"Double-Boarder" Triple ?
Comments
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diagnosis & treatmentyesyes2 said:I agree with you Max. But
I agree with you Max. But want to share a story that I saw unfold that really made me angry. I know of a women who was recently diagnosed with DLBC lymphoma, stage 4, do not know sub type. Because it was stage 4 and her doctor felt it would be a difficult treatment they decided to not treat. This decision made my blood boil as most lymphomas are treatable and would have possibly given her more time. But no, no treatment. Directly into hospice and she died about 3 weeks later. Very sad. I don't know of any treatment of DLBC that would be that bad to not even try once. I've done chemo for breast cancer (CMF) and 6 rounds of RCHOP neither of which I wouldn't do again if need be. Just my rant. All stages of lymphoma are at least treatable in some way. Makes me both angry and sad.
When I was diagnosed the Drs I met with all gave a message of hope. What I read online gave a message of hope. Yes I read some downer stories too but that message of hope was - there are many drugs for lymphoma that are very successful.
When I talked to my family I passed along the message of hope. When I talked to people at work, I passed along the message of hope. I got a lot of positive support and encouragement even though several years ago we lost a co-worker to Multiple Myeloma.
Yet in my husband's family there were several who started the conversation with "Are you dong to die?" before I even had a chance to tell them anything. One of them kept telling me I was in realy bad shape even though every time I talked to them I told them I was doing good.
This kind of negative behavior terrible. It is so much worse when it is coming from a medical cancer specialist. Maybe that woman you knew did n't have a good chance but they should have tried. Heck, PoGuy's story should be proof to show the Drs aren't always right.
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Yes !lindary said:diagnosis & treatment
When I was diagnosed the Drs I met with all gave a message of hope. What I read online gave a message of hope. Yes I read some downer stories too but that message of hope was - there are many drugs for lymphoma that are very successful.
When I talked to my family I passed along the message of hope. When I talked to people at work, I passed along the message of hope. I got a lot of positive support and encouragement even though several years ago we lost a co-worker to Multiple Myeloma.
Yet in my husband's family there were several who started the conversation with "Are you dong to die?" before I even had a chance to tell them anything. One of them kept telling me I was in realy bad shape even though every time I talked to them I told them I was doing good.
This kind of negative behavior terrible. It is so much worse when it is coming from a medical cancer specialist. Maybe that woman you knew did n't have a good chance but they should have tried. Heck, PoGuy's story should be proof to show the Drs aren't always right.
All of what you wrote I experienced a lot of, Linda.
While not open about it, there seems to be an assumption among many, if not most, people that a cancer diagnosis comes with a date to die by, set by the doctor. It is just part of the baggage. But if you try to convince them that the prognosis is very good, they sort of smile and nod -- as if they view you then in denial. Six years well since chemo, people at Church still act as if they expect me to collapse on the floor, and be done with....
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The docs were correctYes !
All of what you wrote I experienced a lot of, Linda.
While not open about it, there seems to be an assumption among many, if not most, people that a cancer diagnosis comes with a date to die by, set by the doctor. It is just part of the baggage. But if you try to convince them that the prognosis is very good, they sort of smile and nod -- as if they view you then in denial. Six years well since chemo, people at Church still act as if they expect me to collapse on the floor, and be done with....
.
Cousin died in Charleston a few hours ago. He was conscious yesterday. 63 years of age.
Home hospice. He was diagnosed just a few weeks ago, doctors said he was untreatable, tumors covering all abdominal organs: Liver, pancreas, etc. I don't think they even ID'ed where it satrted. They gave him weeks to two months; weeks was the better guess. He was one of the only male cousins I had in Charleston growing up; most other relatives were scattered all over. Loved hunting, sports; he was a champion Golden Gloves boxer, football star.
I am fine. Bless everyone. You never know.
max
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Sorry MaxThe docs were correct
Cousin died in Charleston a few hours ago. He was conscious yesterday. 63 years of age.
Home hospice. He was diagnosed just a few weeks ago, doctors said he was untreatable, tumors covering all abdominal organs: Liver, pancreas, etc. I don't think they even ID'ed where it satrted. They gave him weeks to two months; weeks was the better guess. He was one of the only male cousins I had in Charleston growing up; most other relatives were scattered all over. Loved hunting, sports; he was a champion Golden Gloves boxer, football star.
I am fine. Bless everyone. You never know.
max
I am going thru a similar situation with a sister. Its hard.
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So sorry
We are so sorry for you both, Max and GKH. No matter how much knowledge we have on the subject or how much we think we are prepared, we never really are. Our thoughts are with you and know that you will and are a comfort to your families.
