Who has an Ostomy?

2

Comments

  • Buckwirth
    Buckwirth Member Posts: 1,258 Member
    #22
    Thanks everyone!
    A list is created in my blog: Ostomy List

    I also added the link at the top of this thread, and I will Link back to the thread in the blog.

    As names are added I will try to keep the list updated.

    Again, thanks to all who are sharing,

    Blake
  • catsyb
    catsyb Member Posts: 1
    #23
    Ileostomy
    Had the ileostomy in Aug 2008 and take down Oct 2008.
  • Lori-S
    Lori-S Member Posts: 1,277 Member
    #24
    Hi!
    I have a temporary colostomy. I got it on May 14,2010 during emergency surgery to remove my tumor which had totally blocked my colon. I am coming up on one year and am hoping to have my reversal here in the next couple of months. It would have been done sooner but of course cancer doesn't always play by the rules so I'm running a little behind in my reversal surgery. I never had a chance to think about what life would be like with a colostomy, because my life was so miserable before it, I felt great with it and no longer being blocked. I was happy to have the colostomy. Now, I'm sort of tired of dealing with it and am ready to say so long. Part of the reason may be that I'm off of chemo right now and feeling so good and very busy with other things that I just don't want to deal with the "cancer stuff" and it's a bit of a reminder.

    If anyone has any questions about my colostomy they can feel free to PM me and I will answewr any questions that I might have the answer to.
  • Conchal
    Conchal Member Posts: 42
    #25
    Urostomy
    Hi, Blake (and all):

    Does anyone have experience dealing with a urostomy or in helping a family member with a urostomy (permanent). My wife now has one and sometimes we have questions about it.

    Thanks

    Conchal
  • Buckwirth
    Buckwirth Member Posts: 1,258 Member
    #26
    Conchal said:

    Urostomy
    Hi, Blake (and all):

    Does anyone have experience dealing with a urostomy or in helping a family member with a urostomy (permanent). My wife now has one and sometimes we have questions about it.

    Thanks

    Conchal

    More resources
    Ostomy Forum

    Ostomy.org:

    800-826-0826

    They may be able to hook you up with someone close by if you call them.
  • Conchal
    Conchal Member Posts: 42
    #27
    Buckwirth said:

    More resources
    Ostomy Forum

    Ostomy.org:

    800-826-0826

    They may be able to hook you up with someone close by if you call them.

    Thanks a lot! I will give it a look.

    Con
  • thebob61
    thebob61 Member Posts: 11
    #28
    I have a perm colostomy
    I have a perm colostomy since july 2010 . any questions just ask.
  • Moesimo
    Moesimo Member Posts: 1,072 Member
    #29
    I had both
    I had my first surgery with a temporary ileostomy in 6/03. Eight weeks later I had a reversal done. I then spent the next 18 mos. in the bathroom or looking for one. I then made the hardest decision in my life and had a colostomy done. I havent't looked back. Life is good now, really. While I wouldn't have picked any of this, I am grateful that I am 8 years out from my stage 3 rectal cancer diagnosis at age 46. I now irrigate my colostomy and that has made life with one so much easier to deal with. My stoma was marked presurgery by the stoma nurse and is a good spot. My stoma is small and I get bags that have the whole precut. They are one piece drainable. Any questions feel free to ask or send me a message.
  • pluckey
    pluckey Member Posts: 484 Member
    #30
    Temporary Ileostomy - March
    Temporary Ileostomy - March 2009 to Sept 2009

    Lots of blow outs
    Lots of experimenting with appliances
    I'm here to serve!

    Peggy
  • crazylady
    crazylady Member Posts: 543 Member
    #31
    colostomy
    I've had a permanent colostomy since June 2004.
    Jamie
  • Patti1
    Patti1 Member Posts: 109 Member
    #32
    Colostomy
    Hubby has a permanent colostomy since 2/2006. Feel free to ask any questions.

    If anyone is a bit short on supplies, please let me know as I have some extras.

    Love ya all,
    Patti
  • djm_2010
    djm_2010 Member Posts: 52
    #33
    Hello I had my operation for
    Hello I had my operation for rectal cancer stage 2a last nov 2010 and a permanent colostomy was placed because the tumor was way below and my surgeon want to have clear margins of the cancer. He could not and won't take the risk of me having a recurrence since rectal ca has a high rate of recurrence at first I was really depressed, even now I still feel lonely and grossed out when I see my stoma but if it means that I will live longer, then so be it, since my children are still young. I'm having the last of my Delos therapy on may 27 and praying that this cancer won't come back again. If anyone are having problems just pm me and I'm willing to help. Thank you and God bless you all.
  • mike_in_ky
    mike_in_ky Member Posts: 8
    #34
    Colostomy
    Have had mine since 04/08. Can't reverse so it will be with me a long time(I hope..lol). Am here to answer any and all questions. Fire away.
  • VickiCO
    VickiCO Member Posts: 917
    #35
    Colostomy - permanent
    Nov 11, 2009. No problems, learned which products were best for me (convex wafers as I have an "innie" versus and "outie" - and John23, no problems because of that.) Everyone's experience is different....just saying.

    It was the best decision for me. I am here if anyone has questions.

    Vicki CO
  • maglets
    maglets Member Posts: 2,576 Member
    #36
    VickiCO said:

    Colostomy - permanent
    Nov 11, 2009. No problems, learned which products were best for me (convex wafers as I have an "innie" versus and "outie" - and John23, no problems because of that.) Everyone's experience is different....just saying.

    It was the best decision for me. I am here if anyone has questions.

    Vicki CO

    I have a question
    how are you darling Vicki....long time no see

    hugs.....mags....still quilting my heart out
  • RickMurtagh
    RickMurtagh Member Posts: 587 Member
    #37
    Ileo
    I had a temp ileostomy from June 18, 2009 until April 20, 2010.
    I will more than likely have a permanent ileo in the very near future.

    ***update*** I now have a permanent ileo
  • jjjnettie
    jjjnettie Member Posts: 8
    #38
    :D Permanent colostomy
    :D Permanent colostomy formed 4th July 2007.
    I call it "the triffid".
    Got a love hate relationship with it.
    Love that it was the means to keep me alive, hate that I've got to wear a damn bag.
    But big bonus is that I don't have to stop what I'm doing to have a poop, and I go through far less toilet paper.
    My kids have learned to do as I ask, under the threat of "I'll release the gas if you don't" LOLOL
  • starla566
    starla566 Member Posts: 1
    #39
    New temp ileostomy as of
    New temp ileostomy as of 4/21/2011. It's a scary thing to get used to for me.
  • Holt5
    Holt5 Member Posts: 1 Member
    #40

    I have finished chemo and radiation (stage 3 rectal cancer). Will be having my surgery Nov 28. Told I will have a temp ileostomy for 12 weeks. Not looking forward to that. I'm glad I found this site as it is giving me a lot of tips and encouragement.

  • Scottygerg
    Scottygerg Member Posts: 1 *
    #41
    https://csn.cancer.org/discussion/217052/who-has-an-ostomy

    Ileostomy

    Had surgery for Stage 3 rectal cancer 2 1/2 weeks ago. Got the temporary bag after surgery. Not joyful.

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