Blood clots

Love2Cats
Love2Cats Member Posts: 127
in Colorectal Cancer #1
Hi, My last chemo started out good, but then took a turn for the worst, and I was in bed for about 3 days. When I started to try and resume my normal activities, my neck was super stiff and swollen, and my left arm (which is on my port side) was either weak, painful, numb or didn't want to move. I would put the pain level at about a 9.5 (and I am a pretty tough customer). I finally gave in and went to the doctor. They did an ultrasound, and I have blood clots in my neck area, near my port. I now have to inject myself daily with something to disolve the clots. I am still in pain, and my arm is almost useless. Has anyone else developed blood clots due to chemo? Did you have to get your port removed?Please share your experience, I will come back to read the responses, but most likely I won't respond, because it is uncomfortable to type, and I'm not feeling well. Thanks for your help.

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  • Unknown
    Unknown
    #2
    This comment has been removed by the Moderator
  • hopeforcure49
    hopeforcure49 Member Posts: 111
    #3
    Sorry to hear that
    I had just had my port placed and on the second round of chemo, it had developed a clot. Had to be admitted, they removed my port and was placed on Levinox blood thinners.I had the same symptoms that you did. My oncologist said this is common in cancer patients. Then I oppted not to have it replace. so I got a picc on my right arm. Place on coumadin thru the whole treatment. and this went well. It lasted 5 months. Had my liver resection and then they placed it on my right chest wall but I had power port placed in radiology. It has been going well, I've had it for 4 months now. I try to be extra careful with it. It hangs out on my above my right breast area. My oncologist recommended I take a baby aspirin daily and this has been doing the trick. Good Luck, blessing Lourdes.
  • bigCrandy
    bigCrandy Member Posts: 75
    #4
    blood clots
    Hi, blood clots can be common after the port is put in. My clot happened in my upper left arm around the tricep area. This started probably after my 3rd round of folfox. I was pretty much bed ridden due to my deminshed health following surgery. The oncologist put me on coumadin and had to inject myself with lovenox for 2 weeks. It broke he clot up and I stayed on coumadin for 6 months. I never had a problem with clots since, that was 4 yrs. ago. I eventually had that port removed because it totally plugged up, but at the time I was cancer free(about 9 months). The cancer came back in my abdominal lymph nodes and had to have another port(titanium not plastic) put in on the right side. I've been on chemo ever since so the port will probably stay with me always. This one works much better, I kinda like it on the right side better than the left for some reason. Anyway, I pray that your condition will improve and I know you will get through this, it's what cancer survivors do, we must not ever give up. God Bless, Randy
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #5
    bigCrandy said:

    blood clots
    Hi, blood clots can be common after the port is put in. My clot happened in my upper left arm around the tricep area. This started probably after my 3rd round of folfox. I was pretty much bed ridden due to my deminshed health following surgery. The oncologist put me on coumadin and had to inject myself with lovenox for 2 weeks. It broke he clot up and I stayed on coumadin for 6 months. I never had a problem with clots since, that was 4 yrs. ago. I eventually had that port removed because it totally plugged up, but at the time I was cancer free(about 9 months). The cancer came back in my abdominal lymph nodes and had to have another port(titanium not plastic) put in on the right side. I've been on chemo ever since so the port will probably stay with me always. This one works much better, I kinda like it on the right side better than the left for some reason. Anyway, I pray that your condition will improve and I know you will get through this, it's what cancer survivors do, we must not ever give up. God Bless, Randy

    It was the blood clots in my
    It was the blood clots in my lungs that made me go to emerg. in the first place.....had trouble breathing going up the stairs at home, that's when the cancer was diagnosed....the disease itself can cause blood clots according to my doctors. I've been on Lovenox ever since getting a shot every day in my belly, (hate it)!!!! When I was in hospt. had a PICC line, one day it was swollen and they said you can even develop blood clots around the area of the PICC line, this wasn't the case for me they put me on antibiotics and it disappeared so it was basically just starting to get inflamed I suppose but went away. Hope you're feeling better.
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #6
    Sorry
    I am sorry to hear that you have blood clots. So far i have been fortunate + haven't had any. I hope you feel better soon.
  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #7
    AnneCan said:

    Sorry
    I am sorry to hear that you have blood clots. So far i have been fortunate + haven't had any. I hope you feel better soon.

    So far I been fortunate as well not problems with my port in Two
    Years, so can't help you , I pray for a fast recovery!
    Hugs!
  • Love2Cats
    Love2Cats Member Posts: 127
    #8
    Thank you all very much!
    I appreciate all the info and well wishes. I am feeling a bit better today, but still can't use my arm a lot yet. The information you have given me, will help me tremendously, when talk about options with my onc this Monday. You guys/gals are the best!

    Sandy
  • tina dasilva
    tina dasilva Member Posts: 641
    #9
    unknown said:

    This comment has been removed by the Moderator

    gracie
    i see that you had blood clots in your legs Jorge has a blood clots where his port is and he is taking needles for it but now he is having pain in his legs just wondering if it could be blood clots in his legs .can you tell me the signs that i should be looking out for .thank you so much hugs to you all Tina

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