We have made the decision to call in hospice

mommaellen
mommaellen Member Posts: 195
in Breast Cancer #1

After talking with my oncologist and finding out that my mets on my liver and spine are still growing I talked with my kids and we made the decison to stop treatments and call in hospice.  The chemo was doimg more harm than good.  Due to the mets on my spine I am unable to walk without a walker and I have been told that it is going to get sorse.  My bedroom has been moved to the living room due to the fact that I cant walk up the 12 steps.  Although I do not go out much I am able to make it down the 3 steps on the porch with help.  This was one of the toughest decisions that I have ever made in my life.

 

Hugs,

 

Mommaellen

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Comments

  • GlowMore
    GlowMore Member Posts: 789 Member
    #2
    Peace ...

    Sending you Prayers for Peace and Courage.  I know that Hospice is Wonderful and they will help you with that terrible pain and they will help your Family in so very many ways.  We are all here for you so I hope you will post as often as you wish, knowing we are sending you our Love....  Our Lord has promised us His Peace....it is what we cling to....you are a very brave woman to be able to make this hard decision....but please do take it day by day....because this isn't an end but a beginning.  With Love, Gloria  

  • New Flower
    New Flower Member Posts: 4,294
    #3
    GlowMore said:

    Peace ...

    Sending you Prayers for Peace and Courage.  I know that Hospice is Wonderful and they will help you with that terrible pain and they will help your Family in so very many ways.  We are all here for you so I hope you will post as often as you wish, knowing we are sending you our Love....  Our Lord has promised us His Peace....it is what we cling to....you are a very brave woman to be able to make this hard decision....but please do take it day by day....because this isn't an end but a beginning.  With Love, Gloria  

    you are not alone

    you made a very hard decision, and I admire yoy bravery. I hope they will help with pain, loving environment. We are here for you. I hope you have become stronger as you are off chemo and will enjiy spring walking in your neibohood

    Hugs

  • camul
    camul Member Posts: 2,537
    #4
    I am sorry that it is time to make that decision.
    It has been one topic that I, with my onc have been kicking around with onco's just not quite there yet, however, made a very hard decision. I chose the Hospice group I want to use. That in itself was not easy. There.are so many here.
    ELLEN, I wish you the best, painfree time of your life. Just being off chrmo will be an improvement in how you feel.
    Sending Big Hugs and prayers.
    Carol
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #5
    camul said:

    I am sorry that it is time to make that decision.
    It has been one topic that I, with my onc have been kicking around with onco's just not quite there yet, however, made a very hard decision. I chose the Hospice group I want to use. That in itself was not easy. There.are so many here.
    ELLEN, I wish you the best, painfree time of your life. Just being off chrmo will be an improvement in how you feel.
    Sending Big Hugs and prayers.
    Carol

    You are so brave ... Ellen

    Prayers for peace, and pain free days.   I am so so very sorry.

     

    Vicki Sam

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #6
    HUGSSSSSSSSSSSSSSSS

    HUGSSSSSSSSSSSSSSSS

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #7
    disneyfan2008 said:

    HUGSSSSSSSSSSSSSSSS

    HUGSSSSSSSSSSSSSSSS

    We're here for you

    Ellen,

    Though I'm sure it was a difficult conversation, I'm glad you were able to talk it through with your family. I hope your days are pain-free, surrounded by loving peace, and there are moments of pure joy with those you love.

    You and your family are in our hearts and prayers.

    xoxo

    Victoria  

  • 1surfermom
    1surfermom Member Posts: 396 Member
    #8
    aisling8 said:

    We're here for you

    Ellen,

    Though I'm sure it was a difficult conversation, I'm glad you were able to talk it through with your family. I hope your days are pain-free, surrounded by loving peace, and there are moments of pure joy with those you love.

    You and your family are in our hearts and prayers.

    xoxo

    Victoria  

    Wishing you peace and comfort

    MommaEllen,

    You are very brave  and from your post I can tell that you are very loved. I too am glad that you were able to talk with your family and make such a difficult decision. I wish you peace and comfort. Love Surf

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #9
    1surfermom said:

    Wishing you peace and comfort

    MommaEllen,

    You are very brave  and from your post I can tell that you are very loved. I too am glad that you were able to talk with your family and make such a difficult decision. I wish you peace and comfort. Love Surf

    Oh my

    That must have been a difficult decision.  I wish you a good quality of life without chemotherapy so you can love your family to the fullest.

