H&N Kit?

13

Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #42
    sweetblood22 said:

    John, the link is correct
    John, the link is correct when you look at it while im typing it. It's that link, but it doesn't go to the right place. This happened to me the other day when I tried to link to YouTube. Why does that do that?

    Anyway, my dentist trip today had me thinking about an extra soft bristle tooth brush, the foam brushes on a stick when even the tooth brush hurts. I used to get those in the hospital. Not sure if they have them in stores. I've seen them on line.

    Not Sure
    When you hover over your link,you can see something about CSN node,with something on the end after the .pdf....double check the code in your link....can be as simple as a misplaced or forgotten < " or .

    Even myself, I get it wrong sometimes and have to try a few times to make it work the way I intend...

    JG
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #43
    Skiffin16 said:

    Not Sure
    When you hover over your link,you can see something about CSN node,with something on the end after the .pdf....double check the code in your link....can be as simple as a misplaced or forgotten < " or .

    Even myself, I get it wrong sometimes and have to try a few times to make it work the way I intend...

    JG

    Same exact link won't open
    Same exact link won't open right here, but works on another site. I don't get it. This also happened to me a couple times sending a PM. won't work there, but if I copy and paste somewhere else, it's fine.
  • adventurebob
    adventurebob Member Posts: 691
    #44
    sweetblood22 said:

    John, the link is correct
    John, the link is correct when you look at it while im typing it. It's that link, but it doesn't go to the right place. This happened to me the other day when I tried to link to YouTube. Why does that do that?

    Anyway, my dentist trip today had me thinking about an extra soft bristle tooth brush, the foam brushes on a stick when even the tooth brush hurts. I used to get those in the hospital. Not sure if they have them in stores. I've seen them on line.

    Sweet
    Got it. Foam tooth brush. Didn't think of that one. Great call. Thanks,

    Bob
  • ratface
    ratface Member Posts: 1,337 Member
    #45
    adventurebob said:

    Ratfaceo
    Thanks for the suggestions. What would these items be for? I can think of uses but not sure exactly.

    Bob

    use them like this
    the ace bandage is to wrap around the torso to help hold the feeding tube upright and safely secure out of the way.

    The spring clip is for holding a small towel together around the neck as you shower to keep the water off the radiation burns.
  • GraceLibby
    GraceLibby Member Posts: 88
    #46
    Kit
    I'd add paper tape, waterproof tape, and some 2x2 gauze bandages for the PEG.
  • adventurebob
    adventurebob Member Posts: 691
    #47
    ratface said:

    use them like this
    the ace bandage is to wrap around the torso to help hold the feeding tube upright and safely secure out of the way.

    The spring clip is for holding a small towel together around the neck as you shower to keep the water off the radiation burns.

    Thanks Ratface
    I'll include an instructional note with them. Thanks,

    Bob
  • adventurebob
    adventurebob Member Posts: 691
    #48
    ratface said:

    use them like this
    the ace bandage is to wrap around the torso to help hold the feeding tube upright and safely secure out of the way.

    The spring clip is for holding a small towel together around the neck as you shower to keep the water off the radiation burns.

    Thanks Ratface
    I'll include an instructional note with them. Thanks,

    Bob
  • adventurebob
    adventurebob Member Posts: 691
    #49
    GraceLibby said:

    Kit
    I'd add paper tape, waterproof tape, and some 2x2 gauze bandages for the PEG.

    Grace
    Thanks Grace. Those will all be useful and much appreciated I'm sure.

    Bob
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #50
    adventurebob said:

    Grace
    Thanks Grace. Those will all be useful and much appreciated I'm sure.

    Bob

    Roz, I think mentioned lip
    Roz, I think mentioned lip balm. I am now addicted to C.O. Bigelow lip balm.:

    FAVORITE LIP BALM FOR DRY SORE LIPS AND DRY MOUTH


    If you are putting together actual baskets I would buy 9 of these with my next check to send you to put in baskets. If you would like that, PM an address that I can send them.
  • rozaroo
    rozaroo Member Posts: 665
    #51
    sweetblood22 said:

    Roz, I think mentioned lip
    Roz, I think mentioned lip balm. I am now addicted to C.O. Bigelow lip balm.:

    FAVORITE LIP BALM FOR DRY SORE LIPS AND DRY MOUTH


    If you are putting together actual baskets I would buy 9 of these with my next check to send you to put in baskets. If you would like that, PM an address that I can send them.

    Another idea!
    I used baby soft wash clothes on my neck! They have them at the dollar store. They are soft & gentle & less painfull!
  • JUDYV5
    JUDYV5 Member Posts: 392
    #52
    Write to biotine for trail packs
    The biotine reps give denists cases of biotine trail size pack. They contain mouthwash, toothpast and gel If you explain what you are doing - I am sure they would give you a case.
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #53
    JUDYV5 said:

    Write to biotine for trail packs
    The biotine reps give denists cases of biotine trail size pack. They contain mouthwash, toothpast and gel If you explain what you are doing - I am sure they would give you a case.

