The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Insurance companies are ridiculous

Ruthmomto4
Ruthmomto4 CSN Member Posts: 708 Member

in my last post I had said my husband's CEA has crept up from 1.34 to 4.88. He is stage 4 with a liver resection for two mets last October. MRI in May  showed an 8mm non specific enhancing nodule at the hepatic flexure adjacent and inferior to the resection margin. Onc ordered a PET insurance denies it saying there is not enough to warrant it. Furiuos does not even begin to cut it, they said he has to have a ct scan first then if they see something they will allow the pet.  More time lost, more money spent. Now today my husband told me he is having a on and off stabbing pain right where his liver is. I am a nervous wreck, but trying to hold it together. 

Comments

  • Trubrit
    Trubrit CSN Member Posts: 5,814 Member
    Standard

    It is sad to say, but it really seems like standard procedure for insurances to deny a PET scan. Both of mine have been denied, so my Oncologist told me to go ahead and get them, and they would fight the insurance company for me. Thank God I did, as the CT Scan did not pick up on my liver tumour, but the PET scan did. 

    Good luck with the PET, I know it will be cleared at some point. I hope your it comes out celar, but the not knowing could possibly be causing your husband's pain.  The mind can play tricks on the body, I know because it happens to me all of the time. So, here's hoping that the pain goes away and all it is is stress caused. 

    Sue - Trubrit