The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Nice deal

AnotherSurvivor
AnotherSurvivor CSN Member Posts: 387 Member
in Head and Neck Cancer #1

Hi

I'm new but been lurking for a month.  I'm Stage III N-1 M-0 HPV-pos tonsillar.  Sentence was  for 33 rad, 8 chemo with Carbol-platin.  I have 0 chemos , 5 rads left.  came here looking for recovery tips, plus a few tips of my own.

 

#1 tip, I found a small medical supplier in Ohio that has a small but powerful mucos suction pump for $177 + shipping.  medicalresources.com.    the gomco 330A has been godsend.  I stopped spitting weeks ago.

#2 Boost Breeze is a clear 250cal per box nutrition drink I am more or less living on.  I find it more drinkable  than ensure clear, regular ensure is not possible for me.

Weight is problem right now.  I started at 218#, I'm down to <206# and wife, daughter, nurses are on me all the time.  I grew two pulmonary embolisms, so I'm now on blood thinners and a PEG is a major surgical risk.  All I can do is hunker down until end of rads in a week, and start to work on recovery.  Any and all tips appreciated.

Like Care

Comments

  • CivilMatt
    CivilMatt CSN Member Posts: 4,727 Member
    #2
    weight

    AnotherSurvivor,

    Get the calories, add olive oil, add vegetable oil, add peanuts, etc.  Anyuthing to get your smoothie calorie count up or whatever you eat.

    There are some super high calorie drinks discussed on here recently.  You might do a calorie search and see  what you find.

    I went from 218lbs. down to 173lbs., but am back up to 190lbs.  Obviously my taste buds are pretty good.

    Matt

    Like Care

Discussion Boards