Cervical Cancer

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  • Brendilou
    Brendilou Member Posts: 4 Member
    #22
    catcon49 said:

    My daughter is a cervical

    My daughter is a cervical cancer survivor. She finished 35 external radiations and 7 internal radiations. Only to find out last week it came back in para aortic lymphnodes(2). Only 1cm. So more radiation. I’m looking for survivors of this so I can tell her

    Hi. See my post this month.

    I just joined this group and wanted you to read my post for your daughter.

    B

  • Brendilou
    Brendilou Member Posts: 4 Member
    #23
    juby said:

    newly diagnosed

    Hi i am new to this, i was diagnosed in April with stage 3b cervical cancer i have just had my first Chemo treatment and feeling really scared-just like to say a big hello to everone.

    Hi. See my post this month.

    I just joined this group and wanted to get in touch with some of the newer posters. Read my post this month.

    B

  • Brendilou
    Brendilou Member Posts: 4 Member
    #24
    NoTimeForCancer said:

    mkwins - thank you for

    mkwins - thank you for posting and congratulations on 22 years!  I think it is helpful for others to know there is hope and success when facing the beast.  Congrats!

    Hi. See my post this month.

    Hello. I have just joined this group. I have seen many of your posts and appreciate all your encouragement to the ladies on this sight. Keep it up!

    B

  • Kgsims
    Kgsims Member Posts: 2
    edited October 2020 #25
    Cervical Cancer

    Hello, I have Just joined and seen your post about anyone having cervical cancer... I am stage 4, Metastasized to my lungs and some lymph nodes... long long story from the beginning in 2018 when I was diagnosed. I've had ALOT of chemo, radiation, radical hysterectomy, surgeries & procedures since 2018... I am still battling due to having 7 total tumors left in my lungs. I am not giving up!!! I'm going to keep believing I will be cancer free one day & I have ALOT of faith that God will heal me in time. I'm not sure why I am on this journey but my goal is to help others stay positive, be encouraged & never feel alone out there!!! I'm willing to talk, chat or email/text message .... anything to help!!! It can feel very lonely out there when nobody can truly understand what it is we go through! So please if your still active on here contact me! My email is Keisha.sims69@gmail.com

    i am willing to be your friend & we can get through this together!!! Be blessed! ❤️

    Keisha

  • Kgsims
    Kgsims Member Posts: 2
    edited October 2020 #26
    Alikatt said:

    Hi Amber,

    Hi Amber,

    i have cervical cancer. Diagnosed May of this year. I just joined, same reasons, need to talk with someone with similar experiences. This is terrifying!

    Cervical cancer

    Hello Alikatt, my name is Keisha & I just joine... I have stage 4 cervical cancer that's metastasized to my lungs/lymph nodes. 
    I'm not sure if your still on here but I hope so and hope we can connect! I would love to talk with You about your journey through this difficult time! 
    please reply and let me know. Be blessed & never give up!!! ❤️??  Keisha

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,486 Member
    edited November 2020 #27
    Kgsims said:

    Cervical cancer

    Hello Alikatt, my name is Keisha & I just joine... I have stage 4 cervical cancer that's metastasized to my lungs/lymph nodes. 
    I'm not sure if your still on here but I hope so and hope we can connect! I would love to talk with You about your journey through this difficult time! 
    please reply and let me know. Be blessed & never give up!!! ❤️??  Keisha

    Kgsims, it can be a little

    Kgsims, it can be a little quite on the CSN boards for cervial.  There are some other active boards - you may have already found them - but on eis NCCC - National Cervial Cancer Coalition

    https://www.inspire.com/groups/national-cervical-cancer-coalition/

    It helps to talk with others who are going through something similar and can help you with the things they are experience.  God bless warrior!

