do you want your state to declare April EC awareness month?

K_ann1015
K_ann1015 Member Posts: 500
I am a daughter of a wonderful guy with EC. He inspires me by what he has pushed himself to do since his surgery 12/09. Unfortunately he is in the hospital right now (Duke) due to complications after having a nodule removed from his lung. the surgeon believes it is EC---pathology results have not come back yet. I could go one with our story...but-

I am determined to make a difference in the future of EC.

WHO IS IN?

If you want YOUR State to declare April 2011 EC Awareness Month, let me know.. I have done most of the leg work already---send me a csn email & I can give you more information.

Your help can get Esophageal Cancer the kind of awareness we really need to raise overall awareness, increase early detection, and build the support for more and better RESEARCH to cure this devastating disease....
Kim

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  • K_ann1015
    K_ann1015 Member Posts: 500
    unknown said:

    This comment has been removed by the Moderator

    It's not too late...
    Love hearing from you William & Loretta!
    I know---that first "news" of esophageal cancer...downright frightening. My dad still can't SAY or spell "E S O P H A G E A L". I just found out he has to stay in the hospital a little longer as air is leaking through the healing lung. Dr said this was expected as he had scar tissue from an old surgery. I have so many different prayers for him & my mom right now.

    Anyway---it is not too late to try to get your state to declare April 2011 EC Awareness Month.

    My state, KY did it last year---and right now they said that it should go through this year, but they are working on their March proclamations right now. ECAN has told me that they will send news releases if we want to actually publicize these proclamations. I admit, I did not publicize it last year--did not really know how. I will send you a private email--I hope I have the right one.

    thanks again for continuing to share your survivor story to all newbies.
    Kim
  • GerryS
    GerryS Member Posts: 227 Member
    K_ann1015 said:

    It's not too late...
    Love hearing from you William & Loretta!
    I know---that first "news" of esophageal cancer...downright frightening. My dad still can't SAY or spell "E S O P H A G E A L". I just found out he has to stay in the hospital a little longer as air is leaking through the healing lung. Dr said this was expected as he had scar tissue from an old surgery. I have so many different prayers for him & my mom right now.

    Anyway---it is not too late to try to get your state to declare April 2011 EC Awareness Month.

    My state, KY did it last year---and right now they said that it should go through this year, but they are working on their March proclamations right now. ECAN has told me that they will send news releases if we want to actually publicize these proclamations. I admit, I did not publicize it last year--did not really know how. I will send you a private email--I hope I have the right one.

    thanks again for continuing to share your survivor story to all newbies.
    Kim

    Thank you........
    for your good work. We need this awareness.

    Gerry
  • Tina Blondek
    Tina Blondek Member Posts: 1,500 Member
    K_ann1015 said:

    It's not too late...
    Love hearing from you William & Loretta!
    I know---that first "news" of esophageal cancer...downright frightening. My dad still can't SAY or spell "E S O P H A G E A L". I just found out he has to stay in the hospital a little longer as air is leaking through the healing lung. Dr said this was expected as he had scar tissue from an old surgery. I have so many different prayers for him & my mom right now.

    Anyway---it is not too late to try to get your state to declare April 2011 EC Awareness Month.

    My state, KY did it last year---and right now they said that it should go through this year, but they are working on their March proclamations right now. ECAN has told me that they will send news releases if we want to actually publicize these proclamations. I admit, I did not publicize it last year--did not really know how. I will send you a private email--I hope I have the right one.

    thanks again for continuing to share your survivor story to all newbies.
    Kim

    Welcome Back
    Dearest Kim and your dad. So nice to see you posting again! Miss you. I tried to do this last year, but never heard a thing back. Maybe with William and I both being from Virginia will help. I will try again this year as well. Praying for you mom and dad. Hugs to all. Send me the info I need again, please :)
    Tina in Va
  • K_ann1015
    K_ann1015 Member Posts: 500

    Welcome Back
    Dearest Kim and your dad. So nice to see you posting again! Miss you. I tried to do this last year, but never heard a thing back. Maybe with William and I both being from Virginia will help. I will try again this year as well. Praying for you mom and dad. Hugs to all. Send me the info I need again, please :)
    Tina in Va

    VA NC&DE have already declared April 2001 EC Awareness Month!
    Tina-My news with my dad has been really good and sometimes I feel guilty posting it over & over. But now he is in the hospital recovering from a second surgery and has had a minor complication. He is getting very bored & is still awaiting a definite pathology report. Honestly, I think he would forgo the report if he could just go home.

    I made an error---i kept thinking that William was in PA as that is where he had surgery!---So, you & him do not need to pursue EC Awareness Month in VA---IT HAS ALREADY BEEN PROCLAIMED!

    ECAN has offered to send press releases & PSAs that we can share with local TV & radio stations in each state that is proclaimed during April 2011. I am glad because Mindy (from ECAN has a background as a TV anchor---I work in healthcare & this is not my strength. With all the EC community working together we can make a difference. The pancreatic cancer group has gotten very active & now people are listening---hopefully--this may be us (EC patients & families) next year!
    Kim
  • Tina Blondek
    Tina Blondek Member Posts: 1,500 Member
    K_ann1015 said:

    VA NC&DE have already declared April 2001 EC Awareness Month!
    Tina-My news with my dad has been really good and sometimes I feel guilty posting it over & over. But now he is in the hospital recovering from a second surgery and has had a minor complication. He is getting very bored & is still awaiting a definite pathology report. Honestly, I think he would forgo the report if he could just go home.

