It's Back and so am I, for some help and advice

leesag
leesag Member Posts: 621 Member
edited April 2011 in Ovarian Cancer #1
Ok...
Treatment ended June 24, 2010.
Ca125 remained stable until two weeks ago.

Ten days ago,CA125 was 36 (more than double what it was in December)
Today, it's 82.

Tomorrow, CT scan is scheduled.

Thursday, meeting with med/onc to discuss next steps.

Suggestions and advice are welcome!

Hugs,

Leesa
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Comments

  • kikz
    kikz Member Posts: 1,345 Member
    #2
    Leesa
    I am sorry you have to go through this again and so soon. I am in my first remission so I can only imagine having to face the possibility that the monster is back. I guess you have to see what the CT scan shows. Hopefully it will be good news. I am sure you will get some good advice from some of the ladies who have experienced this already. Best of luck, you are in my prayers.

    Karen
  • Cindy Bear
    Cindy Bear Member Posts: 569
    #3
    Leesa
    No advice or words of wisdom just hugs and well wishes. So far it sounds like they are basing recurrence only on a number.. maybe the CA is elevated for another reason. Hoping for a good, clean scan.
    Hugs,
    Cindy
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #4
    oh, Leesa!
    It doesn't sound good. Lets hope it is something else. I have a CT scan tomorrow too. I'll write an update post.

    Good Luck!
  • srwruns
    srwruns Member Posts: 343
    #5
    Sh****t.

    Sh****t.
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #6
    srwruns said:

    Sh****t.

    Sh****t.

    My sentiments exactly.
    My sentiments exactly. Sh*t.

    I wish I had something more profound to offer. This just totally sucks.

    Carlene
  • Mum2bellaandwilliam
    Mum2bellaandwilliam Member Posts: 412
    #7
    Hissy_Fitz said:

    My sentiments exactly.
    My sentiments exactly. Sh*t.

    I wish I had something more profound to offer. This just totally sucks.

    Carlene

    Good luck today.
    Please tell us what's happening , I am so sorry to read this. We seem to be having a lot of bad news on here lately , keep your chin up ,you've done it once you can do it again. (( hugs )) Liz x
  • kayandok
    kayandok Member Posts: 1,202 Member
    #8
    Leesa,
    keep us posted on the results of the CT. An upward climb usually indicates things are moving. BUT, there is still a slim chance that it is a fluke. I pray for that and for peace of mind for you regardless of what the results are. The majority of the gals here have had a reucrrence and are still here to talk about it and support you.
    kathleen

    PS I had a CT yesterday too, it must be the scan season.....
  • mopar
    mopar Member Posts: 1,972 Member
    #9
    THE WAITING GAME
    To Leesa and all of you ladies waiting for results - sending all kinds of hugs and prayers. Hoping that this increase, Leesa is something else. I'd give anything to take this all away from everyone. God help us find a cure quickly.

    :(
    Monika
  • shirleyroberta
    shirleyroberta Member Posts: 15
    #10
    I can totally relate. May
    I can totally relate. May 21st, 2010 was my last chemo treatment. My CT shows modules around liver and spleen and the CA125 is up to 182 from 8 in Nov, 2010. I have an appointment May 2 at the cancer clinic. I sure another round of chemo will be next.
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #11
    This sucks !
    This disease has no ryhme or reason, I hope your ct scan is clear and the ca125 went up for some unrelated reason but if not you are tough and will just go on to round two and kick butt ! Wishing you good news with my fingers crossed !( and toes)
    Colleen
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #12
    Cafewoman53 said:

    This sucks !
    This disease has no ryhme or reason, I hope your ct scan is clear and the ca125 went up for some unrelated reason but if not you are tough and will just go on to round two and kick butt ! Wishing you good news with my fingers crossed !( and toes)
    Colleen

    Some ideas
    I'm sad to hear you have to go through chemo...again. I don't know what you will be offered.

    It sounds like you should respond well to cisplatin or carbo again. The new approach is to combine it with "dose dense taxol." I don't know if you went through weekly taxol last time or if your oncologist is into the dose dense approach. The dose of taxol is reduced when it is given more frequently--it is suspected to have an anti-angiogenic benefit.

    Some women have had the Avastin added in along with the platinum drug & taxol--that's what I would want to try if I were in your shoes. Hitting the bad guys on several different pathways seems to be the way to go...and if you are still eating sugar, I would stop.

