The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.
11 anniversaries since diagnosis of stage 4 prostate cancer
Diagnosed at 63, I did not have the confidence at that time to believe I would live another 10 years. Yet, I just completed another follow-up visit in the past two weeks. My semiannual routine includes a blood draw for PSA and metabolic panel, followed by a visit to my oncologist's office. Given the many years of hormone therapy, they added a DEXA scan to check my bones.
Overall, they are happy with the results. PSA remains undetectable (might not be the most sensitive assay. My lipid levels remain elevated, so lipid-lowering medication may be inevitable in the near future, but it's not the end of the world. I hope my experience can encourage my fellow warriors. Living with prostate cancer is entirely achievable.
I also learned that the website for clinical trial matching that my oncologist pointed me to previously (inforeach.org) has added search for treatments recommended by clinical guidelines. It's quite intriguing as you can check if your treatment is consistent with the standard of care. Sharing this information for anyone who may want to check it out.
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I've been away for a while but I just celebrated my 15th year as a stage3 survivor. I've not had any treatments in 13 years so I didn't want to give advice about treatments with knowledge that might be outdated. However, when giving the "survivor opening remarks" at Relay for Life I mentioned how important this network was in my first few years and encouraged all survivors to use it. I've been periodically lurking since then but thought this stage 4 survivor deserved some kudos. You're one of the people, along with Dakota Runner, that I remember giving me good advice when I was undergoing treatment. Thanks for that and glad you're still around, too.
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