Different Kind of Check in!

13

Comments

  • survivingsu
    survivingsu Member Posts: 134 Member
    #42
    Hi there!

    The check in is a great idea.  I'm still around but do not check the boards as frequently.  It's been 6 years since my undifferentiated small cell cancer adventure. 

    Sending good vibes to all!!!

    :0)

    Susan

  • debrajo
    debrajo Member Posts: 1,095 Member
    #43
    survivingsu said:

    Hi there!

    The check in is a great idea.  I'm still around but do not check the boards as frequently.  It's been 6 years since my undifferentiated small cell cancer adventure. 

    Sending good vibes to all!!!

    :0)

    Susan

    Good to see you!

    I am so glad to see you check in and that you are doing well!  Thanks for checking in!  Best, Debrajo

  • pinky104
    pinky104 Member Posts: 574 Member
    #44
    Still here

    Stage IVb UPSC with surgery May, 2010.  Had a spread to both ovaries, the omentum, and the small intestine, but no lymph nodes.  Had 6 rounds of carboplatin and taxol completed Sept., 2010.  Currently still NED.  Had bloodwork today and will see oncologist/hematologist next week for another 6 month check up (I also see him for hemochromatosis). I see my gyn/onc who did my surgery once a year now.  That will probably be in June.  Don't expect any change in my status.

  • Kathy G.
    Kathy G. Member Posts: 245 Member
    #45
    Hi Everyone!
    Debrajo, this

    Hi Everyone!

    Debrajo, this was a great idea! Thanks for thinking of it!

    Connie, thanks for asking about me!

    Yes, I was stage 1, grade 1 in 11/2012....surgery 1/2013...no further treatment necessary. I missed my December 2015 appointment due to my brother's sudden and unexpected death from a heart attack at 53. I just rescheduled for next week...having no problems and hope to hear 3 years clean!

    Cancer changed my life despite it's early stage. I had weight loss surgery in my continuing quest to be healthier.  Have lost 100+ pounds...and 75 was pre-op due to changing my eating habits. My oncologist said one of the contributing factors to my cancer was my obesity.

    I still have to deal with my heart issue, but it is manageable. I hope yours is doing okay, Debrajo!

    This board and the members have a special place in my heart due to all the love and support. It is just hard to come on and read some of the hard times many of you have or are experiencing, and we have lost quite a few ladies I felt close to.

    I also wonder about Sara Zippora and I forget the doctor's name...

    My best to ALL my sisters!

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #46
    Kathy G. said:

    Hi Everyone!
    Debrajo, this

    Hi Everyone!

    Debrajo, this was a great idea! Thanks for thinking of it!

    Connie, thanks for asking about me!

    Yes, I was stage 1, grade 1 in 11/2012....surgery 1/2013...no further treatment necessary. I missed my December 2015 appointment due to my brother's sudden and unexpected death from a heart attack at 53. I just rescheduled for next week...having no problems and hope to hear 3 years clean!

    Cancer changed my life despite it's early stage. I had weight loss surgery in my continuing quest to be healthier.  Have lost 100+ pounds...and 75 was pre-op due to changing my eating habits. My oncologist said one of the contributing factors to my cancer was my obesity.

    I still have to deal with my heart issue, but it is manageable. I hope yours is doing okay, Debrajo!

    This board and the members have a special place in my heart due to all the love and support. It is just hard to come on and read some of the hard times many of you have or are experiencing, and we have lost quite a few ladies I felt close to.

    I also wonder about Sara Zippora and I forget the doctor's name...

    My best to ALL my sisters!

    I'm sorry to hear of your

    I'm sorry to hear of your brother's sudden death.  My brother died of a massive heart attack in 1998 at the age of 37.  We worry about our cancer returning but after facing the unexpected death of a loved one, we realize nothing is guaranteed.  Congratulations on your weight loss and your continued NED!

    Love,

    Eldri

  • debrajo
    debrajo Member Posts: 1,095 Member
    #47
    Kathy G. said:

    Hi Everyone!
    Debrajo, this

    Hi Everyone!

    Debrajo, this was a great idea! Thanks for thinking of it!

    Connie, thanks for asking about me!

    Yes, I was stage 1, grade 1 in 11/2012....surgery 1/2013...no further treatment necessary. I missed my December 2015 appointment due to my brother's sudden and unexpected death from a heart attack at 53. I just rescheduled for next week...having no problems and hope to hear 3 years clean!

    Cancer changed my life despite it's early stage. I had weight loss surgery in my continuing quest to be healthier.  Have lost 100+ pounds...and 75 was pre-op due to changing my eating habits. My oncologist said one of the contributing factors to my cancer was my obesity.

    I still have to deal with my heart issue, but it is manageable. I hope yours is doing okay, Debrajo!

    This board and the members have a special place in my heart due to all the love and support. It is just hard to come on and read some of the hard times many of you have or are experiencing, and we have lost quite a few ladies I felt close to.

