Three month scans show continued disease progression

My OVCA continues to progress. I'm dealing with both lung and liver mets. However, my dr. said he has three more drugs to try. He said if those don't work, maybe by then something else will come along. I will see a urologist on November 7. He said I will most likely have a stent put into one of my kidneys as one is not draining correctly due to enlarge lymph nodes in the area. He said I now have some activity in my lower vertebrate. He said we may consider radiation on that in the distant future should I begin to experience pain.

I have some activity in my thyroid which could eventually press against my trachea. He said should I begin to experience breathing difficulties we could look at radiation on this area. 

He did send a pathology report off to have it tested for possible effective drugs. Next Tuesday I will begin taking irinotecan. Anyone had experience with that one?

I asked him if I was a textbook OVCA case. He said, "No, you're better than a textbook case." I also told him that I had many people praying for me. He said,"They must be good at it." He's just so sweet and caring.

I hope all of you are doing well as fight this horrible disease together.

By the way, my scans are nearly always mixed. That is the case once again. I do have some node that shrank and some are now stable. 

 

Thanks Ladies,

 

Carla

Comments

  • Kaleena
    Kaleena Member Posts: 2,088 Member
    Hugs

    Carla:

    So sorry about your news, but I am glad you have a sweet and caring physician.    Please know that I will continue to pray for you.

    Sending you hugs.

    Kathy

  • Alexandra
    Alexandra Member Posts: 1,308
    Thinking of you Carla

    I hope irinotecan helps shrink those pesky mets. To my knowledge it is mostly used for colon cancer as part of FOLFIRI protocol, you may be able to find first-hand testimonials on the Colorectal board. I know of promising irinotecan studies (as single agent or together with cisplatin) for clear cell ovarian cancer conducted in Japan and in the UK.

    Lots of Love,

    Alexandra

     

  • Jue
    Jue Member Posts: 80
    Hello Carla , Im sorry to

    Hello Carla , Im sorry to hear of these test results , am thinking of you and hoping your next round of treatment does the trick  . Jue x

  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    Jue said:

    Hello Carla , Im sorry to

    Hello Carla , Im sorry to hear of these test results , am thinking of you and hoping your next round of treatment does the trick  . Jue x

    Dear Carla

    I'm so sorry that your disease has progressed (for now) but do not lose hope!  Your doctor (who sounds wonderful) still has good cards up his sleeve.  Sending lots of prayers and positive energy your way that the current chemo kicks your cancer to the curb!

    Warm hugs,

    Kelly

  • kikz
    kikz Member Posts: 1,345 Member
    So sorry

    for what you are going through, Carla.  I agree it is wonderful to have a doctor who has faith and an open mind.  We so need someone who believes we can do this.

     

    Karen

  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    kikz said:

    So sorry

    for what you are going through, Carla.  I agree it is wonderful to have a doctor who has faith and an open mind.  We so need someone who believes we can do this.

     

    Karen

    Hang in there

    this Cancer is so mean.....I am glad your Doctor has a good plan...hopefully you won't need radiation....stay strong..Val 

    2014-10-25

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    Thinking of you Carla! Kim

    Thinking of you Carla! Kim

  • seatown
    seatown Member Posts: 261 Member
    Hoping for the best

    Just wanted to say that I've seen your posts over the months, & I too am hoping for the best for you. Stay strong, & best wishes. A good doc means everything!

    Carole