    Hugs,

    Suzanne

  • cati0314
    cati0314 Member Posts: 203
    #10
    Peace

    Hi MommaEllen,

     

    I had called hospice for my husband over 8 years ago.  He wanted to stay at home, which he did.  Hospice came whenever they were needed.  They showed me how to care for him.  It was a labor of love.  The end came peacefully early one morning.  I talked to him the whole time.  Hospice will give you the peace and painfree time you need to spend with your family and be comfortable in your home.  You will not suffer.  God loves you.  We all do.  

     

    Peace dear sister,

    Sharon

  • Clementine_P
    Clementine_P Member Posts: 518 Member
    #11
    cati0314 said:

    Peace

    Hi MommaEllen,

     

    I had called hospice for my husband over 8 years ago.  He wanted to stay at home, which he did.  Hospice came whenever they were needed.  They showed me how to care for him.  It was a labor of love.  The end came peacefully early one morning.  I talked to him the whole time.  Hospice will give you the peace and painfree time you need to spend with your family and be comfortable in your home.  You will not suffer.  God loves you.  We all do.  

     

    Peace dear sister,

    Sharon

    MommaEllen

    I admire your very brave decision.  I'm wishing you peace and comfort that the very many days you have ahead of you will be filled with family, happiness and love.

    Sending you strength,

    Clementine

  • andi44
    andi44 Member Posts: 196 Member
    #12
    MommaEllen

    Ellen,

    I'm so very sorry that you've come to this fork in the road - from reading past posts/disucssions, it appears you have a loving family at your side.  My thoughts and prayers are with you and your family during this difficult time...hugs to you...

  • tasha_111
    tasha_111 Member Posts: 2,072
    #13
    mommaellen

    Very brave of you, and wishing you only the very best quality of life now you are off chemo.  Good decission, I would not do chemo ever again.  Hugs hun xx

  • Josie21
    Josie21 Member Posts: 382 Member
    #14
    Thinking of you

    Hi Mommaellen,

    I admire your brave decision as well.  I hope calling in hospice will give you quality, pain free time with your friends and family.  God Bless you and your family.

    Hugs,

    Ginny

  • rutzetta
    rutzetta Member Posts: 174
    #15
    Brave and Special Lady

    I will keep you and your family in my prayers during this journey .

    constance

  • Flame825
    Flame825 Member Posts: 24
    #16
    Prayers

    Prayers love and peace now and when your transition comes.  

  • gagee
    gagee Member Posts: 332
    #17
    your strength ..

    My prayers are with you thoughout this whole ordeal. Your stengh is to be admired. Hoping your days without chemo give you quality of time with your family. Giving you days of  peace,joy and happiness. 

    Prayers and hugs to you and your, Diana 

  • MrsBob
    MrsBob Member Posts: 77
    #18
    Prayers going up for you!

    Prayers going up for you!

  • GreeneyedGirl
    GreeneyedGirl Member Posts: 1,077
    #19
    MrsBob said:

    Prayers going up for you!

    Prayers going up for you!

    Hugs and prayers~

    I can only imagine the tough decisions you have had to make, and processing the information your doctors are giving you. Praying for you and your family~

    ~Melanie

     

     

     

     

     

  • Pixie Dust
    Pixie Dust Member Posts: 424 Member
    #20
    Prayers heading your way

    Mommaellen, I am so sorry your treatments are not working. Hospice is surely a nice decision to go when pain gets bad.

    They are truly wonderful having them around for you. May you have peace and comfort these days ahead of you enjoying your children and family while you are not on chemo. Alot of pink sisters will see this post and will be praying for you. God works in mysterious ways, such ways as can you get a second or third opinion and kiss this beast in its **** and show who has won.  (HUGS AND PRAYERS)  Pixie

  • carkris
    carkris Member Posts: 4,553 Member
    #21
    Pixie Dust said:

    Prayers heading your way

    Mommaellen, I am so sorry your treatments are not working. Hospice is surely a nice decision to go when pain gets bad.

    They are truly wonderful having them around for you. May you have peace and comfort these days ahead of you enjoying your children and family while you are not on chemo. Alot of pink sisters will see this post and will be praying for you. God works in mysterious ways, such ways as can you get a second or third opinion and kiss this beast in its **** and show who has won.  (HUGS AND PRAYERS)  Pixie

    Hugs for you. I hope your

    Hugs for you. I hope your pain eases and you spend wonderful time with your family

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