    I made an error---i kept thinking that William was in PA as that is where he had surgery!---So, you & him do not need to pursue EC Awareness Month in VA---IT HAS ALREADY BEEN PROCLAIMED!

    ECAN has offered to send press releases & PSAs that we can share with local TV & radio stations in each state that is proclaimed during April 2011. I am glad because Mindy (from ECAN has a background as a TV anchor---I work in healthcare & this is not my strength. With all the EC community working together we can make a difference. The pancreatic cancer group has gotten very active & now people are listening---hopefully--this may be us (EC patients & families) next year!
    Kim

    Praise the Lord!!!
    Dear Kim
    Woo hoo!!!! Thank you for updating me on Virginia!!! Which month are we? Thank you my dear friend. It is because of you that this has happened. Praying for you and your dad. He sounds so much like my dad. :)
    Stubborn and bored. Just get me outta here! Love you Kim.
    Tina in Va
  • K_ann1015
    K_ann1015 Member Posts: 500

    Praise the Lord!!!
    Dear Kim
    Woo hoo!!!! Thank you for updating me on Virginia!!! Which month are we? Thank you my dear friend. It is because of you that this has happened. Praying for you and your dad. He sounds so much like my dad. :)
    Stubborn and bored. Just get me outta here! Love you Kim.
    Tina in Va

    April 2011 -IS- EC Awareness Month
    you're very welcome!

    dad's---just can't sit still! He keeps asking my mom--"what's our next project in the barn?"--he is always fixing things... He works at the local Church Thrift shop as a volunteer and "fixes" donations worth fixing. I am about ready to mail him something to fix---even if I have to break it myself! It's only been 6 days in the hospital...

    love ya Tina in VA! (glad you clarified awhile ago)---I was getting confused with all our Tina's
    Kim
  • Bobs1wife
    Bobs1wife Member Posts: 150
    I would love to have the information!
    I would love to know how to do this. Please help me with how to go about it. We are from Nebraska and I will sure give it a good try! Thank you, Linda
  • K_ann1015
    K_ann1015 Member Posts: 500
    Bobs1wife said:

    I would love to have the information!
    I would love to know how to do this. Please help me with how to go about it. We are from Nebraska and I will sure give it a good try! Thank you, Linda

    sent a private message!
    Linda, I sent a private message.
    Go EC Month for Nebraska!!!!
    kim
  • llamp0922
    llamp0922 Member Posts: 40
    K_ann1015 said:

    sent a private message!
    Linda, I sent a private message.
    Go EC Month for Nebraska!!!!
    kim

    Massachusetts?
    I would like to have Massachusetts declare EC awareness month. Can you pass along the information?

    Thank you!
    Lisa
  • llamp0922
    llamp0922 Member Posts: 40
    K_ann1015 said:

    sent a private message!
    Linda, I sent a private message.
    Go EC Month for Nebraska!!!!
    kim

    Massachusetts?
    I would like to have Massachusetts declare EC awareness month. Can you pass along the information?

    Thank you!
    Lisa
  • K_ann1015
    K_ann1015 Member Posts: 500
    If you want EC month info--send me private message&email
    Hi everyone---
    If you want info about-Send me a private message with your email. This system doesn't allow me to send attachments---so I need to send to a regular email account. thanks so much---I will keep you all updated.


    thanks for all the interest!
    kim
  • Donna70
    Donna70 Member Posts: 852 Member
    K_ann1015 said:

    If you want EC month info--send me private message&email
    Hi everyone---
    If you want info about-Send me a private message with your email. This system doesn't allow me to send attachments---so I need to send to a regular email account. thanks so much---I will keep you all updated.


    thanks for all the interest!
    kim

    just sent my request to Gov. O'Malley
    Hi Kim,
    I have been under the weather these past 2 wks but am better now. I just sent my request to Governor O'Malley about EC Awareness month. He declared it last year and I was given the impression it had been done before. I was sent a giant proclamation in the mail declaring it. I also just wrote to a local TV station and am trying to get them to do a story on EC for the month of April. I already wrote to Dr. Oz for April too. So lets hope they get something done. I am not a typical case so I just hope they interview my drs and let them tell the people out there that there is an increase in this type of cancer and unfortunately it is among much younger people. A friend told me that a local talk radio show had someone on yesterday giving much information about it but she did not give current statistics or what we know now as a much higher survival rate for even Stage III people. take care,
    Donna70
  • bluedog
    bluedog Member Posts: 2
    Stage 4
    My husband was recently diagnosed, please email me @ dnchtt@yahoo.com

    Thanks much
  • bluedog
    bluedog Member Posts: 2
    Stage 4
    My husband was recently diagnosed, please email me @ dnchtt@yahoo.com

    Thanks much
  • bluedog said:

    Stage 4
    My husband was recently diagnosed, please email me @ dnchtt@yahoo.com

    Thanks much

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