Advice

Mozir

https://csn.cancer.org/discussion/comment/1718524#Comment_1718524

Wheel, What hospital you done your surgery and what is your surgeon name who perform surgery

Wheel

It was in Orange County, CA at Hoag Hospital. Don’t know if that is practical for you, but if so I can share the Dr. name.

Mozir

Thank You…yes please share the Dr name …I live not far… in Temecula

Khaffey

Thank you all for your support. I will keep everyone posted.

Khaffey

I had my surgery last Tuesday, Feb 11th. Here's a rundown. Arrived at the hospital 5:00 am. Admitted, pre op, and in the operating room by 7:00. I think surgery lasted about 2 1/2 to 3 hrs. Woke up in recovery around 11:30. Having had a colon resection 13 years ago, I kind of expected what was coming. There was 6 incisions, 4 smaller ones, a larger on at my belly button and a larger on on my right side. That one was the most painful. I was moved to a room around 3:00 pm and given something to eat. A few hours later I was walking the hallway. Not easy to get any rest in the hospital. Between the pain from just trying to find a comfortable spot in bed to the normal activity during the night, I got very little sleep. Had some pain meds during the night. Discharged by 10:00 AM Wednesday. I was given some instructions, including how to take care of the Foley catheter. Arrived home with some meds, including Oxycodone. Only used one. I found Extra strength Tylenol worked just as well. At night I took two Tylenol PM and one extra strength. The PM's really helped me sleep better. The first three days were tough, though each day there was improvement. The pain and discomfort from the Foley was not unbearable. By the fourth day I was feeling much better. Yesterday, Feb 18th, was my follow up to remove the Foley. I met with the surgeon's PA. We went over everything I should expect to happen. A nurse then came in to remove the Foley. My bladder was filled with water and then she removed the Foley. I haven't had a urine flow like that in years. I came home wearing a Depends and didn't know what to expect. I had several urges to urinate throughout the day, and got up twice during the night. Stayed dry so far with minimal leakage. I'm feeling very optimistic. No pathology report yet, but my surgeon said that he saw nothing unusual. Prostate and some lymph nodes were removed. Follow up in five weeks to check PSA.

Wheel

Outstanding! All the best on your recovery.

Khaffey

Thanks. I will post updates

Old Salt

Thanks for the detailed report. Glad to read that you are well on your way to recover from the surgery.

Steve1961

trying to tell you I had the 45 treatments and a Breakytherapy booster cribiform is radiation resistant. Please do not let them tell you otherwise any radiologist will tell you that’s not true and they are lying. How do you explain this then I had Gleason score of 73+4 when you do radiation they place two gold markers in your prostate the radiation is precise and is aimed directly at those markers ..all the Gleason three cancer was gone, except the Gleason 4 cribiform and guess where it was right next to the marker I had two surgeons. Tell me that they are seeing as of late that cribiform can be radiation resistant I am living proof nobody will convince me otherwise, if i was you? I would not even think about it. Do the surgery and get it over with that just my opinion best of luck to you. ,the tumor was not a new growth the 2 surgeons that told me About cribiform are top surgeons head surgeon at UCSF Dr. Peter Carol head surgeon at UCLA Dr. Robert Reiter

Khaffey

Tomorrow will be three weeks post surgery. Here's an update. While the biopsy showed 4+3=7, grade group 3, the pathology report showed 4+4=8, grade group 4. All contained in the prostate. So I guess you can't always rely on the biopsy results. At this point I'm feeling good. Incisions are basically healed. Incontinence is more of a nuisance than a problem. I'm dealing with an occasional drip or minor leak. Nothing that a light pad can't handle. Like others have said, my penis is shorter and at this point no sign of erections yet. I'm taking 5mg Cialis daily. I woke up a few time during the night and noticed some activity but nothing to get excited about. By nature I'm an impatient guy, I'm sure I'm expecting too much too soon. I find myself slipping into depression occasionally, I've read that this is normal. The main thing is that the cancer is gone and each day is seeing improvement. I try to remain optimistic. My wife is very supportive and understanding. My next appointment I am going to find out if using a pump would be a good means of rehab. I used one occasionally before surgery and read that it is used after surgery to improve blood flow. I will keep you posted.

Clevelandguy

Hi,

Sounds like your doing good at 3 weeks. Keep up the Kegals and hopefully your ED will improve over time. There is no set time for the ED recovery, mine was slow and steady month to month. Don’t let the surgery slow you down, get back into action, this will help your mental state.

Dave 3+4

Old Salt

Yes, you have made excellent progress so far; hope it continues.

Khaffey

Thanks for the support. It's goog to hear this from guys who have been through it. It's very encouraging.

capecodder

@Khaffey Thanks for the updates! Sounds like you are doing well. I feel better prepared for the future based on your posts.