I don't have to apologize!!!
Comments
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Thanks MaxWonderful
Havn't seen you in quite some time, Sal. Delighted to see you back again.
I’m a bit of a stalker I guess. It’s always refreshing to read posts from the old gang, and if I can add any encouragement to the new gang I’d be happy to.
A short, time lapse of my situation is: Sept. 2015 aggressive DLBCL. R-Chop + IV methotrexate. Remission Feb. 2016. Relapse July 2016. R-ICE then auto SCT Sept 2016.
Remission 2+ years. I’ve had my issues since the SCT (good and bad) pneumonia x2, lung issues, stomach/bowels issues, shingles, trip to Sicily, sons wedding, outings with my daughter, and my first grandchild expected in June! Life is good!
That still doesn’t stop me everyday from worrying about another relapse which is why I like to Read about new and upcoming research. Of course I rely on people much smarter than me for that, which is why this site and others are important. Let’s get the conversations back up and running.
Sharon
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CobraEvarista said:Old timers
If I'm not mistaken, I think this means that Cobra can rejoin the conversation!
Good one !!
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SharonSal0101 said:Thanks Max
I’m a bit of a stalker I guess. It’s always refreshing to read posts from the old gang, and if I can add any encouragement to the new gang I’d be happy to.
A short, time lapse of my situation is: Sept. 2015 aggressive DLBCL. R-Chop + IV methotrexate. Remission Feb. 2016. Relapse July 2016. R-ICE then auto SCT Sept 2016.
Remission 2+ years. I’ve had my issues since the SCT (good and bad) pneumonia x2, lung issues, stomach/bowels issues, shingles, trip to Sicily, sons wedding, outings with my daughter, and my first grandchild expected in June! Life is good!
That still doesn’t stop me everyday from worrying about another relapse which is why I like to Read about new and upcoming research. Of course I rely on people much smarter than me for that, which is why this site and others are important. Let’s get the conversations back up and running.
Sharon
I'm in ! Had daughter marry year ago November. I had prostate cancer since you were regular, but that is apparently cured via surgery. I get an annual recheck this month.
Watch this YouTube the Stacy Lawrence hit Time Marches on. To open, highlight the link, RIGHT click, and then press "Go to......"
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EverywhereRocquie said:Leslie
I agree with you, "Sorry for the inconvenience" hasn't cut it for me either. The fact there is a definitive date--10/19/18, indicates to me that was their last system backup. This should not have happened; it is a breach of trust.
Rocquie
Massive, massive breaches at Facebook, Amazon, Discover, AT&T, the Social Security Administration.
"Our improved, digital world."
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To quote...Joy
Po,
Most likely, your joy will be short-lived...
max
Peter Rivera, singer and drummer of Rare Earth: "I ain't got time for sorrow, and I ain't got time for hate, no, no, I'm using up my time for feelin' fine every day..."
From I just want to celebrate.
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port removedpo18guy said:Ruxolitinib arrived as usual
So, if I have been placed on forget, that is fine with me. I mean, my steroid taper can be done via phone. Still getting used to this whole no port thing. Seatbelt and guitar strap no longer chafe like cheap underwear. Doctor assured me that after my last procedure I could play guitar. "That's great!" I fired back. "I coundn't play at all before..."
It has been about 4 months since my port was removed. There are still times I put my hand where it was and expecting to feel it there.
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Exactly!lindary said:port removed
It has been about 4 months since my port was removed. There are still times I put my hand where it was and expecting to feel it there.
It seems surreal to be flat chested, if you know what I mean. I was so utterly used to it that it is indeed odd to have it gone.
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Rare Earthpo18guy said:To quote...
Peter Rivera, singer and drummer of Rare Earth: "I ain't got time for sorrow, and I ain't got time for hate, no, no, I'm using up my time for feelin' fine every day..."
From I just want to celebrate.
I went and saw Rare Earth in concert in about 1973. The lead guitarist was so skinny that when he stood sideways you couldn't see him on the stage. Head rush !, thinking back to those times....
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Ray MonetteRare Earth
I went and saw Rare Earth in concert in about 1973. The lead guitarist was so skinny that when he stood sideways you couldn't see him on the stage. Head rush !, thinking back to those times....
Still is kinda slim. A really good, realy unknown guitar player. Drummer/lead singer Peter Rivera (easier to pronoucnce that Hoorelbeke) now lives in Spokane. I got a pair of autographed drumsticks from him for $10. At the end of a song, he would toss his sticks out into the audience. At the California Jam in 1974, with 450,000 in the audience, he had to toss dozens of them. BTW, Pete still has the pipes. I bought a classic Rare Eaerth CD and his new CD "It is what it is" from his website.
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That is Just Terrible, MaxAnything is believable
Debbie,
I had a friend dying of prostate cancer about 6 years ago. He was treated at a huge "teaching hospital," associated with a medical school. Their cancer center had (has) all sorts of prestigious nationwide oncology certifications and awards. It is a Level 1 trauma center, and also does SCT and routine organ transplants.
He was late stage IV and had to go into inpatient for rehab, because all of his blood chemisty was way out of wack. His inpatient time was in the SAME hospital where the cancer center was located. The institution had gone "all digital" for records about two years prior.....