    I also wonder about Sara Zippora and I forget the doctor's name...

    My best to ALL my sisters!

    Hey Ladies!

    This is great!  Kathy G., Pinky, all of you!  Sorry sorry for your lose Kathy...so young!  I have children older than that!  I am fine so far as I know.  Passed my five years clear last Oct, and had the second aortic heart valve placed almost a year ago come March.  Other junk, but such is life!  Keep checking in girls...I have tried to find Sara Zippora, but no luck.  Y'all don't be strangers...stop by and at least give us a wave!  Best Debrajo

  • laurafitz
    laurafitz Member Posts: 1
    #48
    Very new to the site

    Greetings,

    I just joined the group today. It was recommended by the uterine cancer support group at cancerconnect. My birthday was the 20th. I turned 63. I am just 6 month out from chemo and brachytherapy after complete hysterectomy with dx of UPSC. I feel fabulous, hair has grown back curly. back to my daily swimming routine. So far so good. I am too just trying to find the balance between being scared that every little pain is a new concern & its never going to get me again. I accept that it is a journey and I treasure the support that I find in other's stories. Love and good juju to you all.  Laura

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #49
    laurafitz said:

    Very new to the site

    Greetings,

    I just joined the group today. It was recommended by the uterine cancer support group at cancerconnect. My birthday was the 20th. I turned 63. I am just 6 month out from chemo and brachytherapy after complete hysterectomy with dx of UPSC. I feel fabulous, hair has grown back curly. back to my daily swimming routine. So far so good. I am too just trying to find the balance between being scared that every little pain is a new concern & its never going to get me again. I accept that it is a journey and I treasure the support that I find in other's stories. Love and good juju to you all.  Laura

    Welcome to the group, Laura!

    Welcome to the group, Laura!  I was also diagnosed with Stage II UPSC.  It's good to hear you're doing great.  Here's to many more years of feeling fabulous!!  LOL

    Love,

    Eldri

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    #50
    laurafitz said:

    Very new to the site

    Greetings,

    I just joined the group today. It was recommended by the uterine cancer support group at cancerconnect. My birthday was the 20th. I turned 63. I am just 6 month out from chemo and brachytherapy after complete hysterectomy with dx of UPSC. I feel fabulous, hair has grown back curly. back to my daily swimming routine. So far so good. I am too just trying to find the balance between being scared that every little pain is a new concern & its never going to get me again. I accept that it is a journey and I treasure the support that I find in other's stories. Love and good juju to you all.  Laura

    Welcome Laura

    This is a good place to come.  Many kind, caring, and knowing ladies.  I was diagnosed in Aug. 2012 with serous papillary endometrial andocarsinoma. It is stage IV high grade.  Altogether I have had 28 chemo treatments, 28 external radiation treatments, and 2 brachytherapy.  I have many more good days than bad and have much to be thankful for.  Although I wish I didn't have this beast in my life, cancer has shown me how truely blessed I am.  Hope you have many, many years of dancing with NED.  Hugs and prayers, Lou Ann

  • debrajo
    debrajo Member Posts: 1,095 Member
    #51
    laurafitz said:

    Very new to the site

    Greetings,

    I just joined the group today. It was recommended by the uterine cancer support group at cancerconnect. My birthday was the 20th. I turned 63. I am just 6 month out from chemo and brachytherapy after complete hysterectomy with dx of UPSC. I feel fabulous, hair has grown back curly. back to my daily swimming routine. So far so good. I am too just trying to find the balance between being scared that every little pain is a new concern & its never going to get me again. I accept that it is a journey and I treasure the support that I find in other's stories. Love and good juju to you all.  Laura

    Hi!

    Glad you found us!  I didn't find the group til I had been done with everything over a year!  I am only as sane as I am now due to this group!  I am UPSC also.  Fear of it coming back never leaves, but we manage to shove it into the back ground most days!  BTW, I am a five year and counting survivor!  Best, Debrajo

  • Editgrl
    Editgrl Member Posts: 903 Member
    #52
    laurafitz said:

    Very new to the site

    Greetings,

    I just joined the group today. It was recommended by the uterine cancer support group at cancerconnect. My birthday was the 20th. I turned 63. I am just 6 month out from chemo and brachytherapy after complete hysterectomy with dx of UPSC. I feel fabulous, hair has grown back curly. back to my daily swimming routine. So far so good. I am too just trying to find the balance between being scared that every little pain is a new concern & its never going to get me again. I accept that it is a journey and I treasure the support that I find in other's stories. Love and good juju to you all.  Laura

    Hi, Laura.

    Welcome.  These women are wonderful sources of information and support, and while I wish you didn't have to be here, you have come to safe and warm place.  Sending good juju back at ya!

    Chris

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    #53
    Editgrl said:

    Hi, Laura.

    Welcome.  These women are wonderful sources of information and support, and while I wish you didn't have to be here, you have come to safe and warm place.  Sending good juju back at ya!

