IS THERE A SURVIOR OUT THERE ! WHO DIDN'T LOSE ANY WEIGHT ?

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  • nicolegarza
    nicolegarza Member Posts: 27
    #22
    farahi said:

    I start treatment for AML on
    I start treatment for AML on july 2009 at the bigining i lost some weight but with the treatment i gained about 50 lb. what make this harder is people look at you and cant see that you are really sick because they expect to see a really skinny new you and here you r looking like a cow! i feel like crap from my last treatment and i still need another round of consolidation chemo wich i do as an in pt (and yes i gain weight eating hospital food...lol)and the only thing on my mind is am i going to gain more weight!

    I hear ya farahi
    I only lost weight during my hospital stay... cause I was on a liquid diet for a while and then I had wound complications and all the pain meds made it impossible to even clean out my system so I was refusing to eat anything I was so uncomfortable... My two week stay was bad and I never wanna do that again... I lost 50 pounds in 2 weeks... but I think it was mostly muscle. I never felt so weak! But as soon as I was home and my digestive system was ok I ate normally and even during chemo I ate so I quickly gained it back, but I also had people "well you look great!" Even though I felt like crap! Theres this video on youtube thats called something like "things you should never say to someone with cancer" or something similar... the lady sums a lot of our thoughts in that video... Its almost been 6 months since my last treatment of carbo/taxol and I am trying to lose weight but I guess my main concern is getting my strength back, which most of my muscle has returned but the weight isn't going anywhere...anyways I know what your saying when you people say that to you... Hang in there and your main concern should be killing those cancer cells!!! Good luck!
    Nic
  • farahi
    farahi Member Posts: 22
    #23
    nicolegarza said:

    I hear ya farahi
    I only lost weight during my hospital stay... cause I was on a liquid diet for a while and then I had wound complications and all the pain meds made it impossible to even clean out my system so I was refusing to eat anything I was so uncomfortable... My two week stay was bad and I never wanna do that again... I lost 50 pounds in 2 weeks... but I think it was mostly muscle. I never felt so weak! But as soon as I was home and my digestive system was ok I ate normally and even during chemo I ate so I quickly gained it back, but I also had people "well you look great!" Even though I felt like crap! Theres this video on youtube thats called something like "things you should never say to someone with cancer" or something similar... the lady sums a lot of our thoughts in that video... Its almost been 6 months since my last treatment of carbo/taxol and I am trying to lose weight but I guess my main concern is getting my strength back, which most of my muscle has returned but the weight isn't going anywhere...anyways I know what your saying when you people say that to you... Hang in there and your main concern should be killing those cancer cells!!! Good luck!
    Nic

    Ty nicole
    When i first got sick i lost a lot of weight and like i said i gain 50lb i hate to say that i did gain more since my last comment, so i guess that all the people that know me most be thinking that "i look sooooo good" wich my chemo brain translate to "hell how she got so fat" LOL. My Dr and reaserch nurse told me it is a side effect of the steroids i recived with chemo.

    I hope that you are doing good!
    Good Luck
    Farah
  • LYaklin
    LYaklin Member Posts: 16
    #24
    Fighting the chemo weight gain
    For years I had stayed at a comfortable 134#. I am 5'9" and was content there but wouldn't have minded losing 4 pounds. A couple months prior to my diagnosis in July 2008 my weight started dropping with no effort what so ever, down to 121#. I should have been alarmed but instead was actually thoroughly pleased. Once taxol treatment began after my bilateral mastectomy and 4 rounds of AC, the weight started piling back on. I went up to 150# much to my dismay. I eventually got back to my original weight with strict diet and exercise when treatment stopped, but now that I am back in treatment since Sept. 2010 the weight is piling on again. It's a constant battle between my oncology team and myself about it. They're pleased to see me gaining where as, I'm not a happy camper at all. Try explaining to these people that a depressed patient is not they want. So I've managed to talk them into dropping the decadron. It's helping some but not as quickly as I'd like. I don't have the energy to exercise like I want to, and carbohydrate cravings are a real monster to contend with. But I shall persevere.
  • slickwilly
    slickwilly Member Posts: 334 Member
    #25
    LYaklin said:

    Fighting the chemo weight gain
    For years I had stayed at a comfortable 134#. I am 5'9" and was content there but wouldn't have minded losing 4 pounds. A couple months prior to my diagnosis in July 2008 my weight started dropping with no effort what so ever, down to 121#. I should have been alarmed but instead was actually thoroughly pleased. Once taxol treatment began after my bilateral mastectomy and 4 rounds of AC, the weight started piling back on. I went up to 150# much to my dismay. I eventually got back to my original weight with strict diet and exercise when treatment stopped, but now that I am back in treatment since Sept. 2010 the weight is piling on again. It's a constant battle between my oncology team and myself about it. They're pleased to see me gaining where as, I'm not a happy camper at all. Try explaining to these people that a depressed patient is not they want. So I've managed to talk them into dropping the decadron. It's helping some but not as quickly as I'd like. I don't have the energy to exercise like I want to, and carbohydrate cravings are a real monster to contend with. But I shall persevere.

    weight
    Hi Everyone. For the NHL in my face I was given CHOP-Rituxin which included a steroid. The constant feeling of hunger made me want to lick the ketchup off the side of my fridge. The ketchup has since been cleaned up. I went from 165 to 183 on a very healthy diet of my own gargen veggies, chicken breast, liver, fish and later when I was having trouble eating, Kentucky Fried Chicken. Yes KCF kept me going as it was the only thing I could taste and I was not up to cooking. I never settled into the couch potato life as it drives me crazy. It took 3 years to get back to my normal weight. I will be 56 next week and 7 years cancer free. Hello Blue and Soccerfreaks. Later Slickwilly
  • Hwy505
    Hwy505 Member Posts: 2
    #26
    slickwilly said:

    weight
    Hi Everyone. For the NHL in my face I was given CHOP-Rituxin which included a steroid. The constant feeling of hunger made me want to lick the ketchup off the side of my fridge. The ketchup has since been cleaned up. I went from 165 to 183 on a very healthy diet of my own gargen veggies, chicken breast, liver, fish and later when I was having trouble eating, Kentucky Fried Chicken. Yes KCF kept me going as it was the only thing I could taste and I was not up to cooking. I never settled into the couch potato life as it drives me crazy. It took 3 years to get back to my normal weight. I will be 56 next week and 7 years cancer free. Hello Blue and Soccerfreaks. Later Slickwilly

    Weight Gain
    Dx with CC 12/2010 Colon resec, at the time I was 196 lbs, dropped to 174. Started slowly gaining weight even during my current FU5/Oxi. I have been on chemo vac for last three weeks since my platelets dropped. At the time I stopped three weeks ago I was 183 - I am now at 189 and trying to get back to 196. I play softball three times a week plus practice. Mentally I feel that if I gain weight my survivability is increased. I was Stage 2a, PET and CAT showed no sign of the cancer and I'm on adjuvant therapy. Strawberry Shortcakes have been my source of weight increase over the last three weeks. Hope my experience can relate to others.

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