I went to take him home after a week on the floor, and the discharge nurse and I were talking about his meds and instructions. I asked how any of that would effect his cancer treatment. She looked at me funny, then at her laptop, and then back at me. She then said, "We have no indication here that he HAS cancer." I told her that he had been treated at her hospital for 13 years for prostate cancer, and that the cancer center was who had him admitted, due to the disease. True story.
About 8 months after the 9-11 attacks on the World Trade Center, the flight school in Florida received renewed visas for the terroists who flew the jets into the Twin Towers to remain in the US. This was from INS..... The fact would have been hidden, but the Director of the flight school took the visas to the media before the government could deny it. Story is widely available at all mainstream news agencies.
max
That is just terrible, Max! Being treated for 13 years and no record he had cancer?!! I would think maybe they had the wrong name for your friend? Technology is great, huh?
And the 9-11 attacks...renewing visas for the terrorists who flew into the twin towers. There have been so many other similar stories. Someone released from jail or prison, and they repeat the same awful crime again just days after their release. The world is getting pretty bad.
---Debbie
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What are you saying here?Joy
Po,
Most likely, your joy will be short-lived...
max
Max,
I hope you aren't telling Po that he will soon have his port back in and have to have more treatment? Let's be nice and support each other.
---Debbie
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He'll explainDJS628 said:What are you saying here?
Max,
I hope you aren't telling Po that he will soon have his port back in and have to have more treatment? Let's be nice and support each other.
---Debbie
I am certain that was not his sentiment. Howeer, I do consider myself "between cancers" due to my history. Maybe not with this new super-immune system I have, but you never know.
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WrongDJS628 said:What are you saying here?
Max,
I hope you aren't telling Po that he will soon have his port back in and have to have more treatment? Let's be nice and support each other.
---Debbie
Debbie,
My comment was a humorous one to Po's comment above that he was not currently having to apologize or avoid the censors, due to the huge data loss....
For some reason my comment did not situate directly under his comment, which it should do any time you click on the "Reply" function of someone's post. But, I guess if three months' data can drift off, so can an individual reply. Sorry if there was any ambiguity.
max
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Nice wordspo18guy said:To quote...
Peter Rivera, singer and drummer of Rare Earth: "I ain't got time for sorrow, and I ain't got time for hate, no, no, I'm using up my time for feelin' fine every day..."
From I just want to celebrate.
and so true po18guy. And really leaving no time for sorrow and hate, is a good way to get rid of them. And it adds time for much better things. Cool, thanks for the words!
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Young is Relativepo18guy said:Well...
You were very young in the 80s, but we were all told that computers would speed everything up. Uh-huh.
If you're going to lie, lie BIG!
Well, I wasn't that young in the 80's. And young is a relative term :-) But I do remember being told that computers would make our lives more efficient. Hogwash.
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I have become a specialist, if not an expert...Wrong
Debbie,
My comment was a humorous one to Po's comment above that he was not currently having to apologize or avoid the censors, due to the huge data loss....
For some reason my comment did not situate directly under his comment, which it should do any time you click on the "Reply" function of someone's post. But, I guess if three months' data can drift off, so can an individual reply. Sorry if there was any ambiguity.
max
...at apologizing. There are times that my warped sense of humor is not appreciated. There are times when something may be taken wrongly. There are times when i'm just plain rude.
Oh, for anyone with a similar sense of humor, here is a cover of one of Elvis' songs that is a memorable version.
https://www.youtube.com/watch?v=sJKg4TXf6PQ0 -
Bionic?po18guy said:He'll explain
I am certain that was not his sentiment. Howeer, I do consider myself "between cancers" due to my history. Maybe not with this new super-immune system I have, but you never know.
Po,
Maybe by now you have bionic powers, or rather, a bionic immune system? Do you remember "The Bionic Woman?" Heh-heh! Here's to you!
---Debbie
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Phew!Wrong
Debbie,
My comment was a humorous one to Po's comment above that he was not currently having to apologize or avoid the censors, due to the huge data loss....
For some reason my comment did not situate directly under his comment, which it should do any time you click on the "Reply" function of someone's post. But, I guess if three months' data can drift off, so can an individual reply. Sorry if there was any ambiguity.
max
Max,
Thanks for clarifying that one! Yeah, Po posted he was full of joy, having his port removed, then I saw your post about his joy will be short-lived. My immediate thought: that was NOT very nice! So I had to ask eventhough I thought, nah, he wouldn't mean that, would he? How cruel!
Have a good day! It's snowing here! I thought spring was coming soon? Looking pretty out there!
---Debbie
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Thanks for the link...thatpo18guy said:I have become a specialist, if not an expert...
...at apologizing. There are times that my warped sense of humor is not appreciated. There are times when something may be taken wrongly. There are times when i'm just plain rude.
Oh, for anyone with a similar sense of humor, here is a cover of one of Elvis' songs that is a memorable version.
https://www.youtube.com/watch?v=sJKg4TXf6PQThanks for the link...that was freakin' hilarious. Miss Sam. He was...unique.
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https://www.youtube.com/watch?v=t5wUFURYc0g
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