    Chris

    Welcome Laura

    Glad you found us and also that you are finished with treatments! I have one more Brachy to go and I'll join that finished group. :-)

    Like others have said, this is a great group of women to bounce things off of.

    Love and Hugs,

    Cindi

  • lkchapman
    lkchapman Member Posts: 106
    #54
    Still here since 2009. UPSC

    Still here since 2009. UPSC stage 3C. Haven't checked in for a long time.

     

  • marieinlv
    marieinlv Member Posts: 47
    #55
    CHECKING IN

    Hi to you all. I'm very happy to say i have not had a reaccurance since my surgery for UPSC in Nov, 2010. My side affects from all this have really improved. I'm not sure i will ever be the same, but the bone pain stopped, the pains in the lower abdomen (scar tissue?) are mostly gone.

    I have a normal CA-125, which was a good marker originally.

    I have monitored this group off and on, it is always hard to hear that any of you are battling with this still, or again.

                                                                                           Keeping in touch, Marie

  • debrajo
    debrajo Member Posts: 1,095 Member
    #56
    lkchapman said:

    Still here since 2009. UPSC

    Still here since 2009. UPSC stage 3C. Haven't checked in for a long time.

     

    Hey Ladies!

    So very glad to see both of you checking in!   You two have been here as long as I have, or here when I got here.  Both of you with UPSC...I knew there were other long timers, just forgot the names!  Happy Dance!  Best, Debrajo

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #57
    lkchapman said:

    Still here since 2009. UPSC

    Still here since 2009. UPSC stage 3C. Haven't checked in for a long time.

     

    Thank you for posting!  It

    Thank you for posting!  It gives others, myself included, hope after being diagnosed with UPSC.

    Love,

    Eldri

  • EZLiving66
    EZLiving66 Member Posts: 1,483 Member
    #58
    marieinlv said:

    CHECKING IN

    Hi to you all. I'm very happy to say i have not had a reaccurance since my surgery for UPSC in Nov, 2010. My side affects from all this have really improved. I'm not sure i will ever be the same, but the bone pain stopped, the pains in the lower abdomen (scar tissue?) are mostly gone.

    I have a normal CA-125, which was a good marker originally.

    I have monitored this group off and on, it is always hard to hear that any of you are battling with this still, or again.

                                                                                           Keeping in touch, Marie

    Thank you for posting, Marie!

    Thank you for posting, Marie!  Seeing your survival, it gives the rest of us UPSC patients hope that this type of uterine cancer can be beat.  Did you have chemo and radiation?  What stage were you?

    Love,

    Eldri

  • Unknown
    Unknown
    #59
    lkchapman said:

    Still here since 2009. UPSC

    Still here since 2009. UPSC stage 3C. Haven't checked in for a long time.

     

    Hi, I recognize your name from old posts.

    I often read old posts, and wonder where some of you ladies are and how you are.  (I automatically assume you are well Smile)  Thank you for checking in with us newer ones, it takes courage to come back and visit this site, but then it takes courage to handle UPSC (and other cancers).  Hugs Nancy

  • libby.sparks
    libby.sparks Member Posts: 12
    #60
    checking in

    HI 

     

    Just checking in with someone out there. Libby Sparks, Serous Papillary Endometrial Cancer IVB. 6th chemo cycle Carbo/Taxol scheduled tomorrow. 

  • libby.sparks
    libby.sparks Member Posts: 12
    #61
    marieinlv said:

    CHECKING IN

    Hi to you all. I'm very happy to say i have not had a reaccurance since my surgery for UPSC in Nov, 2010. My side affects from all this have really improved. I'm not sure i will ever be the same, but the bone pain stopped, the pains in the lower abdomen (scar tissue?) are mostly gone.

    I have a normal CA-125, which was a good marker originally.

    I have monitored this group off and on, it is always hard to hear that any of you are battling with this still, or again.

                                                                                           Keeping in touch, Marie

    Your wonderful experience

    Hi Marie

    Iam thrilled to read your post. I too have UPSC, stage IVB. Radical surgery 8/4/2015. Of 52 lymph nodes resected one pelvic node had patchy isolate cancer cells. The tumor had a "pushing border" and they could not say for sure that the tumor infiltrated the myometrium. I think those factors are both in my favor. Not in my favor was metastasis to the colon, bladder, peritoneum, implants on both diaphragms. All visible cancer was resected (including bowel and bladder resection). 

    Anyway, it's really scary to read about recurrenct risk (50-80%) for USPC in the medical literature. I am planning to meet with Dr Alessandro Santin at Yale in 2 weeks. He has been developing a monoclonal antibody (MAB) called Solitomab for USPC. I'm hoping to survive long enough to be a candidate for Solitomab IF the cancer recurs.

    Are you comfortable sharing the details of your journey? I'm sorry if you've previously posted those. Just anxious to hear about your experience since you're surviving beyond 5 years. 

    Many thanks

    Libby Sparks

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