    Sugar causes a spike in insulin and insulin in an inflammatory hormone and a growth hormone. You want to keep inflammation down as much as possible.

    Best wishes on your next remission.
  • Mwee
    Mwee Member Posts: 1,338
    #13
    SH****T about sums it up!
    Hope you get a good report today.... I'll be checking back to hear!
    ((((HUGS)))) Maria
  • leesag
    leesag Member Posts: 621 Member
    #14
    Weird Weird Weird
    CA125 is definitely up, but the CT scan is clear, No Evidence of Disease.


    Weird.

    Next step: Appointment with my gyn/onc the FABULOUS Dr. Im on Tuesday.

    Prayers are winging out to my lovely ladies!

    Hugs,

    Leesa
  • carolenk
    carolenk Member Posts: 907 Member
    #15
    leesag said:

    Weird Weird Weird
    CA125 is definitely up, but the CT scan is clear, No Evidence of Disease.


    Weird.

    Next step: Appointment with my gyn/onc the FABULOUS Dr. Im on Tuesday.

    Prayers are winging out to my lovely ladies!

    Hugs,

    Leesa

    Please stay in touch
    Dear Leesa

    Great to hear about your scan! That must bring you a big sigh of relief.

    Your situation is certainly mystifying. Please come back to let us know what is going on with you.

    Carolen
  • srwruns
    srwruns Member Posts: 343
    #16
    leesag said:

    Weird Weird Weird
    CA125 is definitely up, but the CT scan is clear, No Evidence of Disease.


    Weird.

    Next step: Appointment with my gyn/onc the FABULOUS Dr. Im on Tuesday.

    Prayers are winging out to my lovely ladies!

    Hugs,

    Leesa

    Ahhhh.....Sometimes weird is
    Ahhhh.....Sometimes weird is good! So happy to hear about the clear scan. Hoping it's just weirdness and nothing more serious!
  • clamryn
    clamryn Member Posts: 508
    #17
    leesag said:

    Weird Weird Weird
    CA125 is definitely up, but the CT scan is clear, No Evidence of Disease.


    Weird.

    Next step: Appointment with my gyn/onc the FABULOUS Dr. Im on Tuesday.

    Prayers are winging out to my lovely ladies!

    Hugs,

    Leesa

    Leesa
    I was so glad to read your update. That is good news. I hate the CA125. I hate it. It just puts a scare into all of us. And we all wait to hear what it is. It just controls our lives.

    Yayyyy for your CTScan.

    Linda
  • Mwee
    Mwee Member Posts: 1,338
    #18
    leesag said:

    Weird Weird Weird
    CA125 is definitely up, but the CT scan is clear, No Evidence of Disease.


    Weird.

    Next step: Appointment with my gyn/onc the FABULOUS Dr. Im on Tuesday.

    Prayers are winging out to my lovely ladies!

    Hugs,

    Leesa

    Clear CT scan
    is great news!! Now we'll wait for next Tuesday.... in the meantime (((HUGS)))!!!
    Maria
  • Mum2bellaandwilliam
    Mum2bellaandwilliam Member Posts: 412
    #19
    Mwee said:

    Clear CT scan
    is great news!! Now we'll wait for next Tuesday.... in the meantime (((HUGS)))!!!
    Maria

    Fabulous!
    That is great news , what a relief xxx
  • LPack
    LPack Member Posts: 645
    #20
    Encouragement
    Hi Leesa,

    I don't have anything profound to say! Recurrence is disappointing to say the least! Looks like you went 10 months which is better than less than 6 months (so they say).

    I am going to post my update either today or wait until I see gyn/onc and it is not what I wanted to hear.

    Stay positive and keep the Lord ever before you.

    Love,
    Libby
  • MK_4Dani
    MK_4Dani Member Posts: 314
    #21
    leesag said:

    Weird Weird Weird
    CA125 is definitely up, but the CT scan is clear, No Evidence of Disease.


    Weird.

    Next step: Appointment with my gyn/onc the FABULOUS Dr. Im on Tuesday.

    Prayers are winging out to my lovely ladies!

    Hugs,

    Leesa

    Ah Whew...you are still NED
    I am thinking about you and happy the CT is clear. Keep us posted and keep NED.
    Mary

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