Rhabdomyosarcoma alveolar head and neck

Zo12
Zo12 Member Posts: 1 Member
edited May 2023 in Sarcoma #1

Hello this year I got diagnosed with stage 3 RMS in my sinuse cavity and right nostril. I’m 30 years old is there any one else here having the same. I need someone that can understand me when I talk I need hope

Comments

  • lollipop2000
    lollipop2000 Member Posts: 4 Member
    #2

    This is very late! I had embryonal rhabdo (stage 1) diagnosed in 2018 at 18 years old. I think we may have very different experiences but maybe I can help you <3

  • copilox
    copilox Member Posts: 5 Member
    #3

    Hello, i'm french - Paris, 28, i have a rhabdomyosarcome alveolaire, i would like to talk with other people on same situation

  • CinnamonScone
    CinnamonScone Member Posts: 14 Member
    #4

    Hello Osteosarcoma Survivors,

    From 1997-2006, I took care of my then partner who was diagnosed with osteosarcoma of the right maxillary sinus. I am happy to say, she survived her cancer and has not had any recurrence. She wants to share her story with all osteosarcoma survivors, their families and their caregivers.

  • rdininger19
    rdininger19 Member Posts: 1 *
    #5

    I hope everything is going well with you! My sister , who is 28, was diagnosed with alveolar rhabdomyosarcoma recently. It also developed in her right sinonasal cavity and was stage 3 before she started chemo. If you don’t mind me asking, how are things going now?

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