Amy Jo

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  • HDPete
    HDPete Member Posts: 16 Member
    #22
    Amy_Jo said:

    Stage

    I was told I was stage 3 prior to surgery based on scans .This was based on the fact my turmor had reached my renal vein. I had scans prior to surgery which were clear. It was after surgery things blew up like fire works. My surgeon seems to think the lesions were there just to small to show on scans. My pathology report shows a grade 4 turmor. I know it's an agressive cancer I am hoping immunotherapy is the answer. 

    I hope it all works out for,

    I hope it all works out for you, prayers sent. Good luck with everything Amy Jo!

  • Steph85
    Steph85 Member Posts: 166 Member
    #23
    Amy_Jo said:

    Labs

    Yes they have not checked my thyroid yet I just had a second opinion Friday with a different oncology group. I was very impressed with their care and she said she would check my thyroid. I have a treatment Monday then my care will transition to the new clinic. The new clinic had way more to offer and they are also scheduling me with a genetic physician as well due to being so young. My new oncologist offers a physician who specializes in RCC as well. My previous oncologist really didn't get much of a history or dicuss much of anything with me. Although he is a very kind person I want a physician who is agressive with my care he has been a wait and see guy. My new oncologist will check my thyroid with in the next 2 weeks. 

    I'm glad you got a second

    I'm glad you got a second opinion. I fully agree with the getting someone who is going to be aggressive.  I would do the.same. thank you for giving us all updates. Be strong! ***Hugs from Oregon!***

    Stephanie

  • jazzgirl
    jazzgirl Member Posts: 243 Member
    #24
    Monday

    Hi Amy Jo, I have been following what you are going through and have you and your family in my mind and heart every day.  Extra prayers tomorrow as you head into latest treatment.  May it go as well as possible for you.  Take care

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #25
    jazzgirl said:

    Monday

    Hi Amy Jo, I have been following what you are going through and have you and your family in my mind and heart every day.  Extra prayers tomorrow as you head into latest treatment.  May it go as well as possible for you.  Take care

    Thank you all for all your

    Thank you all for all your thoughts and prayers it's so comforting. I completed my second treatment. I had a strange reaction half way through the Opdivo. All of a sudden I couldn't breath pain was shooting up my neck and down my back I turn blood red and felt like I was on fire. The doctor ordered benadryl and they restarted the infusion at a slower rate. It scared me. I completed treatment with no other events. Thanks again for everyone's thoughts it's so appreciated. 

  • jazzgirl
    jazzgirl Member Posts: 243 Member
    #26
    More prayers

    Hi Amy Jo,  That must have been so scary, on top of everything else.  Especially not being able to breathe.  More hugs as you keep walking through this.  Take care

  • AnnissaP
    AnnissaP Member Posts: 632 Member
    #27
    Amy_Jo....the body is an

    Amy_Jo....the body is an amazing thing. Yes, you have youth on your side! I hope you rest and do what you need to do to allow your body to heal. I wish you all the best and am here for you xoxo.

  • Amy_Jo
    Amy_Jo Member Posts: 70 Member
    #28
    AnnissaP said:

    Amy_Jo....the body is an

    Amy_Jo....the body is an amazing thing. Yes, you have youth on your side! I hope you rest and do what you need to do to allow your body to heal. I wish you all the best and am here for you xoxo.

    Thank you ladies I'm feeling

    Thank you ladies I'm feeling much better more and more like myself if that makes sense. Seems like since my diagnosis the word cancer has just echoed in my mind. I'm learning to stop reminding myself that cancer lives inside me. I'm living again. I hope I continue to feel better I'm spending my days enjoying my family and friends and most of all my beautiful children. I hope you all are doing well and wish the best to all. Special thanks to all of you for your encouraging words and support I would be lost without you guys. 

  • jazzgirl
    jazzgirl Member Posts: 243 Member
    edited June 2018 #29
    2 x 4

    The C word is like a big two-by-four hitting one in the head.  I'm so happy to read your sentence, "I'm living again."  As much as possible, live, love, play, enjoy your children.  They must be so happy to have you enjoying them.  Savor it all...

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