The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

WAR

2»

Comments

  • NewHere
    NewHere CSN Member Posts: 1,433 Member
    #22
    It Makes No Sense At All.

    >now know what my husband felt when he said, "I'm so tired of being sick and tired." I thought I knew at the time but nobody will ever know until they wear the hat. 

    I was going to post something like that in my longer post.  No matter how much empathy you have, it is totally different when you get cancer and go through the treatments.  I try to explain the twilight effect I have, and maybe have gotten better, but it is like I am zombie caught between awake and sleep for a few days.  That is almost the hardest part of it because it last's so long.  But I describe it to another cancer patient, and they get it.

     I am at the point where I look at a chemo pouch I have in the house and I start getting queasy.  I keep it out of sight.  The port aint much better when I see it sometimes. And making a decision to do what is right, regardless of the outcome, with regards to treatment is never to be criticized.  So having the port removed and carrying on without that reminder is something I totally get.  Emotionally being stronger is paramount.  

     

    Like Care

Discussion Boards