    More items I needed that I don't think anyone said yet-
    PILL CRUSHER/SPLITTER. Someone pointed this little gadget out to me today

    pill organizer
    Straws (still use them to drink every day)
    Package of note cards or thank you notes. I went thru tons of them because of the many cards and things people sent me
    Ear plugs
  • adventurebob
    adventurebob Member Posts: 691
    #54
    JUDYV5 said:

    Write to biotine for trail packs
    The biotine reps give denists cases of biotine trail size pack. They contain mouthwash, toothpast and gel If you explain what you are doing - I am sure they would give you a case.

    Judy
    Thanks Judy. I'll give them a holler. That's a great idea. I was just gonna buy the stuff.

    Bob
  • adventurebob
    adventurebob Member Posts: 691
    #55
    sweetblood22 said:

    More items I needed that I don't think anyone said yet-
    PILL CRUSHER/SPLITTER. Someone pointed this little gadget out to me today

    pill organizer
    Straws (still use them to drink every day)
    Package of note cards or thank you notes. I went thru tons of them because of the many cards and things people sent me
    Ear plugs

    Sweet ideas
    You are the H&N kit Queen. I'm so glad I posted this question on here. I used all of these things. Still using some of them. The hardest part now is going to be narrowing it down. Thank you Sweet. I appreciate your offer of buying the lip balm also. As soon as I start assembling the kits I'll send you a pm. Now I'm thinking maybe we can offer the kits to the new people on the board also? Maybe we can take turns assembling them and mailing them out? What do you think?



    Bob
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #56
    adventurebob said:

    Judy
    Thanks Judy. I'll give them a holler. That's a great idea. I was just gonna buy the stuff.

    Bob

    Bumping this up.
    I am reviving this thread since it is a great resource as to what would be great for a new person starting treatment.   We have a few here that are new, so maybe this will be helpful.  I have also gone down the whole thread and tried to just pick out the items that are useful.  I tried to get everything, there's a lot!  

    1. Lotion for skin
    2. Green tea Or herbal tea
    3. Biotene dental products
    4. Aquaphor 
    5. Baking soda / salt  and peroxide.  Recipe / instructions or rinse
    6. Journal / log book
    7. Thermometer 
    8.  Immodium
    9. Ensure or Boost
    10. Bottled water and or a good water bottle 
    11. Cotton hankie
    12. Fleece hat
    13. Hard candy
    14. Blanket
    15. L-Glutamine Powder
    16. Home blood pressure monitor kit
    17. Slippers / house shoes
    18. Caloric intake book or website like my pyramid tracker to make sure you're getting in enough calories
    19. Coupons for frosty's or shakes
    20. Tissues
    21. Ace bandage chip clip or netting for holding peg tube 
    22.  Solo 16 oz cups and napkins for mucus spitting
    23. Call SPOHNC or see superthread for link for the free book. We Have Walked In Your Shoes. A Guide to Oral Head And Neck Cancer. 
    24. American Cancer Society. They will send you a packet of info and free stuff as well.  Will also reimburse you for mileage to hospital during treatment.  
    25.  Lip balm. (I love CO BIGELOW from bath and body
    26. Stoppers 4 
    27. Calendula cream for neck burns
    28. Books like, Creating A Cancer Fighting Kitchen
    29. Magic Mineral Broth
    30. Soft bristle tooth brush
    31. Sponge/foam brushes for tooth brushing when mouth is too sore for soft bristles 
    32. Paper tape
    33. Water proof tape
    34.  Drain sponges or 2x2 gauze bandages for peg tube
    35. Baby wipes
    36. Pill crusher splitter
    37. Pill organizers 
    38. Straws 
    39. Package of note cards or thank you notes
    4o. Ear plugs.  
  • zepfreak
    zepfreak Member Posts: 24
    #57
    sweetblood22 said:

    Bumping this up.
    I am reviving this thread since it is a great resource as to what would be great for a new person starting treatment.   We have a few here that are new, so maybe this will be helpful.  I have also gone down the whole thread and tried to just pick out the items that are useful.  I tried to get everything, there's a lot!  

