
    #5
    Michele23 said:

    Pet/CT
    I would be glad it picked it up if it's that small.I've already had a pet/ct miss small nodes.Just happened to rub my neck and noticed it.So went to an ENT and he ordered an MRI with contrast and it showed not 1 but many small nodes.Would agree it most likely is a node or infection.Take care,Michele Dx95 FNHL3

    She was complaining of a
    She was complaining of a sore throat the day before the scan, and about a month ago she had a bad head cold and cough.
  • nickydog
    nickydog Member Posts: 76
    #6
    Michele23 said:

    Pet/CT
    I would be glad it picked it up if it's that small.I've already had a pet/ct miss small nodes.Just happened to rub my neck and noticed it.So went to an ENT and he ordered an MRI with contrast and it showed not 1 but many small nodes.Would agree it most likely is a node or infection.Take care,Michele Dx95 FNHL3

    PET Scan
    She spoke to her doctor again today, and he is still waiting for the CT results. He did say that it showed on both sides of her neck. He also said that it could just be swollen nodes. Keeping our fingers crossed and praying. Hopefully it is just from the cold/sore throat that she had.

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