  • shintasafanna
    shintasafanna Member Posts: 1
    edited April 2021 #28
    Kgsims said:

    Cervical Cancer

    Hello, I have Just joined and seen your post about anyone having cervical cancer... I am stage 4, Metastasized to my lungs and some lymph nodes... long long story from the beginning in 2018 when I was diagnosed. I've had ALOT of chemo, radiation, radical hysterectomy, surgeries & procedures since 2018... I am still battling due to having 7 total tumors left in my lungs. I am not giving up!!! I'm going to keep believing I will be cancer free one day & I have ALOT of faith that God will heal me in time. I'm not sure why I am on this journey but my goal is to help others stay positive, be encouraged & never feel alone out there!!! I'm willing to talk, chat or email/text message .... anything to help!!! It can feel very lonely out there when nobody can truly understand what it is we go through! So please if your still active on here contact me! My email is Keisha.sims69@gmail.com

    i am willing to be your friend & we can get through this together!!! Be blessed! ❤️

    Keisha

    my mom's been diagnosed with cervical cancer recently

    hi everyone, i hope you all can get through this, may god grant your wishes to be free from cancer. 
    i just joined today, wishing everyone still active today.

    so my mom is been diagnosed with stage 1B cervical cancer, and the gyn oncologist has performed radical hysterectomy. now we are waiting for the pathology anatomy test for tissue and lymph nodes that had been removed by the hysterectomy procedure. we put a big hope that it will be free from cancer and my mom will not undergo adjuvant therapy like chemo and radiation. 

    the main problem right now is that my mom's mental health , i'm afraid that she's not welll prepared to accept this morover if she should undergo adjuvant therapy.

    i wish everyone here can help to tell my mom that chemo and radiation is not as bad as she thinks it is and that she can get through this hard time.

    long live cancer survivor!

  • Happygrand
    Happygrand Member Posts: 2
    edited May 2021 #29
    shintasafanna said:

    my mom's been diagnosed with cervical cancer recently

    hi everyone, i hope you all can get through this, may god grant your wishes to be free from cancer. 
    i just joined today, wishing everyone still active today.

    so my mom is been diagnosed with stage 1B cervical cancer, and the gyn oncologist has performed radical hysterectomy. now we are waiting for the pathology anatomy test for tissue and lymph nodes that had been removed by the hysterectomy procedure. we put a big hope that it will be free from cancer and my mom will not undergo adjuvant therapy like chemo and radiation. 

    the main problem right now is that my mom's mental health , i'm afraid that she's not welll prepared to accept this morover if she should undergo adjuvant therapy.

    i wish everyone here can help to tell my mom that chemo and radiation is not as bad as she thinks it is and that she can get through this hard time.

    long live cancer survivor!

    Not so bad

    I imagine you have received your mothers path reports. Hopefully they were good and your mom doesn't need further treatment. However, if she does need treatment, she should be able to get needed support and encouragement from her care team. 

  • alyvia0575
    alyvia0575 Member Posts: 4
    #30
    Anamckeown said:

    HI! I was diagnosed 1B1 as

    HI! I was diagnosed 1B1 as well and had chemo, internal & external radiation & eventually a hysterectomy in 2016. Ive had lower back pain off and on since. The radiation (I think the direct treatments) damaged my bladder, ureters & bwoel and I now have a colostomy and urostomy. I don't say that to scare you but i do wish I would have known that it was possible when I first started to have symptoms. I;ve had several surgeries and that could be the cause as well. Honestly I just think pelvic radiation is just so tough on your body...

    cervical cancer late term side affect going on 7 years now.

    I was treated for cervical cancer in 2012.  30 rounds of external radiation, 2 rounds of the brachiatherapy which is the internal radiation that is left inside of you for 40 straight hours each time and scheduled two weeks apart, and 5 rounds of cisplatin chemo.  As i write this June 4, 2021 I am sitting in a wheelchair recovering from a 4th hip surgery (revision this time and last resort) I have had two bladder surgeries due to damage from the radiation as well.  The pelvic radiation exposes all vital organs to the poison that is put into our bodies.  I have not had a quality of life since 2014 when I began to experience right hip pain and was told for 9 months that this was no way caused by the radiation treatment. I repeatedly asked my oncologist if this pain was from the radiation and was told no.  I have leaned on God which is the only way that I have been able to not give up.  I have walked with a walker, cane, or crutches since 2015 and have had many surgeries due to radiation damage to my body.  I do not want to come off as being ungrateful to be cancer free, but I am angry that the only source of treatment that health insurance companies approve is this poison.  My quality of life has been changed drastically in the last 7 years not to mention the pain level that I have experienced as well.  I welcome anyone to please share with me their experiences from pelvic radiation treatment for cervical cancer.  Unless a person has experience cancer they cannot fully grasp that a person does not go back to the life they had before cancer.  My life has not been the same on any level and I know it will never be.  Thank you all for hearing my heart.  

