Cancer treatment & Multiple Sclerosis

gracesmiles52
gracesmiles52 Member Posts: 10
in Breast Cancer #1

Hi, does anyone out there have Multiple Sclerosis and Breadt Cancer? I am facing a Mastsectomy, chemo,radiation and then pills. I am concerned about the treatment and an MS relapse. How will the MS respond with the toxins and poisons (chemo & radiation). If anyone has any advice on this I Would appreciate it.

Thank you,

Kathy

Comments

  • GlowMore
    GlowMore Member Posts: 789 Member
    #2
    MS & Cancer

    My Step Daughter had Myeloma Cancer and then MS but not at the same time.   It seems to me that you should be able to ask your Oncologist about this and don't blame you at all for your concerns of course.  Keep checking in here and posting and maybe someone will know more than I do.  My Step Daughter is still with us and she has been fighting this for over 25 years now.   Prayers for you for Strength and for Answers to your questions.  Glo

  • gracesmiles52
    gracesmiles52 Member Posts: 10
    #3
    GlowMore said:

    MS & Cancer

    My Step Daughter had Myeloma Cancer and then MS but not at the same time.   It seems to me that you should be able to ask your Oncologist about this and don't blame you at all for your concerns of course.  Keep checking in here and posting and maybe someone will know more than I do.  My Step Daughter is still with us and she has been fighting this for over 25 years now.   Prayers for you for Strength and for Answers to your questions.  Glo

    :)

    Thank you. I have had MS for over 20 years and wasso proud of myself to have been able to take myself off all meds (against my Neurologists advice) 1 month later my memory came, my legs walk straight and I feel 100% better. I still have fatigue and sometimes walk wobbly but I am so much better off being off the drugs. That is why this treatment goes against everything in me. I thnk I will ask for some thime to absorb and think this through. I am feeling overwhelmed. I normally wear rose colored glasses and always wear a smile. I did ask my Onc. and she said one of her MS patients went back into a wheelchair and they other one is not faring well. That makes me want to say NO to everything.This is a huge decision.

    Thank you for being here. 

  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
    #4
    Medical Jackpot

    Hi Kathy,

    In 2005 I was diagnosed with MS. I started taking Rebif. About 4 years later I was diagnosed with breast cancer. I had a complete axillary dissection, right mastectomy, port implanted, 16 rounds of chemotherapy and 2 reconstruction surgeries. I did not have radiation and since I was triple negative I did not have any hormone therapy. Yes indeed, I hit the medical jackpot. I took the Rebif for the first several rounds of chemo and then made the decision to take a Rebif sabbatical during the remainder of my rounds of chemo. My oncologist and neurologist kept in touch with each other during my treatment. In fact, one of chemo drugs was altered specifically because I had MS. I was very fortunate in that I did not have any issues I could relate to my MS during my breast cancer treatment. I know that not everyone is so lucky in that regard. I also participate in an MS discussion board similar to this breast cancer board. There are several threads there devoted to MS and Breast Cancer. Take a look at www.msworld.org/forum.

    I would be happy to answer any questions you might have and see if I can be of any help. It IS doable. I wish you the best of luck. 

    IRENE

  • gracesmiles52
    gracesmiles52 Member Posts: 10
    #5
    jessiesmom1 said:

    Medical Jackpot

    Hi Kathy,

    In 2005 I was diagnosed with MS. I started taking Rebif. About 4 years later I was diagnosed with breast cancer. I had a complete axillary dissection, right mastectomy, port implanted, 16 rounds of chemotherapy and 2 reconstruction surgeries. I did not have radiation and since I was triple negative I did not have any hormone therapy. Yes indeed, I hit the medical jackpot. I took the Rebif for the first several rounds of chemo and then made the decision to take a Rebif sabbatical during the remainder of my rounds of chemo. My oncologist and neurologist kept in touch with each other during my treatment. In fact, one of chemo drugs was altered specifically because I had MS. I was very fortunate in that I did not have any issues I could relate to my MS during my breast cancer treatment. I know that not everyone is so lucky in that regard. I also participate in an MS discussion board similar to this breast cancer board. There are several threads there devoted to MS and Breast Cancer. Take a look at www.msworld.org/forum.

    I would be happy to answer any questions you might have and see if I can be of any help. It IS doable. I wish you the best of luck. 

    IRENE

    Thank you

    Thank you. This has been very helpful. I will go the website you suggested and look up Cancer and MS.

    Kathy

  • cinnamonsmile
    cinnamonsmile Member Posts: 1,187 Member
    #6
    My best friend had MS and

    My best friend had MS and IDC. She went through chemo and radiation. She handled chemo like I think most do. (I didn't have to have chemo so I can't speak from experience).

    All her doctors knew her MS and IDC, what meds she was on, any symptoms, etc etc. I think communication to doctors is the key. I don't assume all my doctors read all my reports thoroughly or communicate with each other.

    It's been over 10 years now and she is still cancer free!

    I wish you the best in your journeys!

     

  • onlinepillmart
    onlinepillmart Member Posts: 5
    #7
    Well both cancer as well as

    Well both cancer as well as sclerosis may increase further complication as cancer therapy will always have side effects on the body and the skin; which may increase more complication.

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