port put in on tues

pokrydi
pokrydi Member Posts: 99
had my port put in 2/8 boy what a weird feeling will i get use to it soon? feels like my neck turns 1 way and my veins the other way. crazy feeling thanks diane

Comments

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    sorry weird feeling
    I have never been in this situation-but HOPING things feel okay once you get used to it..!

    Denise W
  • Clementine_P
    Clementine_P Member Posts: 518 Member
    You'll get used to it
    Sorry you are having to go through this. When I first got my port I felt it every minute, but after just a couple of days, I got used to it. I will admit, I wanted it out as soon as I could after chemo, but lots of people leave theirs in. It makes receiving chemo so much easier than getting poked and prodded that, for many of us, it becomes our little buddy. :) Anyway, I hope that you too will find that it makes everything easier and that you get used to it too.

    Xoxo,
    Clementine
  • pattimc
    pattimc Member Posts: 431

    You'll get used to it
    Sorry you are having to go through this. When I first got my port I felt it every minute, but after just a couple of days, I got used to it. I will admit, I wanted it out as soon as I could after chemo, but lots of people leave theirs in. It makes receiving chemo so much easier than getting poked and prodded that, for many of us, it becomes our little buddy. :) Anyway, I hope that you too will find that it makes everything easier and that you get used to it too.

    Xoxo,
    Clementine

    I named mine
    Port-au-Princess!! It was my best friend during chemo as my veins are horrible! After while you become used to it. BUT, I was very glad to have it out because it made my journey feel "final".
  • EllenaMaria
    EllenaMaria Member Posts: 69
    Yes, it does feel weird for
    Yes, it does feel weird for a while. How are you feeling? I have never been shot but that is how I felt during recovery. I was really, really scared to sleep/roll over and such. Eventually, after it got "settled in" I would show people and it freaked them out, especially the tube that goes up to the clavical.

    For me, knowing how everything works really helps me. I was always in awe of it. My husband are on dialysis so he is used to fistulas and such. He kept assuring me that it would not come out and that I would be fine. I think it only got hit once by my son's head when I was tickling him. I don't think anyone here has had a problem with a port from what I have read so far. For most we loved having it, but of course were thrilled to have it be gone. If you have seen my earlier post, I made mine into a keychain! I think the only bummer for me was that I bought a really sexy dress prior to my diagnosis to wear for our 21st anniversary 3/18 but never got to go out let alone wear it. I wanted one last anniversary before the scars. Oh well, maybe I will wear it this year, it will be the first of the rest of our anniversaries together.
    You are one step closer to being done with all this! Celebrate!
  • MyTurnNow
    MyTurnNow Member Posts: 2,686 Member
    pattimc said:

    I named mine
    Port-au-Princess!! It was my best friend during chemo as my veins are horrible! After while you become used to it. BUT, I was very glad to have it out because it made my journey feel "final".

    Patti,
    Patti, "Port-au-Princess"......I LOVE it!! You have to keep your humor intact as you complete your journey to evict the beast.
  • pokrydi
    pokrydi Member Posts: 99

    Yes, it does feel weird for
    Yes, it does feel weird for a while. How are you feeling? I have never been shot but that is how I felt during recovery. I was really, really scared to sleep/roll over and such. Eventually, after it got "settled in" I would show people and it freaked them out, especially the tube that goes up to the clavical.

    For me, knowing how everything works really helps me. I was always in awe of it. My husband are on dialysis so he is used to fistulas and such. He kept assuring me that it would not come out and that I would be fine. I think it only got hit once by my son's head when I was tickling him. I don't think anyone here has had a problem with a port from what I have read so far. For most we loved having it, but of course were thrilled to have it be gone. If you have seen my earlier post, I made mine into a keychain! I think the only bummer for me was that I bought a really sexy dress prior to my diagnosis to wear for our 21st anniversary 3/18 but never got to go out let alone wear it. I wanted one last anniversary before the scars. Oh well, maybe I will wear it this year, it will be the first of the rest of our anniversaries together.
    You are one step closer to being done with all this! Celebrate!