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,486 Member
    edited June 2021 #31
    Hello dear warriors.  I just

    Hello dear warriors.  I just wanted to pass along a recent this news. The anti–PD-1 antibody is being assessed as therapy for patients with recurrent or metastatic cervical cancer after positive results indicate improved responses with the monotherapy.

    https://www.cancernetwork.com/view/fda-grants-priority-review-balstilimab-cervical-cancer-after-chemotherapy?utm_source=sfmc&utm_medium=email&utm_campaign=06192021_CN_eNL_Promo%20ad_PER%20ASCO%20Satellites%20promo%20ad&eKey=ZV9kb2xpbmFyQGF0dC5uZXQ=

  • alyvia0575
    alyvia0575 Member Posts: 4
    edited June 2021 #32
    shintasafanna said:

    my mom's been diagnosed with cervical cancer recently

    hi everyone, i hope you all can get through this, may god grant your wishes to be free from cancer. 
    i just joined today, wishing everyone still active today.

    so my mom is been diagnosed with stage 1B cervical cancer, and the gyn oncologist has performed radical hysterectomy. now we are waiting for the pathology anatomy test for tissue and lymph nodes that had been removed by the hysterectomy procedure. we put a big hope that it will be free from cancer and my mom will not undergo adjuvant therapy like chemo and radiation. 

    the main problem right now is that my mom's mental health , i'm afraid that she's not welll prepared to accept this morover if she should undergo adjuvant therapy.

    i wish everyone here can help to tell my mom that chemo and radiation is not as bad as she thinks it is and that she can get through this hard time.

    long live cancer survivor!

    mom diagnosed

    I am praying that your mom has received good news and has not needed further treatment.  Radiation and chemo are different for each individual.  I personally was very sick from these treatments so I would not feel comfortable saying the opposite.  I am a cancer survivor but my treatment was very difficult.  Family support is very key to a loved one walking out the diagnosis and treatment.  Let them feel the way they feel and let them know you are there no matter what.  My family's support and leaning on God was how I made it through the very difficult treatment. Respectfully, Alyvia0575

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,486 Member
    edited September 2021 #33
    Potential new Standard of Care (SOC)

     

    Pembrolizumab/Chemo With or Without Bevacizumab May Represent New Frontline SOC in Cervical Cancer

    https://www.onclive.com/view/pembrolizumab-chemo-with-or-without-bevacizumab-may-represent-new-frontline-soc-in-cervical-cancer?utm_source=sfmc&utm_medium=email&utm_campaign=091721_OncLive_EIS-21-OSD1079_eNL_(US)%20ESMO%20Conf%20360_Eisai,Lenvima_1&eKey=ZV9kb2xpbmFyQGF0dC5uZXQ=

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,486 Member
    #34
    FDA Approves Tisotumab Vedotin-tftv for CC

    FDA Approves Tisotumab Vedotin-tftv for Recurrent or Metastatic Cervical Cancer

    https://www.onclive.com/view/fda-approves-tisotumab-vedotin-tftv-for-recurrent-or-metastatic-cervical-cancer

  • danielleduncan
    danielleduncan Member Posts: 2 *
    #35

    I’m here now!!! Diagnosed last week! I’m 34… total hysterectomy soon. Unsure of what’s next.

  • jcabello02
    jcabello02 Member Posts: 2 *
    #36
    https://csn.cancer.org/discussion/comment/1660807#Comment_1660807

    My bestfriend has stage 2 cervical cancer and isnt doing any medicine or chemo, just alkaline vegan dieting and spiritual guidance.


    idk i worried about her, but im learning more about cancer and what i can do for her, being there for her, understanding her pain everyday and understanding what shes going through but also staying positive. I do want to introduce her to RSO

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