    1. Lotion for skin
    2. Green tea Or herbal tea
    3. Biotene dental products
    4. Aquaphor 
    5. Baking soda / salt  and peroxide.  Recipe / instructions or rinse
    6. Journal / log book
    7. Thermometer 
    8.  Immodium
    9. Ensure or Boost
    10. Bottled water and or a good water bottle 
    11. Cotton hankie
    12. Fleece hat
    13. Hard candy
    14. Blanket
    15. L-Glutamine Powder
    16. Home blood pressure monitor kit
    17. Slippers / house shoes
    18. Caloric intake book or website like my pyramid tracker to make sure you're getting in enough calories
    19. Coupons for frosty's or shakes
    20. Tissues
    21. Ace bandage chip clip or netting for holding peg tube 
    22.  Solo 16 oz cups and napkins for mucus spitting
    23. Call SPOHNC or see superthread for link for the free book. We Have Walked In Your Shoes. A Guide to Oral Head And Neck Cancer. 
    24. American Cancer Society. They will send you a packet of info and free stuff as well.  Will also reimburse you for mileage to hospital during treatment.  
    25.  Lip balm. (I love CO BIGELOW from bath and body
    26. Stoppers 4 
    27. Calendula cream for neck burns
    28. Books like, Creating A Cancer Fighting Kitchen
    29. Magic Mineral Broth
    30. Soft bristle tooth brush
    31. Sponge/foam brushes for tooth brushing when mouth is too sore for soft bristles 
    32. Paper tape
    33. Water proof tape
    34.  Drain sponges or 2x2 gauze bandages for peg tube
    35. Baby wipes
    36. Pill crusher splitter
    37. Pill organizers 
    38. Straws 
    39. Package of note cards or thank you notes
    4o. Ear plugs.  

    Q-tips came in handy for
    Q-tips came in handy for cleaning peg tube area
  • Ingrid K
    Ingrid K Member Posts: 813
    #58
    zepfreak said:

    Q-tips came in handy for
    Q-tips came in handy for cleaning peg tube area

    one more item
    one more thing I remember I used was baby feeding spoons (rubber covered) after surgery that didn't acidentally poke something in my very sore mouth. They were even better than small plastic teaspoons.
  • buzz99
    buzz99 Member Posts: 404
    #59
    Kit
    This kit will require a very large container! Buzz really liked the Toothette Mouth Moisturizer by Sage products. He received some while in the hospital and liked it so much that I ordered it on line. Also, Calmoseptine for peg site skin care. As for puppies and kittens, we have a new kitten and his antics have brought us great joy. Karen
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #60
    buzz99 said:

    Kit
    This kit will require a very large container! Buzz really liked the Toothette Mouth Moisturizer by Sage products. He received some while in the hospital and liked it so much that I ordered it on line. Also, Calmoseptine for peg site skin care. As for puppies and kittens, we have a new kitten and his antics have brought us great joy. Karen

    Mouth moisturizer
    That is excellent. The nurses at RO would give me a package of the mouth moisturizer, sponges on a stick for tooth brushing, and a mouth rinse all in one pack. Was a great help.
  • Baygal
    Baygal Member Posts: 34
    #61
    sweetblood22 said:

    Bumping this up.
    I am reviving this thread since it is a great resource as to what would be great for a new person starting treatment.   We have a few here that are new, so maybe this will be helpful.  I have also gone down the whole thread and tried to just pick out the items that are useful.  I tried to get everything, there's a lot!  

    1. Lotion for skin
    2. Green tea Or herbal tea
    3. Biotene dental products
    4. Aquaphor 
    5. Baking soda / salt  and peroxide.  Recipe / instructions or rinse
    6. Journal / log book
    7. Thermometer 
    8.  Immodium
    9. Ensure or Boost
    10. Bottled water and or a good water bottle 
    11. Cotton hankie
    12. Fleece hat
    13. Hard candy
    14. Blanket
    15. L-Glutamine Powder
    16. Home blood pressure monitor kit
    17. Slippers / house shoes
    18. Caloric intake book or website like my pyramid tracker to make sure you're getting in enough calories
    19. Coupons for frosty's or shakes
    20. Tissues
    21. Ace bandage chip clip or netting for holding peg tube 
    22.  Solo 16 oz cups and napkins for mucus spitting
    23. Call SPOHNC or see superthread for link for the free book. We Have Walked In Your Shoes. A Guide to Oral Head And Neck Cancer. 
    24. American Cancer Society. They will send you a packet of info and free stuff as well.  Will also reimburse you for mileage to hospital during treatment.  
    25.  Lip balm. (I love CO BIGELOW from bath and body
    26. Stoppers 4 
    27. Calendula cream for neck burns
    28. Books like, Creating A Cancer Fighting Kitchen
    29. Magic Mineral Broth
    30. Soft bristle tooth brush
    31. Sponge/foam brushes for tooth brushing when mouth is too sore for soft bristles 
    32. Paper tape
    33. Water proof tape
    34.  Drain sponges or 2x2 gauze bandages for peg tube
    35. Baby wipes
    36. Pill crusher splitter
    37. Pill organizers 
    38. Straws 
    39. Package of note cards or thank you notes
    4o. Ear plugs.  

    Magic Mineral Broth
    Hi Dawn,

    Thought I'd give you guys a good chuckle. Vickie and I have been going to drug and health food stores trying to get our kit together. Everywhere we went, we'd ask for some Magic Mineral broth. No one had it nor had they ever heard of it. We finally figured out that it is a recipe from Rebekka Katz's book. Boy, did we feel stupid. But got a good laugh out of it. Going to the health food store now to try and find all the ingredients for the broth.
    Regards to all,
    Bob

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