    thanks for the info just
    thanks for the info just kinda down today keep thinking about how much vac time to go thru all this. Ellenamarie i feel for you re the dress it will be my 30th wedding ann in june and turning 50 in aug as weel as 30 yrs at my job. this is not how i planned the year to be but, i guess i suck it up and go on. i have spent many years of my vac time taking care of both parents so i should be use to it i guess.
  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
    Your port
    I had my port implanted 1 week before chemo started. While it did not hurt it certainly felt strange. I felt like there was a string attached from my neck to my chest and couldn't move properly without a taut/stretching sensation. That lasted only a couple of days. I was mentally unable to feel the port and cringed every time I did accidentally touch it. The thing basically just creeped me out. Don't get me wrong - I was very grateful to have that port during chemo. With 16 rounds of chemo, blood draws and a few sessions of IV fluids I don't know what I would have done without it. After chemo was done (this past August)I went to my surgeon's office and had it removed. All I have left of it is a small healing scar.
  • Dee
    Dee Member Posts: 40

    Your port
    I had my port implanted 1 week before chemo started. While it did not hurt it certainly felt strange. I felt like there was a string attached from my neck to my chest and couldn't move properly without a taut/stretching sensation. That lasted only a couple of days. I was mentally unable to feel the port and cringed every time I did accidentally touch it. The thing basically just creeped me out. Don't get me wrong - I was very grateful to have that port during chemo. With 16 rounds of chemo, blood draws and a few sessions of IV fluids I don't know what I would have done without it. After chemo was done (this past August)I went to my surgeon's office and had it removed. All I have left of it is a small healing scar.

    Hi Di
    Im getting my port

    Hi Di

    Im getting my port next week and the surgeon said it would take about a week to feel "normal", but in talking to people who have already been on this journey - a port is a silver lining in the dark cloud!!

    Hope your feeling better soon hun!

    Dee xx
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    Dee said:

    Hi Di
    Im getting my port

    Hi Di

    Im getting my port next week and the surgeon said it would take about a week to feel "normal", but in talking to people who have already been on this journey - a port is a silver lining in the dark cloud!!

    Hope your feeling better soon hun!

    Dee xx

    Mines been in almost two
    Mines been in almost two years. You get used to it and forget its there. I even had my accessed for nearly a week last time I was in the hospital. Slept with it accessed and everything.

    Still, even two years later, I kinda get a little startled when I see it in the mirror!!!
  • lori1961
    lori1961 Member Posts: 56
    Port
    Hi Diane,
    I have had my port in since December 10th. What an annoying feeling it can be. You know it is always there. Should feel better when the swelling goes down, then you will hardly know it is there. When I reach across mt chest to the left side it bugs me aliitle but it just a little reminder that it is still there. Hope this helps. good luck
    Lori
  • lori1961
    lori1961 Member Posts: 56
    Port
    Hi Diane,
    I have had my port in since December 10th. What an annoying feeling it can be. You know it is always there. Should feel better when the swelling goes down, then you will hardly know it is there. When I reach across mt chest to the left side it bugs me aliitle but it just a little reminder that it is still there. Hope this helps. good luck
    Lori
  • lori1961
    lori1961 Member Posts: 56
    Port
    Hi Diane,
    I have had my port in since December 10th. What an annoying feeling it can be. You know it is always there. Should feel better when the swelling goes down, then you will hardly know it is there. When I reach across mt chest to the left side it bugs me aliitle but it just a little reminder that it is still there. Hope this helps. good luck
    Lori
  • lori1961
    lori1961 Member Posts: 56
    Port
    Hi Diane,
    I have had my port in since December 10th. What an annoying feeling it can be. You know it is always there. Should feel better when the swelling goes down, then you will hardly know it is there. When I reach across mt chest to the left side it bugs me aliitle but it just a little reminder that it is still there. Hope this helps. good luck
    Lori
  • lori1961
    lori1961 Member Posts: 56
    lori1961 said:

    Port
    Hi Diane,
    I have had my port in since December 10th. What an annoying feeling it can be. You know it is always there. Should feel better when the swelling goes down, then you will hardly know it is there. When I reach across mt chest to the left side it bugs me aliitle but it just a little reminder that it is still there. Hope this helps. good luck
    Lori

    sorry guys got a little
    sorry guys got a little carried away with the mouse!
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    lori1961 said:

    Port
    Hi Diane,
    I have had my port in since December 10th. What an annoying feeling it can be. You know it is always there. Should feel better when the swelling goes down, then you will hardly know it is there. When I reach across mt chest to the left side it bugs me aliitle but it just a little reminder that it is still there. Hope this helps. good luck
    Lori

    Sorry, Ladies - I'm with Lori .. I hated hated the
    position of my port .. location == inside upper arm (right). So being right handed, everything I did, I felt 'Victor' tug and pull at me for 14 months. Ugh... I had a party to celebrate .. Victor, and is departure!

    Couldn't of made it thru TCH, and year long herceptin treatment with Victor, my port. Bitter sweet memories. Or, as I call it, a necessary evil.

    Just me ..

    Strength and Courage,

    Vicki Sam
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    Dee said:

    Hi Di
    Im getting my port

    Hi Di

    Im getting my port next week and the surgeon said it would take about a week to feel "normal", but in talking to people who have already been on this journey - a port is a silver lining in the dark cloud!!

    Hope your feeling better soon hun!

    Dee xx

    I didn't have chemo, so, no
    I didn't have chemo, so, no port, but, want to say that I hope you feel better very soon.


    Hugs, Jan
  • Texasgirl10
    Texasgirl10 Member Posts: 668
    VickiSam said:

    Sorry, Ladies - I'm with Lori .. I hated hated the
    position of my port .. location == inside upper arm (right). So being right handed, everything I did, I felt 'Victor' tug and pull at me for 14 months. Ugh... I had a party to celebrate .. Victor, and is departure!

    Couldn't of made it thru TCH, and year long herceptin treatment with Victor, my port. Bitter sweet memories. Or, as I call it, a necessary evil.

    Just me ..

    Strength and Courage,

    Vicki Sam

    It was horrible at first
    Oh gosh, I hated this thing when they first did it. I promise it does get better. Every now and then I still feel it, but it's not so bad. I've only had mine for a couple of months.And it is truly a blessing on chemo days. I hope it gets better for you real soon.
  • Kylez
    Kylez Member Posts: 3,761 Member

    Yes, it does feel weird for
    Yes, it does feel weird for a while. How are you feeling? I have never been shot but that is how I felt during recovery. I was really, really scared to sleep/roll over and such. Eventually, after it got "settled in" I would show people and it freaked them out, especially the tube that goes up to the clavical.

    For me, knowing how everything works really helps me. I was always in awe of it. My husband are on dialysis so he is used to fistulas and such. He kept assuring me that it would not come out and that I would be fine. I think it only got hit once by my son's head when I was tickling him. I don't think anyone here has had a problem with a port from what I have read so far. For most we loved having it, but of course were thrilled to have it be gone. If you have seen my earlier post, I made mine into a keychain! I think the only bummer for me was that I bought a really sexy dress prior to my diagnosis to wear for our 21st anniversary 3/18 but never got to go out let alone wear it. I wanted one last anniversary before the scars. Oh well, maybe I will wear it this year, it will be the first of the rest of our anniversaries together.
    You are one step closer to being done with all this! Celebrate!

    I didn't have a port, but,
    I didn't have a port, but, hope that you will get used to it over time.


    Hugs, Kylez
  • mollyz
    mollyz Member Posts: 756 Member

    It was horrible at first
    Oh gosh, I hated this thing when they first did it. I promise it does get better. Every now and then I still feel it, but it's not so bad. I've only had mine for a couple of months.And it is truly a blessing on chemo days. I hope it gets better for you real soon.

    MY birthday
    I turned 50 last year and it was during an agggressive chemo the birthday didn't really matter i was just glad to be alive. MOLLYZ