Our best, Bill & Becky
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condolencesThe docs were correct
Cousin died in Charleston a few hours ago. He was conscious yesterday. 63 years of age.
Home hospice. He was diagnosed just a few weeks ago, doctors said he was untreatable, tumors covering all abdominal organs: Liver, pancreas, etc. I don't think they even ID'ed where it satrted. They gave him weeks to two months; weeks was the better guess. He was one of the only male cousins I had in Charleston growing up; most other relatives were scattered all over. Loved hunting, sports; he was a champion Golden Gloves boxer, football star.
I am fine. Bless everyone. You never know.
max
Sorry to hear your cousin has passed.
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Even dogs !
Took our 10 year old pointer to vet today, had been losing weight and weak. Vet x-rayed, massive tumor covering spleen and liver, blocking stomach. Told me very likely a form of lymphoma, said spleen could rupture at any time, killing him instantly.
Had to euthanize. Damn ! Even my dog !
max
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MaxEven dogs !
Took our 10 year old pointer to vet today, had been losing weight and weak. Vet x-rayed, massive tumor covering spleen and liver, blocking stomach. Told me very likely a form of lymphoma, said spleen could rupture at any time, killing him instantly.
Had to euthanize. Damn ! Even my dog !
max
I am so very sorry. . .
Big (hugs),
Rocquie
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Oh NO1
Oh Max, so very sorry to hear about your dog. I know how hard it is to lose our fur friends. At the same time I was going through Chemo my cat Neo was diagnosed with Lymphoma. His tumors were exactly where mine were. Want you to know that you did good by your dog and not letting him suffer. Sending good thought along with hugs.
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Sad...
Sorry you had to experience this on top of the rest.
I, too, had to have my twelve-year-old spaniel euthanized three years ago, when it seemed that there was no longer anything for her to enjoy in her day. Not a day goes by without a fond memory of her. She set a high example for bearing it all with equanimity.
PBL
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So sorry
No matter how long we live or what we have been through, we always seem to be jerked into reality, at least temproarily, by the loss of a dear pet. Hope you and your family are okay, the loss of a pet always seems to make our problems worse for awhile. I grew up with a pointer named Judge, he was so wonderful. He spent many happy days pointing at the banty chickens in our back yard.
We are thinking of you and your family,
Bill & Becky
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Loss of Pet
Sorry to hear about the loss of your dog. We have lost 2 previous dogs to the disease long before I was diagnosed. One seemed to be in the digesstive system and the other was bone cancer. Both were 10 years old at the time. They will be waiting for us at the Rainbow Bridge.
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So sorryEven dogs !
Took our 10 year old pointer to vet today, had been losing weight and weak. Vet x-rayed, massive tumor covering spleen and liver, blocking stomach. Told me very likely a form of lymphoma, said spleen could rupture at any time, killing him instantly.
Had to euthanize. Damn ! Even my dog !
max
Max, how absolutely horrible. I have no words of comfort to offer and I'm so sorry for your loss. My pets are a part of my family and they effortlessly gives love, peace and happiness to my world. I lost my 18 year old cat to cancer just after we rang in year 2000. It was hell. I cared for him for months and it was miserable to see him fail. At least you offered him a peaceful loving departure.
Blessings to you, may you find peace.
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Adieu
Friends,
I'm planning an extended furlough from the site, like my best friend's before me, which began a few weeks ago.
The administration here leave so much to be desired...
Until soon,
max
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Deluge
I am getting so many responses via mail that let me clarify: I am not quitting the Boards.
Everyone: your feedback is deeply appreciated. I just need a breather (no pun from an asthmatic).
When I think of how wonderful the people are here, I recall the great American poem To a Waterfowl that I learned in high school. One line read:
Deeply hath sunk the lesson thou hast given/
And shall not soon depart.
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Max
When I first read your statment I thought you were leaving the boards permanently. I am glad to see that you are taking a "vacation". You are like the favorite uncle who is always there to listen and give guidance and support. But even favorite uncles need to take a vaction now and then. Enjoy your break.
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Surreal
Linda,
I never used any Boards when I had lymhpoma; it was nearly three years into remission that I joined CSN. I don't even recall why. The prostate issue began years after that.
Many of my battles with friends with cancer were not online, but in person, face-to-face: I have lost three friends whom I knew well, and several others whom I knew somewhat from the infusion center, but who were dear, and later passed.
I have neer been a 'social media' person (I use no social media at all), but the friends I have made here I could never voluntarily depart from.
max
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